Browse Items (267 total)
- Tags: Death
Delivery Room Deaths Of Extremely Preterm Babies: An Observational Study
Many extremely preterm neonates die in the delivery room (DR) after decisions to withhold or withdraw life-sustaining treatments or after failed resuscitation. Specific palliative care is then recommended but sparse data exist about the…
Tags: 2016, Archives of Disease in Childhood. Fetal and Neonatal Edition, August 2016 List, Birth, Challenge, Comfort Care, Death, Decision Making, Delivery Room, Delivery Rooms, Dying, Epipage-2, Extreme Prematurity, Infant, Management, Palliative Care, Pediatrics, Perinatal Palliative Care, Perspectives, Weeks Gestation, X Durrmeyer
Dying Later, Surviving Longer
Home Care For Children With Multiple Complex Chronic Conditions At The End Of Life: The Choice Of Hospice Versus Home Health.
Living With Dying In The Pediatric Intensive Care Unit: A Nursing Perspective
Despite reported challenges encountered by nurses who provide palliative care to children, few researchers have examined this phenomenon from the perspective of nurses who care for children with life-threatening illnesses in pediatric…
Tags: 2016, American Journal of Critical Care, Analysis, Beliefs, Child, Compassion Fatigue, Critical Care Medicine, Critically Ill Children, Death, Experiences, Family, Grief, Health Aspects, Intensive Care Units Pediatric, J S, July 2016 List, Lockhart, Management, Nurses, Nursing, Opinions And Attitudes, Pediatric Intensive-care, Pediatric Nursing, Practice, Professionals, Stayer
Factors Influencing The Uptake Of Neonatal Bereavement Support Services – Findings From Two Tertiary Neonatal Centres In The Uk
Research on perinatal bereavement services is limited. The aim of the study was to compare the uptake of bereavement support services between two tertiary neonatal units (NNU), and to investigate influencing factors.
Method
The medical…
Tags: 2016, Autopsy, Bereavement, Bereavement Follow Up, BMC Palliative Care, Charanjit Kaur, Death, England, Ethnicity, Female, Humans, Infant, Infant Death, Infant Newborn, Intensive Care Units Neonatal, Jayanta Banerjee, June 2016 List, Male, Narendra Aladangady, Neonatal, Parents/psychology, Patient Acceptance Of Health Care/statistics & Numerical Data, Perinatal Care/utilization, Rahul Roy, Referral And Consultation/utilization, Social Support, Socio-economic, Socioeconomic Factors, Sridhar Ramaiah, Stillbirth/psychology
Storyboarding As An Aid To Learning About Death In Children's Nursing.
A Descriptive Report Of End-of-life Care Practices Occurring In Two Neonatal Intensive Care Units
In Canada and other developed countries, the majority of neonatal deaths occur in tertiary neonatal intensive care units. Most deaths occur following the withdrawal of life-sustaining treatments.
AIM:
To explore neonatal death events and…
Tags: 2016, Analgesics, Anesthesia, Death, Decision Making, End Of Life, End Of Life Care, Health Care Sciences & Services, Infant, Intensive Care, Journal of Palliative Medicine, Joynt C, Kain N, Lam V, March 2016 List, Medicine General & Internal, Neonatal, Neonatal Intensive Care Unit, Newborns, Nicu, Palliative Care, Patterns, Perspectives, Public Environmental & Occupational Health, Support Implementation, van Manen MA, Withdrawal
Death Talk: Basic Linguistic Rules And Communication In Perinatal And Paediatric End-of-life Discussions.
This paper considers clinician/parent communication difficulties noted by parents involved in end-of-life decision-making in the light of linguistic theory.
METHODS:
Grice's Cooperative Principle and associated maxims, which enable…
Tags: 2016, Communication, Consumer Health Information, Death, Decision Making, Decision-making, End-of-life Care, Female, Health Communication, Humans, Linguistics, Male, May 2016 List, Parents/psychology, Patient Education and Counseling, Pediatrics, Perinatal Death, Pregnancy, Professional-family Relations, Terminal Care/methods, Terminally Ill, Watkins A, Wilkinson D, Xafis V
Helping Parents Live With The Hole In Their Heart: The Role Of Health Care Providers And Institutions In The Bereaved Parents’ Grief Journeys.
Bereaved parents experience significant psychosocial and health sequelae, suggesting that this population may benefit from the ongoing extension of support and resources throughout the grief journey. The interaction of hospital staff with…
Tags: 2016, Analysis, Baker J, Bereaved Parent, Bereavement, Bereavement Program, Cancer, Child, Communication, Death, End Of Life, Gibson DV, Grief, Health Care Provider, Kaye EC, May 2016 List, Palliative Care, Parent And Child, Parents, Pediatric Oncology, Psychological Aspects, Snaman J, Torres C
Parents’ Experiences And Wishes At End Of Life In Children With Spinal Muscular Atrophy Types I And Ii.
