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40
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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September 2021 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2021 List
URL Address
<a href="http://doi.org/10.1037/cfp0000180" target="_blank" rel="noreferrer noopener">http://doi.org/​10.1037/cfp0000180</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Grieving the loss of a child in times of COVID-19
Publisher
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Couple and Family Psychology: Research and Practice
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
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Bereavement; Parents; Family Members; Couples; Grief; COVID-19; Pandemics; Child Loss
Creator
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Hooghe A; Claeys A; Thompson B; Neimeyer RA; Rober P
Description
An account of the resource
Given the massive influences of COVID-19 restrictions on people in nearly all nations, we conducted an in-depth qualitative study of 15 Belgian parents who had lost a child prior to the pandemic in order to understand its impact on their ongoing bereavement. Analysis of focus group sessions and couples interviews distinguished between experiences related to the pandemic and those related to resulting governmental restrictions (e.g., lockdown, social distancing). We theoretically framed our findings in terms of the dual processes of orienting to loss versus restoring life, reconstructing meaning in bereavement, and relationally attuning as a couple to a shared loss. We found that the COVID period accentuated all losses, awakening the parents’ grief for their own loss and their empathy for others. At the same time, they experienced limited opportunities for restoration-oriented distraction through connection with familiar activities and relationships beyond the family. Control or choice in this process of oscillation between orienting to grief versus ongoing life was impaired by the pandemic, as parents struggled to find a new dynamic balance to compensate for the risk of continuous engagement with reminders of their loss. Most notable was their close proximity as a couple, while being at a greater distance from the social network. The continuous attunement process between partners and family members played out in a process of drawing close and interposing distance, of grieving apart and together, of talking about grief and holding silence. We close by reflecting on the implications of our findings for clinical practice. (PsycInfo Database Record (c) 2021 APA, all rights reserved)
Identifier
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<a href="http://doi.org/10.1037/cfp0000180" target="_blank" rel="noreferrer noopener">10.1037/cfp0000180</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Bereavement
Child Loss
Claeys A
Couple and Family Psychology: Research and Practice
Couples
COVID-19
Family Members
Grief
Hooghe A
Neimeyer RA
Pandemics
Parents
Rober P
September 2021 List
Thompson B
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2016 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Clusters Of Multiple Complex Chronic Conditions: A Latent Class Analysis Of Children At End Of Life.
Publisher
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Journal Of Pain And Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Hospice Care; Pediatrics; Complex Chronic Conditions; Medicare Managed Care; Child; Clinical Neurology; Cancer; Palliative Care; Dependence; Latent Class Analysis; Couples; End Of Life Care; Health Care Sciences & Services Medicine General & Internal
Complex Chronic Conditions; Children; End Of Life; Latent Class Analysis; Pediatrics
Creator
An entity primarily responsible for making the resource
Lindley LC; Mack JW; Bruce DJ
Description
An account of the resource
CONTEXT:
Children at end of life often experience multiple complex chronic conditions with more than 50% of children reportedly having two or more conditions. These complex chronic conditions are unlikely to occur in an entirely uniform manner in children at end of life. Previous work has not fully accounted for patterns of multiple conditions when evaluating care among these children.
OBJECTIVES:
The objective of the study was to understand the clusters of complex chronic conditions present among children in the last year of life.
METHODS:
Participants were 1423 pediatric decedents from the 2007 to 2008 California Medicaid data. A latent class analysis was used to identify clusters of children with multiple complex chronic conditions (neurological, cardiovascular, respiratory, renal, gastrointestinal, hematologic, metabolic, congenital, cancer). Multinomial logistic regression analysis was used to examine the relationship between demographic characteristics and class membership.
RESULTS:
Four latent classes were yielded: medically fragile (31%); neurological (32%); cancer (25%); and cardiovascular (12%). Three classes were characterized by a 100% likelihood of having a complex chronic condition coupled with a low or moderate likelihood of having the other eight conditions. The four classes exhibited unique demographic profiles.
