Providing a seamless service for children with life-limiting illness: experiences and recommendations of professional staff at the Diana Princess of Wales Children's Community Service
Child; Humans; England; Communication; Longitudinal Studies; Continuity of Patient Care; Nursing Evaluation Research; Staff Development; disabled children; Child Health Services/organization & administration; Catastrophic Illness/nursing; Community Health Nursing/education/organization & administration; Community Networks/organization & administration
The Diana Children's Community Teams (DCCTs), a new nurse-led service funded by the Department of Health, were established to provide care in the community as an alternative to hospital for children with life-threatening/life-limiting illnesses and their families. This paper presents selected findings highlighting the professionals' experiences which formed part of the evaluation of the Diana, Princess of Wales Children's Community Service in Leicester, Leicestershire and Rutland. The Diana Service in Leicestershire attempts to encompass both parental empowerment and interagency collaboration. By working in partnership with the children and their families, the team provides an integrated and multiprofessional community-based service. This paper particularly concentrates on the perceptions and recommendations from the Diana team itself. Three independently managed Community Nursing Services existed in Leicestershire prior to the Diana teams; a Paediatric Macmillan Service, a Children's Community Nursing Service and a Respite Service. The Leicestershire DCCT integrated the three nursing services into a single team. This team has moved away from a traditional uniprofessional service structure by encompassing a wider team of multiprofessionals, including a cultural link worker, an occupational therapist, a physiotherapist, a play specialist and a team of trained counsellors, working in partnership to provide a quality service for families. * The evaluation, which used a longitudinal multimethod process analysis based on an action research framework, suggests that children with complex and life-limiting illnesses and their families benefit greatly from an effective seamless service. This paper recommends a framework of care that may be relevant to other teams of children's community services across the country. This service has been judged by the impact it has had on the families who use it and the professionals employed within it.
2003
Danvers L; Freshwater D; Cheater F; Wilson A
Journal Of Clinical Nursing
2003
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1046/j.1365-2702.2003.00781.x" target="_blank" rel="noreferrer">10.1046/j.1365-2702.2003.00781.x</a>
Process mapping as a tool for home health network analysis
Humans; United States; Cooperative Behavior; Interinstitutional Relations; Continuity of Patient Care; Non-U.S. Gov't; Research Support; Home Care Services/organization & administration; Health Services Accessibility/organization & administration; Community Networks/organization & administration; Institutional Management Teams; Community Health Planning/organization & administration; Maps; Process Assessment (Health Care); Software Design; Systems Analysis
Process mapping is a qualitative tool that allows service providers, policy makers, researchers, and other concerned stakeholders to get a "bird's eye view" of a home health care organizational network or a very focused, in-depth view of a component of such a network. It can be used to share knowledge about community resources directed at the older population, identify gaps in resource availability and access, and promote on-going collaborative interactions that encourage systemic policy reassessment and programmatic refinement. This article is a methodological description of process mapping, which explores its utility as a practice and research tool, illustrates its use in describing service-providing networks, and discusses some of the issues that are key to successfully using this methodology.
2003
Pluto DM; Hirshorn BA
Home Health Care Services Quarterly
2003
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1300/j027v22n02_01" target="_blank" rel="noreferrer">10.1300/j027v22n02_01</a>