1
40
13
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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July 2023 List
Text
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July List 2023
URL Address
<a href="http://doi.org/10.1093/mtp/miac003" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1093/mtp/miac003</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Associations between Music Therapy, Pain and Heart Rate for Children Receiving Palliative Care
Publisher
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Music Therapy Perspectives
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
Child; Child Preschool; Confidence Intervals; Convenience Sample; Descriptive Statistics; Female; Heart Rate; Human; In Infancy and Childhood; Infant; Infant Newborn; Male; Multimethod Studies; Music Therapy; Only Child; Pain; Palliative Care; Pediatric Care; Pretest-Posttest Design; Prevention and Control; Psychosocial Factors; Purposive Sample; Quality of Life; Scales; Summated Rating Scaling; Thematic Analysis; Therapy
Creator
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Delaney AM; Herbert AR; Bradford N; Bernard A
Description
An account of the resource
Abstract Music therapy (MT) is a widely used non-pharmacological intervention in pediatric health care, an integral part of pediatric palliative care (PPC). Yet, there is a lack of evidence of efficacy, and best practices are not well established. The nature and extent of physiologic impacts of MT in PPC have not previously been reported. This study explores how MT contributes to psycho-physiological changes in children receiving palliative care. We used a convergent mixed-methods feasibility study with a pre–post design. MT sessions were delivered to children (0–18 years), who were registered with a statewide Pediatric Palliative Care Service. Pre–post measures of pain and heart rate were collected using validated and objective measures and analyzed using mixed-model analysis. Analysis of 36 MT sessions demonstrated a statistically significant reduction in pain scores and heart rate after MT sessions. Post measures of pain measured with Face, Legs, Activity, Cry, Consolability scale (FLACC scale) scores were −1.57 (95% confidence interval [CI] −2.31 to −0.83) and by Likert pain scale −2.03 (95% CI −2.79 to −1.27). Heart rate reduced by a mean of −7.6 beats per minute (95% CI −10.74 to −3.37). Five parents participated in semi-structured interviews. Following thematic analysis, two major themes emerged: (1) MT has a positive impact on physiological symptoms and (2) MT enhances the opportunity to experience joy. Results demonstrate the feasibility of study components and may inform future research design for a larger study. This research contributes to the limited evidence about non-pharmacological interventions enhancing the quality of life for children receiving PPC.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1093/mtp/miac003" target="_blank" rel="noreferrer noopener">10.1093/mtp/miac003</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Bernard A
Bradford N
Child
Child Preschool
Confidence Intervals
Convenience Sample
Delaney AM
Descriptive Statistics
Female
Heart Rate
Herbert AR
Human
In Infancy and Childhood
Infant
Infant Newborn
July List 2023
Male
Multimethod Studies
Music Therapy
Music Therapy Perspectives
Only Child
Pain
Palliative Care
Pediatric Care
Pretest-Posttest Design
Prevention and Control
Psychosocial Factors
Purposive Sample
Quality Of Life
scales
Summated Rating Scaling
Thematic Analysis
Therapy
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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June 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
June 2022 List
URL Address
<a href="http://doi.org/10.1542/peds.2021-054796" target="_blank" rel="noreferrer noopener">http://doi.org/10.1542/peds.2021-054796</a>
Dublin Core
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Title
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An Intervention in Congruence for End-of-Life Treatment Preference: A Randomized Trial
Publisher
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Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
Advance Care Planning; Advance Directives; Confidence Intervals; End of Life; Odds Ratio; United States
Creator
An entity primarily responsible for making the resource
Baker JN; Friebert S; Needle J; Jiang J; Wang J; Lyon ME
Description
An account of the resource
BACKGROUND AND OBJECTIVES: There is a gap in family knowledge of their adolescents' end-of-life (EOL) treatment preferences. We tested the efficacy of Family Centered Advance Care Planning for Teens with Cancer (FACE-TC) pediatric advance care planning (to increase congruence in EOL treatment preferences. METHOD(S): Adolescents with cancer/family dyads were randomized into a clinical trial from July 2016 to April 2019 at a 2:1 ratio: intervention (n = 83); control (n = 43) to either 3 weekly sessions of FACE-TC (Lyon Advance Care Planning Survey; Next Steps: Respecting Choices Interview; Five Wishes, advance directive) or treatment as usual (TAU). Statement of Treatment Preferences measured congruence. RESULT(S): Adolescents' (n = 126) mean age was 16.9 years; 57% were female and 79% were White. FACE-TC dyads had greater overall agreement than TAU: high 34% vs 2%, moderate 52% vs 45%, low 14% vs 52%, and P < .0001. Significantly greater odds of congruence were found for FACE-TC dyads than TAU for 3 of 4 disease-specific scenarios: for example, "a long hospitalization with low chance of survival," 78% (57 of 73) vs 45% (19 of 42); odds ratio, 4.31 (95% confidence interval, 1.89-9.82). FACE-TC families were more likely to agree to stop some treatments. Intervention adolescents, 67% (48 of 73), wanted their families to do what is best at the time, whereas fewer TAU adolescents, 43% (18 of 42), gave families this leeway (P = .01). CONCLUSION(S): High-quality pediatric advance care planning enabled families to know their adolescents' EOL treatment preferences. Copyright © 2022 by the American Academy of Pediatrics.
