Browse Items (111 total)

Tags: 2021, April 2021 List, Bakhbakhi D, Bereavement Care, Bjog, Boyle FM, Burden C, Cross-sectional Studies, Developed Countries, Female, Flenady V, Health Care Surveys, Horey D, Humans, Infant Newborn, Male, Medical Audit/methods, parent engagement, Parents, Patient Participation, Patient Safety, Perinatal Mortality, perinatal mortality review, Siassakos D, Silver RM, Stillbirth

Tags: 2010, Adolescent, Adult, Age Factors, Bebbington A, characteristics, Child, Child Preschool, Cross-sectional Studies, Databases as Topic, Developmental Medicine and Child Neurology, Downs J, Female, Genotype, Ghosh S, Hand, Humans, Jacoby P, Kaufmann W E, Leonard H, Methyl-CpG-Binding Protein 2, Motor Activity, Mutation, Phenotype, Registries, Rett syndrome, Severity Of Illness Index, tone and motor problems, Trajectory, Video Recording, Walking, Williams A, Young Adult

Tags: 2020, Canada, Child, Cross-sectional Studies, Dryden-Palmer K, Humans, Infant Newborn, Intensive Care Units Neonatal, Janvier A, Larson CP, March 2021 List, McNeil C, Moore G, Morals, Parshuram CS, Pediatric Critical Care Medicine, Roumeliotis N, Stress Psychological/diagnosis/epidemiology, Surveys And Questionnaires, Tomlinson G

Tags: 2021, Blackmer AB, children with neurologic impairment, complex medication regimens, Cross-sectional Studies, Feinstein JA, Feudtner C, Friedman H, JAMA Network Open, Kempe A, October 2021 List, Orth LE, parent support, Samay S

Tags: 2011, Adams H, Adolescent, Adult, Analysis of Variance, Augustine E F, Beck C A, Child, Child Preschool, Cialone J, Cross-sectional Studies, Deblieck E A, Disabled Persons, Disease Progression, Dure L S, Genotype, Homozygote, Humans, Kwon J M, Levy E, Marshall F J, Membrane Glycoproteins, Mink J W, Molecular Chaperones, Mutation, NCL3, Neurology, Neuronal Ceroid-Lipofuscinoses, Neuropsychological Tests, Newhouse N J, Prospective Studies, Ramirez-Montealegre D, Regression Analysis, Reproducibility of Results, Rose K R, Rothberg P G, scale development, tone and motor problems, tool development, UBDRS, Vierhile A, Young Adult

Tags: 2011, achondroplasia, Achondroplasia/di [Diagnosis], Achondroplasia/ep [Epidemiology], Achondroplasia/th [Therapy], Adolescent, Afsharpaiman S, Age Factors, Airway Obstruction/di [Diagnosis], Airway Obstruction/ep [Epidemiology], Airway Obstruction/th [Therapy], Ault J E, Body Mass Index, breathing difficulties, characteristics, Child, Child Preschool, Cohort Studies, Comorbidity, Cross-sectional Studies, Female, Humans, Infant, Male, obstructive sleep apnea, Polysomnography, Sheikhvatan M, Sillence D O, Sleep and Breathing, Sleep Apnea Central/di [Diagnosis], Sleep Apnea Central/ep [Epidemiology], Sleep Apnea Central/th [Therapy], Sleep Apnea Obstructive/di [Diagnosis], Sleep Apnea Obstructive/ep [Epidemiology], Sleep Apnea Obstructive/th [Therapy], Trajectory, Treatment Outcome, Waters K

Tags: 2017, Al-Sayegh H, Ananth P, Braun Ilana, Cannabis, Child, Cross-sectional Studies, Hallez E, Klein V, Kroon L, Logistic Models, London W, Ma C, Michelson K, Oncology 2018 List, Only Child, Pediatrics, Rosenberg AR, Washington, Wharton C, Wolfe J

Tags: 2022, Alizadeh F, August 2022 List, Bailey V, Beke DM, Blume ED, Child, Cross-sectional Studies, Death, Family, Female, Gauvreau K, Goldberg S, Humans, Infant, Intensive Care Units, Pediatric, JAMA Network Open, Male, Moynihan KM, Smith-Parrish M, Snaman JM, Terminal Care

