1
40
9
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April 2024 List
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April List 2024
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<a href="http://doi.org/10.1016/j.cppeds.2024.101569" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1016/j.cppeds.2024.101569</a>
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Title
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How to move forward in shared decision-making in pediatric palliative care
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Current Problems in Pediatric and Adolescent Health Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2024
Subject
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child; Palliative Care; Decision Making; article; human; palliative therapy; clinical article; adolescent; therapy; infant; shared decision making; special situation for pharmacovigilance
Creator
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Joren CY; Aris-Meijer JL; Verhagen AAE; Lantos J
Description
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Pediatric palliative care has grown immensely in recent years in the world. However, shared decision-making remains a complex process, especially in pediatric palliative care. In particular, a number of issues are priorities to improve the shared decision-making process and ensure high-quality pediatric palliative care for every child. Working on these priorities will improve shared decision-making and thereby enhance high-quality pediatric palliative care around the globe.
Identifier
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<a href="http://doi.org/10.1016/j.cppeds.2024.101569" target="_blank" rel="noreferrer noopener">10.1016/j.cppeds.2024.101569</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2024
Adolescent
April List 2024
Aris-Meijer JL
Article
Child
Clinical Article
Current Problems in Pediatric and Adolescent Health Care
Decision Making
Human
Infant
Joren CY
Lantos J
Palliative Care
Palliative Therapy
shared decision making
special situation for pharmacovigilance
Therapy
Verhagen AAE
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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March 2024 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March List 2024
URL Address
<a href="http://doi.org/10.1016/j.cppeds.2023.101549" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1016/j.cppeds.2023.101549</a>
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Title
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Shared decision-making in pediatric palliative care in the Netherlands
Publisher
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Current Problems in Pediatric and Adolescent Health Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2024
Subject
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Netherlands; palliative therapy; shared decision making; advance care planning; article; child; clinical article; Decision Making; diagnosis; evidence based practice; health care personnel; human; Netherlands; Palliative Care
Creator
An entity primarily responsible for making the resource
Em M; Cy J; Mc K; Jl A; Aae V
Description
An account of the resource
Shared decision-making (SDM) is a process in which health care professionals (HCPs) involve parents and children - when appropriate- to decide together on future treatment. These decisions are based on values that are important for the family, goals of care and preferences for future care and treatment. Elucidation of these values and preferences is preferably done early in the disease trajectory via so-called Advance Care Planning (ACP) conversations. In the Netherlands, ACP and SDM are being adopted by most health care professionals. This has happened only recently. Ten years ago, ACP and SDM were unknown concepts for the vast majority of Dutch HCPs. Today, interest in these conversational approaches is booming in both daily practice and in research. This rise has been reinforced by two recent major advancements in Dutch pediatric palliative care: the Individual Care Plan (ICP) and the Dutch Evidence-Based Guideline on Pediatric Palliative Care (DGPPC). Despite this positive evolution, a lot of work is still ahead. ACP and SDM demand a change in mindset from the traditional paternalistic approach by which the HCP 'knows what is best for this child' to a more humble and open approach in which (non-medical) factors that are important to the child and family and may influence the final treatment decision. Such changes in mindset don't happen overnight. In this article we describe the situation of pediatric palliative care in the Netherlands, with focus on the recent evolution of ACP and SDM.
Identifier
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<a href="http://doi.org/10.1016/j.cppeds.2023.101549" target="_blank" rel="noreferrer noopener">10.1016/j.cppeds.2023.101549</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2024
Aae V
Advance Care Planning
Article
Child
Clinical Article
Current Problems in Pediatric and Adolescent Health Care
Cy J
Decision Making
Diagnosis
Em M
evidence based practice
Health Care Personnel
Human
Jl A
March List 2024
Mc K
Netherlands
Palliative Care
Palliative Therapy
shared decision making
-
Dublin Core
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Title
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February 2024 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February List 2024
URL Address
<a href="http://doi.org/10.1016/j.cppeds.2023.101551" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1016/j.cppeds.2023.101551</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Shared decision-making in pediatric palliative care
Publisher
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Current Problems in Pediatric and Adolescent Health Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
Parents; End-of-life care; Palliative care; Shared decision-making
Creator
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Stroh JT; Carter BS
Description
An account of the resource
Shared decision-making (SDM) with parents and adolescents is normative in pediatric practice in North America. In this article we discuss how it is applicable to the practice of pediatric palliative care (PPC). As PPC itself is exemplary of patient-and-family-centered care, it often uses a SDM approach in clarifying patient and family preferences, goals, and values. This often occurs in an iterative process and across care environments, wherein the patient and family narrative is elaborated. Decisions are then made incorporating both evidence-based medical practice and the unique attributes and considerations of the patient and family.