Identifier
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<a href="http://doi.org/10.1542/peds.2021-054796" target="_blank" rel="noreferrer noopener">10.1542/peds.2021-054796</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
Advance Care Planning
Advance Directives
April 2022 List
Baker JN
Confidence Intervals
End Of Life
Friebert S
Jiang J
Lyon ME
Needle J
Odds Ratio
Pediatrics
United States
Wang J
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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March 2021 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March 2021 List
URL Address
<a href="http://doi.org/10.1001/jamanetworkopen.2020.29082" target="_blank" rel="noreferrer noopener">http://doi.org/10.1001/jamanetworkopen.2020.29082</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Parent-Reported Symptoms and Medications Used Among Children With Severe Neurological Impairment
Publisher
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JAMA Network Open
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
Infant; Child; Comorbidity; Female; Male; Child Preschool; Adolescence; Data Analysis Software; Human; Confidence Intervals; Descriptive Statistics; Record Review; Health Resource Utilization; Cross Sectional Studies; Funding Source; Scales; Severity of Illness; Central Nervous System Agents -- Therapeutic Use; Nervous System Diseases -- Epidemiology -- In Adolescence; Nervous System Diseases -- Epidemiology -- In Infancy and Childhood; Nervous System Diseases -- Symptoms; Peripheral Nervous System Agents -- Therapeutic Use; Polypharmacy
Creator
An entity primarily responsible for making the resource
Feinstein JA; Feudtner C; Blackmer AB; Valuck RJ; Fairclough DL; Holstein J; Gregoire LA; Samay S; Kempe A
Description
An account of the resource
Key Points: Question: In children with severe neurological impairment (SNI) who cannot self-report, can comprehensive parent-reported symptom assessments inform medication use? Findings: In this cross-sectional study of 100 children with SNI and polypharmacy, parents reported that children experienced multiple concurrent high-distress symptoms, notably irritability (65.0%), insomnia (55.0%), and pain (54.0%). Although higher symptom burdens were associated with increasing polypharmacy, opportunities existed to optimize pharmacotherapy; for example, among 54.0% of children with pain, only 61.0% were prescribed an analgesic. Meaning: Comprehensive parent-reported symptom data paired with medication data could help clinicians identify targets for personalized symptom management, including underrecognized or undertreated symptoms. This cross-sectional study examines whether higher global symptom scores are associated with use of more medications and assesses associations between specific symptoms and medications among children with severe neurological impairment. Importance: Children with severe neurological impairment (SNI) often take multiple medications to treat problematic symptoms. However, for children who cannot self-report symptoms, no system exists to assess multiple symptoms and their association with medication use. Objectives: To assess the prevalence of 28 distinct symptoms, test whether higher global symptom scores (GSS) were associated with use of more medications, and assess the associations between specific symptoms and medications. Design, Setting, and Participants: This cross-sectional study was conducted between April 1, 2019, and December 31, 2019, using structured parent-reported symptom data paired with clinical and pharmacy data, at a single-center, large, hospital-based special health care needs clinic. Participants included children aged 1 to 18 years with SNI and 5 or more prescribed medications. Data analysis was performed from April to June 2020. Exposure: During routine clinical visits, parent-reported symptoms were collected using the validated 28-symptom Memorial Symptom Assessment Scale (MSAS) and merged with clinical and pharmacy data. Main Outcomes and Measures: Symptom prevalence, counts, and GSS (scored 0-100, with 100 being the worst) were calculated, and the association of GSS with medications was examined. To evaluate associations between symptom-medication pairs, the proportion of patients with a symptom who used a medication class or specific medication was calculated. Results: Of 100 patients, 55.0% were boys, the median (interquartile range [IQR]) age was 9 (5-12) years, 62.0% had 3 or more complex chronic conditions, 76.0% took 10 or more medications, and none were able to complete the MSAS themselves. Parents reported a median (IQR) of 7 (4-10) concurrent active symptoms. The median (IQR) GSS was 12.1 (5.4-20.8) (range, 0.0-41.2) and the GSS was 9.8 points (95% CI, 5.5-14.1 points) higher for those with worse recent health than usual. Irritability (65.0%), insomnia (55.0%), and pain (54.0%) were the most prevalent symptoms. Each 10-point GSS increase was associated with 12% (95% CI, 4%-19%) higher medication counts, adjusted for age and complex chronic condition count. Among the 54.0% of children with reported pain, 61.0% were prescribed an analgesic. Conclusions and Relevance: These findings suggest that children with SNI reportedly experience substantial symptom burdens and that higher symptom scores are associated with increased medication use. Paired symptom-medication data may help clinicians identify targets for personalized symptom management, including underrecognized or undertreated symptoms.