To explore experiences and wishes of bereaved parents concerning end-of-life care for their child with severe spinal muscular atrophy.
STUDY DESIGN:
A follow-up survey was conducted in 2013 on parents of deceased Swedish children who were…
When Parents Face The Death Of Their Child: A Nationwide Cross-sectional Survey Of Parental Perspectives On Their Child’s End- Of Life Care.
Parents facing the death of their child have a strong need for compassionate professional support. Care services should be based on empirical evidence, be sensitive to the needs of the families concerned, take into account the…
Tags:
2016, Attitude Of Health Personnel, Attitude To Death, Bergstraesser E, BMC Palliative Care, Chantal Grandjean, Cross-sectional Studies, Death, Decision Making, End Of Life, Engberg S, Eva Cignacco
K, Female, Humans, Infant Newborn, Male, Marfurt-Russenberger, May 2016 List, Nicolas Von der Weid, Parental Perspectives, Parents/psychology, Patricia Fahrni-Nater, Pediatrics, Pediatrics/standards, Perception, Questionnaire Survey, Ramelet AS, Resuscitation Orders/psychology, Surveys And Questionnaires, Switzerland, Terminal Care, Terminal Care/standards, Von der Weid N, Zimmermann K
Adequacy Of Palliative Care In A Single Tertiary Neonatal Unit
Little is…
Listening To Parents: The Role Of Symptom Perception In Pediatric Palliative Home Care
This study analyzes symptom perception by parents and healthcare professionals and the quality of symptom management in a pediatric palliative home care setting and identifies which factors contribute to a high quality of palliative and…
Tags: 2016, Adult, Borasio GD, Brandstatter M, Cross-sectional Studies, Death, Duroux A, Dyspnea/diagnosis, Dyspnea/psychology, End-of-life Symptoms, Female, Führer M, Grasser M, Home Care Services/standards, Humans, Male, November 2016 List, Pain/diagnosis, Pain/psychology, Palliative & Supportive Care, Palliative Care/methods, Palliative Care/psychology, Parents/psychology, Pediatric Palliative Home Care, Pediatrics/methods, Perception, Quality Of Life/psychology, Retrospective Studies, Surveys And Questionnaires, Symptom Assessment/psychology, Symptom Perception, Vollenbroich R
Is It Taking Longer To Die In Paediatric Intensive Care In England And Wales?
INTRODUCTION:
All-cause infant and childhood mortality has decreased in the UK over the last 30 years. Advances in paediatric critical care have increased survival in paediatric intensive care units (PICUs) but may have affected how and when…
Tags: 2016, Archives of Disease in Childhood, Child, Childrens Hospitals, Complex Chronic Conditions, Death, Diseases, Health Aspects, Intensive Care, Intensive Care Units, Management, Mortality, October 2016 List, Outcomes Research, Parslow R, Pediatrics, Plunkett A, Prevalence, Risk Factors, Trends, Units
Modelling Neonatal Care Pathways For Babies Born Preterm: An Application Of Multistate Modelling.
Tags: 2016, Abrams KR, Babies, Barker L, Collaboration, Competing Risks, Data Analysis, Death, Draper ES, Funding, Health Sciences, Infant, Intensive Care, Length, Manktelow BN, Modi N, Multidisciplinary Sciences, October 2016 List, PLoS One, Population, Premature Babies, Seaton SE, Stay, Survival, Time, Variables
Rituals At End-of-life.
Mechanical Ventilation In Children With Life-limiting Conditions
Tags: 2016, Adult, Artificial Ventilation, Cancer Epidemiology, Cantero EQ, Carro CC, Cerebral Palsy, Child, Chromosome Disorder, Cognitive Defect, Controlled Study, Cross-sectional Studies, Cross-sectional Study, Death, European Respiratory Journal, Follow Up, Gaboli M, Garrido MM, Human, Lung Disease, Major Clinical Study, May 2017 List, Mucopolysaccharidosis, Neuromuscular Disease, Only Child, Palliative Care, Palliative Therapy, Pecellin ID, Quality Of Life, Respiration Artificial, Respiratory Insufficiency, Rodriguez LMR, Spain, University Hospital, Valencia JPG, Ventilators Mechanical, Young Adult
Listening To Parents: The Role Of Symptom Perception In Pediatric Palliative Home Care
Tags: 2016, Adult, Borasio GD, Brandstatter M, Cross Sectional Study, Death, Duroux A, Dyspnea/di [diagnosis], Female, Führer M, Grasser M, Home Care, Human, January 2017 List, Male, Pain/di [diagnosis], Palliative & Supportive Care, Palliative Therapy, Parent, Pediatrics, Perception, Procedures, Psychology, Quality Of Life, Questionnaire, Retrospective Study, Standards, Symptom Assessment, Vollenbroich R
The Provision Of Family-centred Intensive Care Bereavement Support In Australia And New Zealand: Results Of A Cross Sectional Explorative Descriptive Survey
Tags: 2016, Aust Crit Care, Bereavement, Coombs M, Critical Care, Death, Family, Grief, Hospice Care, June 2017 List, Mitchell M, Wetzig K
Children And Young Person Advanced Care Plans In District General Hospitals-who Gets Them?
