Browse Items (243 total)
- Tags: Controlled Study
Quantification of walking-based physical activity and sedentary time in individuals with Rett syndrome
Tags: 2017, Adolescent, Adult, characteristics, Controlled Study, Cross-sectional Study, Data Base, Developmental Medicine and Child Neurology, Downs J, Female, Hill K, Human, Leonard H, linear regression analysis, Major Clinical Study, Model, Newton N, Quantitative Study, Rett syndrome, scoliosis, Seizure, tone and motor problems, Trajectory, Wakefulness, Walking, Wong K
Getting a Seat at the Table: An Iterative Development Process to Improve Available Benchmark Data for Pediatric Palliative Care Programs (S778)
Tags: 2020, administrative personnel, Child, conference abstract, Controlled Study, District of Columbia, Friebert S, Hospital Patient, Human, Humphrey L, Journal of Pain and Symptom Management, Klick J, March 2020 List, Palliative Therapy, Perception, phase 1 clinical trial, Program Development, Rogers M, Williams C, workflow
Enhancing Connections-Palliative Care: A Quasi-Experimental Pilot Feasibility Study of a Cancer Parenting Program
Tags: 2020, Adolescent, Advanced Cancer, Almulla H A, Alzawad Z, anxiety, Article, Child, Child Parent Relation, Controlled Study, Depression, Disease Course, Distress Syndrome, Feasibility Study, Griffith K A, Hospice, Human, Journal of Palliative Medicine, Lewis F M, Loggers E T, Metastasis, Nurse, Oncology 2020 List, Palacios R, Palliative Therapy, Phillips F, Preschool Child, program impact, psychological adjustment, Self Concept, Shands M E, Skill, Telephone, Tercyak K P, tumor-related gene, Zahlis E H
Engaging Fathers in Pediatric Palliative Care Research
Tags: 2020, 2022 Special Edition 1 - Parent Perspectives, Barrera M, Beaune L, Belletrutti M, Blumberg J, Caregiver, Child, Child Health, Controlled Study, Father, Health Care Personnel, Ing S, Interview, Journal of social work in end of life & palliative care., Male, Nicholas D, Palliative Therapy, Pediatrics, Perception, Qualitative Research, Rapoport A, Wellbeing
Key Findings of the Structures and Processes of Inpatient Pediatric Palliative Care Programs (S737)
Tags: 2020, Burnout, Child, Clergy, conference abstract, Controlled Study, Female, Friebert S, Health Care Delivery, Health Care System, Heitner R, Hospital Patient, Human, Journal of Pain and Symptom Management, Klick J, Major Clinical Study, Male, March 2020 List, Palliative Therapy, Physician, Practice Guideline, registered nurse, Rogers M, Social Worker, Williams C
Parental experience of hope in pediatric palliative care: Critical reflections on an exemplar of parents of a child with trisomy 18
Tags: 2020, 2022 Special Edition 1 - Parent Perspectives, care behavior, Child, child protection, Controlled Study, Edwards syndrome, family counseling, Grounded Theory, Intensive Care Unit, Nursing inquiry., Pain, Palliative Therapy, Patient Education, Pediatrics, personnel management, Practice Guideline, son, Szabat M
Functional and gait assessment in children and adolescents affected by Friedreich's ataxia: A one-year longitudinal study
Tags: 2016, Adolescent, Article, assessment of humans, Bella G D, Bertini E, Castelli E, characteristics, Child, Clinical Article, Controlled Study, Female, Friedreich's ataxia, functional assessment, Gait, Gait Analysis and the Scale for the Assessment and Rating of Ataxia, Gazzellini S, Human, Lispi M L, longitudinal study, Male, Petrarca M, Pisano A, PLoS One, Preschool Child, Reliability, step length, stride length, tone and motor problems, Trajectory, Vasco G, Walking, walking velocity, Zazza M
