1 40 1 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. URL Address <a href="http://doi.org/10.1177/0003489417723033" target="_blank" rel="noreferrer noopener">http://doi.org/​10.1177/0003489417723033</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Dysphagia in Rett Syndrome: A Descriptive Study Publisher An entity responsible for making the resource available Annals of Otology, Rhinology and Laryngology Date A point or period of time associated with an event in the lifecycle of the resource 2017 Subject The topic of the resource adolescent; caregiver; major clinical study; human tissue; complication; prevention; feeding; human; child; female; diagnosis; deterioration; normal human; speech; Rett syndrome; dysphagia; hand movement; otorhinolaryngology; apraxia; bronchitis; drug fatality; neuropsychiatry; psychosexual development; tongue; feeding difficulties; trajectory; characteristics; progressive feeding deterioration Creator An entity primarily responsible for making the resource Mezzedimi C; Livi W; De Felice C; Cocca S Description An account of the resource Objectives: Rett syndrome (RS) is a neurodevelopmental disorder and the second major cause of mental retardation in females. The aim of this study was to evaluate swallowing problems of RS patients by endoscopic assessment and compile a list of suggestions for managing feeding and preventing complications. Methods: The sample consisted of 61 female patients (mean age = 13.6 years, range, 2-33 years) admitted to the Department of Neuropsychiatry, where they had previously been diagnosed with RS. Speech evaluation associated with observation during mealtimes was useful to formulate suggestions for caregivers. Results: Progressive deterioration of feeding was commonly noted by caregivers. Fifty-four patients had a history of recurrent episodes of bronchitis. Oral apraxia, dyskinetic tongue movements, prolonged oral stage, and poor bolus formation were the most common findings in all patients. Conclusions: Dysphagia was primarily limited to oral preparatory phases, while the pharyngeal phase was normal in most patients. The high percentage of dysphagia suggests the need to accurately monitor the feeding capability of RS children. It is critical to correctly inform caregivers about safe swallowing procedures to reduce the incidence of fatal complications. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1177/0003489417723033" target="_blank" rel="noreferrer noopener">10.1177/0003489417723033</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2017 Adolescent Annals of Otology, Rhinology and Laryngology apraxia Bronchitis Caregiver characteristics Child Cocca S Complication De Felice C Deterioration Diagnosis drug fatality Dysphagia Feeding feeding difficulties Female hand movement Human Human Tissue Livi W Major Clinical Study Mezzedimi C neuropsychiatry Normal Human Otorhinolaryngology Prevention progressive feeding deterioration Psychosexual Development Rett syndrome Speech tongue Trajectory