1
40
40
-
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Title
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June 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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June 2022 List
URL Address
<a href="https://www.sciencedirect.com/science/article/pii/S2445147923000164?via%3Dihub">https://www.sciencedirect.com/science/article/pii/S2445147923000164?via%3Dihub</a>
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Title
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Home care needs of paediatric palliative patients perceived by professionals: A grounded theory
Publisher
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Enfermeria Clinica
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Identifier
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<a href="https://www.sciencedirect.com/science/article/pii/S2445147923000164?via%3Dihub">10.1016/j.enfcle.2023.01.001</a>
2023
Atenci—n Domiciliaria de Salud
Chronic Disease
Continuidad de la Atenci—n al Paciente
Continuity Of Patient Care
Cuidados paliativos
Enfermedad Cr—nica
Enfermeria Clinica
home care services
Home Nursing
Investigaci—n cualitativa
June 2022 List
Paediatrics
Palliative Care
Pediatr’a
Qualitative Research
Rodr’guez-Su‡rez CA
Santana-Medina J
-
Dublin Core
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Title
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2021 Special Edition 1 - Low Resource Settings
Text
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Citation List Month
2021 Special Edition 1 - Low Resource Settings
URL Address
<a href="http://doi.org/10.1186/s12939-020-01252-x" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1186/s12939-020-01252-x</a>
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Title
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Vulnerability and Agency across Treatment-Seeking Journeys for Acutely Ill Children: How Family Members Navigate Complex Healthcare Before, During and After Hospitalisation in A Rural Kenyan Setting
Publisher
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International Journal for Equity in Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
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Adult; Child Preschool; Cohort Studies; Female; Humans; Infant; Male; Qualitative Research; Prospective Studies; Family; Continuity of Patient Care; Hospitalization; Child Mortality; Social Support; Acute Disease; Caregivers; Health Facilities; Family Characteristics; Vulnerable Populations; Rural Population; Kenya/epidemiology; Agency; Child Health; Childhood acute illness; Delivery of Health Care/standards; Treatment-seeking; Vulnerability
Creator
An entity primarily responsible for making the resource
Zakayo SM; Njeru RW; Sanga G; Kimani MN; Charo A; Muraya K; Sarma H; Uddin MF; Berkley JA; Walson JL; Kelley M; Marsh V; Molyneux S
Description
An account of the resource
BACKGROUND: Child mortality rates during hospitalisation for acute illness and after discharge are unacceptably high in many under-resourced settings. Childhood vulnerability to recurrent illness, and death, is linked to their families' situations and ability to make choices and act (their agency). We examined vulnerability and agency across treatment-seeking journeys for acutely ill children and considered the implications for policy and practice. METHOD: A qualitative sub-study was embedded within the prospective CHAIN Network cohort study, which is investigating mechanisms of inpatient and post-hospital discharge mortality among acutely ill young children across a spectrum of nutritional status. Primary data were collected from household members of 20 purposively selected cohort children over 18 months through formal interviews (total n = 74), complemented by informal discussions and observations. Data were analysed using narrative and thematic approaches. RESULTS: Treatment-seeking pathways were often long and complex, particularly for children diagnosed as severely malnourished. Family members' stories reveal that children's carers, usually mothers, navigate diverse challenges related to intersecting vulnerabilities at individual, household and facility levels. Specific challenges include the costs of treatment-seeking, confusing and conflicting messaging on appropriate care and nutrition, and poor continuity of care. Strong power inequities were observed between family members and health staff, with many mothers feeling blamed for their child's condition. Caregivers' agency, as demonstrated in decision-making and actions, often drew on the social support of others but was significantly constrained by their situation and broader structural drivers. CONCLUSION: To support children's care and recovery, health systems must be more responsive to the needs of families facing multiple and interacting vulnerabilities. Reducing incurred treatment costs, improving interpersonal quality of care, and strengthening continuity of care across facilities is essential. Promising interventions need to be co-designed with community representatives and health providers and carefully tested for unintended negative consequences and potential for sustainable scale-up.
Identifier
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<a href="http://doi.org/10.1186/s12939-020-01252-x" target="_blank" rel="noreferrer noopener">10.1186/s12939-020-01252-x</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
2021 Special Edition 1 - Low Resource Settings
Acute Disease
Adult
agency
Berkley JA
Caregivers
Charo A
Child Health
Child Mortality
Child Preschool
Childhood acute illness
Cohort Studies
Continuity Of Patient Care
Delivery of Health Care/standards
Family
Family Characteristics
Female
Health Facilities
Hospitalization
Humans
Infant
International Journal for Equity in Health
Kelley M
Kenya/epidemiology
Kimani MN
Male
Marsh V
Molyneux S
Muraya K
Njeru RW
Prospective Studies
Qualitative Research
Rural Population
Sanga G
Sarma H
Social Support
Treatment-seeking
Uddin MF
VULNERABILITY
Vulnerable Populations
Walson JL
Zakayo SM
-
Dublin Core
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Title
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Special Edition #1 2022 List
Text
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Special Edition #1 2022 List
URL Address
<a href="http://doi.org/10.1542/hpeds.2019-0185" target="_blank" rel="noreferrer noopener">http://doi.org/10.1542/hpeds.2019-0185</a>
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Title
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Parent Perspectives During Hospital Readmissions for Children With Medical Complexity: A Qualitative Study
Publisher
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Hospital Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
Newborn Infant; Preschool Child; Academic Medical Centers; Adolescent; Attitude to Health; Child; Chronic Disease; Continuity of Patient Care; Health Knowledge, Attitudes, Practice; Health Services Accessibility; Infant; Interviews as Topic; Male; Parents; Patient Readmission; Qualitative Research
Creator
An entity primarily responsible for making the resource
Leary JC; Krcmar R; Yoon GH; Freund KM; LeClair AM
Description
An account of the resource
OBJECTIVES: Children with medical complexity (CMC) have high readmission rates, but relatively little is known from the parent perspective regarding care experiences surrounding and factors contributing to readmissions. We aimed to elicit parent perspectives on circumstances surrounding 30-day readmissions for CMC. METHODS: We conducted 20 semistructured interviews with parents of CMC experiencing an unplanned 30-day readmission at 1 academic medical center between December 2016 and January 2018, asking about topics such as previous discharge experiences, medical services and resources, and home environment and social support. Interviews were recorded, professionally transcribed, and analyzed thematically by using a modified grounded theory approach. RESULTS: Children ranged in age from 0 to 15 years, with neurologic complex chronic conditions being predominant (35%). Although the majority of parents did not identify any factors that they perceived to have contributed to readmission, themes emerged regarding challenges associated with chronicity of care and transitions of care that might influence readmissions, including frequency of hospital use, symptom confusion, lack of inpatient continuity, resources needed but not received, and difficulty filling prescriptions. CONCLUSIONS: Parents identified multiple challenges associated with chronicity of medical management and transitions of care for CMC. Future interventions aiming to improve continuity and communication between admissions, ensure that home services are provided when applicable and prescriptions are filled, and provide comprehensive support for families in both the short- and long-term may help improve patient and family experiences while potentially decreasing readmissions.
Identifier
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<a href="http://doi.org/10.1542/hpeds.2019-0185" target="_blank" rel="noreferrer noopener">10.1542/hpeds.2019-0185</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
2022 Special Edition 1 - Parent Perspectives
Academic Medical Centers
Adolescent
Attitude To Health
Child
Chronic Disease
Continuity Of Patient Care
Freund KM
Health Knowledge, Attitudes, Practice
Health Services Accessibility
Hospital Pediatrics
Infant
Interviews As Topic
Krcmar R
Leary JC
LeClair AM
Male
Newborn Infant
Parents
patient readmission
Preschool Child
Qualitative Research
Yoon GH
-
Dublin Core
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Title
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June 2021 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
June 2021 List
URL Address
<a href="http://doi.org/10.1186/s12904-020-00620-2" target="_blank" rel="noreferrer noopener">http://doi.org/10.1186/s12904-020-00620-2</a>
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Title
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Transition from children's to adult services for adolescents/young adults with life-limiting conditions: developing realist programme theory through an international comparison
Publisher
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BMC Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
adolescent; Continuity of Patient Care; life-limiting conditions; young adult
Creator
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Kerr H; Widger K; Cullen-Dean G; Price J; O'Halloran P
Description
An account of the resource
BACKGROUND: Managing transition of adolescents/young adults with life-limiting conditions from children's to adult services has become a global health and social care issue. Suboptimal transitions from children's to adult services can lead to measurable adverse outcomes. Interventions are emerging but there is little theory to guide service developments aimed at improving transition. The Transition to Adult Services for Young Adults with Life-limiting conditions (TAYSL study) included development of the TASYL Transition Theory, which describes eight interventions which can help prepare services and adolescents/young adults with life-limiting conditions for a successful transition. We aimed to assess the usefulness of the TASYL Transition Theory in a Canadian context to identify interventions, mechanisms and contextual factors associated with a successful transition from children's to adult services for adolescents/young adults; and to discover new theoretical elements that might modify the TASYL Theory. METHODS: A cross-sectional survey focused on organisational approaches to transition was distributed to three organisations providing services to adolescents with life-limiting conditions in Toronto, Canada. This data was mapped to the TASYL Transition Theory to identify corresponding and new theoretical elements. RESULTS: Invitations were sent to 411 potentially eligible health care professionals with 56 responses from across the three participating sites. The results validated three of the eight interventions: early start to the transition process; developing adolescent/young adult autonomy; and the role of parents/carers; with partial support for the remaining five. One new intervention was identified: effective communication between healthcare professionals and the adolescent/young adult and their parents/carers. There was also support for contextual factors including those related to staff knowledge and attitudes, and a lack of time to provide transition services centred on the adolescent/young adult. Some mechanisms were supported, including the adolescent/young adult gaining confidence in relationships with service providers and in decision-making. CONCLUSIONS: The Transition Theory travelled well between Ireland and Toronto, indicating its potential to guide both service development and research in different contexts. Future research could include studies with adult service providers; qualitative work to further explicate mechanisms and contextual factors; and use the theory prospectively to develop and test new or modified interventions to improve transition.
