Browse Items · Pediatric Palliative Care Library

Advances in pediatric psychooncology

Purpose of reviewThis article reviews the current literature on psychosocial care of children with cancer with particular focus on evidence-based standards of care, including developments in systematic distress screening, utilization of…

Cerebral palsy and neurodegenerative disease

Cerebral palsy refers to a neurologic disorder of motor skills that is static in nature and is the result of injury to the brain before its development is complete. Many neurodegenerative or metabolic disorders have a slow rate of progression and can…

Tags: 1999, Backlog, Bass N, Cerebral Palsy/diagnosis, Child, Current Opinion In Pediatrics, Diagnosis, Differential, Disease Progression, Human, Journal Article, Mitochondrial Myopathies/diagnosis, Neurodegenerative Diseases/diagnosis

Cerebral palsy: diagnosing something that is not one thing

1999

Tags: 1999, Backlog, Cerebral Palsy/diagnosis/etiology/physiopathology, Child, Current Opinion In Pediatrics, Ferriero DM, Human, Journal Article

Current concepts of cerebral malformation syndromes

In the past, children with many brain malformations were classified as having static encephalopathies (cerebral palsy), often attributed to perinatal or prenatal distress. Understanding of the frequency and clinical manifestations of brain…

Tags: 1999, Backlog, Barkovich AJ, Brain Diseases/diagnosis/pathology/physiopathology, Cerebral Palsy/diagnosis/pathology/physiopathology, Child, Current Opinion In Pediatrics, Human, Journal Article, Lequin MH, Magnetic Resonance Imaging, Muscular Dystrophies/diagnosis/pathology/physiopathology, Nervous System Malformations/diagnosis/pathology/physiopathology, Syndrome

Current concepts of respiratory complications of neuromuscular disease in children

Chronic neuromuscular diseases affect the respiratory muscles in varying patterns and degrees. As a result, patients with these disorders develop restrictive pulmonary disease, ineffective cough, atelectasis and pneumonia, and chronic respiratory…

Tags: 2000, Backlog, Child, Current Opinion In Pediatrics, Humans, Journal Article, Lung Diseases/diagnosis/etiology/therapy, Neuromuscular Diseases/complications/diagnosis/therapy, Prognosis, Respiratory Insufficiency/diagnosis/etiology/therapy, Schramm CM

Developmental surveillance of infants and young children in pediatric primary care

PURPOSE OF REVIEW: This article reviews the importance of appropriate developmental surveillance in early childhood, what is known about its effectiveness in current pediatric practice, and ways in which its delivery can be improved to optimize child…

Tags: 2003, Backlog, Child, Child Health Services/standards, Current Opinion In Pediatrics, Developmental Disabilities/diagnosis, Glascoe FP, Humans, Infant, Internet/utilization, Journal Article, King TM, Practice Guidelines As Topic, Preschool

Early integration of pediatric palliative care: For some children, palliative care starts at diagnosis.

PURPOSE OF REVIEW: Pediatric palliative care, with its emphasis on symptom management and quality of life, is an important aspect of care of children with life-threatening illnesses. We review recent publications with implications for care of these…

Tags: 2006, Backlog, Bereavement, Child, Communication, Current Opinion In Pediatrics, Decision Making, Humans, Journal Article, Longitudinal Studies, Mack JW, Palliative Care, Prognosis, Quality Of Life, Terminal Care, Time Factors, Wolfe J

Enzyme reconstitution/replacement therapy for lysosomal storage diseases.

