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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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2022 Special Edition 4 - Low Resource Setting List
Text
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Citation List Month
2022 Special Edition Low Resource Setting Issue
URL Address
<a href="http://doi.org/10.1007/s00520-021-06717-5" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1007/s00520-021-06717-5</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The Do-Not-Resuscitate-Like (DNRL) Order, a Medical Directive for Limiting Life-Sustaining Treatment in the End-Of-Life Care of Children with Cancer: Experience of Major Cancer Center in Brazil
Publisher
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Support Care Cancer
Date
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2022
Subject
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do-not-resuscitate order; palliative care medicine; pediatric
Creator
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de Wylson Fernandes Gomes de Mattos D; Thuler LC; da Silva Lima FF; de Camargo B; Ferman S
Description
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PURPOSE: In the last few decades, interest in palliative care and advance care planning has grown in Brazil and worldwide. Empirical studies are needed to reduce therapeutic obstinacy and medical futility in the end-of-life care of children with incurable cancer. The aim of this study was to investigate the effects of do-not-resuscitate-like (DNRL) orders on the quality of end-of-life care of children with incurable solid tumors at a cancer center in Brazil. METHODS: A retrospective observational cohort study of 181 pediatric patients with solid tumors followed at the Pediatric Oncology Department of the Brazilian National Cancer Institute, Rio de Janeiro, Brazil, who died due to disease progression from 2009 to 2013. Medical records were reviewed for indicators of quality of end-of-life care, including overtreatment, care planning, and care at death, in addition to documentation of the diagnosis of life-limiting illness and the presence of a DNRL order. Data were summarized using descriptive statistics. Univariate and multivariate logistic regression analyses were used to examine associations between demographics, disease, treatment, and indicators of end-of-life care with a DNRL order. RESULTS: A documented DNRL order was associated with lower odds of dying in the intensive care unit or emergency room (80%), dying within 30 days of endotracheal tube placement (80%), or cardiopulmonary resuscitation (CPR) administration at the time of death (96%). CONCLUSION: Placement of DNRL orders early in the disease process is critical in reducing futile treatment in pediatric patients with incurable cancer.
Identifier
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<a href="http://doi.org/10.1007/s00520-021-06717-5" target="_blank" rel="noreferrer noopener">10.1007/s00520-021-06717-5</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
2022 Special Edition Low Resource Setting Issue
da Silva Lima FF
De Camargo B
de Wylson Fernandes Gomes de Mattos D
do-not-resuscitate order
Ferman S
Palliative care medicine
Pediatric
Support Care Cancer
Thuler LC
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1017/s1478951505050194" target="_blank" rel="noreferrer">http://doi.org/10.1017/s1478951505050194</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Factors associated with location of death of children with cancer in palliative care
Publisher
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Palliative & Supportive Care
Date
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2005
Subject
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Child; Female; Hospitalization; Humans; Male; Palliative Care; Terminal Care; Home Nursing; Adult; Logistic Models; Prospective Studies; Multivariate Analysis; Brazil; adolescent; Preschool; decision making; infant; Neoplasms; location of death
Creator
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Kurashima AY; Latorre MR; Teixeira SA; De Camargo B
Description
An account of the resource
OBJECTIVE: The aim of this study was to identify factors associated with location of death of patients receiving palliative care in a pediatric oncology unit. METHODS: A palliative care program was developed in the pediatric department in order to provide specialized attention to the patient and family in end-of-life. The program is coordinated by a nurse, delivering a simultaneous interdisciplinary team approach with focus on identification and training of a family care provider as well as local resources supplemented by support of a social worker and the community. All 87 patients in palliative care were followed by the team. The factors associated with the location of death (home or hospital) were evaluated for the 71 patients who died prior to analysis. RESULTS: Forty-two (59%) patients died at home. Factors significantly associated with dying at home were: male with an Odds Ratio (OR) = 3.80, 95% Confidence Interval (CI) = 1.26-11.76; public health insurance (OR) = 4.95, 95%[CI] = 1.03-26.75, low educational level of the caregiver (OR) = 11.11 95%[CI] = 1.65-94.66 and low educational level of the mother (OR) = 7.07 95%[CI] = 1.37-40.14. Gender was the only independent factor associated with location of death: a boy had a higher risk of dying at home, (OR) = 4.25, 95%[CI] = 1.37-13.21 when compared to a girl. SIGNIFICANCE OF RESULTS: In our society we are still not able to provide hospice care or home care for all children, although increasing emphasis has been placed on utilizing local resources. Even though we had increased the number of desired home deaths, it is still a challenge to meet patients and families' requests. A team approach, the recognition of the factors involved, and adequate health and community support have helped us to meet the child and family's needs.
2005
Identifier
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<a href="http://doi.org/10.1017/s1478951505050194" target="_blank" rel="noreferrer">10.1017/s1478951505050194</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Adolescent
Adult
Backlog
Brazil
Child
De Camargo B
Decision Making
Female
Home Nursing
Hospitalization
Humans
Infant
Journal Article
Kurashima AY
Latorre MR
Location Of Death
Logistic Models
Male
Multivariate Analysis
Neoplasms
Palliative & Supportive Care
Palliative Care
Preschool
Prospective Studies
Teixeira SA
Terminal Care
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1007/s11136-004-6127-3" target="_blank" rel="noreferrer">http://doi.org/10.1007/s11136-004-6127-3</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Translation and cultural adaptation of Health Utilities Index (HUI) Mark 2 (HUI2) and Mark 3 (HUI3) with application to survivors of childhood cancer in Brazil
Publisher
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Quality of Life Research
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
PedPal Lit; Sickness Impact Profile Survivors/psychology Translating; Adult Brazil ChildCulture Female Humans Male Neoplasms/ethnology/physiopathology/therapy Psychometrics/instrumentationQuality of Life Quality-Adjusted Life YearsQuestionnaires Research Support; and review of the back-translat ions by original developers of the HUI. The final questionnaires were tested by surveying a sample of convenience of 50 patients recruited at the Centro de Tratamento e Pesquisa-Hospital do Cancer in Sao Paulo; back-translation by two independent translators of the forward translation; Brazil. RESULTS: Fifty patients were enrolled in the study. No assessor; consensus between translators on a forward translation; patient or nurse or physician; preference-based systems for describing health status and HRQL. Developed in Canada; understandabl(TRUNCATED)
Creator
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Shimoda S; De Camargo B; Horsman J; Furlong W; Lopes LF; Seber A; Barr RD
Identifier
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<a href="http://doi.org/10.1007/s11136-004-6127-3" target="_blank" rel="noreferrer">10.1007/s11136-004-6127-3</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2005
2005
Adult Brazil ChildCulture Female Humans Male Neoplasms/ethnology/physiopathology/therapy Psychometrics/instrumentationQuality of Life Quality-Adjusted Life YearsQuestionnaires Research Support
and review of the back-translat ions by original developers of the HUI. The final questionnaires were tested by surveying a sample of convenience of 50 patients recruited at the Centro de Tratamento e Pesquisa-Hospital do Cancer in Sao Paulo
back-translation by two independent translators of the forward translation
Backlog
Barr RD
Brazil. RESULTS: Fifty patients were enrolled in the study. No assessor
consensus between translators on a forward translation
De Camargo B
Furlong W
Horsman J
Journal Article
Lopes LF
patient or nurse or physician
PedPal Lit
preference-based systems for describing health status and HRQL. Developed in Canada
Quality of Life Research
Seber A
Shimoda S
Sickness Impact Profile Survivors/psychology Translating
understandabl(TRUNCATED)