CONCLUSION:
This analysis presented a novel way of understanding patterns of multiple complex chronic conditions among children that may inform tailored and targeted end-of-life care for different clusters.
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Bruce DJ
Cancer
Child
Children
Clinical Neurology
Complex Chronic Conditions
Couples
Dependence
End Of Life
End Of Life Care
Health Care Sciences & Services Medicine General & Internal
Hospice Care
Journal of Pain and Symptom Management
Latent Class Analysis
Lindley LC
Mack JW
May 2016 List
Medicare Managed Care
Palliative Care
Pediatrics
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/pon.4204" target="_blank" rel="noreferrer">http://doi.org/10.1002/pon.4204</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Couple functioning after pediatric cancer diagnosis: a systematic review
Publisher
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Psycho-oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Parents; oncology; pediatric cancer; Couples; intimate relationships; systematic review
Creator
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Van Schoors M; Caes L; Alderfer MA; Goubert L; Verhofstadt L
Description
An account of the resource
OBJECTIVES: A systematic review was conducted to (1) investigate couple functioning after a pediatric cancer diagnosis and (2) examine theoretical and methodological tendencies and issues in this literature. METHODS: Searches of Web of Science, PubMed, Cochrane, PsycINFO, and Embase resulted in inclusion of 32 qualitative, quantitative, or mixed-method papers. Findings of these papers were extracted for summary. RESULTS: Most couples adapt well to the crisis of a pediatric cancer diagnosis in domains such as emotional closeness, support, marital satisfaction, and general marital adjustment. However, most experience difficulties in the domain of sexual intimacy, and reports on conflict are mixed across qualitative and quantitative studies. CONCLUSIONS: This review illustrates the need for future research with a greater focus on the impact of a pediatric cancer diagnosis on the couple's functioning, conducted with the use of appropriate theoretical frameworks and based on both partners' reports. Improvements in research are needed to best inform couple-based interventions.
2016-06
Identifier
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<a href="http://doi.org/10.1002/pon.4204" target="_blank" rel="noreferrer">10.1002/pon.4204</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2016
Alderfer MA
Backlog
Caes L
Couples
Goubert L
intimate relationships
Journal Article
Oncology
Parents
Pediatric Cancer
Psycho-Oncology
Systematic Review
Van Schoors M
Verhofstadt L
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1037/0022-006X.73.4.617" target="_blank" rel="noreferrer">http://doi.org/10.1037/0022-006X.73.4.617</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Couples at risk following the death of their child: predictors of grief versus depression
Publisher
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Journal Of Consulting And Clinical Psychology
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Humans; Adult; Parents; Aged; Middle Aged; Attitude to Death; Death; Risk Factors; Time Factors; Depression; Family Characteristics; bereavement; Depression/psychology; Couples
Creator
An entity primarily responsible for making the resource
Wijngaards-de ML; Stroebe M; Schut H; Stroebe W; van den Bout J; van der Heijden P; Dijkstra I
Description
An account of the resource
This longitudinal study examined the relative impact of major variables for predicting adjustment (in terms of both grief and depression) among bereaved parents following the death of their child. Couples (N = 219) participated 6, 13, and 20 months postloss. Use of multilevel regression analyses enabled assessment of the impact of several predictors and facilitated analysis of factors that were either shared by parents or individual. Grief was predicted mainly by shared parent factors: child's age, cause and unexpectedness of death, and number of remaining children. By contrast, depression was predicted by individual parent factors: gender, religious affiliation, and professional help seeking. Theoretical implications of these findings are discussed.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1037/0022-006X.73.4.617" target="_blank" rel="noreferrer">10.1037/0022-006X.73.4.617</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Adult
Aged
Attitude To Death
Backlog
Bereavement
Couples
Death
Depression
Depression/psychology
Dijkstra I
Family Characteristics
Humans
Journal Article
Journal Of Consulting And Clinical Psychology
Middle Aged
Parents
Risk Factors
Schut H
Stroebe M
Stroebe W
Time Factors
van den Bout J
van der Heijden P
Wijngaards-de ML