Identifier
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<a href="http://doi.org/10.1001/jamanetworkopen.2020.29082" target="_blank" rel="noreferrer noopener">10.1001/jamanetworkopen.2020.29082</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Adolescence
Blackmer AB
Central Nervous System Agents -- Therapeutic Use
Child
Child Preschool
Comorbidity
Confidence Intervals
Cross Sectional Studies
Data Analysis Software
Descriptive Statistics
Fairclough DL
Feinstein JA
Female
Feudtner C
Funding Source
Gregoire LA
Health Resource Utilization
Holstein J
Human
Infant
JAMA Network Open
Kempe A
Male
March 2021 List
Nervous System Diseases -- Epidemiology -- In Adolescence
Nervous System Diseases -- Epidemiology -- In Infancy and Childhood
Nervous System Diseases -- Symptoms
Peripheral Nervous System Agents -- Therapeutic Use
Polypharmacy
Record Review
Samay S
scales
Severity of Illness
Valuck RJ
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
January 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January 2020 List
URL Address
<a href="http://doi.org/10.1177/1178632919879422" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/1178632919879422</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The Effects of Chronic Disease on Ambulatory Care–Sensitive Hospitalizations for Children or Youth
Publisher
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Health Services Insights
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
Adolescence; Adolescent; Age Factors; Ambulatory Care -- In Adolescence; Ambulatory Care -- In Infancy and Childhood; Child; Chronic Disease; Confidence Intervals; Cross Sectional Studies; Data Analysis Software; Descriptive Statistics; Female; Hospitalized; Human; Infant; Logistic Regression; Male; Models; Newborn; Odds Ratio; Patient Discharge; Post Hoc Analysis; Preschool; Probability; Race Factors; ROC Curve; Sex Factors; Statistical; Texas
Creator
An entity primarily responsible for making the resource
Phillips C D; Truong C; Kum H C; Nwaiwu O; Ohsfeldt R
Description
An account of the resource
Considerable research has focused on hospitalizations for ambulatory care–sensitive conditions (ACSHs), but little of that research has focused on the role played by chronic disease in ACSHs involving children or youth (C/Y). This research investigates, for C/Y, the effects of chronic disease on the likelihood of an ACSH. The database included 699 473 hospital discharges for individuals under 18 in Texas between 2011 and 2015. Effects of chronic disease, individual, and contextual factors on the likelihood of a discharge involving an ACSH were estimated using logistic regression. Contrary to the results for adults, the presence of chronic diseases or a complex chronic disease among children or youth was protective, reducing the likelihood of an ACSH for a nonchronic condition. Results indicate that heightened ambulatory care received by C/Y with chronic diseases is largely protective. Two of more chronic conditions or at least one complex chronic condition significantly reduced the likelihood of an ACSH.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/1178632919879422" target="_blank" rel="noreferrer noopener">10.1177/1178632919879422</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Adolescence
Adolescent
Age Factors
Ambulatory Care -- In Adolescence
Ambulatory Care -- In Infancy and Childhood
Child
Chronic Disease
Confidence Intervals
Cross Sectional Studies
Data Analysis Software
Descriptive Statistics
Female
Health Services Insights
Hospitalized
Human
Infant
January 2020 List
Kum H C
Logistic Regression
Male
Models
Newborn
Nwaiwu O
Odds Ratio
Ohsfeldt R
Patient Discharge
Phillips C D
Post Hoc Analysis
Preschool
Probability
Race Factors
ROC Curve
Sex Factors
statistical
Texas
Truong C
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
December 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
December 2018 List
URL Address
<a href="http://doi.org/10.1542/peds.2017-4182" target="_blank" rel="noreferrer noopener"> http://doi.o
rg/10.1542/peds.2017-4182</a>
Dublin Core
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Title
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Modes of Death Within a Children's Hospital
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
Human; Length of Stay; Child; Hospitalization; Intensive Care Units Pediatric; Treatment Failure; Referral and Consultation; Palliative Care; Hospitals Pediatric; Intensive Care Units Neonatal; Resuscitation; Confidence Intervals; Odds Ratio; Qualitative Studies; Descriptive Statistics; Race Factors; Retrospective Design; Whites; Blacks; Hospital Mortality -- In Infancy and Childhood; Multiple Logistic Regression
Creator
An entity primarily responsible for making the resource
Trowbridge A; Walter JK; McConathey E; Morrison W; Feudtner C
Description
An account of the resource