Identifier
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<a href="http://doi.org/10.1186/s12904-020-00620-2" target="_blank" rel="noreferrer noopener">10.1186/s12904-020-00620-2</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Adolescent
BMC Palliative Care
Continuity Of Patient Care
Cullen-Dean G
June 2021 List
Kerr H
Life-limiting Conditions
O'Halloran P
Price J
Widger K
Young Adult
-
Text
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Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2013.07.007" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.jpainsymman.2013.07.007</a>
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Title
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Parents' experiences of pediatric palliative care and the impact on long-term parental grief.
Publisher
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Journal Of Pain And Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
Cross-Sectional Studies; Female; Humans; Male; Palliative Care; Adult; Middle Aged; Communication; Multivariate Analysis; Continuity of Patient Care; Children; retrospective studies; Neoplasms/therapy; cancer; Grief; Parents/psychology; Pediatrics; Palliative Care/psychology; parental grief; Surveys and Questionnaires; symptom management
Creator
An entity primarily responsible for making the resource
van der Geest IMM; Darlington Anne-Sophie E; Streng IC; Michiels EMC; Pieters R; van den Heuvel-Eibrink MM
Description
An account of the resource
CONTEXT: Approximately 25% of children diagnosed with cancer eventually die. Losing a child puts parents at increased risk for developing psychological problems. OBJECTIVES: To explore parents' perceptions of the interaction with health care professionals (communication, continuity of care, and parental involvement) and symptom management during the pediatric palliative phase, and to investigate the influence on long-term grief in parents who lost a child to cancer. METHODS: A total of 89 parents of 57 children who died of cancer between 2000 and 2004 participated in this retrospective cross-sectional study by completing a set of questionnaires measuring grief (Inventory of Traumatic Grief), parents' perceptions of the interaction with health care professionals (communication, continuity of care, and parental involvement), and symptom management during the palliative phase. Care was assessed on a five point Likert scale (1=disagree and 5=agree). RESULTS: Parents highly rated communication (4.6+/-0.6), continuity of care (4.3+/-0.6), and parental involvement (4.6+/-0.7) during the palliative phase. Parents' most often reported physical and psychological symptoms of their child during the palliative phase were fatigue (75%), pain (74%), anxiety to be alone (52%), and anger (48%). Higher ratings of parents on communication (beta=-9.08, P=0.03) and continuity of care (beta=-11.74, P=0.01) were associated with lower levels of long-term parental grief. The severity of the child's dyspnea (beta=2.96, P=0.05), anxiety to be alone (beta=4.52, P<0.01), anxiety about the future (beta=5.02, P<0.01), anger (beta=4.90, P<0.01), and uncontrolled pain (beta=6.60, P<0.01) were associated with higher levels of long-term parental grief. Multivariate models combining the interaction with health care professionals and symptom management showed a significant influence of both aspects on long-term parental grief. CONCLUSION: Both interaction with health care professionals, especially communication and continuity of care, and symptom management in children dying of cancer are associated with long-term parental grief levels.
2014-06
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jpainsymman.2013.07.007" target="_blank" rel="noreferrer">10.1016/j.jpainsymman.2013.07.007</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Adult
Backlog
Cancer
Children
Communication
Continuity Of Patient Care
Cross-sectional Studies
Darlington Anne-Sophie E
Female
Grief
Humans
Journal Article
Journal of Pain and Symptom Management
Male
Michiels EMC
Middle Aged
Multivariate Analysis
Neoplasms/therapy
Palliative Care
Palliative Care/psychology
Parental Grief
Parents/psychology
Pediatrics
Pieters R
Retrospective Studies
Streng IC
Surveys And Questionnaires
Symptom Management
van den Heuvel-Eibrink MM
van der Geest IMM
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/pbc.26046" target="_blank" rel="noreferrer">http://doi.org/10.1002/pbc.26046</a>
Dublin Core
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Title
A name given to the resource
Parental Grief Following the Death of a Child from Cancer: The Ongoing Odyssey
Publisher
An entity responsible for making the resource available
Pediatric Blood & Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
bereavement; Qualitative Research; Continuity of Patient Care; Counseling; Self-Help Groups; Grief; cancer
Creator
An entity primarily responsible for making the resource
Snaman JM; Kaye EC; Torres C; Gibson D; Baker JN
Description
An account of the resource
BACKGROUND: The death of a child is a devastating event that results in profound grief and significant psychosocial and physical morbidities in parents. The parental grief journey is a complex phenomenon necessitating the utilization of newer models of bereavement with a focus on relationships and exploration of parents' perceived meanings of the experience. OBJECTIVES: To further characterize the grief journey of parents whose child died from cancer in order to better identify parents who can benefit from additional bereavement support and design strategies to improve bereavement services for these parents. DESIGN: We conducted focus group sessions with 11 bereaved parents. The parents were given two prompts to describe their grief journey before and after their child's death, and their responses in a narrative form were audio-recorded. The responses were coded and studied independently by semantic content analysis. RESULTS: Collation and analysis of the coded responses to both prompts results in the emergence of four concepts from the parental narratives: (1) description of the grief trajectory and evolution of grief over time, (2) mechanisms of parental coping throughout the grief journey, (3) factors that exacerbate parental grief, and (4) sources of parental support throughout the grief journey. CONCLUSIONS: The narratives highlighted that parents whose child died of cancer experience a unique and evolving form of grief and they wish to continue their bond with the deceased child. We recommend that healthcare providers and institutions incorporate support systems into a comprehensive bereavement program for families of children who die from cancer.
2016-09
Identifier
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<a href="http://doi.org/10.1002/pbc.26046" target="_blank" rel="noreferrer">10.1002/pbc.26046</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2016
Backlog
Baker JN
Bereavement
Cancer
Continuity Of Patient Care
Counseling
Gibson D
Grief
Journal Article
Kaye EC
Pediatric Blood & Cancer
Qualitative Research
Self-Help Groups
Snaman JM
Torres C
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1007/s00246-009-9442-1" target="_blank" rel="noreferrer">http://doi.org/10.1007/s00246-009-9442-1</a>
Dublin Core
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Title
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Attitude toward and current practice of transfer and transition of adolescents with congenital heart disease in the United States of America and Europe
Publisher
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Pediatric Cardiology
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Child; Humans; United States; Adult; Attitude of Health Personnel; Questionnaires; Continuity of Patient Care; Europe; adolescent; Adolescent Transitions; retrospective studies; Heart Defects; Congenital/therapy; Patient Transfer/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Hilderson D; Saidi AS; Van Deyk K; Verstappen A; Kovacs AH; Fernandes SM; Canobbio MM; Fleck D; Meadows A; Linstead R; Moons P
Description
An account of the resource
The objective of this study was to explore the current practice and attitudes of pediatric cardiologists in the United States and Europe on the transfer and transition of children with congenital heart disease (CHD). A survey among pediatric cardiology programs in the United States and Europe was undertaken. Sixty-nine centers completed and returned the 61-item questionnaire that was specifically devised for this survey. Of 69 participating centers, 74% reported that they transfer their patients to adult-focused care. When a center transfers its patients, 80% transfer them to a formalized Adult Congenital Heart Disease Program. The median age of transfer is 18 years. Comorbidities, pregnancy, and patient/family request to leave pediatric cardiology were identified as initiators for transfer. Complexity of the heart defect was relatively less important when deciding whether to transfer patients. Only one-third of the centers that transfer their patients provide a structured preparation for patients and family. Development of a formal transition program is planned at 59% of the centers that transfer patients. In conclusion, timely transfer and a structured transition process of children with CHD are not implemented in all pediatric cardiology programs. Health-care providers working in pediatric cardiology should make their transfer policies explicit and transition programs ought to be developed.
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1007/s00246-009-9442-1" target="_blank" rel="noreferrer">10.1007/s00246-009-9442-1</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Adolescent
Adolescent Transitions
Adult
Attitude Of Health Personnel
Backlog
Canobbio MM
Child
Congenital/therapy
Continuity Of Patient Care
Europe
Fernandes SM
Fleck D
Heart Defects
Hilderson D
Humans
Journal Article
Kovacs AH
Linstead R
Meadows A
Moons P
Patient Transfer/statistics & numerical data
Pediatric Cardiology
Questionnaires
Retrospective Studies
Saidi AS
United States
Van Deyk K
Verstappen A
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.arcped.2008.12.021" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.arcped.2008.12.021</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Transition from pediatric to adult care: experience of a cystic fibrosis care center]
Publisher
An entity responsible for making the resource available
Archives De Pediatrie
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Female; Humans; Male; Young Adult; Continuity of Patient Care; Quality of Health Care; Adolescent Health Services; adolescent; Adolescent Transitions; Cystic Fibrosis/therapy; France
Creator
An entity primarily responsible for making the resource
Malbrunot-Wagner AC; Bonnemains C; Troussier F; Darviot E; Chiffoleau M; Person C; Urban T; Ginies JL
Description
An account of the resource
BACKGROUND AND OBJECTIVE: Even though patients with cystic fibrosis (CF) are continuously improving their life expectancy, guidelines for transition to adult services have not been clearly determined yet. The aim of this study was to analyze the management of this transition in the CF care center of Angers, France. PATIENTS AND METHOD: From their medical files, we analyzed the transfer of 22 patients with CF from pediatric to adult care. The perceptions of patients and caregivers regarding this transition were evaluated using anonymous questionnaires. RESULTS: The initial objective was to transfer patients around 18 years of age, offering them 3 or 4 joint consultations with a pediatrician and adult lung specialist. The median age of transfer was 22 years and the median duration of the transition period was 9 months. Half of the patients had only 1 joint transfer consultation during transition. The patient reaching the age of 18 and maturity were the most common criteria mentioned for transfer. All highlighted problems leaving the pediatric team they had grown attached to and its familiar environment. Caregivers described the transfer as a success, whereas half of the patients were dissatisfied with it, with both patients and caregivers indicating that the transition was too short without enough joint consultations. CONCLUSIONS: This study shows that this period is a major life event for the patient with CF. The transition process must be organized with the patient and independent behaviors should be encouraged. Adult and pediatric teams need to cooperate. Based on this experience and former medical data, we suggest a transition program for patients with CF.