Tags: 2016, Argent A, Ballot DE, Birth Weight, Bmj Open, Cause Of Death, Child, Chirwa T, Cooper PA, Critical Illness/ Mortality, Cross-sectional Studies, Davies VA, Female, Health services administration & management, Hospitalization/ statistics & numerical data, Humans, Infant, Infant Newborn, Infant Newborn Diseases/ mortality, Infant Very Low Birth Weight, Intensive Care Units Neonatal, January 2018 List, Male, Mer M, Neonatology, Patient Discharge/ statistics & numerical data, Population Surveillance, Retrospective Studies, Risk Factors, South Africa/epidemiology, Survival Rate/ trends

Tags: 2006, Backlog, Bax M, Brain/pathology, Cerebral Palsy/epidemiology/etiology/physiopathology, Child, Cross-sectional Studies, Delivery, Female, Flodmark O, Humans, Infant, Infectious, JAMA, Journal Article, Magnetic Resonance Imaging, Male, Multiple, Newborn, Obstetric, Pregnancy, Pregnancy Complications, Premature, Preschool, Risk Factors, Tydeman C

Tags: 2016, Adolescent, Adult, Attitudes, Brain Death/ diagnosis, brain-dead organ donation, Bresnahan M, communicating with family about brain death, Communication, Cross-sectional Studies, Decision Making, End-of-life Decision Making, Factor Analysis, Family, Female, first-person organ donation consent laws, Health Knowledge, Humans, Journal Of Health Psychology, Male, March 2018 List, Middle Aged, misconceptions about brain death, Practice, Reproducibility of Results, statistical, Tissue and Organ Procurement, Young Adult, Zhuang J

Tags: 2001, Adult, Analysis of Variance, Attitude Of Health Personnel, Attitude To Death, Attitudes, Backlog, Burns JP, Child, Child Advocacy, Critical Care Medicine, Critical Care/organization & administration/psychology, Cross-sectional Studies, Death and Euthanasia, Decision Making, Empirical Approach, Ethics, Griffith JL, Health Knowledge, Hospital/education/psychology, Hospitals, Humans, ICU Decision Making, Intensive Care Units, Journal Article, Medical, Medical Staff, Middle Aged, Mitchell C, Multivariate Analysis, Nursing, Nursing Staff, Pediatric, Pediatrics/methods, Physician's Practice Patterns/organization & administration, Practice, Questionnaires, Terminal Care/organization & administration/psychology, Truog RD, United States

Tags: 2009, Backlog, Carlson MDA, Cohort Studies, Cross-sectional Studies, Humans, Journal Article, Journal of Palliative Medicine, Longitudinal Studies, Morrison RS, Observation, Palliative Care, Research Design, Study Design, Validation Studies as Topic

Tags: 2004, 80 And Over, Adolescent, Adult, Aged, Attitude To Health, Backlog, Casarett D, Community Health Services/utilization, Cross-sectional Studies, Eligibility Determination, Feasibility Studies, Female, Health Services Research/methods, Hospice Care/utilization, Humans, Journal Article, Journal of Palliative Medicine, Kassner CT, Kutner JS, Male, Middle Aged, Multi-site Ethics, Palliative Care, Patient Selection, Research Subjects/psychology

Tags: 2013, Adult, Attitude Of Health Personnel, Attitude To Death, Chang YC, Chen CH, Cross-sectional Studies, Culture, Female, Huang LC, Humans, Infant Newborn, Intensive Care Units Neonatal, January 2018 List, Lee HY, Liu HL, Maternal & Child Health Journal, Neonatal Nursing, Neonatology, Peng NH, Surveys And Questionnaires, Taiwan, Terminal Care/px [psychology], Wu SY, Young Adult

Tags: 2007, Adaptation, Adult, Age Factors, Backlog, Caregivers/psychology, Chen JY, Child, Clark MJ, Cost Of Illness, Cross-sectional Studies, Disabled Children, Duchenne/economics/physiopathology, Family & Community Health, Family Health, Family Relations, Female, Humans, Journal Article, Male, Middle Aged, Muscular Dystrophy, Parents/psychology, Preschool, Psychological, Questionnaires, Sickness Impact Profile, Social Support, Socioeconomic Factors, Stress, Taiwan