Trends in the aggressiveness of pediatric cancer near the end-of-life
Tags: 2018, Adult, aggressiveness, Artificial Ventilation, Cancer Patient, Child, Childhood Cancer, conference abstract, Controlled Study, Death, Diagnosis, Female, Fushimi K, Hematologic Malignancy, Human, Intubation, Japan, Major Clinical Study, Male, Matsumoto K, Oncology 2019 List, Pediatric Blood and Cancer, Resuscitation, School Child, Shinjo D, Terminal Care, Yotani N, Young Adult
The efficacy of educational interventions on neonatal intensive care unit nurses knowledge and attitude toward neonatal palliative care
Tags: 2023, Abuhammad S, adjuvant therapy, Adult, Aggression, analgesic activity, anxiety, Article, Attitude, care behavior, Chronic Pain, cocaine, Controlled Study, Death, Demographics, drowsiness, drug dependence, Education Program, Educational Status, El-Bashir M, Elayyan M, electrolyte disturbance, Electronic Journal of General Medicine, emotional deprivation, Family, Fatigue, Female, Grief, Hospital Admission, Human, Human Experiment, Infant Newborn, Intestine, Jordan, June 2022 List, Knowledge, Male, Marriage, Morphine, Nausea And Vomiting, Neonatal Intensive Care Unit, neonatal intensive care unit attitude scale, Nurse, Nursing, Opiate, Pain, Palliative Care, Palliative Therapy, pethidine, pretest posttest design, Prognosis, Questionnaire, Respiration Depression, scoring system, Sedation, work experience
A One Day Paediatric Palliative Care Study Day Improves Skills
Ethical Considerations in Oncology and Palliative Care Research During COVID-19
Tags: 2022, Akard TF, Controlled Study, coronavirus, Gilmer MJ, Hendricks-Ferguson VL, human neoplasm therapy, Journal of Pediatric Hematology/Oncology Nursing, October 2022 List, palliative nursing, Palliative Therapy, Pandemic, randomized controlled, Research Design, research ethics, trial, virtual research
The effect of web-based pediatric palliative care education on the palliative care knowledge level and practices of nursing students
Child Death And Deterioration Review Group
Tags: 2017, Adoption, Adverse Drug Reaction, Alderton M, Archives of Disease in Childhood, Case Study, Cause Of Death, Child, Child Death, Clinical Article, Controlled Study, Deterioration, Female, Health Care Quality, Human, Learning, Male, Nursing Staff, Palliative Therapy, Perception, Pryde K, September 2017 List, Side Effect, Student, Trust
Pediatric chronic patients at outpatient clinics: A study in a Latin American University Hospital
Tags: 2017, Adolescent, Adult, Alveno RA, Cardiology, Carneiro-Sampaio M, Carvalho WB, Child, Chronic Patient, Controlled Study, Cross Sectional Study, Death, December 2017 List, Emergency Health Service, Emergency Ward, Endocrinology, Farhat SCL, Female, Hematology, Hojo ES, Hospital Admission, Hospitalization, Human, Intensive Care Unit, Jornal De Pediatria., Kidney Transplantation, Major Clinical Study, Male, Miranda CV, Nephrology, Neurology, Odone-Filho V, Oncology, Outpatient, Pain, Passone CG, Physician, Psychiatry, Rheumatology, Silva CA, Tannuri U, University Hospital, Waetge AR
Influence of early phase clinical trial enrollment on patterns of end-of-life care for children with advanced cancer
Tags: 2017, Advanced Cancer, Al-Sayegh H, Ananth P, Child, Childhood Cancer, Clinical Trial, Cohort Analysis, Controlled Study, Death, Female, Health Care Utilization, Human, Ma C, Major Clinical Study, Male, Monsereenusorn C, Oncology 2017 List, Palliative Therapy, Pediatric Blood and Cancer, Rodriguez-Galindo C, Terminal Care, Wolfe J
