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October 2020 List
Text
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October 2020 List
URL Address
<a href="http://doi.org/10.1177/0269216320950089" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/0269216320950089</a>
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The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
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The pervasive relevance of COVID-19 within routine paediatric palliative care consultations during the pandemic: A conversation analytic study
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Palliative Medicine
Date
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2020
Subject
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and/or publication of this; article.; authorship; child; communication; Covid-19; of interest with respect to the research; Palliative care; pandemics
Creator
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Ekberg K; Weinglass L; Ekberg S; Danby S; Herbert A
Description
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BACKGROUND: The importance of caring for children with complex and serious conditions means that paediatric palliative care must continue during pandemics. The recent pandemic of Coronavirus Disease 2019 (COVID-19) provides a natural experiment to study health communication during pandemic times. However, it is unknown how communication within consultations might change during pandemics. AIM: This study, a sub-study of a larger project, aimed to examine real-world instances of communication in paediatric palliative care consultations prior to and during the COVID-19 pandemic to understand how clinicians and families talk about the pandemic. DESIGN: Paediatric palliative care consultations prior to, during, and immediately following the initial peak of COVID-19 cases in Australia were video recorded and analysed using Conversation Analysis methods. SETTING/PARTICIPANTS: Twenty-five paediatric palliative care consultations (including face-to-face outpatient, telehealth outpatient and inpatient consultations) were video recorded within a public children's hospital in Australia. Participants included 14 health professionals, 15 child patients, 23 adult family members and 5 child siblings. RESULTS: There was a pervasive relevance of both serious and non-serious talk about COVID-19 within the consultations recorded during the pandemic. Topics typical of a standard paediatric palliative care consultation often led to discussion of the pandemic. Clinicians (55%) and parents (45%) initiated talk about the pandemic. CONCLUSIONS: Clinicians should not be surprised by the pervasiveness of COVID-19 or other pandemic talk within standard paediatric palliative care consultations. This awareness will enable clinicians to flexibly address family needs and concerns about pandemic-related matters that may impact health and wellbeing.
Identifier
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<a href="http://doi.org/10.1177/0269216320950089" target="_blank" rel="noreferrer noopener">10.1177/0269216320950089</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
and/or publication of this
article.
Authorship
Child
Communication
COVID-19
Danby S
Ekberg K
Ekberg S
Herbert A
October 2020 List
of interest with respect to the research
Palliative Care
Palliative Medicine
Pandemics
Weinglass L
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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December 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
December 2018 List
URL Address
<a href="http://doi.org/10.1089/jpm.2017.0422" target="_blank" rel="noreferrer noopener"> http://doi.o
rg/10.1089/jpm.2017.0422</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Healthcare Users' Experiences of Communicating with Healthcare Professionals About Children Who Have Life-Limiting Conditions: A Qualitative Systematic Review
Publisher
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Journal of Palliative Medicine
Date
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2018
Subject
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Human; Child; Adult; Emotions; Professional-Patient Relations; Collaboration; Siblings; PubMed; Qualitative Studies; Embase; CINAHL Database; Thematic Analysis; Medline; Palliative Care -- In Infancy and Childhood; Systematic Review; Honesty; Life Expectancy -- In Infancy and Childhood; Patient Attitudes; Psycinfo
Creator
An entity primarily responsible for making the resource
Ekberg S; Yates P; Bradford Natalie K; Herbert A; Danby S
Description
An account of the resource
Background: Globally, an estimated eight million children could benefit from palliative care each year. Effective communication about children with life-limiting conditions is well recognized as a critical component of high-quality pediatric palliative care. Objective: To synthesize existing qualitative research exploring healthcare users' experiences of communicating with healthcare professionals about children with life-limiting conditions. Design: The results of a systematic literature search were screened independently by two reviewers. Raw data and analytic claims were extracted from included studies and were synthesized using thematic analysis methods for systematic reviews. Data Sources: MEDLINE, PubMed, CINAHL, Embase, PsycINFO, Scopus, Web of Science, ProQuest, and ScienceDirect were searched for articles published in English between 1990 and May 2017. Results: This review included 29 studies conducted across 11 countries and involving at least 979 healthcare users (adults [n?=?914], patients [n?=?25], and siblings [n?=?40]). The four domains of communication experience identified through thematic synthesis are: Information, Emotion, Collaboration, and Relationship. Although included studies were from a range of settings and diverse populations, further research is needed to explore whether and how domains of communication experience differ across settings and populations. In particular, further research about children's palliative care experiences is needed. Conclusions: Healthcare users typically value communication with healthcare professionals: that (1) is open and honest, (2) acknowledges emotion, (3) actively involves healthcare users, and (4) occurs within established and trusting relationships.
Identifier
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<a href="http://doi.org/10.1089/jpm.2017.0422" target="_blank" rel="noreferrer noopener">10.1089/jpm.2017.0422</a>
2018
Adult
Bradford Natalie K
Child
CINAHL Database
Collaboration
Danby S
December 2018 List
Ekberg S
Embase
Emotions
Herbert A
Honesty
Human
Journal of Palliative Medicine
Life Expectancy -- In Infancy and Childhood
Medline
Palliative Care -- In Infancy and Childhood
Patient Attitudes
Professional-patient Relations
Psycinfo
PubMed
Qualitative Studies
Siblings
Systematic Review
Thematic Analysis
Yates P