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40
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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February 2021 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February 2021 List
URL Address
<a href="http://doi.org/10.1177/0969733019878838" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/0969733019878838</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Parent moral distress in serious pediatric illness: A dimensional analysis
Publisher
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Nursing Ethics
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
Child; Female; Humans; Male; palliative care; Parents/psychology; moral distress; Pediatrics/methods/standards; Critical Illness/psychology/therapy; neonatal care; Child Health/standards; Ethics of care/care ethics; pediatric practice; Stress Psychological/etiology/psychology; theory/philosophical perspectives
Creator
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Mooney-Doyle K; Ulrich CM
Description
An account of the resource
BACKGROUND: Moral distress is an important and well-studied phenomenon among nurses and other healthcare providers, yet the conceptualization of parental moral distress remains unclear. OBJECTIVE: The objective of this dimensional analysis was to describe the nature of family moral distress in serious pediatric illness. DESIGN AND METHODS: A dimensional analysis of articles retrieved from a librarian-assisted systematic review of Scopus, CINAHL, and PsychInfo was conducted, focusing on how children, parents, other family members, and healthcare providers describe parental moral distress, both explicitly through writings on parental moral experience and implicitly through writings on parental involvement in distressing aspects of the child's serious illness. ETHICAL CONSIDERATIONS: To promote child and family best interest and minimize harm, a nuanced understanding of the moral, existential, emotional, and spiritual impact of serious pediatric illness is needed. The cases used in this dimensional analysis come from the first author's IRB approved study at the Children's Hospital of Philadelphia and subsequent published studies; or have been adapted from the literature and the authors' clinical experiences. FINDINGS: Three dimensions emerged from the literature surrounding parent moral distress: an intrapersonal dimension, an interpersonal dimension, and a spiritual/existential dimension. The overarching theme is that parents experience relational solace and distress because of the impact of their child's illness on relationships with themselves, their children, family, healthcare providers, their surrounding communities, and society. DISCUSSION: Elucidating this concept can help nurses and other professionals understand, mitigate, or eliminate antecedents to parental moral distress. We discuss how this model can facilitate future empirical and conceptual bioethics research, as well as inform the manner in which healthcare providers engage, collaborate with, and care for families during serious pediatric illness. CONCLUSION: Parent moral distress is an important and complex phenomenon that requires further theoretical and empirical investigation. We provide an integrated definition and dimensional schematic model that may serve as a starting point for future research and dialogue.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/0969733019878838" target="_blank" rel="noreferrer noopener">10.1177/0969733019878838</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Child
Child Health/standards
Critical Illness/psychology/therapy
Ethics of care/care ethics
February 2021 List
Female
Humans
Male
Mooney-Doyle K
Moral Distress
Neonatal Care
Nursing Ethics
Palliative Care
Parents/psychology
pediatric practice
Pediatrics/methods/standards
Stress Psychological/etiology/psychology
theory/philosophical perspectives
Ulrich CM
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.2012-1957" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2012-1957</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Parental explicit heuristics in decision-making for children with life-threatening illnesses
Publisher
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Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2013
Subject
The topic of the resource
Child; Female; Humans; Male; Young Adult; Cohort Studies; Prospective Studies; Professional-Family Relations; Communication; Choice Behavior; Problem Solving; Hospitals; Pediatric; adolescent; Preschool; Psychological; decision making; infant; Parents/psychology; Palliative Care/psychology; Philadelphia; Parent caregivers; Chronic Disease/psychology/therapy; Interview; Judgment; Aphorisms and Proverbs as Topic; Critical Illness/psychology/therapy
Creator
An entity primarily responsible for making the resource
Renjilian CB; Womer JW; Carroll KW; Kang T; Feudtner C
Identifier
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<a href="http://doi.org/10.1542/peds.2012-1957" target="_blank" rel="noreferrer">10.1542/peds.2012-1957</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
OBJECTIVE: To identify and illustrate common explicit heuristics (decision-making aids or shortcuts expressed verbally as terse rules of thumb, aphorisms, maxims, or mantras and intended to convey a compelling truth or guiding principle) used by parents of children with life-threatening illnesses when confronting and making medical decisions. METHODS: Prospective cross-sectional observational study of 69 parents of 46 children who participated in the Decision-making in Pediatric Palliative Care Study between 2006 and 2008 at the Children's Hospital of Philadelphia. Parents were guided individually through a semistructured in-depth interview about their experiences and thoughts regarding making medical decisions on behalf of their ill children, and the transcribed interviews were qualitatively analyzed. RESULTS: All parents in our study employed explicit heuristics in interviews about decision-making for their children, with the number of identified explicit heuristics used by an individual parent ranging from tens to hundreds. The heuristics served 5 general functions: (1) to depict or facilitate understanding of a complex situation; (2) to clarify, organize, and focus pertinent information and values; (3) to serve as a decision-making compass; (4) to communicate with others about a complex topic; and (5) to justify a choice. CONCLUSIONS: Explicit heuristics played an important role in decision-making and communication about decision-making in our population of parents. Recognizing explicit heuristics in parent interactions and understanding their content and functions can aid clinicians in their efforts to partner with parents in the decision-making process.
2013
Adolescent
Aphorisms and Proverbs as Topic
Backlog
Carroll KW
Child
Choice Behavior
Chronic Disease/psychology/therapy
Cohort Studies
Communication
Critical Illness/psychology/therapy
Decision Making
Female
Feudtner C
Hospitals
Humans
Infant
Interview
Journal Article
Judgment
Kang T
Male
Palliative Care/psychology
Parent caregivers
Parents/psychology
Pediatric
Pediatrics
Philadelphia
Preschool
Problem Solving
Professional-family Relations
Prospective Studies
Psychological
Renjilian CB
Womer JW
Young Adult