The effect of L 5 hydroxytryptophan on self mutilation in Lesch Nyhan disease: a negative report
Tags: 1976, Anderson L T, automutilation, behavioral problems, carbidopa, Child, Clinical Study, Clinical Trial, Controlled Study, Dancis J, Drug Therapy, Herrmann L, Human, L-5-hydroxyl-tryptophan, Lesch Nyhan syndrome, Major Clinical Study, Neuropadiatrie, pharmacologic intervention, PLACEBO, self-mutilation, Therapy
"It Is a Whole Different Life from the Life I Used to Live": Assessing Parents' Support Needs in Paediatric Palliative Care
Tags: 2022, Adult, Aoun SM, Article, Australia, Caregiver Support, Children, clinical monitoring, Controlled Study, Cuddeford L, Deleuil R, Emotion, emotional support, empowerment, family support, Feasibility Study, Female, Gill FJ, Hospice Care, Human, July List 2023, Lyon ME, Male, Momber S, Palliative Care, Palliative Therapy, Parent, pediatric patient, Phillips MB, psychosocial care, Public Health, Qualitative Research, Stegmann R, Terminal Care, tertiary care center, Thematic Analysis, Volunteer
Multidiciplinary approach of transition into home care for peadiatric and AYA end-of life cancer patients: A single center experience
Tags: 2018, Adolescent, Adult, Arakawa A, cancer center, Cancer Patient, Cancer Staging, Child, Clinical Article, conference abstract, Controlled Study, Female, Home Care, Human, Ishiki H, Ishimaru S, Kumamoto T, Male, Nakajima M, Ogawa C, Oncology 2019 List, Pediatric Blood and Cancer, Retrospective Study, Satomi E, Shimizu M, Shirakawa N, Social Worker, Sonoda T, time of death, Young Adult
Perinatal hypoxic-ischaemic encephalopathy: a national survey of end-of-life decisions and palliative care
Tags: 2019, Arnaez J, Article, BMJ supportive & palliative care., Consensus, Controlled Study, Decision Making, Garcia-Alix A, Gestational Age, Grief, Herranz-Rubia N, Human, hypothermia, hypoxic ischemic encephalopathy, Interview, Nervous System, Newborn, November 2019 List, Nurse, Palliative Therapy, Prognosis
Taking Memory Making to the Next Level with the Use of Resin
The Landscape of Outpatient Pediatric Palliative Care: A National Cross-Sectional Assessment
Tags: 2023, Advance Care Planning, Analgesia, Article, Autrey AK, Cesarean Section, Child, Controlled Study, Demographics, Funding, Hospital Patient, Human, James C, Journal of Pain and Symptom Management, Kaye EC, May List 2023, Miller EG, Morvant A, Mothi SS, Outpatient, Palliative Care, Palliative Therapy, Patient Referral, Program Development, School Child, Stafford C, United States, workflow
A pilot study on sports activities in pediatric palliative care: just do it
Tags: 2023, Agosto C, Article, Avagnina I, Benini F, BMC Palliative Care, Caregiver, Child, Controlled Study, Exercise, Female, Giacomelli L, Human, International Classification of Functioning Disability and Health, June 2022 List, juvenile, Maghini I, Male, mental deficiency, motor dysfunction, Palliative Care, Palliative Therapy, Papa S, Perilongo G, Personal Experience, physical activity, Pilot Projects, Pilot Study, Quality Of Life, Questionnaire, Salamon E, Santini A, Sports, Swimming
Psychometric properties of the Turkish version of the Stress Scale for Nurses Providing End-of-Life Care for Children
Tags: 2023, 2023 SE5 - Low Resource Setting, Article, Ayran G, Cevik Ozdemir HN, Checklist, Child, confirmatory factor analysis, construct validity, content validity, Controlled Study, Cronbach alpha coefficient, Human, Internal Consistency, intervention study, Nurse, Palliative And Supportive Care, pediatric nurse, Physiological stress, Psychometrics, Reliability, Terminal Care, Turkey (republic), Wellbeing