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.arcped.2008.12.021" target="_blank" rel="noreferrer">10.1016/j.arcped.2008.12.021</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Adolescent
Adolescent Health Services
Adolescent Transitions
Archives de Pediatrie
Backlog
Bonnemains C
Chiffoleau M
Continuity Of Patient Care
Cystic Fibrosis/therapy
Darviot E
Female
France
Ginies JL
Humans
Journal Article
Malbrunot-Wagner AC
Male
Person C
Quality Of Health Care
Troussier F
Urban T
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.jadohealth.2009.05.011" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.jadohealth.2009.05.011</a>
Dublin Core
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Title
A name given to the resource
How adult specialists deal with the principles of a successful transition
Publisher
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The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Female; Humans; Male; Physician-Patient Relations; Pediatrics; Logistic Models; Questionnaires; Middle Aged; Continuity of Patient Care; adolescent; Adolescent Transitions; Chronic Disease/therapy; Physicians/psychology; Switzerland
Creator
An entity primarily responsible for making the resource
Suris JC; Akre C; Rutishauser C
Description
An account of the resource
OBJECTIVES: To evaluate whether adult specialists comply with the basic principles for a successful transition of adolescents with chronic disorders, and to determine whether the characteristics of the adult specialists have an influence on applying these principles. METHODS: Out of 299 adult specialists in four French-speaking Swiss cantons, 209 (70%) answered a paper-and-pencil mailed questionnaire between May and July 2007. Only those having received the transfer of at least one adolescent in the previous 2 years (N=102) were included in the analysis. We analyzed four dependent variables: discussing common concerns of adolescent patients, seeing the patient alone, having a transition protocol, and having a previous contact with the pediatric specialist. A logistic regression was performed for each dependent variable controlling for the physicians' characteristics (number of transfers, age, gender, workplace, and perceived experience). RESULTS: Fifty-four percent of the physicians did not spend time alone with their patients, and sensitive issues such as sexuality or substance use were not widely discussed with their young patients. Most respondents (59%) did not have an established protocol, and 54% did not have any contact with the pediatric specialist. In the multivariate analyses, the adult specialists' characteristics had little impact. CONCLUSIONS: For many adolescents with chronic disorders the transition from pediatric to adult healthcare seems to be limited to a simple transfer, often lacking adequate communication between physicians. Applying simple but basic principles such as a good coordination between providers would probably improve the quality of healthcare of adolescents with chronic illness.
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jadohealth.2009.05.011" target="_blank" rel="noreferrer">10.1016/j.jadohealth.2009.05.011</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Adolescent
Adolescent Transitions
Akre C
Backlog
Chronic Disease/therapy
Continuity Of Patient Care
Female
Humans
Journal Article
Logistic Models
Male
Middle Aged
Pediatrics
Physician-patient Relations
Physicians/psychology
Questionnaires
Rutishauser C
Suris JC
Switzerland
The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1093/ndt/gfl770" target="_blank" rel="noreferrer">http://doi.org/10.1093/ndt/gfl770</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Adolescents with renal disease in an adult world: meeting the challenge of transition of care
Publisher
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Nephrology, Dialysis, Transplantation
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Delivery of Health Care; Humans; Pediatrics; Parent-Child Relations; Age Factors; Continuity of Patient Care; Adolescent Health Services; Patient Compliance; adolescent; Adolescent Transitions; Kidney Diseases/psychology/therapy; Adolescent Medicine; Nephrology
Creator
An entity primarily responsible for making the resource
Bell L
Identifier
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<a href="http://doi.org/10.1093/ndt/gfl770" target="_blank" rel="noreferrer">10.1093/ndt/gfl770</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2007
2007
Adolescent
Adolescent Health Services
Adolescent Medicine
Adolescent Transitions
Age Factors
Backlog
Bell L
Continuity Of Patient Care
Delivery of Health Care
Humans
Journal Article
Kidney Diseases/psychology/therapy
Nephrology
Nephrology, Dialysis, Transplantation
Parent-child Relations
Patient Compliance
Pediatrics
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/MOT.0b013e32833984a5" target="_blank" rel="noreferrer">http://doi.org/10.1097/MOT.0b013e32833984a5</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Adherence to medical recommendations and transition to adult services in pediatric transplant recipients
Publisher
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Current Opinion In Organ Transplantation
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Humans; Young Adult; Adult; Practice Guidelines as Topic; Drug Monitoring; Treatment Outcome; Risk Assessment; Risk Factors; Continuity of Patient Care; Health Behavior; Patient Education as Topic; Practice; adolescent; Attitudes; Adolescent Transitions; Health Knowledge; Graft Survival; Immunosuppressive Agents/therapeutic use; Graft Rejection/etiology/prevention & control; Medication Adherence; Organ Transplantation/adverse effects
Creator
An entity primarily responsible for making the resource
Shemesh E; Annunziato RA; Arnon R; Miloh T; Kerkar N
Description
An account of the resource
PURPOSE OF REVIEW: Nonadherence to treatment recommendations, especially when associated with transition to adult care providers, account, by some estimates, for most organ rejections and death in long-term pediatric survivors of solid organ transplantations. It is therefore imperative that providers become familiar with the issues related to those major risks and ways to address them. RECENT FINDINGS: It is possible, and important, to routinely measure adherence to medications by using one of several available and proven methods of surveillance. There are numerous ways to improve adherence, and it is in fact possible to improve adherence and therefore outcomes in the transplant setting. The transition to adult services is a vulnerable period. The authors believe that it is possible to improve the transition process, and suggestions are presented in this review. However, solid research into interventions to improve transition is lacking. SUMMARY: Nonadherence to medical recommendations is prevalent and leads to poor outcomes following otherwise successful pediatric transplantation. An especially vulnerable period is the time when a recipient transitions to adult care. Routine monitoring of adherence, evaluating and addressing barriers to adherence, and collaborative, multidisciplinary care are all expected to substantially improve adherence and reduce the risks associated with transition.
2010
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/MOT.0b013e32833984a5" target="_blank" rel="noreferrer">10.1097/MOT.0b013e32833984a5</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Adolescent
Adolescent Transitions
Adult
Annunziato RA
Arnon R
Attitudes
Backlog
Continuity Of Patient Care
Current Opinion In Organ Transplantation
Drug Monitoring
Graft Rejection/etiology/prevention & control
Graft Survival
Health Behavior
Health Knowledge
Humans
Immunosuppressive Agents/therapeutic use
Journal Article
Kerkar N
Medication Adherence
Miloh T
Organ Transplantation/adverse effects
Patient Education as Topic
Practice
Practice Guidelines As Topic
Risk Assessment
Risk Factors
Shemesh E
Treatment Outcome
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1945-1474.2008.tb01137.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1945-1474.2008.tb01137.x</a>
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Title
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A home for medically complex children: the role of hospital programs
Publisher
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Journal For Healthcare Quality
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Child; Humans; home care services; Health Services Needs and Demand; Continuity of Patient Care; Models; Organizational; Disease Management; Hospitalized; Hospital-Based
Creator
An entity primarily responsible for making the resource
Cohen E; Friedman J; Nicholas DB; Adams S; Rosenbaum P
Description
An account of the resource
The medical home is a conceptual model of continuous and comprehensive care provision that is associated with improved outcomes for children with special healthcare needs. Most applications of the medical home have focused on improving primary care services. Despite concerted efforts to apply the medical home concept to the care of children with special healthcare needs, many barriers to its implementation still exist, in particular, for the subset of children with special healthcare needs who are medically complex. Applying the medical home concept to hospital-based care coordination may benefit both children with complex conditions and their families, as well as the community-based providers.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1945-1474.2008.tb01137.x" target="_blank" rel="noreferrer">10.1111/j.1945-1474.2008.tb01137.x</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Adams S
Backlog
Child
Cohen E
Continuity Of Patient Care
Disease Management
Friedman J
Health Services Needs And Demand
home care services
Hospital-Based
Hospitalized
Humans
Journal Article
Journal For Healthcare Quality
Models
Nicholas DB
Organizational
Rosenbaum P
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/0269216308100251" target="_blank" rel="noreferrer">http://doi.org/10.1177/0269216308100251</a>
Dublin Core
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Title
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Using videotelephony to support paediatric oncology-related palliative care in the home: from abandoned RCT to acceptability study
Publisher
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Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Child; Female; Humans; Male; Palliative Care; Adult; Patient Acceptance of Health Care; Australia; Computer Security; Continuity of Patient Care; Cost-Benefit Analysis; Early Termination of Clinical Trials; Patient Satisfaction; PPC Book Chapter 2011 (Kim Widger); adolescent; Preschool; Parents/psychology; Neoplasms/therapy; Computer Communication Networks/economics; Health Services Accessibility/economics; Home Care Services/economics; Rural Health Services/economics; Telemedicine/economics/instrumentation/methods; Videoconferencing/economics/instrumentation
Creator
An entity primarily responsible for making the resource
Bensink ME; Armfield NR; Pinkerton R; Irving H; Hallahan A; Theodoros DG; Russell T; Barnett AG; Scuffham P; Wootton R
Description
An account of the resource
Videotelephony (real-time audio-visual communication) has been used successfully in adult palliative home care. This paper describes two attempts to complete an RCT (both of which were abandoned following difficulties with family recruitment), designed to investigate the use of videotelephony with families receiving palliative care from a tertiary paediatric oncology service in Brisbane, Australia. To investigate whether providing videotelephone-based support was acceptable to these families, a 12-month non-randomised acceptability trial was completed. Seventeen palliative care families were offered access to a videotelephone support service in addition to the 24 hours 'on-call' service already offered. A 92% participation rate in this study provided some reassurance that the use of videotelephones themselves was not a factor in poor RCT participation rates. The next phase of research is to investigate the integration of videotelephone-based support from the time of diagnosis, through outpatient care and support, and for palliative care rather than for palliative care in isolation. Trial registration ACTRN 12606000311550.