The Unexpected Death Of A Child And The Experience Of Emergency Service Personnel
Communication About Dying, Death, And Bereavement: A Systematic Review Of Children's Literature
Counseling For Personal Care Options At Neonatal End Of Life: A Quantitative And Qualitative Parent Survey Psychosocial
Reframing US Maternity Care: Lessons Learned From End-of-Life Care
Tags: 2017, Caughey AB, Death, Decision Making, Delivery Obstetric, Female, Guidelines As Topic, Humans, Infant Newborn, Journal of Midwifery & Women's Health, Lowe NK, Maternal Health Services, Midwifery, November 2017 List, Palliative Care, Parturition, Patient Participation, Patient Safety, Patient-centered Care, Pregnancy, Snowden JM, Terminal Care, Tilden EL, United States
Guidance on forgoing life-sustaining medical treatment
Tags: 2017, Apparent Life Threatening Event/th [therapy], Article, Awareness, Boss RD, Caregiver, Carter BS, Child Abuse, Child Care, Christian CW, Clinical Decision Making, Comatose Patient, Consensus, Consultation, Critical Illness/th [therapy], Davies D, Death, Death By Neurologic Criteria, Dell ML, Developmental Disorder/th [therapy], Diekema DS, Disease Burden, Disease Course, Elster N, Ethical Decision Making, Extremely Low Gestational Age, Family Decision Making, Family Stress, Feudtner C, Flaherty EG, Fortson BL, Foster Care, Gavril AR, Gestational Age, Goal Attainment, Guinn-Jones M, Hauer JM, Health Belief, High Risk Population, Human, Humphrey LM, Hurley TP, Hydration, Idzerda SM, Imaizumi S, Imminent Death, Informed Consent, Intensive Care, Interpersonal Communication, Katz AL, Klick J, Klipstein S, Laskey A, Laventhal N, Legal Aspect, Legano LA, Leventhal JM, Life-sustaining Medical Treatment, Linebarger JS, Lord B, MacAuley RC, MacMillan H, Medical Ethics, Medical Expert, Medical Information, Medical Procedures, Medical Specialist, Medically Administered Nutrition And Hydration, Moon MR, Neglect, Neurologic Disease/di [diagnosis], November 2017 List, Nutrition, Okun AL, Opel DJ, Oxygenation, Pain/th [therapy], Palliative Therapy, Parker S, Patient Care Planning, Pediatrician, Pediatrics, Practice Guideline, Priority Journal, Prognosis, Quality Of Life, Resuscitation, Rivera F, shared decision making, Social Support, Spiritual Care, Statter MB, Stedt E, Survival, Teamwork, Terminal Care, Tissue Perfusion, Uncertain Prognosis, Weise KL
Pediatric chronic patients at outpatient clinics: A study in a Latin American University Hospital
Tags: 2017, Adolescent, Adult, Alveno RA, Cardiology, Carneiro-Sampaio M, Carvalho WB, Child, Chronic Patient, Controlled Study, Cross Sectional Study, Death, December 2017 List, Emergency Health Service, Emergency Ward, Endocrinology, Farhat SCL, Female, Hematology, Hojo ES, Hospital Admission, Hospitalization, Human, Intensive Care Unit, Jornal De Pediatria., Kidney Transplantation, Major Clinical Study, Male, Miranda CV, Nephrology, Neurology, Odone-Filho V, Oncology, Outpatient, Pain, Passone CG, Physician, Psychiatry, Rheumatology, Silva CA, Tannuri U, University Hospital, Waetge AR
A Sociocultural Approach to Children's Perceptions of Death and Loss.