Tags: 2006, Acute/diagnosis/prevention & control/psychology, Adult, Aftercare/organization & administration/psychology, Attitude To Health, Backlog, Child, Colville GA, Communication, Cross-sectional Studies, Female, Gracey D, Health Services Needs And Demand, Hospitalized, Humans, ICU Decision Making, Infant, Intensive and Critical Care Nursing, Intensive Care Units, Journal Article, Male, Mass Screening, Mothers/psychology, Nursing Methodology Research, Pediatric/organization & Administration, Preschool, Professional-family Relations, Psychiatric Status Rating Scales, Questionnaires, Retrospective Studies, Risk Factors, Severity Of Illness Index, Social Support, Stress Disorders, Traumatic

Tags: 2014, Adolescent, Backlog, Child, Connor S, Cross-sectional Studies, Downing J, Health Services Accessibility, Health Services Needs And Demand, Humans, Infant, International Journal of Palliative Nursing, Journal Article, King E, Lim Ah KP, Marston J, Newborn, Palliative Care, Preschool, Sisimayi C, South Africa, Yates R, Young Adult

Tags: 2006, Adolescent, Adult, Arensman E, Backlog, Child, Child Abuse/prevention & control/psychology, Corcoran P, Cross-sectional Studies, Emergency Service, Female, Gallagher J, General, Hospital, Hospitals, Humans, Interview, Ireland, Irish Medical Journal, Journal Article, Keeley HS, Male, Non-U.S. Gov't, PedPal Lit, Perry IJ, Psychological, Research Support, Suicide/prevention & control/psychology

Tags: 2007, Adolescent, Adolescent Health Services, Adolescent Transitions, Adult, Age Factors, Backlog, Bibby H, Chronic Disease, Continuity Of Patient Care/organization & Administration, Craig SL, Cross-sectional Studies, Cystic Fibrosis/psychology/therapy, Female, Humans, International Journal Of Adolescent Medicine And Health, Journal Article, Male, Middle Aged, Patient Satisfaction, Program Development, Program Evaluation, Quality Of Life, Questionnaires, Sickness Impact Profile, Time Factors, Towns S

Tags: 2006, Adolescent Transitions, Adult, Backlog, Congenital/therapy, Cross KP, Cross-sectional Studies, Education, Educational Measurement, Emergency Medicine/education, Emergency Service, Graduate, Heart Defects, Hospital, Humans, Internship And Residency, Journal Article, Medical, Pediatric Emergency Care, Santucci KA, Survivors

Tags: 2004, Adult, Attitude To Health, Backlog, Caregivers, Cerebral Palsy/complications/rehabilitation, Child, Child: Care, Health and Development, Cross-sectional Studies, Damiani G, Female, Health Services Accessibility, Humans, Journal Article, Male, Non-U.S. Gov't, Patient Acceptance of Health Care, Quality Of Health Care, Research Support, Respite Care, Rosenbaum P, Russell D, Sex Factors, Social Support, Socioeconomic Factors, Swinton M

Tags: 2022, Adult, Attitude Of Health Personnel, Cesarean Section, Child, Cross-sectional Studies, Damps M, Gajda M, Human, International Journal of Environmental Research and Public Health, Kowalska M, Kucewicz-Czech E, March List 2023, Medical Futility, Nursing Staff, Poland, Quality Of Life, Surveys And Questionnaires

Tags: 2017, Adolescent, Adult, Aged, Aguilera-Albesa S, Behavior, Castro C A, Child, Coelho M, Cognitive Dysfunction/di [Diagnosis], Cognitive Dysfunction/et [Etiology], Correia G L, Costa C, Cross-sectional Studies, Cuadras P D, Darling A, Disabled Persons, dystonia/di [Diagnosis], Dystonia/et [Etiology], Espinos C, Ferreira J, Garcia P J, Garrido C, Gaston I, Gavilan I T, Gonzalez G L, Gutierrez F, Hernandez L C, Humans, IND, Lin J P, Lorenzo S G, Lupo V, Madruga M, Magalhaes M, Marti M J, Marti S L, Martinez-Martin P, Martorell L, Mental Disorders/di [Diagnosis], Mental Disorders/et [Etiology], Middle Aged, Moreira F, Movement Disorders, Nardocci N, Ocular Motility Disorders/di [Diagnosis], Ocular Motility Disorders/et [Etiology], Ortigoza E J D, Pantothenate Kinase-Associated Neurodegeneration/co [Complications], Pantothenate Kinase-Associated Neurodegeneration/di [Diagnosis], Pantothenate Kinase-Associated Neurodegeneration/ge [Genetics], Parkinsonian Disorders/di [Diagnosis], Parkinsonian Disorders/et [Etiology], Perez D B, Pilot Projects, Pires P, PKANDRS, Pons R, Pujol M, Ramos L J, Rego P, Reproducibility of Results, Rodriguez-Blazquez C, scale development, Severity Of Illness Index, Stamelou M, Stefanis L, Tello C, Temudo T, Tomas V M, tone and motor problems, tool development, Tustin K, Vela L, Young Adult, Zorzi G