Challenges experienced by paediatricians providing palliative care to children; A thematic analysis
Tags: 2019, Archives of Disease in Childhood, Australia, Balfe J, Child, conference abstract, Controlled Study, Death, Devins M, E-mail, Expectation, Female, Health Care System, Holistic Care, Human, Human Experiment, Learning, Major Clinical Study, Male, Molloy E, Needs Assessment, O'Reilly M, October 2019 List, Palliative Therapy, Pediatrician, Pediatrics, Questionnaire, Social Welfare, specialist registrar, Thematic Analysis, Twomey M, Whitla L
Pediatric Cardiology Provider Attitudes About Palliative Care: A Multicenter Survey Study
Tags: 2017, Balkin E M, Blume E D, Cardiac Surgeon, Cardiologist, Child, Clinical Study, Clinical Trial, Controlled Clinical Trial, Controlled Study, Female, Heart Failure, Human, Intensivist, Kaufman BD, Kirkpatrick J N, Life Expectancy, Male, Medical School, Multicenter Study, Palliative Therapy, Pediatric Cardiology, Pediatric cardiology., September 2017 List, Skill, Sleeper L A, Swetz K M, Terminal Care, Wolfe J
Mitochondrial capacity, muscle endurance, and low energy in friedreich ataxia
Tags: 2017, Adolescent, Adult, alertness, Article, Bossie H M, cellular subcellular and molecular biological phenomena and functions, characteristics, Child, Clinical Article, Comparative Study, Controlled Study, Cross-sectional Study, Disease Severity, electrostimulation, endurance, energy, Fatigue, Female, Friedreich ataxia, Godin Leisure Time Physical Activity Score, Human, Male, McCully K K, mechanomyography, mitochondrial capacity, Muscle and Nerve, muscle endurance, muscle exercise, myography, near infrared spectroscopy, O'Connor P J, oxygen consumption, physical energy, Priority Journal, Schoick R A V, School Child, scoring system, skeletal muscle, Trajectory, Willingham T B
The Nesting Dolls Design: A Methodology for the Recruitment of Bereaved Parents for Partnership Activities Related to Palliative Care and Bereavement Support in Paediatric Psycho-Oncology
Tags: 2018, 52315-07-8 (cypermethrin), 65731-84-2 (cypermethrin), 66841-24-5 (cypermethrin), 67375-30-8 (cypermethrin), Bereavement Support, Bourque C J, Cardinal G, Child, Clinical Article, Clinician, conference abstract, Confidentiality, Content Analysis, Controlled Study, cypermethrin, Death, Dumont E, evaluation research, Female, filter, Follow Up, Human, information center, Intensive Care, Interview, Journal of Pain and Symptom Management, Male, Neonatology, nesting, Oncology 2019 List, Palliative Therapy, Pediatrics, Psycho-Oncology, Questionnaire, research ethics, Sultan S, writing
A cross-sectional controlled developmental study of neuropsychological functions in patients with glutaric aciduria type i
Tags: 2015, Adolescent, Adult, Article, Barry Albright Dystonia Scale, Boy N, Burgard P, characteristics, Child, Clinical Article, Cognition, cognitive development, continuous performance test, Controlled Study, Cross Sectional Study, Dystonia, dystonia/di [Diagnosis], enzyme deficiency, Female, Garbade S F, Glahn E M, Glutaric acidemia type I, glutaric aciduria type I, Haege G, Heringer J, Hoffmann G F, Human, Information Processing, Kolker S, Male, Metabolic Disorder, motor dysfunction, motor performance, neurologic disease assessment, newborn screening, Orphanet Journal Of Rare Diseases, response time, tone and motor problems, Trajectory, visual memory, visuomotor coordination, working memory