Identifier
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<a href="http://doi.org/10.1016/j.cppeds.2023.101551" target="_blank" rel="noreferrer noopener">10.1016/j.cppeds.2023.101551</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Carter BS
Current Problems in Pediatric and Adolescent Health Care
End-of-life Care
February List 2024
Palliative Care
Parents
Shared Decision-making
Stroh JT
-
Dublin Core
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Title
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February 2024 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February List 2024
URL Address
<a href="http://doi.org/10.1016/j.cppeds.2023.101453" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1016/j.cppeds.2023.101453</a>
Dublin Core
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Title
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Pediatric palliative care in Canada
Publisher
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Current Problems in Pediatric and Adolescent Health Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
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child; article; human; palliative therapy; government; Canada
Creator
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Marquis MA; Payot A
Description
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Pediatric palliative care (PPC) emerged during the late 20th century in Canada. It has steadily expanded and there are now programs in every province. Programs adhere to recognized standards of practice at both federal and provincial levels. PPC is recognized by government regulatory bodies and professional associations, including the Canadian Paediatric Society.
Identifier
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<a href="http://doi.org/10.1016/j.cppeds.2023.101453" target="_blank" rel="noreferrer noopener">10.1016/j.cppeds.2023.101453</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Article
Canada
Child
Current Problems in Pediatric and Adolescent Health Care
February List 2024
government
Human
Marquis MA
Palliative Therapy
Payot A
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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February 2024 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February List 2024
URL Address
<a href="http://doi.org/10.1016/j.cppeds.2023.101552" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1016/j.cppeds.2023.101552</a>
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Title
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Pediatric palliative care across continents: Communication and shared-decision-making
Publisher
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Current Problems in Pediatric and Adolescent Health Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
Pediatric Palliative; Shared Decision Making
Creator
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Joren CY; Aris-Meijer JL; Verhagen AAE; Lantos J
Description
An account of the resource
Despite the significant growth and development of pediatric palliative care worldwide, significant challenges remain. One of those challenges is shared decision-making, by which parents, families and professionals all work together to develop a plan of care that reflects both the medical facts and the patient’s family’s values. Shared decision-making about palliative care and about death and dying may mean different things in different cultures and countries. It is therefore important to learn and compare practices around the world.
Identifier
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<a href="http://doi.org/10.1016/j.cppeds.2023.101552" target="_blank" rel="noreferrer noopener">10.1016/j.cppeds.2023.101552</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Aris-Meijer JL
Current Problems in Pediatric and Adolescent Health Care
February List 2024
Joren CY
Lantos J
pediatric palliative
shared decision making
Verhagen AAE
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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February 2024 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February List 2024
URL Address
<a href="http://doi.org/10.1016/j.cppeds.2023.101455" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1016/j.cppeds.2023.101455</a>
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Title
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Pediatric palliative care in Sweden
Publisher
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Current Problems in Pediatric and Adolescent Health Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
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child; diagnosis; article; human; male; palliative therapy; adolescent; therapy; infant; decision making; Sweden; health care facility
Creator
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Castor C; Iveus K; Kreicbergs U
Description
An account of the resource
In Sweden, the governance of healthcare is decentralized, so PC is provided with regional or local differences in organization, level of competence, and recourses. Ongoing regional and national initiative to increase quality of pediatric palliative care in Sweden aligns with the international standard of pediatric palliative care as a care directed towards all children with life-threatening or life-limiting illness or conditions from the time of diagnosis. Examples of such initiatives and of different care-services providing pediatric palliative care will be presented. Finally a case to highlighting how a child's care needs might change throughout the illness trajectory and how various healthcare facilities and organizations when collaborating can support the child's participation in decision making is presented.
Identifier
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<a href="http://doi.org/10.1016/j.cppeds.2023.101455" target="_blank" rel="noreferrer noopener">10.1016/j.cppeds.2023.101455</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Adolescent
Article
Castor C
Child
Current Problems in Pediatric and Adolescent Health Care
Decision Making
Diagnosis
February List 2024
health care facility
Human
Infant
Iveus K
Kreicbergs U
Male
Palliative Therapy
Sweden
Therapy
-
Dublin Core
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Title
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September 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2020 List
URL Address
<a href="http://doi.org/10.1016/j.cppeds.2020.100814" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.cppeds.2020.100814</a>
Dublin Core
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Title
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Primary palliative care: Skills for all clinicians
Publisher
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Current Problems in Pediatric and Adolescent Health Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
advance care plan; American Academy of Pediatrics; end-of-life; goal of care; goals of care; hospice and palliative medicine; palliative care; quality of care
Creator
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Sreedhar S S; Kraft C; Friebert S
Description
An account of the resource
The number of children with life-threatening and life-limiting conditions is increasing, requiring an individualized approach and additional supportive care. The American Academy of Pediatrics has called for pediatric palliative care to be available to all children who would benefit.$^{\textrm{1,2}}$ High quality pediatric palliative care is essential for these children. Collaborative team-based methods focused on improving quality of life have shown to improve outcomes in physical, emotional, and cognitive domains.$^{\textrm{3}}$ Palliative care involvement at the time of diagnosis rather than just at the end of life has moved coordinated care upstream. All clinicians can and should deliver palliative care. The Joint Commission recommends having patient-centered palliative care services available for children, and the Centers for Medicare and Medicaid Services is reimbursing clinicians for this coordinated care. This article details how all pediatric clinicians can positively influence the care of seriously ill children by incorporating palliative care principles into their daily care, resulting in better outcomes for their patients and families. Copyright © 2020 Elsevier Inc.