Tags: 2001, Adolescent, Backlog, Child, Critical Care Medicine, Cross-sectional Studies, Death and Euthanasia, Decision Making, Devictor DJ, Empirical Approach, Female, France, Groupe Francophone de Reanimationet d'Urgences Pediatriques, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Life Support Care, Male, Newborn, Nguyen DT, Patient Care Team, Pediatric, Practice Guidelines, Preschool, Professional Patient Relationship, Professional-family Relations, Prospective Studies

Tags: 2002, 80 And Over, Aftercare/organization & administration/utilization, Aged, Backlog, Bradley EH, Cherlin E, Community/organization & administration, Connecticut, Cross-sectional Studies, Erickson SE, Female, Fried TR, Health Services Research, Home Health Care Services Quarterly, Horwitz SM, Hospice Care/organization & administration/utilization, Hospital Units/organization & administration/utilization, Hospitals, Humans, Johnson-Hurzeler R, Journal Article, Male, Non-U.S. Gov't, Palliative Care/organization & administration/utilization, Patient Admission/statistics & numerical data, Research Support, Terminally Ill/statistics & numerical data

Tags: 2008, 3-Hydroxyacyl CoA Dehydrogenases/deficiency, Acta Ophthalmologica, Alm J, Atrophy, Backlog, Child, Choroid Diseases/etiology/pathology, Cross-sectional Studies, Disease Progression, Electroretinography, Eye Diseases/diagnosis/etiology/physiopathology, Fahnehjelm KT, Female, Follow-up Studies, Haglind CB, Halldin M, Holmstrom G, Humans, Hypoglycemia/complications, Inborn Errors/complications/genetics, Infant, Journal Article, Male, Metabolism, Mutation, Myopia/etiology/physiopathology, Nemeth A, Nordenstrom A, Preschool, Q3 Scoping Review Results, Retinal Diseases/etiology/pathology, Severity Of Illness Index, Vision Disorders/etiology/physiopathology, Visual Acuity, von Dobeln U, Ying L

Tags: 2015, Acute Disease, Adaptation, Adolescent, Attitudes, Backlog, Carroll KW, Child, Child welfare, Chronic Disease, Cross-sectional Studies, Faerber JA, Female, Feudtner C, Health Knowledge, Hill DL, Hinds PS, Humans, Infant, JAMA Pediatrics, Journal Article, Kang T, Male, Miller VA, Mollen CJ, Morrison WE, Munson DA, Newborn, Parent-child Relations, Parents, Philadelphia, Practice, Preschool, Psychological, Questionnaires, Stress, Walter JK

Tags: 2016, Adolescent, Adult, Aged, Barreto P, Clinical Trial, Cross Sectional Study, Cross-sectional Studies, Emotion, February 2018 List, Female, Fombuena M, Galiana L, Human, Journal Of Health Psychology, Male, Middle Aged, Multicenter Study, Oliver A, Palliative Therapy, Pascual A, Psychological Resilience, Psychology, Religion, Social Support, Soto-Rubio A, Terminal Care, terminally Ill Patient, Very Elderly, Young Adult

Tags: 2012, Adaptation, Adolescent, Adult, Backlog, Barrera M, Bereavement, Cancer Nursing, Child, Cross-sectional Studies, Davies B, Death, Dietrich MS, Fairclough DL, Female, Foster TL, Gerhardt CA, Gilmer MJ, Humans, IM, Journal Article, Male, Middle Aged, N, Neoplasms, Nursing Methodology Research, Parents, Psychological, Qualitative Research, sibling bereavement, Siblings, Time Factors, Vannatta K

Tags: 2023, Aujoulat I, Belgium, Brichard B, Cesarean Section, Children, children’s palliative outcome scale (CPOS-2), Cross-sectional Studies, Degryse JM, Fonteyne C, Friedel M, Life-limiting Conditions, Outcomes, paediatric palliative care, Parents, patient-centred outcome measures, Quality Of Life, Renard M, September List 2037