2009
Identifier
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<a href="http://doi.org/10.1177/0269216308100251" target="_blank" rel="noreferrer">10.1177/0269216308100251</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Adolescent
Adult
Armfield NR
Australia
Backlog
Barnett AG
Bensink ME
Child
Computer Communication Networks/economics
Computer Security
Continuity Of Patient Care
Cost-Benefit Analysis
Early Termination of Clinical Trials
Female
Hallahan A
Health Services Accessibility/economics
Home Care Services/economics
Humans
Irving H
Journal Article
Male
Neoplasms/therapy
Palliative Care
Palliative Medicine
Parents/psychology
Patient Acceptance of Health Care
Patient Satisfaction
Pinkerton R
PPC Book Chapter 2011 (Kim Widger)
Preschool
Rural Health Services/economics
Russell T
Scuffham P
Telemedicine/economics/instrumentation/methods
Theodoros DG
Videoconferencing/economics/instrumentation
Wootton R
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1503/cmaj.080430" target="_blank" rel="noreferrer">http://doi.org/10.1503/cmaj.080430</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Information exchange among physicians caring for the same patient in the community
Publisher
An entity responsible for making the resource available
Canadian Medical Association Journal
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Female; Humans; Male; Follow-Up Studies; Prospective Studies; Middle Aged; Cooperative Behavior; Communication; Physicians; Ontario; Continuity of Patient Care; Hospitals; Community; University; Access to Information; Medical Record Linkage; Office Visits
Creator
An entity primarily responsible for making the resource
van Walraven C; Taljaard M; Bell CM; Etchells E; Zarnke KB; Stiell IG; Forster AJ
Description
An account of the resource
BACKGROUND: The exchange of information is an integral component of continuity of health care and may limit or prevent costly duplication of tests and treatments. This study determined the probability that patient information from previous visits with other physicians was available for a current physician visit. METHODS: We conducted a multicentre prospective cohort study including patients discharged from the medical or surgical services of 11 community and academic hospitals in Ontario. Patients included in the study saw at least 2 different physicians during the 6 months after discharge. The primary outcome was whether information from a previous visit with another physician was available at the current visit. We determined the availability of previous information using surveys of or interviews with the physicians seen during current visits. RESULTS: A total of 3250 patients, with a total of 39 469 previous-current visit combinations, met the inclusion criteria. Overall, information about the previous visit was available 22.0% of the time. Information was more likely to be available if the current doctor was a family physician (odds ratio [OR] 1.75, 95% confidence interval [CI] 1.54-1.98) or a physician who had treated the patient before the hospital admission (OR 1.33, 95% CI 1.21-1.46). Conversely, information was less likely to be available if the previous doctor was a family physician (OR 0.38, 95% CI 0.32-0.44) or a physician who had treated the patient before the admission (OR 0.72, 95% CI 0.60-0.86). The strongest predictor of information exchange was the current physician having previously received information about the patient from the previous physician (OR 7.72, 95% CI 6.92-8.63). INTERPRETATION: Health care information is often not shared among multiple physicians treating the same patient. This situation would be improved if information from family physicians and patients' regular physicians was more systematically available to other physicians.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1503/cmaj.080430" target="_blank" rel="noreferrer">10.1503/cmaj.080430</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Access To Information
Backlog
Bell CM
Canadian Medical Association Journal
Communication
Community
Continuity Of Patient Care
Cooperative Behavior
Etchells E
Female
Follow-up Studies
Forster AJ
Hospitals
Humans
Journal Article
Male
Medical Record Linkage
Middle Aged
Office Visits
Ontario
Physicians
Prospective Studies
Stiell IG
Taljaard M
University
van Walraven C
Zarnke KB
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1503/cmaj.081483" target="_blank" rel="noreferrer">http://doi.org/10.1503/cmaj.081483</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Strengthening primary care with better transfer of information
Publisher
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Canadian Medical Association Journal
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Humans; Patient-Centered Care; Communication; Physicians; Continuity of Patient Care; Primary Health Care/organization & administration; Medical Records Systems; Access to Information; Medical Record Linkage; Computerized
Creator
An entity primarily responsible for making the resource
Reid RJ; Wagner EH
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1503/cmaj.081483" target="_blank" rel="noreferrer">10.1503/cmaj.081483</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2008
2008
Access To Information
Backlog
Canadian Medical Association Journal
Communication
Computerized
Continuity Of Patient Care
Humans
Journal Article
Medical Record Linkage
Medical Records Systems
Patient-centered Care
Physicians
Primary Health Care/organization & administration
Reid RJ
Wagner EH
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.7748/paed2007.11.19.9.42.c6286" target="_blank" rel="noreferrer">http://doi.org/10.7748/paed2007.11.19.9.42.c6286</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Complex palliative care and transition: a case review
Publisher
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Paediatric Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Child; Humans; Male; Palliative Care; Adult; Continuity of Patient Care; adolescent; Chronic disease
Creator
An entity primarily responsible for making the resource
Bowen M
Description
An account of the resource
This case study assesses the effect that health and social care had on the chronic life-limiting condition of a young man going through transition from children's to adult services. He was taken into foster care at 16 years old and placed with his maternal uncle and aunt. Relevant literature is introduced to consider the impact that placement had on the foster family and the young person as he was transitioned over a two-year period to adult services, not only in terms of their adaptations, but also on his health and prognosis. Close liaison between social services and hospital and community teams meant that medical and social outcomes were markedly improved for this young man.
2007
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.7748/paed2007.11.19.9.42.c6286" target="_blank" rel="noreferrer">10.7748/paed2007.11.19.9.42.c6286</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
Adolescent
Adult
Backlog
Bowen M
Child
Chronic Disease
Continuity Of Patient Care
Humans
Journal Article
Male
Paediatric Nursing
Palliative Care
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/01.mib.0000194182.85047.6a" target="_blank" rel="noreferrer">http://doi.org/10.1097/01.mib.0000194182.85047.6a</a>
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The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Educate, communicate, anticipate-practical recommendations for transitioning adolescents with IBD to adult health care
Publisher
An entity responsible for making the resource available
Inflammatory Bowel Diseases
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Humans; Physician-Patient Relations; Adult; Age Factors; Continuity of Patient Care; adolescent; Practice Guidelines; Adolescent Transitions; Adolescent Health Services/organization & administration; Pediatrics/organization & administration; Patient Education; Gastroenterology/organization & administration; Inflammatory Bowel Diseases/therapy
Creator
An entity primarily responsible for making the resource
Hait E; Arnold JH; Fishman LN
Description
An account of the resource
The cyclical nature of chronic illness requires that children with inflammatory bowel disease be transitioned to the adult medical system with as much continuity of care as possible. Transition from pediatric to adult medical care continues to present significant barriers. The philosophy of transition centers on a process, with the actual transfer to adult care as a point along this clinical pathway. Concrete steps can be taken to help patients prepare for new responsibilities. The aim of this review is to propose a clinical and developmental timeline for both patients and their medical team, including specific responsibilities for both, so that the partnership can best promote a successful transition.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/01.mib.0000194182.85047.6a" target="_blank" rel="noreferrer">10.1097/01.mib.0000194182.85047.6a</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adolescent
Adolescent Health Services/organization & administration
Adolescent Transitions
Adult
Age Factors
Arnold JH
Backlog
Child
Continuity Of Patient Care
Fishman LN
Gastroenterology/organization & administration
Hait E
Humans
Inflammatory Bowel Diseases
Inflammatory Bowel Diseases/therapy
Journal Article
Patient Education
Pediatrics/organization & Administration
Physician-patient Relations
Practice Guidelines
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.2004-1321" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2004-1321</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Health care transition: youth, family, and provider perspectives
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Female; Humans; Male; Physician-Patient Relations; Family; Adult; Attitude to Health; Attitude of Health Personnel; Interdisciplinary Communication; Disabled Persons; Health Services Research; Focus Groups; Continuity of Patient Care; Patient Care Planning; Family Practice; adolescent; Adolescent Transitions; Health; Insurance; Chronic Disease/therapy; Adolescent Health Services/organization & administration; Delivery of Health Care/organization & administration; Pediatrics/organization & administration; Adolescent Medicine/organization & administration; CHIR Best Practices; Insurance Coverage
Creator
An entity primarily responsible for making the resource
Reiss JG; Gibson RW; Walker LR
Description
An account of the resource
OBJECTIVE: This study examined the process of health care transition (HCT) posing the following questions: What are the transition experiences of youths and young adults with disabilities and special health care needs, family members, and health care providers? What are promising practices that facilitate successful HCT? What are obstacles that inhibit HCT? METHODS: A qualitative approach was used to investigate these questions. Focus group interviews were conducted. Content and narrative analyses of interview transcripts were completed using ATLAS.ti. RESULTS: Thirty-four focus groups and interviews were conducted with 143 young adults with disabilities and special health care needs, family members, and health care providers. Content analysis yielded 3 content domains: transition services, which presents a chronological understanding of the transition process; health care systems, which presents differences between pediatric and adult-oriented medicine and how these differences inhibit transition; and transition narratives, which discusses transition experience in the broader context of relationships between patients and health care providers. CONCLUSION: This study demonstrated the presence of important reciprocal relationships that are based on mutual trust between providers and families and are developed as part of the care of chronically ill children. Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process. Evidence further supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures. Young adults' and family members' lack of preparation for successful participation in the adult health care system contributes to problems with HCT.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2004-1321" target="_blank" rel="noreferrer">10.1542/peds.2004-1321</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Adolescent
Adolescent Health Services/organization & administration
Adolescent Medicine/organization & administration
Adolescent Transitions
Adult
Attitude Of Health Personnel
Attitude To Health
Backlog
CHIR Best Practices
Chronic Disease/therapy
Continuity Of Patient Care
Delivery of Health Care/organization & administration
Disabled Persons
Family
Family Practice
Female
Focus Groups
Gibson RW
Health
Health Services Research
Humans
Insurance
Insurance Coverage
Interdisciplinary Communication
Journal Article
Male
Patient Care Planning
Pediatrics
Pediatrics/organization & Administration
Physician-patient Relations
Reiss JG
Walker LR
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16497736" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16497736</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Lost in transition? Between paediatric and adult services
Publisher
An entity responsible for making the resource available
Bmj
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Humans; Great Britain; adolescent; PedPal Lit; Pediatrics; Continuity of Patient Care; Adolescent Health Services/organization & administration
Creator
An entity primarily responsible for making the resource
McDonagh JE; Viner RM
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2006
2006
Adolescent
Adolescent Health Services/organization & administration
Backlog
Bmj
Child
Continuity Of Patient Care
Great Britain
Humans
Journal Article
McDonagh JE
Pediatrics
PedPal Lit
Viner RM
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/ppul.10419" target="_blank" rel="noreferrer">http://doi.org/10.1002/ppul.10419</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Transition programs in cystic fibrosis centers
Publisher
An entity responsible for making the resource available
Pediatric Pulmonology
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Humans; Great Britain; Adult; Continuity of Patient Care; adolescent; Adolescent Transitions; Cystic Fibrosis/therapy; Patient Transfer
Creator
An entity primarily responsible for making the resource
Conway SP
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/ppul.10419" target="_blank" rel="noreferrer">10.1002/ppul.10419</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2004
2004
Adolescent
Adolescent Transitions
Adult
Backlog
Continuity Of Patient Care
Conway SP
Cystic Fibrosis/therapy
Great Britain
Humans
Journal Article
Patient Transfer
Pediatric Pulmonology
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1046/j.1365-2702.2003.00781.x" target="_blank" rel="noreferrer">http://doi.org/10.1046/j.1365-2702.2003.00781.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Providing a seamless service for children with life-limiting illness: experiences and recommendations of professional staff at the Diana Princess of Wales Children's Community Service
Publisher
An entity responsible for making the resource available
Journal Of Clinical Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Child; Humans; England; Communication; Longitudinal Studies; Continuity of Patient Care; Nursing Evaluation Research; Staff Development; disabled children; Child Health Services/organization & administration; Catastrophic Illness/nursing; Community Health Nursing/education/organization & administration; Community Networks/organization & administration
Creator
An entity primarily responsible for making the resource
Danvers L; Freshwater D; Cheater F; Wilson A
Description
An account of the resource
The Diana Children's Community Teams (DCCTs), a new nurse-led service funded by the Department of Health, were established to provide care in the community as an alternative to hospital for children with life-threatening/life-limiting illnesses and their families. This paper presents selected findings highlighting the professionals' experiences which formed part of the evaluation of the Diana, Princess of Wales Children's Community Service in Leicester, Leicestershire and Rutland. The Diana Service in Leicestershire attempts to encompass both parental empowerment and interagency collaboration. By working in partnership with the children and their families, the team provides an integrated and multiprofessional community-based service. This paper particularly concentrates on the perceptions and recommendations from the Diana team itself. Three independently managed Community Nursing Services existed in Leicestershire prior to the Diana teams; a Paediatric Macmillan Service, a Children's Community Nursing Service and a Respite Service. The Leicestershire DCCT integrated the three nursing services into a single team. This team has moved away from a traditional uniprofessional service structure by encompassing a wider team of multiprofessionals, including a cultural link worker, an occupational therapist, a physiotherapist, a play specialist and a team of trained counsellors, working in partnership to provide a quality service for families. * The evaluation, which used a longitudinal multimethod process analysis based on an action research framework, suggests that children with complex and life-limiting illnesses and their families benefit greatly from an effective seamless service. This paper recommends a framework of care that may be relevant to other teams of children's community services across the country. This service has been judged by the impact it has had on the families who use it and the professionals employed within it.