BACKGROUND: Knowledge about how children die in pediatric hospitals is limited, and this hinders improvement in hospital-based end-of-life care. METHODS: We conducted a retrospective chart review of all the patients who died in a children's hospital between July 2011 and June 2014, collecting demographic and diagnostic information, hospital length of stay, location of death, and palliative care consultation. A qualitative review of provider notes and resuscitation records was used to create 5 mutually exclusive modes of death, which were then assigned to each patient. Analysis included the calculation of descriptive statistics and multinomial logistic regression modeling. RESULTS: We identified 579 patients who were deceased; 61% were <1 year of age. The ICU was the most common location of death (NICU 29.7%; PICU 27.8%; cardiac ICU 16.6%). Among the 5 modes of death, the most common was the withdrawal of life-sustaining technology (40.2%), followed by nonescalation (25.6%), failed resuscitation (22.8%), code then withdrawal (6.0%), and death by neurologic criteria (5.3%). After adjustment, patients who received a palliative care consultation were less likely to experience a code death (odds ratio 0.31; 95% confidence interval 0.13--0.75), although African American patients were more likely than white patients to experience a code death (odds ratio 2.46; 95% confidence interval 1.05--5.73), mostly because of code events occurring in the first 24 hours of hospitalization. CONCLUSIONS: Most deaths in a children's hospital occur in ICUs after the withdrawal of life-sustaining technology. Race and palliative care involvement may influence the manner of a child's death.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2017-4182" target="_blank" rel="noreferrer noopener">10.1542/peds.2017-4182</a>
2018
Blacks
Child
Confidence Intervals
December 2018 List
Descriptive Statistics
Feudtner C
Hospital Mortality -- In Infancy and Childhood
Hospitalization
Hospitals Pediatric
Human
Intensive Care Units Neonatal
Intensive Care Units Pediatric
Length Of Stay
McConathey E
Morrison W
Multiple Logistic Regression
Odds Ratio
Palliative Care
Pediatrics
Qualitative Studies
Race Factors
Referral And Consultation
Resuscitation
Retrospective Design
Treatment Failure
Trowbridge A
Walter JK
Whites
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/da.22344" target="_blank" rel="noreferrer">http://doi.org/10.1002/da.22344</a>
<a href="http://onlinelibrary.wiley.com/doi/10.1002/da.22344/abstract" target="_blank" rel="noreferrer">http://onlinelibrary.wiley.com/doi/10.1002/da.22344/abstract</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Quantitative Evaluation of the Clinical Efficacy of Attention Bias Modification Treatment for Anxiety Disorders
Publisher
An entity responsible for making the resource available
Depression And Anxiety
Date
A point or period of time associated with an event in the lifecycle of the resource
2015
Subject
The topic of the resource
Anxiety Disorders; Cognition; Confidence Intervals; Depression; Anxiety; Psychology; Children; Clinical Trials; computer; Anxieties; Anxiety Disorders - therapy; COGNITIVE-BEHAVIORAL THERAPY; PSYCHIATRY; Psychology; THREAT; INDIVIDUALS; Clinical; GENERALIZED SOCIAL PHOBIA; Internet technology; Meta-Analysis; MODIFICATION PROGRAM; RANDOMIZED CONTROLLED-TRIAL; STIMULI; treatment
Creator
An entity primarily responsible for making the resource
Linetzky M; Pergamin-HL; Pine DS; Bar‐Haim Yair
Description
An account of the resource
Attention bias modification treatment (ABMT) is a novel treatment for anxiety disorders. Although a number of other meta-analytic reviews exist, the purpose of the present meta-analysis is to examine issues unaddressed in prior reviews. Specifically, the review estimates the efficacy of ABMT in clinically anxious patients and examines the effect of delivery context (clinic vs. home) on symptom reduction. A literature search using PsychInfo and Web of Science databases was performed. Only randomized controlled trials (RCTs) examining dot-probe-based ABMT in clinically diagnosed anxious patients were included. From 714 articles located through the search, 36 ABMT studies were identified and 11 studies met inclusion criteria (N = 589 patients). ABMT was associated with greater clinician-rated reductions in anxiety symptoms relative to control training: between-groups effect (d = 0.42, P = .001, confidence interval (CI) = 0.18-0.66), contrast of within-group effects (Q = 7.25, P < .01). More patients in the treatment group no longer met formal diagnostic criteria for their anxiety disorder posttreatment relative to patients in the control condition (P < .05). Analyses of patients' self-reported anxiety were nonsignificant for the between-groups contrast (P = .35), and were at a trend level of significance for the contrast between the within-group effects (P = .06). Moderation analysis of the between-groups effect revealed a significant effect for ABMT delivered in the clinic (d = 0.34, P = 0.01, CI = 0.07-0.62), and a nonsignificant effect for ABMT delivered at home (d = -0.10, P = 0.40, CI = -0.33-0.13). The current meta-analysis provides support for ABMT as a novel evidenced-based treatment for anxiety disorders. Overall, ABMT effects are mainly evident when it is delivered in the clinic and when clinical outcome is evaluated by a clinician. More RCTs of ABMT in specific anxiety disorders are warranted.