My Life Is a Mess but I Cope': An Analysis of the Language Children with Life-limiting and Life Threatening Illnesses Use to Describe their Own Condition
Tags: 2023, ambivalence, Braybrook D, Bristowe K, Child, Clinical Article, conference abstract, Controlled Study, Coombes L, discourse analysis, Downing J, Ellis-Smith C, Emotion, Female, Fraser L, Harardottir D, Harding R, Health Status, Human, Human Experiment, Human Tissue, Interview, Language, literature, Male, Malignant Neoplasm, Murtagh FE, Only Child, Palliative Medicine, Preschool Child, Roach A, Scott HM, September List 2027, Thematic Analysis
Lactation Support as a Proxy Measure of Family-Centered Care Quality in Neonates with Life-Limiting Conditions-A Comparative Study
Tags: 2023, Article, Brannon M, breast feeding, breast pump, Brito S, Cerebral Palsy, Chahin N, Children, clinical assessment, Cognitive Defect, Cohort Analysis, Comparative Study, Congenital Heart Disease, Controlled Study, do not resuscitate order, Donor Milk, extracorporeal oxygenation, Family Centered Care, February List 2024, Female, Fox J, gastrointestinal disease, Genetic Disorder, Gestational Age, health disparity, Hendricks-Munoz KD, Hospital Admission, hospital discharge, Human, hypoxic ischemic encephalopathy, incurable disease, Infant, kidney disease, lactation, learning disorder, Length Of Stay, Life limiting condition, Lung Disease, Major Clinical Study, Male, McCarthy K, Mohammed T, Mortality, Neonatal Intensive Care Unit, Neurologic Disease, Nubayaat L, Nunlist S, nutritional deficiency, Retrospective Study, Seizure, sensory dysfunction, Williams A, Xu J
Training Pediatric Fellows In Palliative Care: A Comparison Of Simulation-based Training And Didactic Education
Tags: 2017, Brock K, Cardiology, Child, Clinical Trial, Cohen H, Comfort, Communication Skill, Controlled Clinical Trial, Controlled Study, Curriculum, Family, Female, Good J, Halamek L, Hematology, Human, Human Versus Animal Comparison, Male, Medical Education, Neonatology, Nonhuman, October 2017 List, Oncology, Palliative Therapy, Pediatric Blood and Cancer, Physician, Pilot Study, Resuscitation, Simulation, Single Blind Procedure, Sourkes B
Dying and Death in a Pediatric Cardiac ICU: Mixed Methods Evaluation of Multidisciplinary Staff Responses
Tags: 2023, Article, Attention, Bailey VK, Beke DM, Broden EG, Child, Content Analysis, Controlled Study, coronary care unit, Education, Human, in-hospital mortality, Major Clinical Study, Moynihan KM, Multidisciplinary team, November List 2041, Nurse, Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies, Physician, Snaman JM, Terminal Care
"I Didn't Want My Baby to Pass, But I Didn't Want Him Suffering Either": Comparing Bereaved Parents' Narratives With Nursing End-of-Life Assessments in the Pediatric Intensive Care Unit
Tags: 2022, Article, August 2022 List, Broden EG, Cancer Patient, Child, Chronic Disease, Comfort, Controlled Study, Curley MAQ, Distress Syndrome, Hinds PS, Human, Infant, Intensive Care, Interview, Journal of Hospice and Palliative Nursing, Major Clinical Study, Male, Malignant Neoplasm, Memory, Narrative, Nursing, Pain, Pediatric Intensive Care Unit, Perception, quantitative analysis, Sedation, Terminal Care, Werner-Lin AV
Transition to a Primary Palliative Care Model in the NICU (FR441B)
Tags: 2020, Baxter R, Brown H, Bruner A, Comfort, conference abstract, Controlled Study, Documentation, Education, Female, Hospice, Human, Human Experiment, Infant, Journal of Pain and Symptom Management, Male, March 2020 List, Needs Assessment, Neonatologist, Nurse, Palliative Therapy, Satisfaction