Tags: 2016, Adult, Artificial Ventilation, Cancer Epidemiology, Cantero EQ, Carro CC, Cerebral Palsy, Child, Chromosome Disorder, Cognitive Defect, Controlled Study, Cross-sectional Studies, Cross-sectional Study, Death, European Respiratory Journal, Follow Up, Gaboli M, Garrido MM, Human, Lung Disease, Major Clinical Study, May 2017 List, Mucopolysaccharidosis, Neuromuscular Disease, Only Child, Palliative Care, Palliative Therapy, Pecellin ID, Quality Of Life, Respiration Artificial, Respiratory Insufficiency, Rodriguez LMR, Spain, University Hospital, Valencia JPG, Ventilators Mechanical, Young Adult

Tags: 2002, Adult, Aged, Alzheimer Disease/psychology, Backlog, Baumgarten M, Canada, Caregivers/psychology, Cost Of Illness, Cross-sectional Studies, Depressive Disorder/diagnosis/epidemiology/psychology, Female, Gallicchio L, Gender Identity, Humans, International Journal Of Geriatric Psychiatry, Journal Article, Langenberg P, Male, Middle Aged, Non-U.S. Gov't, Research Support, Siddiqi N

Tags: 2022, American Journal Of Hospice And Palliative Care, April 2022 List, Chu TC, Cross-sectional Studies, Education, Georgadarellis AG, Interprofessional Relations, Mason KE, Medical, Palliative Medicine, Pediatrics

Tags: 2010, Acta Paediatrica, Age Factors, Backlog, Cerebral Palsy/co [Complications], Child, Colver A, Cross-sectional Studies, Dickinson HO, Europe/epidemiology, Gibson L, Humans, Journal Article, Pain/ep [Epidemiology], Pain/et [Etiology], Parent-child Relations, Prevalence, Questionnaires, Regression Analysis, Severity Of Illness Index

Tags: 2000, Adolescent, Adult, Aid to Families with Dependent Children/statistics & numerical data, Archives Of Family Medicine, Backlog, Child, Continuity Of Patient Care, Cross-sectional Studies, Delaware, Emergency Service, Female, Gill J, Hospital/utilization, Humans, Journal Article, Mainous A, Male, Medicaid/statistics & numerical data, Middle Aged, Multivariate Analysis, Nsereko M, Office Visits/statistics & numerical data, Preschool, United States

Tags: 2007, Adolescent, Adolescent Transitions, Adult, Backlog, Cross-sectional Studies, Diabetes Mellitus, Female, Gillibrand R, Humans, International Journal Of Behavioral Medicine, Interpersonal Relations, Journal Article, Male, Patient Compliance/statistics & numerical data, Questionnaires, Self Care, Sexual Partners, Stevenson J, Type 1/drug therapy/psychology

Tags: 2010, Abdelmoity AT, Adolescent, Backlog, Child, Cohort Studies, Comorbidity, Cross-sectional Studies, Female, Graf WD, Headache Disorders/epidemiology/pathology/radiography, Humans, Incidental Findings, Journal Article, Journal of Child Neurology, Kayyali HR, Male, Morriss MC, Nervous System Malformations/epidemiology/pathology/radiography, Preschool, Retrospective Studies, Williams AR, Womelduff GL

Tags: 2008, Adolescent, Alexander JJ, Backlog, Child, Cross-sectional Studies, Female, Graf WD, Headache/diagnosis, Humans, Journal Article, Kayyali HR, Magnetic Resonance Imaging/utilization, Male, Morriss MC, Pediatrics, Physician's Practice Patterns/statistics & numerical data, Preschool, Retrospective Studies, Simon SD, Tomography, X-Ray Computed/utilization

Tags: 2005, 80 And Over, Activities of Daily Living, Adolescent, Adult, Age Factors, Age of Onset, Aged, Artificial/statistics & numerical data, Backlog, Child, Cross-sectional Studies, Disease Progression, Female, Glycogen Storage Disease Type II/diagnosis/epidemiology/physiopathology, Hagemans ML, Hop WC, Humans, Infant, Journal Article, Male, Middle Aged, Muscle, Neurology, Newborn, Preschool, Q3 Scoping Review Results, Questionnaires, Respiration, Respiratory Insufficiency/epidemiology/etiology/therapy, Reuser AJ, Severity Of Illness Index, Skeletal/physiopathology, Van der Ploeg AT, Van Doorn PA, Wheelchairs/statistics & numerical data, Winkel LP