PURPOSE OF REVIEW: Over the past 15 years, the lysosomal storage diseases have become paradigms for the specific treatment of monogenic disorders, particularly those affecting children. This review summarizes the phenotypes and recent literature…

Tags: 2007, Backlog, Burrow TA, Current Opinion In Pediatrics, Grabowski GA, Hopkin RJ, Journal Article, Leslie ND, Longitudinal Studies, Tinkle BT

Medical adherence and childhood chronic illness: family daily management skills and emotional climate as emerging contributors

PURPOSE OF REVIEW: To describe recent research that examines family factors that promote or derail adherence to medical regimens for children with chronic health conditions, primarily asthma, diabetes, and cystic fibrosis. From the past 2 years,…

Tags: 2006, Adolescent Transitions, Asthma/therapy, Backlog, Child, Chronic Disease, Current Opinion In Pediatrics, Cystic Fibrosis/therapy, Diabetes Mellitus/therapy, Emotions, Everhart RS, Family/psychology, Fiese BH, Home Nursing, Humans, Journal Article, Patient Compliance

Neuromuscular disorders of childhood

Neuromuscular disorders are common causes of weakness and hypotonia in the infantile period and in childhood. Accurate diagnosis of specific neuromuscular disorders depends first on identification of which aspect of the peripheral neuromuscular…

Tags: 1999, Andersson PB, Backlog, Charcot-Marie-Tooth Disease/diagnosis/physiopathology, Child, Current Opinion In Pediatrics, Diagnosis, Differential, Human, Journal Article, Muscular Dystrophies/diagnosis/genetics, Myasthenia Gravis/diagnosis, Neuromuscular Diseases/diagnosis/physiopathology/therapy, Peripheral Nervous System Diseases/diagnosis, Rando TA, Spinal Muscular Atrophies of Childhood/diagnosis

Pain management and weaning from narcotics and sedatives

Over the last 10 years, there has been a fundamental change in physicians' attitudes toward analgesia and sedation in pediatrics. In this time, basic and clinical research have provided a wealth of information. In this paper we review important…

Tags: 1999, Analgesia/trends, Analgesics/pharmacology/therapeutic use, Attitude Of Health Personnel, Backlog, Bogue CW, Child, Current Opinion In Pediatrics, Drug Administration Schedule, Ganea GR, Human, Hypnotics and Sedatives/administration & dosage, Journal Article, Narcotics/administration & dosage, Pain/psychology/therapy, Physician's Practice Patterns/standards/trends

Palliative care for pediatric intensive care patients and families

PURPOSE OF REVIEW: Children with medical or surgical critical illness or injury require skillful attention to physical, emotional, psychological, and spiritual needs, whereas their families need support and guidance in facing life-threatening or…

Tags: 2020, Current Opinion In Pediatrics, Derrington S F, End-of-life Care, July 2020 List, Pediatric Intensive Care Unit, Pediatric Palliative Care, pediatric surgery, Picu, Rothschild C B

Problem of nonadherence in chronically ill adolescents: strategies for assessment and intervention

PURPOSE OF REVIEW: Nonadherence to medical treatment is a significant problem for adolescents with chronic illness, with significant morbidity and mortality. Yet efforts to assess and treat the problem have been limited. We reviewed the literature on…

Tags: 2005, Adolescent, Adolescent Behavior, Adolescent Transitions, Backlog, Chronic Disease/psychology/therapy, Current Opinion In Pediatrics, Family Relations, Humans, Intervention, Interventions, Journal Article, Patient Education as Topic, Risk Factors, Shuchman M, Smith BA, Treatment Refusal/psychology

Transition from pediatric to adult services: are we getting it right?

PURPOSE OF REVIEW: The transition of healthcare from pediatric to adult settings has become more significant over the past 20 years as the survival of young people with chronic illness and disability has increased and healthcare delivery has become…

Tags: 2008, Adolescent, Adolescent Medicine/organization & administration, Adolescent Transitions, Age Factors, Australia, Backlog, Chronic Disease, Continuity Of Patient Care/organization & Administration, Current Opinion In Pediatrics, Delivery of Health Care/organization & administration, Humans, Journal Article, Kennedy A, Models, Organizational, Patient Care Planning/organization & administration, Pediatrics, Sawyer S

Transition from pediatric to adult-oriented health care: a challenge for patients with chronic disease

Pediatric providers can expect that 1 of every 10 patients they see will have a chronic, activity-limiting health condition. Thanks to earlier diagnosis and improved therapies, most of these children will live well into adulthood. This means that…

Browse Items (15 total)