Identifier
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<a href="http://doi.org/10.1016/j.cppeds.2020.100814" target="_blank" rel="noreferrer noopener">10.1016/j.cppeds.2020.100814</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
advance care plan
American Academy of Pediatrics
Current Problems in Pediatric and Adolescent Health Care
end-of-life
Friebert S
goal of care
Goals Of Care
hospice and palliative medicine
Kraft C
Palliative Care
Quality Of Care
September 2020 List
Sreedhar S S
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.cppeds.2010.05.001" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.cppeds.2010.05.001</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Pediatric palliative care.
Publisher
An entity responsible for making the resource available
Current Problems In Pediatric And Adolescent Health Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Child; Humans; Professional-Family Relations; Interdisciplinary Communication; Resuscitation Orders; Adaptation; Psychological; patient care team; Psychological; Stress; DNAR; Child welfare; hospice care; Analgesics/tu [Therapeutic Use]; Palliative Care/px [Psychology]; decision making; Pain/dt [Drug Therapy]; Pediatrics/td [Trends]; Quality of Life/px [Psychology]; Analgesics/ae [Adverse Effects]; Constipation/ci [Chemically Induced]; Nausea/ci [Chemically Induced]; Vomiting/ci [Chemically Induced]
Creator
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Klick JC; Hauer JM
Description
An account of the resource
Palliative care has always been a part of the care of children. It includes any intervention that focuses on relieving suffering, slowing the progression of disease, and improving quality of life at any stage of disease. In addition, for even the child with the most unpredictable disease, there are predictable times in this child's life when the child, family, and care team will be suffering in ways that can be mitigated by specific interventions. Rather than defining pediatric palliative care in terms of a patient base, severity of disease, or even a general philosophy of care, palliative care can best be understood as a specific set of tasks directed at mitigating suffering. By understanding these tasks; learning to identify predictable times and settings of suffering; and learning to collaborate with multidisciplinary specialists, use communication skills, and identify clinical resources, the pediatrician can more effectively support children with life-threatening illnesses and their families. In this article, we define palliative care as a focus of care integrated in all phases of life and as a set of interventions aimed at easing suffering associated with life-threatening conditions. We detail an approach to these interventions and discuss how they can be implemented by the pediatrician with the support of specialists in hospice and palliative medicine. We discuss common and predictable times of suffering when these interventions become effective ways to treat suffering and improve quality of life. Finally, we discuss those situations that pediatricians most commonly and intensely interface with palliative care-the care of the child with complex, chronic conditions and severe neurologic impairment (SNI).Copyright 2010 Mosby, Inc. All rights reserved.
2010
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.cppeds.2010.05.001" target="_blank" rel="noreferrer">10.1016/j.cppeds.2010.05.001</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Adaptation
Analgesics/ae [Adverse Effects]
Analgesics/tu [Therapeutic Use]
Backlog
Child
Child welfare
Constipation/ci [Chemically Induced]
Current Problems in Pediatric and Adolescent Health Care
Decision Making
DNAR
Hauer JM
Hospice Care
Humans
Interdisciplinary Communication
Journal Article
Klick JC
Nausea/ci [Chemically Induced]
Pain/dt [drug Therapy]
Palliative Care/px [psychology]
Patient Care Team
Pediatrics/td [trends]
Professional-family Relations
Psychological
Quality Of Life/px [psychology]
Resuscitation Orders
Stress
Vomiting/ci [Chemically Induced]
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.cppeds.2005.09.002" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.cppeds.2005.09.002</a>
Dublin Core
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Title
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Food, toys, and love: pediatric palliative care
Publisher
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Current Problems in Pediatric and Adolescent Health Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
PedPal Lit; Adolescent Adult Child Child; Non-U.S. Gov't United States; Preschool Cultural DiversityFood Humans Infant Interdisciplinary CommunicationLove Needs Assessment Palliative Care/organization & administrationPediatricsPlay and Playthings Research Support
Creator
An entity primarily responsible for making the resource
Sourkes B; Frankel L; Brown M; Contro N; Benitz W; Case C; Good J; Jones L; Komejan J; Modderman-Marshall J; Reichard W; Sentivany-Collins S; Sunde C
Identifier
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<a href="http://doi.org/10.1016/j.cppeds.2005.09.002" target="_blank" rel="noreferrer">10.1016/j.cppeds.2005.09.002</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2005
2005
Adolescent Adult Child Child
Backlog
Benitz W
Brown M
Case C
Contro N
Current Problems in Pediatric and Adolescent Health Care
Frankel L
Good J
Jones L
Journal Article
Komejan J
Modderman-Marshall J
Non-U.S. Gov't United States
PedPal Lit
Preschool Cultural DiversityFood Humans Infant Interdisciplinary CommunicationLove Needs Assessment Palliative Care/organization & administrationPediatricsPlay and Playthings Research Support
Reichard W
Sentivany-Collins S
Sourkes B
Sunde C