2015-06
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/da.22344" target="_blank" rel="noreferrer">10.1002/da.22344</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2015
Anxieties
anxiety
Anxiety Disorders
Anxiety Disorders - therapy
Backlog
Bar‐Haim Yair
Children
Clinical
Clinical Trials
Cognition
COGNITIVE-BEHAVIORAL THERAPY
computer
Confidence Intervals
Depression
Depression And Anxiety
GENERALIZED SOCIAL PHOBIA
INDIVIDUALS
Internet technology
Journal Article
Linetzky M
Meta-Analysis
MODIFICATION PROGRAM
Pergamin-HL
Pine DS
Psychiatry
Psychology
RANDOMIZED CONTROLLED-TRIAL
STIMULI
THREAT
Treatment
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1503/cmaj.080484" target="_blank" rel="noreferrer">http://doi.org/10.1503/cmaj.080484</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The "number needed to treat" turns 20--and continues to be used and misused
Publisher
An entity responsible for making the resource available
Canadian Medical Association Journal
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Humans; Risk Assessment; Confidence Intervals; Statistical; Data Interpretation; Sample Size; Clinical Trials as Topic/methods
Creator
An entity primarily responsible for making the resource
McAlister FA
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1503/cmaj.080484" target="_blank" rel="noreferrer">10.1503/cmaj.080484</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2008
2008
Backlog
Canadian Medical Association Journal
Clinical Trials as Topic/methods
Confidence Intervals
Data Interpretation
Humans
Journal Article
McAlister FA
Risk Assessment
Sample Size
statistical
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1503/cmaj.091881" target="_blank" rel="noreferrer">http://doi.org/10.1503/cmaj.091881</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The role of nurses in physician-assisted deaths in Belgium
Publisher
An entity responsible for making the resource available
Canadian Medical Association Journal
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Female; Humans; Male; Young Adult; Adult; Data Collection; Logistic Models; Questionnaires; Middle Aged; Euthanasia; Nurse's Role; Confidence Intervals; Odds Ratio; Suicide; Belgium; decision making; Active; home care services; Assisted/statistics & numerical data; Voluntary/statistics & numerical data; Active/statistics & numerical data; Terminal Care/methods/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Inghelbrecht E; Bilsen J; Mortier F; Deliens L
Description
An account of the resource
BACKGROUND: Belgium's law on euthanasia allows only physicians to perform the act. We investigated the involvement of nurses in the decision-making and in the preparation and administration of life-ending drugs with a patient's explicit request (euthanasia) or without an explicit request. We also examined factors associated with these deaths. METHODS: In 2007, we surveyed 1678 nurses who, in an earlier survey, had reported caring for one or more patients who received a potential life-ending decision within the year before the survey. Eligible nurses were surveyed about their most recent case. RESULTS: The response rate was 76%. Overall, 128 nurses reported having cared for a patient who received euthanasia and 120 for a patient who received life-ending drugs without his or her explicit request. Respectively, 64% (75/117) and 69% (81/118) of these nurses were involved in the physician's decision-making process. More often this entailed an exchange of information on the patient's condition or the patient's or relatives' wishes (45% [34/117] and 51% [41/118]) than sharing in the decision-making (24% [18/117] and 31% [25/118]). The life-ending drugs were administered by the nurse in 12% of the cases of euthanasia, as compared with 45% of the cases of assisted death without an explicit request. In both types of assisted death, the nurses acted on the physician's orders but mostly in the physician's absence. Factors significantly associated with a nurse administering the life-ending drugs included being a male nurse working in a hospital (odds ratio [OR] 40.07, 95% confidence interval [CI] 7.37-217.79) and the patient being over 80 years old (OR 5.57, 95% CI 1.98-15.70). INTERPRETATION: By administering the life-ending drugs in some of the cases of euthanasia, and in almost half of the cases without an explicit request from the patient, the nurses in our study operated beyond the legal margins of their profession.