2003
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1046/j.1365-2702.2003.00781.x" target="_blank" rel="noreferrer">10.1046/j.1365-2702.2003.00781.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
Backlog
Catastrophic Illness/nursing
Cheater F
Child
Child Health Services/organization & administration
Communication
Community Health Nursing/education/organization & administration
Community Networks/organization & administration
Continuity Of Patient Care
Danvers L
Disabled Children
England
Freshwater D
Humans
Journal Article
Journal of Clinical Nursing
Longitudinal Studies
Nursing Evaluation Research
Staff Development
Wilson A
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1053/jpdn.2002.126711" target="_blank" rel="noreferrer">http://doi.org/10.1053/jpdn.2002.126711</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
A model for transition from pediatric to adult care in cystic fibrosis
Publisher
An entity responsible for making the resource available
Journal Of Pediatric Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Female; Humans; Male; Adult; adolescent; Models; Adolescent Transitions; Cystic Fibrosis/therapy; PST - ppublish; Organizational; London; Continuity of Patient Care; Disease Management; AID - S0882596302000167 [pii]; CRDT- 2002/09/10 10:00; EDAT- 2002/09/10 10:00; MHDA- 2002/10/22 04:00
Creator
An entity primarily responsible for making the resource
Madge S; Bryon M
Description
An account of the resource
With improved medical technology, many chronic medical conditions of childhood are now recognized as conditions of childhood onset. Appropriate treatment of these conditions in the adult patient is required. The pediatric setting is not appropriate in terms of philosophy, service delivery, and relationship with the patient. To design a suitable transition protocol, a survey of teenage patients with cystic fibrosis was carried out and the process was discussed with the relevant clinicians. The results of the survey indicated that young people identified transition to an adult service as necessary and accepted, provided that good preparation is given from the pediatric setting. This article provides a detailed example of a model of transition for cystic fibrosis services to encourage practice and evaluation of provision.
2002
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1053/jpdn.2002.126711" target="_blank" rel="noreferrer">10.1053/jpdn.2002.126711</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2002
Adolescent
Adolescent Transitions
Adult
AID - S0882596302000167 [pii]
Backlog
Bryon M
Continuity Of Patient Care
CRDT- 2002/09/10 10:00
Cystic Fibrosis/therapy
Disease Management
EDAT- 2002/09/10 10:00
Female
Humans
Journal Article
Journal of Pediatric Nursing
London
Madge S
Male
MHDA- 2002/10/22 04:00
Models
Organizational
PST - ppublish
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/00005650-200202000-00008" target="_blank" rel="noreferrer">http://doi.org/10.1097/00005650-200202000-00008</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Continuity of care, self-management behaviors, and glucose control in patients with type 2 diabetes
Publisher
An entity responsible for making the resource available
Medical Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Female; Humans; Male; Adult; Prospective Studies; Middle Aged; Outcome Assessment (Health Care); Primary Health Care; Diabetes Mellitus; Continuity of Patient Care; Health Behavior; Self Care; Type 2/psychology; Type 2/therapy
Creator
An entity primarily responsible for making the resource
Parchman M; Pugh J; Noel PH; Larme A
Description
An account of the resource
BACKGROUND: The influence of continuity of care on outcomes of care for patients with type 2 diabetes is poorly understood. OBJECTIVE: To examine the relationships between continuity, glucose control, and advancement through stages of change for self-management behaviors. DESIGN: Prospective cohort study. SETTING: Five community health centers on the Texas-Mexico border. SUBJECTS: A random sample of 256 adults, 18 years of age and older with an established diagnosis of type 2 diabetes. MEASURES: Stage of change for diet and exercise were assessed during two patient interviews, averaging 18.9 months apart. Phlebotomy was performed at each interview to measure glycosolated hemoglobin (HbA1C). Medical records were abstracted for ambulatory care utilization. A continuity score was calculated based on the number of visits and number of providers seen. RESULTS: Patients who advanced one or more stages of change for diet had higher levels of continuity. As continuity improved, the change in HbA1C was smaller. (r = -0.25; P <0.001) This relationship remained significant after controlling for number of visits, months since diagnosis, number of days in the study, duration of diabetes, and advancement in stage of change for diet. Advancement through stage of change for diet explained a significant amount of the variance in the relationship between continuity and HbA1C (t test = -11.33; P <0.01). CONCLUSIONS: Continuity of care with a primary care provider is associated with better glucose control among patients with type 2 diabetes. This relationship appears to be mediated by changes in patient behavior regarding diet.
2002
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/00005650-200202000-00008" target="_blank" rel="noreferrer">10.1097/00005650-200202000-00008</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2002
Adult
Backlog
Continuity Of Patient Care
Diabetes Mellitus
Female
Health Behavior
Humans
Journal Article
Larme A
Male
Medical Care
Middle Aged
Noel PH
Outcome Assessment (health Care)
Parchman M
Primary Health Care
Prospective Studies
Pugh J
Self Care
Type 2/psychology
Type 2/therapy
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/1367493504041868" target="_blank" rel="noreferrer">http://doi.org/10.1177/1367493504041868</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Improving transition: a qualitative study examining the attitudes of young people with chronic illness transferring to adult care
Publisher
An entity responsible for making the resource available
Journal Of Child Health Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Female; Humans; Male; Adolescent Psychology; Great Britain; Adult; Attitude to Health; Interviews as Topic; Age Factors; Qualitative Research; Continuity of Patient Care; Professional-Patient Relations; adolescent; Adolescent Transitions; social support; Patient Transfer; Adolescent Health Services/organization & administration; Chronic Disease/psychology/therapy
Creator
An entity primarily responsible for making the resource
Soanes C; Timmons S
Description
An account of the resource
Transition is a process that attends to the medical, psychosocial and educational needs of young people as they transfer to adult-orientated care. With a growing population of adolescents surviving with chronic illness well into adulthood, it is remarkable that empirical research has paid little attention to transition. This qualitative study examined the attitudes of young people with chronic illness who were facing transition, considering what young people wanted from a transition service and the ways in which provision could be improved from a service-user's perspective. A purposive sample of seven adolescents (aged 14-17) attending a hospital youth club were interviewed. To increase the likelihood of successful transition, strategies need to be informal, flexible, highly individualized and prepare adolescents steadily for adult services.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/1367493504041868" target="_blank" rel="noreferrer">10.1177/1367493504041868</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Adolescent
Adolescent Health Services/organization & administration
Adolescent Psychology
Adolescent Transitions
Adult
Age Factors
Attitude To Health
Backlog
Chronic Disease/psychology/therapy
Continuity Of Patient Care
Female
Great Britain
Humans
Interviews As Topic
Journal Article
Journal Of Child Health Care
Male
Patient Transfer
Professional-patient Relations
Qualitative Research
Soanes C
Social Support
Timmons S
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.12968/bjon.2004.13.10.13047" target="_blank" rel="noreferrer">http://doi.org/10.12968/bjon.2004.13.10.13047</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The challenge of transitional care for young people with life-limiting illness
Publisher
An entity responsible for making the resource available
British Journal Of Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Child; Humans; Palliative Care; Continuity of Patient Care; Nursing Assessment; adolescent; disabled children; Child Health Services/organization & administration; Catastrophic Illness/nursing
Creator
An entity primarily responsible for making the resource
Maunder EZ
Description
An account of the resource
Transitional care for young people with life-limiting illness is a particularly complex issue. The process of moving from paediatric to adult services is often fraught and poorly planned. As a result, this can add to the distress experienced by the young people and their families. The ideal would be to have a dedicated service for young adults that bridges the gap in care. The continued slow growth of community children's nursing services, however, highlights the constraints in developing services for a relatively small percentage of the population. Healthcare professionals must recognize the specialist needs of this patient group, and develop strategies to ensure that young people receive the care to which they are entitled.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.12968/bjon.2004.13.10.13047" target="_blank" rel="noreferrer">10.12968/bjon.2004.13.10.13047</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Adolescent
Backlog
British Journal Of Nursing
Catastrophic Illness/nursing
Child
Child Health Services/organization & administration
Continuity Of Patient Care
Disabled Children
Humans
Journal Article
Maunder EZ
Nursing Assessment
Palliative Care
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1300/j027v22n02_01" target="_blank" rel="noreferrer">http://doi.org/10.1300/j027v22n02_01</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Process mapping as a tool for home health network analysis
Publisher
An entity responsible for making the resource available
Home Health Care Services Quarterly
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Humans; United States; Cooperative Behavior; Interinstitutional Relations; Continuity of Patient Care; Non-U.S. Gov't; Research Support; Home Care Services/organization & administration; Health Services Accessibility/organization & administration; Community Networks/organization & administration; Institutional Management Teams; Community Health Planning/organization & administration; Maps; Process Assessment (Health Care); Software Design; Systems Analysis
Creator
An entity primarily responsible for making the resource
Pluto DM; Hirshorn BA
Description
An account of the resource
Process mapping is a qualitative tool that allows service providers, policy makers, researchers, and other concerned stakeholders to get a "bird's eye view" of a home health care organizational network or a very focused, in-depth view of a component of such a network. It can be used to share knowledge about community resources directed at the older population, identify gaps in resource availability and access, and promote on-going collaborative interactions that encourage systemic policy reassessment and programmatic refinement. This article is a methodological description of process mapping, which explores its utility as a practice and research tool, illustrates its use in describing service-providing networks, and discusses some of the issues that are key to successfully using this methodology.