Decision-making at the limit of viability: Differing perceptions and opinions between neonatal physicians and nurses
Tags: 2018, Adult, Article, assisted ventilation, Barbara D, Baumann-Hölzle R, Berger TM, Bmc Pediatrics, Brigitte S, Bucher HU, Controlled Study, enteric feeding, Fauchère JC, Female, Gudrun J, Hendriks MJ, hospital policy, Human, Infant Mortality, Jean-Claude F, Kai R, Klein SD, Legal Aspect, Liliane S, Magali C, Male, Mathias N, Matthias R, Medical Decision Making, Medical Practice, Neonatal Intensive Care Unit, Neonatal Nurse, Neonatologist, nurse attitude, October 2018 List, Patient Participation, Philipp M, Physician Attitude, Prematurity, Questionnaire, Religion, Renate I, Riccardo P, Roland N, Ruth D, September 2018 List, Streuli JC, Switzerland, Terminal Care, Ulrike S, work experience
Effect of selective dorsal rhizotomy on daily care and comfort in non-walking children and adolescents with severe spasticity
Tags: 2017, Adolescent, Attention, Becher J G, Bolster E A M, Buizer A I, Cerebral Palsy, Child, Clinical Article, Comfort, Congenital Malformation, Controlled Study, dorsal rhizotomy, Dystonia, European Journal of Paediatric Neurology, Follow Up, Human, leg muscle, lipidoses, Medical History, Pain, risk factor, Satisfaction, School Child, scoliosis, selective dorsal rhizotomy, Spasticity, Stadhouder A, Strijers R L, surgical intervention, tone and motor problems, van de Pol L A, van Ouwerkerk W J, van Schie P E M, Vermeulen R J
Inter-Rater Reliability of the Phase of Illness Tool in Pediatric Palliative Care
Tags: 2020, Adult, Anderson A K, Article, Burke K, Child, Cohort Analysis, Controlled Study, Coombes L H, Feasibility Study, Female, Human, interrater reliability, Major Clinical Study, Male, May 2020 List, Palliative Therapy, pediatric patient, Petruckevitch A, Prospective Study, Reproducibility, The American journal of hospice & palliative care., Uncertainty
The Use of Concurrent Home Hospice for Pediatric Heart Failure Patients Awaiting Heart Transplant on Milrinone and/or Ventricular Assist Device
Tags: 2020, 78415-72-2 (milrinone), Adams V L, Body Weight, Burnette A L, Child, Clergy, conference abstract, Controlled Study, dietitian, Emergency Ward, Feeding, Follow Up, Heart Failure, heart graft, Henderson H T, Home Visit, Hospice, Hospital Admission, hospital discharge, hospital readmission, Human, inotropism, Journal of Heart and Lung Transplantation, May 2020 List, milrinone, money, Mortality, Outpatient, Palliative Therapy, Satisfaction, Savage A J, Social Worker, travel
Patient-Centered Perinatal Palliative Care: Family Birth Plans, Outcomes, and Resource Utilization in a Diverse Cohort
Tags: Article, Child, Female, Fetus, Infant, Newborn, 2022, American Journal of Obstetrics & Gynecology MFM, Buskmiller C, Chen M, Cohort Analysis, Comfort, Consultation, Controlled Study, Crowe E, Demographics, Expectation, Fetus Malformation, Gants S, Ho S, Hospice, Human, income group, Lopez S, November 2022 List, outcome assessment, Palliative Therapy, postpartum hemorrhage, Prenatal Diagnosis, Prognosis, Retrospective Study, Trisomy 13
Spiritual needs and communicating about death in nonreligious theistic families in pediatric palliative care: A qualitative study
Tags: 2020, Abbas A, Article, Bereavement Support, Cai S, Child, China, Comfort, Controlled Study, Death Education, Guo Q, Hematology, Human, Luo Y, March 2020 List, Palliative Medicine, Palliative Therapy, Pediatrics, Peng X, Qualitative Research, Religion, Spiritual Care, support group, terminally Ill Patient, Zhou X, Zhou Y