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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.joms.2010.07.082" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.joms.2010.07.082</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Evidence-based oral and maxillofacial surgery: some pitfalls and limitations
Publisher
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Journal Of Oral And Maxillofacial Surgery
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Humans; Personal Autonomy; Practice Guidelines as Topic; Outcome Assessment (Health Care); Research Design; Total Quality Management; Review Literature as Topic; Research; Ethics; decision making; Oral; Surgery; Health Care; Quality Assurance; Databases as Topic; Dental; Diffusion of Innovation; Evidence-Based Dentistry; Meta-Analysis as Topic; Publication Bias; Randomized Controlled Trials as Topic/classification/standards
Creator
An entity primarily responsible for making the resource
Pitak-Arnnop P; Hemprich A; Pausch NC
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.joms.2010.07.082" target="_blank" rel="noreferrer">10.1016/j.joms.2010.07.082</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Databases as Topic
Decision Making
Dental
Diffusion of Innovation
Ethics
Evidence-Based Dentistry
Health Care
Hemprich A
Humans
Journal Article
Journal Of Oral And Maxillofacial Surgery
Meta-Analysis as Topic
Oral
Outcome Assessment (health Care)
Pausch NC
Personal Autonomy
Pitak-Arnnop P
Practice Guidelines As Topic
Publication Bias
Quality Assurance
Randomized Controlled Trials as Topic/classification/standards
Research
Research Design
Review Literature as Topic
Surgery
Total Quality Management
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="http://doi.org/10.1111/j.1469-8749.2010.03636.x" target="_blank" rel="noreferrer noopener">http://doi.org/10.1111/j.1469-8749.2010.03636.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Level of purposeful hand function as a marker of clinical severity in Rett syndrome
Publisher
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Developmental Medicine and Child Neurology
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Cross-Sectional Studies; Age Factors; Severity of Illness Index; Young Adult; Child; Humans; Adult; Adolescent; Female; Child Preschool; Phenotype; Video Recording; Mutation; Registries; Genotype; Motor Activity; Databases as Topic; Walking; Rett Syndrome; Methyl-CpG-Binding Protein 2; Hand; tone and motor problems; trajectory; characteristics
Creator
An entity primarily responsible for making the resource
Downs J; Bebbington A; Jacoby P; Williams A; Ghosh S; Kaufmann W E; Leonard H
Description
An account of the resource
AIM: We investigated relationships between hand function and genotype and aspects of phenotype in Rett syndrome. METHOD: Video assessment in naturalistic settings was supplemented by parent-reported data in a cross-sectional study of 144 females with a mean age of 14 years 10 months (SD 7 y 10 mo; range 2 y-31 y 10 mo), 110 of whom had a mutation of the methyl CpG binding protein 2 (MECP2) gene. Ordinal logistic regression was used to assess relationships between hand function and MECP2 mutation, age, a modified Kerr score, Functional Independence Measure for Children (WeeFIM), ambulation level, and frequency of hand stereotypies. RESULTS: Approximately two-thirds of participants demonstrated purposeful hand function, ranging from simple grasping skills to picking up and manipulating small objects. In participants with a confirmed MECP2 mutation, those with the p.R168X mutation had the poorest hand function on multivariate analysis with C-terminal deletion as the baseline (odds ratio [OR] 0.19; 95% confidence interval [CI] 0.04-0.95), whereas those with the p.R133C or p.R294X mutation had better hand function. Participants aged 19 years or older had lower hand function than those aged less than 8 years (OR 0.36; 95% CI 0.14-0.92). Factors that were associated with better hand function were lower Kerr scores for a 1-point increase in score (OR 0.77; 95% CI 0.69-0.86), higher WeeFIM scores for a 1-point increase in score (OR 1.08; 95% CI 1.04-1.12), and greater ambulation than those completely dependent on carers for mobility (OR 22.64; 95% CI 7.02-73.08). The results for participants with a confirmed pathogenic mutation were similar to results obtained when participants without a mutation were also included. INTERPRETATION: Our novel assessment of hand function in Rett syndrome correlated well with known profiles of common MECP2 mutations and overall clinical severity. This promising assessment could measure clinical responses to therapy.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1469-8749.2010.03636.x" target="_blank" rel="noreferrer noopener">10.1111/j.1469-8749.2010.03636.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2010
Adolescent
Adult
Age Factors
Bebbington A
characteristics
Child
Child Preschool
Cross-sectional Studies
Databases as Topic
Developmental Medicine and Child Neurology
Downs J
Female
Genotype
Ghosh S
Hand
Humans
Jacoby P
Kaufmann W E
Leonard H
Methyl-CpG-Binding Protein 2
Motor Activity
Mutation
Phenotype
Registries
Rett syndrome
Severity Of Illness Index
tone and motor problems
Trajectory
Video Recording
Walking
Williams A
Young Adult