2010
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1503/cmaj.091881" target="_blank" rel="noreferrer">10.1503/cmaj.091881</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Active
Active/statistics & numerical data
Adult
Assisted/statistics & numerical data
Backlog
Belgium
Bilsen J
Canadian Medical Association Journal
Confidence Intervals
Data Collection
Decision Making
Deliens L
Euthanasia
Female
home care services
Humans
Inghelbrecht E
Journal Article
Logistic Models
Male
Middle Aged
Mortier F
Nurse's Role
Odds Ratio
Questionnaires
Suicide
Terminal Care/methods/statistics & numerical data
Voluntary/statistics & numerical data
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1080/07481180903492422" target="_blank" rel="noreferrer">http://doi.org/10.1080/07481180903492422</a>
<a href="http://search.ebscohost.com/login.aspx?direct=true&db=c8h&AN=2010539991&site=ehost-live&scope=site" target="_blank" rel="noreferrer">http://search.ebscohost.com/login.aspx?direct=true&db=c8h&AN=2010539991&site=ehost-live&scope=site</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
A meta-analysis of interventions for bereaved children and adolescents
Publisher
An entity responsible for making the resource available
Death Studies
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Child; Female; Male; bereavement; Age Factors; Confidence Intervals; Time Factors; Preschool; Human; systematic review; sibling bereavement; Adolescence; Adolescent Psychiatry; Child Psychiatry; Descriptive Statistics; Meta-Analysis; Music therapy; One-Way Analysis of Variance; P-Value; Psychotherapy -- Evaluation; Regression
Creator
An entity primarily responsible for making the resource
Rosner R; Kruse J; Hagl M
Description
An account of the resource
The main objective of this review was to provide a quantitative and methodologically sound evaluation of existing treatments for bereavement and grief reactions in children and adolescents. Two meta-analyses were conducted: 1 on controlled studies and 1 on uncontrolled studies. The 2 meta-analyses were based on a total of 27 treatment studies published before June 2006. Hedges's g and Cohen's d were used as measures of effect size and a random-effects model was applied. Results yielded small to moderate effect sizes. Interventions for symptomatic or impaired participants tended to show larger effect sizes than interventions for bereaved children and adolescents without symptoms. Promising treatment models were music therapy and trauma/grief-focused school based brief psychotherapy.
2010-02
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/07481180903492422" target="_blank" rel="noreferrer">10.1080/07481180903492422</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Adolescence
Adolescent Psychiatry
Age Factors
Backlog
Bereavement
Child
Child Psychiatry
Confidence Intervals
Death studies
Descriptive Statistics
Female
Hagl M
Human
Journal Article
Kruse J
Male
Meta-Analysis
Music Therapy
One-Way Analysis of Variance
P-Value
Preschool
Psychotherapy -- Evaluation
Regression
Rosner R
sibling bereavement
Systematic Review
Time Factors
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1046/j.1460-9592.1999.00384.x" target="_blank" rel="noreferrer">http://doi.org/10.1046/j.1460-9592.1999.00384.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Efficacy and complications of morphine infusions in postoperative paediatric patients
Publisher
An entity responsible for making the resource available
Paediatric Anaesthesia
Date
A point or period of time associated with an event in the lifecycle of the resource
1999
Subject
The topic of the resource
Child; Female; Humans; Male; Pain; Analgesics; Follow-Up Studies; Confidence Intervals; Incidence; Acute Disease; adolescent; Preschool; infant; retrospective studies; Infusions; Intravenous; Opioid/administration & dosage/adverse effects/therapeutic use; Morphine/administration & dosage/adverse effects/therapeutic use; Postoperative/prevention & control; Respiration/drug effects; Akathisia; Analgesia/nursing; Anesthesia Recovery Period; Anoxemia/chemically induced; Arousal/drug effects; Drug-Induced/etiology; Postoperative Nausea and Vomiting/chemically induced; Pruritus/chemically induced; Urinary Retention/chemically induced
Creator
An entity primarily responsible for making the resource
Esmail Z; Montgomery C; Courtrn C; Hamilton D; Kestle J
Description
An account of the resource
The aim of the study was to evaluate the efficacy and the incidence of clinically significant adverse drug reactions (ADRs) in paediatric patients receiving continuous intravenous morphine infusions for acute postoperative pain. Definitions were established for ADRs and data were collected in an immediately retrospective fashion for a maximum of 72 h in 110 patients >/=5 three months of age (0.3-16.7 years) receiving morphine infusions and admitted to a general ward over a three month convenience sampling period. Inadequate analgesia occurred in 65.5% of patients during the first 24 h of therapy and occurred most frequently in patients with infusion rates of 20 microg.kg-1.h-1 or less. Nausea/vomiting was the most commonly experienced ADR (42.5%). The incidence of respiratory depression was 0% (95% CI=0-3.3%). Other ADRs included: urinary retention (13.5%), pruritus (12.7%), dysphoria (7.3%), hypoxaemia (4.5%), discontinuation of morphine for treatment of an ADR (3.6%), and difficulty in arousal (0.9%). The most common ADRs associated with morphine infusions were inadequate analgesia (in the first 24 h) and nausea/vomiting. There were no cases of respiratory depression. Methods of avoiding initial inadequate analgesia and treating nausea and vomiting associated with morphine infusions are needed.