Tags: 2017, anxiety, Attitudes Toward Death, Bereavement, Child Development, Cognition, Content Analysis (communication), Death, December 2017 List, Drawing, Drawings, Emotions (psychology), Fear, Grief, Interviewing, Loss, Omega: Journal Of Death & Dying, Phenomenography, Phenomenology, Prevention, Social Context, Soyeon P, Sungeun Y, Thematic Analysis, Young Children
Changes In Parents After The Death Of A Child From Cancer
Tags: 2012, Adaptation Psychological, Adult, Barrera M, Bereavement, Canada, Changes In Parents After The Death Of A Child From Cancer, Child, Davies B, Death, Dietrich MS, Emotions, Fairclough DL, Family/ Psychology, Female, Foster TL, Gerhardt CA, Gilmer MJ, Grollman J, Humans, Journal of Pain and Symptom Management, Male, Parents/ Psychology, Siblings/psychology, United States, Vannatta K
Home-Based Palliative Care for Children With Incurable Cancer: Long-term Perspectives of and Impact on General Practitioners
Tags: 2017, Bindels PJE, Cancer Epidemiology, Child, Controlled Study, Cross-sectional Study, Darlington ASE, Death, Distress Syndrome, Doctor Patient Relation, Fatigue, General Practitioner, Human, Human Versus Animal Comparison, Journal of Pain and Symptom Management, Major Clinical Study, Michiels EMC, Nonhuman, Oncology 2017 List, Pain, Palliative Therapy, Panic, Pieters R, Pluijm SMF, Powerlessness, Questionnaire, Sadness, Symptom, Thermometer, van den Heuvel-Eibrink MM, van der Geest IMM, van der Heide A
Influence of early phase clinical trial enrollment on patterns of end-of-life care for children with advanced cancer
Tags: 2017, Advanced Cancer, Al-Sayegh H, Ananth P, Child, Childhood Cancer, Clinical Trial, Cohort Analysis, Controlled Study, Death, Female, Health Care Utilization, Human, Ma C, Major Clinical Study, Male, Monsereenusorn C, Oncology 2017 List, Palliative Therapy, Pediatric Blood and Cancer, Rodriguez-Galindo C, Terminal Care, Wolfe J
Patterns of Care at the End of Life for Children and Young Adults with Life-Threatening Complex Chronic Conditions
Tags: 2017, Balkin Emily M, brain disease, central nervous system disease, Child, Chromosome Disorder, Comfort, Death, DeCourcey DD, Drug Withdrawal, Female, Human, Intensive Care Unit, January 2018 List, Life Sustaining Treatment, Lung Disease, Major Clinical Study, Male, Medical Record, Oladunjoye A, Palliative Therapy, Resuscitation, Silverman M, Study Design, Terminal Care, The Journal Of Pediatrics, Wolfe J, Young Adult
Losing Thomas & Ella: A Father's Story (A Research Comic)
Tags: 2017, Comics-based research, Death, Fathers, Fathers/ Psychology, Graphic Novels as Topic, Grief, Humans, January 2018 List, Journal Of Medical Humanities, Male, Narration, Narrative research, Perinatal Death, Qualitative Research, Research comics, Sequential art, Stillbirth, Weaver-Hightower MB
Intensive care bereavement practices across New Zealand and Australian intensive care units: a qualitative content analysis
Tags: 2017, Adult, Australia, Bereavement, Child, Coombs M, Critical Care Nursing, Death, Dying, End-of-life Care, Family, Female, Humans, Intensive Care, Intensive Care Units, Internet, James S, January 2018 List, Journal of Clinical Nursing, Male, Mitchell M, New Zealand, nursing role, Patient-centered Care, Practice Patterns Nurses', Surveys And Questionnaires, Wetzig K
"Some were certainly better than others" - Bereaved parents' judgements of healthcare providers in the paediatric intensive care unit: A grounded theory study
The impact of the social and physical environments on parent-healthcare provider relationships when a child dies in PICU: Findings from a grounded theory study
Association of mortality with the death of a sibling in childhood
Tags: 2017, Animals, Bereavement, causes of death, Children, Chordata, Cnattingius S, Cohort Studies, Death, death rate, Denmark, Developed Countries, Eukaryotes, Europe, European Union Countries, February 2018 List, Fu Bo, Hominidae, Homo, JAMA Pediatrics, Li Jiong, Liew ZeYan, Mammals, Man, Mortality, Nordic Countries, Northern Europe, OECD Countries, Olsen J, Parner ET, Primates, Qin GuoYou, Risk Factors, Scandinavia, Siblings, Sweden, Vertebrates, Vestergaard M, Yu YongFu, Zhao NaiQing
Impact of child death on paediatric trainees
Tags: 2018, Acute/ epidemiology, Adult, Archives of Disease in Childhood, Attitude To Death, Child, Death, February 2018 List, Female, Finn GM, Griksaitis MJ, Hollingsworth CE, Huckridge J, Humans, Intensive Care, Internship And Residency, Male, Middle Aged, Occupational Health, Only Child, Palliative Care, Pediatrics, Physicians/ psychology, Post-traumatic, Post-Traumatic/ epidemiology, Prevalence, Psychology, Stress Disorders, Surveys And Questionnaires, Traumatic, United Kingdom, Wesley C