Browse Items · Pediatric Palliative Care Library

A Nationwide Study to Evaluate Accessibility to Specialized Pediatric Palliative Care in Italy-Patients, Needs, and Critical Issues: The PalliPed Study

Background: PalliPed is the first Italian nationwide project aimed at describing the characteristics of patients accessing specialized pediatric palliative care (PPC) and their families, in the main care settings (hospice, home care, and hospital).…

Tags: 2024, Adolescent, Agosto C, Albanesi B, Amarri S, Article, Avagnina I, Barbugian E, Basile R, Bellagamba O, Bellini F, Beltrami C, Benini F, Bignamini E, Bolognani M, Campagna M, Carraro C, Catalano G, Catalano I, Celentano L, Child, Controlled Study, De Marinis MG, De Tommasi V, De Zen L, Di Nunzio S, Diagnosis, Divisic A, Dolcini A, family support, Fasson A, Franchi F, Ghiraldo G, Giacomelli L, Grigolon E, Health Care Personnel, Home Care, Human, Iadelica A, Infant, Italy, Journal of Palliative Medicine, Lazzarin P, Maghini I, Manfredini L, Marinetto A, Maternal care, Mazzoni E, Mercante A, Michelotto E, Mirone R, Molinaro G, Moliterni P, Moro N, October List 2024, Orofino R, Palliative Therapy, Paone G, Papa S, Patient Referral, Pediatrician, Pellegatta F, Peruselli C, Piccolruaz UV, Prenatal Care, Raspi M, Roverato B, Salata M, Santini A, Schiavon B, Soffritti S, Taucar V, terminal disease, Thaler M, Therapy, Tornesello A, Uez F, Vaccher S, Vezzoli C, Young Adult, Zanin A, Ziggiotto S

A new palliative and pain educational model for pediatric residents

Background: In Europe, resident doctors are not provided with standardized educational modules on pain management (PM) and pediatric palliative care (PPC). Methods: Italian Schools of Residency in Pediatrics (ISRP) were invited to participate in an…

Tags: 2025, Amarri S, Baraldi E, Barbi E, Benini F, Bignamini E, Bolognani M, Catalano I, Corsello A, De Zen L, Italian Journal of Pediatrics, Jankovic M, June List 2025, Manfredini L, Marseglia GL, Salata M, Zanin A

Impact of compounded drugs on the caregivers' burden of home therapy management in pediatric palliative care: A descriptive study

BACKGROUND: Children with medical complexity need complex assistance, that considerably affects caregivers' quality of life. They often need multiple medications, with a consequent relevant risk of errors or poor compliance. Galenic (or compounded)…

Tags: 2023, Barbi E, Burlo F, Caregivers, Child, De Zen L, drug compounding, Hospice And Palliative Care Nursing, Humans, May List 2023, Palliative Care, Palliative Medicine, Parents, Passone E, Ponis G, Quality Of Life, Taucar V, Toniutti M, Zanon D

International consensus on sleep problems in pediatric palliative care: Paving the way

Objective Sleep problems constitute a common and heterogeneous complaint in pediatric palliative care (PPC), where they often contribute to disease morbidity and cause additional distress to children and adolescents and their families already facing…

Tags: 2024, Amarri S, Angelhoff C, Avagnina I, Baker J, Benini F, Bergstraesser E, Bernadá M, Bin-Hasan S, Blankenburg M, Bogetz J, Bruni O, Castronovo V, Catalano I, Ceranoglu TA, Chan K Ching C, Chong PH, complex healthcare needs, Consensus, Crabtree V, de Oliveira ISB, De Zen L, Downing J, Fagondes S, Farquhar M, Ferreira EAL, Ferreira R, Ferri R, Findling RL, Frühwald M, Goh DYT, Gradisar M, Gringras P, Hauch H, Hauer J, Huijer HAS, July List 2024, Keenan S, Kreicbergs U, Kudchadkar SR, Kuhn BR, Lacerda A, Lazzarin P, Li A, Li Shirley X, Lopes MC, Lopez JGDA, Marinetto A, Martino-Alba R, Matlen L, Mercadante S, Mercante A, Mindell J, Moreira GA, Narang I, Nilsson F, Nobili L, Noce S, Nosetti L, Nunes ML, Oliveira L, Owens J, Palliative Care, Papa S, Pediatric Palliative Care, Pizza F, Plazzi G, Ragsdale L, Rios M, Santini A, Santos CF, Sejersen T, Sheldon SH, Siden H, Simakajornboon N, Sleep, Sleep Medicine, sleep problems, Soster LA, Spruyt K, Stenmarker M, Strambi LF, Streuli J, Suh S, Traslaviña GAA, Verrillo E, Wang G, Wille J, Wolfe J, Wolfson AR, Zanin A, Zernikow B, Zhou ES

International Standards for Pediatric Palliative Care: From IMPaCCT to GO-PPaCS

CONTEXT: Since the publication of the IMPaCCT project in 2007, much effort has been made to develop new approaches to pediatric palliative care (PPC). Fifteen years later, it is time to redefine the standards in PPC. OBJECTIVES: An international…

Safety and Feasibility of Home Transfusions in Pediatric Palliative Care: A Preliminary Report

Background: While hematological symptoms are considered difficult to manage in a Pediatric Palliative Care setting, home may still represent a safe and convenient place for transfusions in patients with advanced malignancy or chronic conditions. This…

Tags: 2021, Barbi E, Dall'Amico R, De Zen L, Del Rizzo I, Fatigue, home transfusion support, January 2022 List, Journal of Pain and Symptom Management., Nicolardi F, Passone E, Pediatric Palliative Care, Rabusin M, Symptom Management, thrombocytopenia, Vaccher S, Vendrametto V

Translation and cultural adaptation of the Italian version of the Paediatric Palliative Screening Scale

The number of children eligible for Paediatric Palliative Care has dramatically increased over the years, with few tools that can help with early identification. The Paediatric Palliative Screening Scale is a dedicated German, English, and Portuguese…

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