1999
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1046/j.1460-9592.1999.00384.x" target="_blank" rel="noreferrer">10.1046/j.1460-9592.1999.00384.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1999
Acute Disease
Adolescent
Akathisia
Analgesia/nursing
Analgesics
Anesthesia Recovery Period
Anoxemia/chemically induced
Arousal/drug effects
Backlog
Child
Confidence Intervals
Courtrn C
Drug-Induced/etiology
Esmail Z
Female
Follow-up Studies
Hamilton D
Humans
Incidence
Infant
Infusions
Intravenous
Journal Article
Kestle J
Male
Montgomery C
Morphine/administration & dosage/adverse effects/therapeutic use
Opioid/administration & dosage/adverse effects/therapeutic use
Paediatric Anaesthesia
Pain
Postoperative Nausea and Vomiting/chemically induced
Postoperative/prevention & control
Preschool
Pruritus/chemically induced
Respiration/drug effects
Retrospective Studies
Urinary Retention/chemically induced
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1528-1157.1996.tb00533.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1528-1157.1996.tb00533.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Influence of epilepsy on mortality in mental retardation: an epidemiologic study
Publisher
An entity responsible for making the resource available
Epilepsia
Date
A point or period of time associated with an event in the lifecycle of the resource
1996
Subject
The topic of the resource
Cohort Studies; Adult; Prevalence; Follow-Up Studies; Comorbidity; Epilepsy; Severity of Illness Index; Confidence Intervals; cause of death; Human; mortality; Middle Age; Epilepsy/mo [Mortality]; Mental Retardation/mo [Mortality]; Cerebral Palsy/ep [Epidemiology]; Cerebral Palsy/mo [Mortality]; Epilepsy/di [Diagnosis]; Epilepsy/ep [Epidemiology]; Generalized/di [Diagnosis]; Generalized/ep [Epidemiology]; Generalized/mo [Mortality]; Mental Retardation/di [Diagnosis]; Mental Retardation/ep [Epidemiology]; Pneumonia/ep [Epidemiology]; Pneumonia/mo [Mortality]; Sweden/ep [Epidemiology]
Creator
An entity primarily responsible for making the resource
Forsgren L; Edvinsson SO; Nystrom L; Blomquist HK
Description
An account of the resource
PURPOSE: A cohort consisting of all persons with known mental retardation (MR) and living in a Swedish province on December 31, 1985, was followed for 7 years (1987-1992) to study the mortality pattern. METHODS: A file of the cohort was linked to the cause-of-death pattern of the general population in the study area. RESULTS: One hundred twenty-four deaths (8.4%) occurred among the 1,478 persons with MR. Thirty deaths (10.1%) occurred among the 296 persons with epilepsy and MR. The standardized mortality ratio (SMR) in those with only MR was significantly increased as compared with that of the general population: 1.6 [95% confidence interval (CI) 1.3-2.0]; MR and epilepsy, 5.0 (CI 3.3-7.5); and MR, epilepsy, and cerebral palsy (CP), 5.8 (CI 3.4-9.7). Mortality was increased both in patients with partial seizures without seizures secondarily generalized (SMR 3.7, CI 1.0-13.6) and in patients with seizures secondarily generalized (5.0, CI 2.3-11.0). The highest mortality occurred in patients who had seizures that were always generalized from the onset: 8.1 (CI 5.7-11.5). Mortality increased with increasing seizure frequency during the year preceding the prevalence date. In patients with epilepsy and MR, pneumonia was the most common cause of death and a seizure was the probable cause of death in 6.7%. CONCLUSIONS: Epilepsy is associated with a significantly increased mortality in persons with MR. The increase is related to seizure type and seizure frequency. Death in persons with epilepsy and MR is seldom directly due to seizures. Other impairments associated with epilepsy and MR are important causes of death.