2003
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1300/j027v22n02_01" target="_blank" rel="noreferrer">10.1300/j027v22n02_01</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
Backlog
Community Health Planning/organization & administration
Community Networks/organization & administration
Continuity Of Patient Care
Cooperative Behavior
Health Services Accessibility/organization & administration
Hirshorn BA
Home Care Services/organization & administration
Home Health Care Services Quarterly
Humans
Institutional Management Teams
Interinstitutional Relations
Journal Article
Maps
Non-U.S. Gov't
Pluto DM
Process Assessment (Health Care)
Research Support
Software Design
Systems Analysis
United States
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/00005650-198107000-00005" target="_blank" rel="noreferrer">http://doi.org/10.1097/00005650-198107000-00005</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Seeing the Same Doctor: Determinants of Satisfaction with Specialty Care for Disabled Children
Publisher
An entity responsible for making the resource available
Medical Care
Date
A point or period of time associated with an event in the lifecycle of the resource
1981
Subject
The topic of the resource
Child; Humans; Physician-Patient Relations; Health Services Accessibility; Socioeconomic Factors; Disabled Persons; Continuity of Patient Care; Regression Analysis; Primary Health Care; Personal Satisfaction; adolescent; Miller 2009 BMC HSR Refs; Process Mapping; Ohio
Creator
An entity primarily responsible for making the resource
Breslau N; Mortimer EA
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/00005650-198107000-00005" target="_blank" rel="noreferrer">10.1097/00005650-198107000-00005</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
1981
1981
Adolescent
Backlog
Breslau N
Child
Continuity Of Patient Care
Disabled Persons
Health Services Accessibility
Humans
Journal Article
Medical Care
Miller 2009 BMC HSR Refs
Mortimer EA
Ohio
Personal Satisfaction
Physician-patient Relations
Primary Health Care
Process Mapping
Regression Analysis
Socioeconomic Factors
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/00005650-198204000-00001" target="_blank" rel="noreferrer">http://doi.org/10.1097/00005650-198204000-00001</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Continuity Reexamined: Differential Impact on Satisfaction with Medical Care for Disabled and Normal Children
Publisher
An entity responsible for making the resource available
Medical Care
Date
A point or period of time associated with an event in the lifecycle of the resource
1982
Subject
The topic of the resource
Child; Humans; Physician-Patient Relations; Questionnaires; Disabled Persons; Continuity of Patient Care; Consumer Satisfaction; Regression Analysis; adolescent; Preschool; Miller 2009 BMC HSR Refs; Process Mapping; Ohio; Primary Health Care/standards
Creator
An entity primarily responsible for making the resource
Breslau N
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/00005650-198204000-00001" target="_blank" rel="noreferrer">10.1097/00005650-198204000-00001</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
1982
1982
Adolescent
Backlog
Breslau N
Child
Consumer Satisfaction
Continuity Of Patient Care
Disabled Persons
Humans
Journal Article
Medical Care
Miller 2009 BMC HSR Refs
Ohio
Physician-patient Relations
Preschool
Primary Health Care/standards
Process Mapping
Questionnaires
Regression Analysis
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/00005650-198308000-00006" target="_blank" rel="noreferrer">http://doi.org/10.1097/00005650-198308000-00006</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Patient satisfaction and change in medical care provider: a longitudinal study
Publisher
An entity responsible for making the resource available
Medical Care
Date
A point or period of time associated with an event in the lifecycle of the resource
1983
Subject
The topic of the resource
Longitudinal Studies; Probability; Ohio; Consumer Satisfaction; Continuity of Patient Care; Personal Health Services; Primary Health Care
Creator
An entity primarily responsible for making the resource
Marquis MS; Davies AR; Ware JE
Description
An account of the resource
Longitudinal data from The Rand Corporation's Health Insurance Experiment were used to test the hypothesis that provider continuity can be modeled as one behavioral consequence of patient satisfaction. Bivariate and multivariate analyses (controlling for sociodemographic characteristics, prior use of services, health status, and health insurance plan) supported our hypotheses. A multivariate linear probability function indicated that a 1-point decrease on a general satisfaction scale was associated with a 3.4 percentage-point increase in the probability of provider change. The relationship between satisfaction scores and continuity during the following year appears to be roughly linear; we observed no "threshold" satisfaction level at which the probability of provider change increased markedly. We discuss needed improvements in the measurement of provider continuity and the need for further study of other behavioral consequences of patient satisfaction.
1983
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/00005650-198308000-00006" target="_blank" rel="noreferrer">10.1097/00005650-198308000-00006</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1983
Backlog
Consumer Satisfaction
Continuity Of Patient Care
Davies AR
Journal Article
Longitudinal Studies
Marquis MS
Medical Care
Ohio
Personal Health Services
Primary Health Care
Probability
Ware JE
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archfami.9.4.333" target="_blank" rel="noreferrer">http://doi.org/10.1001/archfami.9.4.333</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The effect of continuity of care on emergency department use
Publisher
An entity responsible for making the resource available
Archives Of Family Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2000
Subject
The topic of the resource
Child; Cross-Sectional Studies; Female; Humans; Male; United States; Adult; Middle Aged; Multivariate Analysis; Continuity of Patient Care; Emergency Service; adolescent; Aid to Families with Dependent Children/statistics & numerical data; Delaware; Hospital/utilization; Medicaid/statistics & numerical data; Office Visits/statistics & numerical data; Preschool
Creator
An entity primarily responsible for making the resource
Gill J; Mainous A; Nsereko M
Description
An account of the resource
OBJECTIVE: To examine whether continuity of care with an individual health care provider is associated with the number of hospital emergency department (ED) visits in a statewide Medicaid population. DESIGN: A cross-sectional study based on a 100% sample of Delaware Medicaid claims for 1 year (July 1, 1993, to June 30, 1994). Continuity with a single provider during the year was computed for each participant. SETTING: The state of Delaware. PARTICIPANTS: Continuously enrolled Medicaid clients aged 0 to 64 years who had made at least 3 physician office visits during the study year (N = 11,474). INTERVENTION: None. MAIN OUTCOME MEASURES: Likelihood of making a single ED visit or multiple ED visits during the study year. RESULTS: In multivariate analysis, continuity is associated with a significantly lower likelihood of making a single ED visit (odds ratio, 0.82; 95% confidence interval, 0.70-0.95), and is even more strongly associated with a lower likelihood of making multiple ED visits (odds ratio, 0.65; 95% confidence interval, 0.56-0.76). CONCLUSIONS: This study demonstrates that high provider continuity is associated with lower ED use for the Medicaid population. This suggests that strategies to improve continuity of care may result in lower ED use and possibly reduced health care costs. Such strategies may be more acceptable than current managed care policies that attempt to control costs by denying access to emergency care.
