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Text
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Citation List Month
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URL Address
<a href="http://doi.org/10.1177/0269216308100251" target="_blank" rel="noreferrer">http://doi.org/10.1177/0269216308100251</a>
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Title
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Using videotelephony to support paediatric oncology-related palliative care in the home: from abandoned RCT to acceptability study
Publisher
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Palliative Medicine
Date
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2009
Subject
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Child; Female; Humans; Male; Palliative Care; Adult; Patient Acceptance of Health Care; Australia; Computer Security; Continuity of Patient Care; Cost-Benefit Analysis; Early Termination of Clinical Trials; Patient Satisfaction; PPC Book Chapter 2011 (Kim Widger); adolescent; Preschool; Parents/psychology; Neoplasms/therapy; Computer Communication Networks/economics; Health Services Accessibility/economics; Home Care Services/economics; Rural Health Services/economics; Telemedicine/economics/instrumentation/methods; Videoconferencing/economics/instrumentation
Creator
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Bensink ME; Armfield NR; Pinkerton R; Irving H; Hallahan A; Theodoros DG; Russell T; Barnett AG; Scuffham P; Wootton R
Description
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Videotelephony (real-time audio-visual communication) has been used successfully in adult palliative home care. This paper describes two attempts to complete an RCT (both of which were abandoned following difficulties with family recruitment), designed to investigate the use of videotelephony with families receiving palliative care from a tertiary paediatric oncology service in Brisbane, Australia. To investigate whether providing videotelephone-based support was acceptable to these families, a 12-month non-randomised acceptability trial was completed. Seventeen palliative care families were offered access to a videotelephone support service in addition to the 24 hours 'on-call' service already offered. A 92% participation rate in this study provided some reassurance that the use of videotelephones themselves was not a factor in poor RCT participation rates. The next phase of research is to investigate the integration of videotelephone-based support from the time of diagnosis, through outpatient care and support, and for palliative care rather than for palliative care in isolation. Trial registration ACTRN 12606000311550.
2009
Identifier
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<a href="http://doi.org/10.1177/0269216308100251" target="_blank" rel="noreferrer">10.1177/0269216308100251</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2009
Adolescent
Adult
Armfield NR
Australia
Backlog
Barnett AG
Bensink ME
Child
Computer Communication Networks/economics
Computer Security
Continuity Of Patient Care
Cost-Benefit Analysis
Early Termination of Clinical Trials
Female
Hallahan A
Health Services Accessibility/economics
Home Care Services/economics
Humans
Irving H
Journal Article
Male
Neoplasms/therapy
Palliative Care
Palliative Medicine
Parents/psychology
Patient Acceptance of Health Care
Patient Satisfaction
Pinkerton R
PPC Book Chapter 2011 (Kim Widger)
Preschool
Rural Health Services/economics
Russell T
Scuffham P
Telemedicine/economics/instrumentation/methods
Theodoros DG
Videoconferencing/economics/instrumentation
Wootton R