1996
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1528-1157.1996.tb00533.x" target="_blank" rel="noreferrer">10.1111/j.1528-1157.1996.tb00533.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1996
Adult
Backlog
Blomquist HK
Cause Of Death
Cerebral Palsy/ep [Epidemiology]
Cerebral Palsy/mo [Mortality]
Cohort Studies
Comorbidity
Confidence Intervals
Edvinsson SO
Epilepsia
Epilepsy
Epilepsy/di [diagnosis]
Epilepsy/ep [Epidemiology]
Epilepsy/mo [Mortality]
Follow-up Studies
Forsgren L
Generalized/di [Diagnosis]
Generalized/ep [Epidemiology]
Generalized/mo [Mortality]
Human
Journal Article
Mental Retardation/di [Diagnosis]
Mental Retardation/ep [Epidemiology]
Mental Retardation/mo [Mortality]
Middle Age
Mortality
Nystrom L
Pneumonia/ep [Epidemiology]
Pneumonia/mo [Mortality]
Prevalence
Severity Of Illness Index
Sweden/ep [Epidemiology]
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=9535300" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=9535300</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Life expectancy of children with cerebral palsy
Publisher
An entity responsible for making the resource available
Pediatric Neurology
Date
A point or period of time associated with an event in the lifecycle of the resource
1998
Subject
The topic of the resource
Child; Female; Male; Cohort Studies; Survival Analysis; Risk Factors; Confidence Intervals; Activities of Daily Living; Feeding Methods; Proportional Hazards Models; Preschool; infant; Eating; Human; Motor Skills; Likelihood Functions; Life Expectancy; Cerebral Palsy/mortality; California/epidemiology
Creator
An entity primarily responsible for making the resource
Strauss DJ; Shavelle RM; Anderson TW
Description
An account of the resource
Risk factors for mortality of young children with cerebral palsy were studied using a sample of 12,709 children aged 0.5-3.5 years with cerebral palsy who had received services from the State of California between 1980 and 1995. The most powerful prognostic factors for survival were simple functional items: mobility and feeding skills. Once these were known, factors such as severity of mental retardation and presence of quadriplegia contributed relatively little. Children with fair motor and eating skills had good survival prospects, with 90% or more reaching adulthood, but those without such skills had much poorer prospects. Among children who were unable to lift their heads, median survival time was 7 additional years for those who were tube fed (n = 557) and 14 years for those fed entirely by others (n = 997). Although a child's approximate survival chances can be assessed from such functional classifications, we indicate the manner in which additional information on the child's condition can be used to obtain more accurate survival data.
1998
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1998
Activities of Daily Living
Anderson TW
Backlog
California/epidemiology
Cerebral Palsy/mortality
Child
Cohort Studies
Confidence Intervals
Eating
Feeding Methods
Female
Human
Infant
Journal Article
Life Expectancy
Likelihood Functions
Male
Motor Skills
Pediatric Neurology
Preschool
Proportional Hazards Models
Risk Factors
Shavelle RM
Strauss DJ
Survival Analysis
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Oncology
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2017 List
URL Address
<a href="http://doi.org/10.1200/jop.2016.020586" target="_blank" rel="noreferrer">http://doi.org/10.1200/jop.2016.020586</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
End-of-Life Intensity for Adolescents and Young Adults With Cancer: A Californian Population-Based Study That Shows Disparities
Publisher
An entity responsible for making the resource available
Journal Of Oncology Practice
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Adolescence; Adult; Age Factors; California; Childhood Neoplasms -- Therapy -- California; Confidence Intervals; Death Certificates; Descriptive Statistics; Healthcare Disparities -- California; Hematologic Neoplasms -- Therapy -- California; Hispanics; Hospitalization; Hospital Mortality; Human; Intensive Care Units; Intubation; Minority Groups; Neoplasms -- Therapy -- California; Odds Ratio; Oncologic Care -- California; Race Factors; Readmission; Retrospective Design; Socioeconomic Factors; Terminal Care -- California; Whites; Young Adult
Creator
An entity primarily responsible for making the resource
Johnston EE; Alvarez E; Saynina O; Sanders L; Bhatia S; Chamberlain LJ
Description
An account of the resource
Purpose Cancer is the leading cause of nonaccidental death among adolescents and young adults (AYAs). High-intensity end-of-life care is expensive and may not be consistent with patient goals. However,the intensity of end-of-life care forAYAdecedents with cancer--especially the effect of care received at specialty versus nonspecialty centers--remains understudied.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1200/jop.2016.020586" target="_blank" rel="noreferrer">10.1200/jop.2016.020586</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Adolescence
Adult
Age Factors
Alvarez E
Bhatia S
California
Chamberlain LJ
Childhood Neoplasms -- Therapy -- California
Confidence Intervals
Death Certificates
Descriptive Statistics
Healthcare Disparities -- California
Hematologic Neoplasms -- Therapy -- California
Hispanics
Hospital Mortality
Hospitalization
Human
Intensive Care Units
Intubation
Johnston EE
Journal of Oncology Practice
Minority Groups
Neoplasms -- Therapy -- California
Odds Ratio
Oncologic Care -- California
Oncology 2017 List
Race Factors
Readmission
Retrospective Design
Sanders L
Saynina O
Socioeconomic Factors
Terminal Care -- California
Whites
Young Adult