2000
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archfami.9.4.333" target="_blank" rel="noreferrer">10.1001/archfami.9.4.333</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2000
Adolescent
Adult
Aid to Families with Dependent Children/statistics & numerical data
Archives Of Family Medicine
Backlog
Child
Continuity Of Patient Care
Cross-sectional Studies
Delaware
Emergency Service
Female
Gill J
Hospital/utilization
Humans
Journal Article
Mainous A
Male
Medicaid/statistics & numerical data
Middle Aged
Multivariate Analysis
Nsereko M
Office Visits/statistics & numerical data
Preschool
United States
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archinte.1994.00420160016003" target="_blank" rel="noreferrer">http://doi.org/10.1001/archinte.1994.00420160016003</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The consultant and the patient-physician relationship. A trilateral deliberative model
Publisher
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Archives Of Internal Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
1994
Subject
The topic of the resource
Humans; United States; Physician-Patient Relations; Family; Communication; Physicians; Physician's Role; Interprofessional Relations; Continuity of Patient Care; Primary Health Care; Professional Patient Relationship; Psychological; Analytical Approach; Models; referral and consultation
Creator
An entity primarily responsible for making the resource
Emanuel LL; Richter J
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archinte.1994.00420160016003" target="_blank" rel="noreferrer">10.1001/archinte.1994.00420160016003</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
1994
1994
Analytical Approach
Archives Of Internal Medicine
Backlog
Communication
Continuity Of Patient Care
Emanuel LL
Family
Humans
Interprofessional Relations
Journal Article
Models
Physician-patient Relations
Physician's Role
Physicians
Primary Health Care
Professional Patient Relationship
Psychological
Referral And Consultation
Richter J
United States
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/ppul.1154" target="_blank" rel="noreferrer">http://doi.org/10.1002/ppul.1154</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Strategies for improving transition to adult cystic fibrosis care, based on patient and parent views
Publisher
An entity responsible for making the resource available
Pediatric Pulmonology
Date
A point or period of time associated with an event in the lifecycle of the resource
2001
Subject
The topic of the resource
Female; Humans; Male; Adult; Health Care Surveys; Interviews as Topic; Questionnaires; Middle Aged; Continuity of Patient Care; adolescent; Adolescent Transitions; Cystic Fibrosis/therapy; Adolescent Health Services/organization & administration; Patient Satisfaction/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Boyle MP; Farukhi Z; Nosky ML
Description
An account of the resource
Although general principles guiding the transition of individuals with chronic illness from pediatric to adult care have been established, guidelines specific for the transition of individuals with cystic fibrosis (CF) have not. To aid in the development of CF-specific transition guidelines, an anonymous pretransition questionnaire and posttransition interview were used to assess the concerns and expectations of 60 CF patients and their parents as they went through the transition from pediatric to adult care. Along with demographic and clinical information, respondents were asked to rate on a scale of 1-5 their general attitude toward, or level of concern on 22 questions involving transition concerns, adult program expectations, and general view of transition. The two most important concerns identified by patients prior to transition to adult care were potential exposure to infection (3.4 +/- 1.3) and having to leave their previous caregivers (3.4 +/- 1.0). Introduction to the adult CF team prior to transition was associated with significantly lower levels of concern in all areas, particularly about having to leave previous caregivers (3.9 +/- 0.7 vs. 2.5 +/- 0.6, P < 0.004). Age, gender, severity of lung disease, and age at diagnosis were not predictive of level of concern for any area. Parents' most significant concern was ability of their child to care for their CF independently, a concern their children did not share (4.0 +/- 1.1 vs. 1.5 +/- 0.5, P < 0.0001). As their most important expectations for the adult program, patients identified ready phone access to a nurse (4.9 +/- 0.6) and education about adult CF issues (4.6 +/- 0.7). The overall attitude toward the development of an adult CF program was overwhelmingly positive for both patients (4.9 +/- 0.7) and parents (4.9 +/- 0.3). By allowing patients to interact with the adult team prior to transition and developing transition protocols which address CF-specific issues like infection control and fertility, successful transition from pediatric to adult cystic fibrosis care can be accomplished.
2001
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/ppul.1154" target="_blank" rel="noreferrer">10.1002/ppul.1154</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2001
Adolescent
Adolescent Health Services/organization & administration
Adolescent Transitions
Adult
Backlog
Boyle MP
Continuity Of Patient Care
Cystic Fibrosis/therapy
Farukhi Z
Female
Health Care Surveys
Humans
Interviews As Topic
Journal Article
Male
Middle Aged
Nosky ML
Patient Satisfaction/statistics & Numerical Data
Pediatric Pulmonology
Questionnaires
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/1054-139X(95)00077-6" target="_blank" rel="noreferrer">http://doi.org/10.1016/1054-139X(95)00077-6</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Between two worlds: bridging the cultures of child health and adult medicine
Publisher
An entity responsible for making the resource available
The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
1995
Subject
The topic of the resource
Child; Humans; United States; Physician-Patient Relations; Adult; Disabled Persons; Patient Participation; Continuity of Patient Care; Survivors; patient care team; decision making; Adolescent Transitions; Chronic disease; Delivery of Health Care/organization & administration; Internal Medicine/organization & administration; Pediatrics/organization & administration
Creator
An entity primarily responsible for making the resource
Rosen D
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/1054-139X(95)00077-6" target="_blank" rel="noreferrer">10.1016/1054-139X(95)00077-6</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
1995
1995
Adolescent Transitions
Adult
Backlog
Child
Chronic Disease
Continuity Of Patient Care
Decision Making
Delivery of Health Care/organization & administration
Disabled Persons
Humans
Internal Medicine/organization & administration
Journal Article
Patient Care Team
Patient Participation
Pediatrics/organization & Administration
Physician-patient Relations
Rosen D
Survivors
The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine
United States
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1046/j.1440-1754.1999.00351.x" target="_blank" rel="noreferrer">http://doi.org/10.1046/j.1440-1754.1999.00351.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The role of palliative care in advanced muscular dystrophy and spinal muscular atrophy.
Publisher
An entity responsible for making the resource available
Journal Of Paediatrics And Child Health
Date
A point or period of time associated with an event in the lifecycle of the resource
1999
Subject
The topic of the resource
Child; Female; Humans; Male; Advance Directives; Adult; Respiration; Continuity of Patient Care; adolescent; bereavement; social support; DNAR; Nuclear Family; Artificial; Parents/px [Psychology]; Palliative Care/og [Organization & Administration]; Muscular Atrophy; Muscular Dystrophies/th [Therapy]; Needs Assessment; Terminal Care/st [Standards]; South Australia; Spinal/th [Therapy]
Creator
An entity primarily responsible for making the resource
Parker D; Maddocks I; Stern LM
Description
An account of the resource
OBJECTIVE: This study examines the potential role for palliative care services in the care of individuals with muscular dystrophy and spinal muscular atrophy, and the support of their families., METHODOLOGY: Semistructured interviews were conducted in South Australia with nine bereaved and four current family members of individuals with muscular dystrophy or spinal muscular atrophy. Issues explored during interview included: (i) the family perceptions of the difficulties in caring; (ii) the psychological and physical resources which were available to assist them; and (iii) family recall of the management of the terminal phase of the illness., RESULTS: Significant issues identified included: (i) a lack of coordination of care and access to skilled, competent carers; (ii) a lack of support for siblings; (iii) inadequate bereavement care; and (iv) limited discussion of options of ventilatory support and advance directives., CONCLUSIONS: The terminal care for individuals with muscular dystrophy and spinal muscular atrophy and their families requires improvement. Although many individuals with these conditions will die following an acute event, palliative care services may be appropriate for those who require a period of terminal care at home.
1999
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1046/j.1440-1754.1999.00351.x" target="_blank" rel="noreferrer">10.1046/j.1440-1754.1999.00351.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1999
Adolescent
Adult
Advance Directives
Artificial
Backlog
Bereavement
Child
Continuity Of Patient Care
DNAR
Female
Humans
Journal Article
Journal of Paediatrics and Child Health
Maddocks I
Male
Muscular Atrophy
Muscular Dystrophies/th [Therapy]
Needs Assessment
Nuclear Family
Palliative Care/og [Organization & Administration]
Parents/px [psychology]
Parker D
Respiration
Social Support
South Australia
Spinal/th [Therapy]
Stern LM
Terminal Care/st [standards]
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1469-8749.1991.tb05110.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1469-8749.1991.tb05110.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Cornerstone care for families of children with life-threatening illness.
Publisher
An entity responsible for making the resource available
Developmental Medicine And Child Neurology
Date
A point or period of time associated with an event in the lifecycle of the resource
1991
Subject
The topic of the resource
Child; Humans; Grief; Professional-Family Relations; Longitudinal Studies; Sick Role; Continuity of Patient Care; Hospices; Adaptation; Psychological; patient care team; Family/psychology; social support; Terminal Care/psychology; Home Nursing/psychology; Brain Diseases/psychology/therapy; Neuromuscular Diseases/psychology/therapy; Public Assistance
Creator
An entity primarily responsible for making the resource
Woolley H; Stein A; Forrest GC; Baum JD
Description
An account of the resource
Forty-five families of children with life-threatening illnesses for up to 10 years were interviewed. The children required many medical disciplines, as well as social, educational and material provisions, and parents described the complex and often distressing job of obtaining that help. They were asked whether they regarded anyone as their co-ordinating cornerstone carer and which qualities of care they most valued. Over three-quarters identified one or more professionals as their cornerstone carer, the most common being paediatricians, domiciliary paediatric nurses and social workers. Nearly a quarter of the families reported not having a cornerstone carer. The ingredients of care especially valued by the parents are described. Families may be better helped and services more rationally used where a cornerstone carer gives support and helps to co-ordinate care in a way that leaves families still feeling in control of their own lives. The issue is raised as to whether patient need or cost/service limitation will be the primary determinant of the way this care is delivered in Britain.
1991
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1469-8749.1991.tb05110.x" target="_blank" rel="noreferrer">10.1111/j.1469-8749.1991.tb05110.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1991
Adaptation
Backlog
Baum JD
Brain Diseases/psychology/therapy
Child
Continuity Of Patient Care
Developmental Medicine and Child Neurology
Family/psychology
Forrest GC
Grief
Home Nursing/psychology
Hospices
Humans
Journal Article
Longitudinal Studies
Neuromuscular Diseases/psychology/therapy
Patient Care Team
Professional-family Relations
Psychological
Public Assistance
Sick Role
Social Support
Stein A
Terminal Care/psychology
Woolley H
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1136/bmj.303.6811.1181" target="_blank" rel="noreferrer">http://doi.org/10.1136/bmj.303.6811.1181</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Continuity of care: influence of general practitioners' knowledge about their patients on use of resources in consultations.
Publisher
An entity responsible for making the resource available
British Medical Journal
Date
A point or period of time associated with an event in the lifecycle of the resource
1991
Subject
The topic of the resource
Child; Cross-Sectional Studies; Female; Humans; Male; Adult; Aged; Middle Aged; Physicians; Time Factors; adolescent; Preschool; infant; referral and consultation; Norway; Continuity of Patient Care; Drug Prescriptions; Family/psychology; Health Resources/utilization; Physician-Patient Relations
Creator
An entity primarily responsible for making the resource
Hjortdahl P; Borchgrevink CF
Description
An account of the resource
OBJECTIVE--To examine the relation between general practitioners' knowledge about their patients and the use of resources in consultations. DESIGN--A cross sectional evaluation of consultations. SETTING AND SUBJECTS--A representative sample of 133 Norwegian general practitioners were each asked to record 30 consecutive consultations. 131 did so, and of 3990 possible registrations, 3918 (98%) were evaluated. MAIN OUTCOME MEASURES--The influence, as assessed by the doctor, of accumulated knowledge on the use of laboratory tests, expectant management, prescriptions, sickness certification, referrals, and time spent in the consultation. RESULTS--Accumulated knowledge was a substantial factor in saving time, especially in consultations with children, the elderly, patients with psychosocial problems, and those with chronic diseases. It also influenced the overall use of laboratory tests, expectant management, sickness certification, and referrals, and to a lesser degree the use of medication. CONCLUSION--The findings imply strong but complex associations between accumulated knowledge and the use of resources in the consultation.
1991
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/bmj.303.6811.1181" target="_blank" rel="noreferrer">10.1136/bmj.303.6811.1181</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1991
Adolescent
Adult
Aged
Backlog
Borchgrevink CF
British Medical Journal
Child
Continuity Of Patient Care
Cross-sectional Studies
Drug Prescriptions
Family/psychology
Female
Health Resources/utilization
Hjortdahl P
Humans
Infant
Journal Article
Male
Middle Aged
Norway
Physician-patient Relations
Physicians
Preschool
Referral And Consultation
Time Factors
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/1049909110380594" target="_blank" rel="noreferrer">http://doi.org/10.1177/1049909110380594</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Quality of life for children with life-limiting and life-threatening illnesses: description and evaluation of a regional, collaborative model for pediatric palliative care
Publisher
An entity responsible for making the resource available
The American Journal Of Hospice & Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
adolescent; Child; Female; Humans; infant; Male; Palliative Care; Terminal Care; referral and consultation; Pediatrics; Health Personnel; Program Evaluation; Continuity of Patient Care; Biomedical Research; Inservice Training; District of Columbia; quality of life; Preschool; Newborn; PEDI Study; Quality of Health Care
Creator
An entity primarily responsible for making the resource
Rogers SK; Gomez CF; Carpenter P; Farley J; Holson D; Markowitz M; Rood B; Smith K; Nigra Peter
Description
An account of the resource
The care of children in the U.S. with life-limiting illnesses is inadequate. Misallocated resources, flawed assumptions and models of care, and a lack of appropriate professional education foster a costly, inefficient system that falls short of its true potential. This article details the evolution of a regional, shared approach to address these issues, the District of Columbia Pediatric Palliative Care Collaboration (DCPPCC), and includes its evolution, preliminary clinical results, and assessment of barriers encountered.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/1049909110380594" target="_blank" rel="noreferrer">10.1177/1049909110380594</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Adolescent
Backlog
Biomedical Research
Carpenter P
Child
Continuity Of Patient Care
District of Columbia
Farley J
Female
Gomez CF
Health Personnel
Holson D
Humans
Infant
Inservice Training
Journal Article
Male
Markowitz M
Newborn
Nigra Peter
Palliative Care
PEDI Study
Pediatrics
Preschool
Program Evaluation
Quality Of Health Care
Quality Of Life
Referral And Consultation
Rogers SK
Rood B
Smith K
Terminal Care
The American Journal of Hospice & Palliative Care
-
Dublin Core
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Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="https://doi.org/10.1186/1472-6963-11-343" target="_blank" rel="noreferrer">https://doi.org/10.1186/1472-6963-11-343</a>
Notes
<p>1472-6963<br />Siden, Harold<br />Urbanoski, Karen<br />PET-69769/Canadian Institutes of Health Research/Canada<br />Journal Article<br />Research Support, Non-U.S. Gov't<br />England<br />BMC Health Serv Res. 2011 Dec 16;11:343. doi: 10.1186/1472-6963-11-343.</p>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Title
A name given to the resource
Using Network Analysis To Map The Formal Clinical Reporting Process In Pediatric Palliative Care: A Pilot Study
Publisher
An entity responsible for making the resource available
Bmc Health Services Research
Subject
The topic of the resource
Community-institutional Relations; Continuity Of Patient Care; Hospice Care; Palliative Care; Pediatrics; British Columbia; Humans; Models Theoretical; Pilot Projects; Risk Management/ Organization & Administration
Creator
An entity primarily responsible for making the resource
Siden H; Urbanoski K
Description
An account of the resource
BACKGROUND: Continuity of care is a key component of care in complex and chronic conditions. Despite its importance, it is often absent in chronic-disease management. One challenge has been identifying tools to measure care continuity. In one context important to families, namely pediatric palliative care, we undertook a project to identify continuity and to pilot the use of network analysis as a tool. METHODS: Network analysis studies patterns of relationships or interactions between members, providing qualitative and quantitative description of network structure. RESULTS: In this report we applied network analysis to paper records of clinical consultations and reports for 6 patients with complex conditions. A high degree of discontinuity was identified, and care was fragmented amongst specialist and generalist providers. Information was shared selectively and often moved in only one direction. CONCLUSIONS: Families have anecdotally reported frustration with poor continuity of care. Network analysis can be a useful tool in describing the discontinuity of care experienced by families dealing with complex and chronic conditions. This tool could be expanded to other systems such as electronic health records and many other health care situations.
Identifier
An unambiguous reference to the resource within a given context
<a href="https://doi.org/10.1186/1472-6963-11-343" target="_blank" rel="noreferrer">10.1186/1472-6963-11-343</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2011
BMC Health Services Research
British Columbia
Community-institutional Relations
Continuity Of Patient Care
Hospice Care
Humans
Models Theoretical
Palliative Care
Pediatrics
Pilot Projects
Risk Management/ Organization & Administration
Siden H
Urbanoski K
Using Network Analysis To Map The Formal Clinical Reporting Process In Pediatric Palliative Care: A Pilot Study
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2735380/" target="_blank" rel="noreferrer">https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2735380/</a>
Notes
<p>1918-1485<br />Siden, Harold<br />Straatman, Lynn<br />Miller, Tanice<br />Ham, Jennifer<br />Journal Article<br />Canada<br />Paediatr Child Health. 2009 Jul;14(6):379-84.</p>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Title
A name given to the resource
The Madison Clinic: Evaluation Of A Collaborative Outpatient Paediatric Palliative Care Clinic
Publisher
An entity responsible for making the resource available
Paediatrics & Child Health
Subject
The topic of the resource
Ambulatory Care Facilities; Continuity Of Patient Care; Paediatrics; Palliative Care
Creator
An entity primarily responsible for making the resource
Siden H; Straatman L; Miller T; Ham J
Description
An account of the resource
BACKGROUND: A multidisciplinary outpatient clinic at a tertiary care children's hospital supported and staffed by a children's hospice was created to enhance and expand the inpatient palliative care services available to families of children with life-limiting conditions. This clinic was created with input from clinicians, program leaders and families in developing the goals and format. METHOD: The clinic was evaluated with indicators that included program data from palliative care consultations. This information was collected and recorded on a prospective basis. RESULTS: In the first 29 months of operation, 43 clinics were held, 39 individual patients were seen and there were 59 visits. The majority of visits were for pain and symptom management (75%), while 20% were for assessment for the hospice program. The hospice-palliative care team also provided telephone support, videoconference support and inpatient consultations. Patients reported overall satisfaction with their experiences at the clinic. DISCUSSION: A major benefit of this outpatient palliative care clinic is its ability to offer continuity of care for patients and their families. It also serves as a preliminary introduction to palliative care, particularly significant for families who are not yet ready to learn about or engage in the full hospice program.
Identifier
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<a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2735380/" target="_blank" rel="noreferrer">PMC2735380</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2009
Ambulatory Care Facilities
Continuity Of Patient Care
Ham J
Miller T
Paediatrics
Paediatrics & Child Health
Palliative Care
Siden H
Straatman L
The Madison Clinic: Evaluation Of A Collaborative Outpatient Paediatric Palliative Care Clinic
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Text
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Citation List Month
May 2016 List
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Title
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Perceptions Of Palliative Care In The Nicu.
Publisher
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Advances In Neonatal Care
Date
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2016
Subject
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Communication; Continuity Of Patient Care; Emotions; Female; Humans; Infant Newborn; Intensive Care Units Neonatal; Interviews As Topic; Male; Mothers/psychology; Palliative Care/utilization; Privacy; Qualitative Research; Social Support
Creator
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Falck AJ; Moorthy S; Hussey-Gardner B
Description
An account of the resource
BACKGROUND AND PURPOSE:
The American Academy of Pediatrics supports palliative care (PC) for all children with life-threatening illnesses. Thus, many neonatal intensive care unit (NICU) patients and their families could benefit from PC. Our study objective was to examine provision of PC as experienced by mothers and healthcare providers (HCPs) of NICU patients with life-threatening illnesses. Palliative care components explored included communication, choices, comfort, psychosocial and spiritual needs, and coordination of care.
METHODS:
In this qualitative, descriptive study, we conducted semistructured interviews with mothers of infants with life-threatening illnesses and NICU HCPs who cared for these infants. Mothers selected HCPs who were key figures during their infant's NICU stay to participate. Interviews were transcribed and manually coded until themes emerged and theoretical saturation was achieved. Researchers reviewed charts for demographics and notes pertaining to PC. Triangulation of maternal interviews, HCP interviews, and chart notes was performed.
RESULTS:
Theoretical saturation was achieved after 12 interviews. Mothers identified 5 nurses and 1 physician to be interviewed. Five themes were identified following data analysis and triangulation: (1) communication, (2) privacy, (3) continuity of care and relationship building, (4) maternal knowledge seeking, and (5) emotional turmoil.
IMPLICATIONS FOR PRACTICE AND RESEARCH:
Of domains of pediatric PC explored, participants emphasized transparent communication, family meetings as a venue for collaboration and shared decision making, the significance of psychosocial support for maternal emotional distress, and the importance of continuity of care across an often long and stressful hospitalization. Although mothers desired privacy, participants valued the security of the open-room NICU design. Future research should address components of PC that predominate in this specialized population.
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Advances in Neonatal Care
Communication
Continuity Of Patient Care
Emotions
Falck AJ
Female
Humans
Hussey-Gardner B
Infant Newborn
Intensive Care Units Neonatal
Interviews As Topic
Male
May 2016 List
Moorthy S
Mothers/psychology
Palliative Care/utilization
Privacy
Qualitative Research
Social Support