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Dublin Core
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January 2022 List
Text
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Citation List Month
January 2022 List
URL Address
<a href="http://doi.org/10.1186/s40900-021-00319-5" target="_blank" rel="noreferrer noopener">http://doi.org/10.1186/s40900-021-00319-5</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Building a culture of engagement at a research centre for childhood disability
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Research Involvement and Engagement
Date
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2021
Subject
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Childhood disability; Collaborative auto-ethnography; Family engagement in research; Organizational ethnography
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Pozniak K; Buchanan F; Cross A; Crowson J; Galuppi B; Grahovac D; Gorter JW; Hlyva O; Ketelaar M; Kraus de Camargo O; Krpan Mesic M; Martens R; McCauley D; Nguyen L; Palisano RJ; Phoenix M; Putterman C; Rosenbaum P; Sprung J; Strohm S; Teplicky R; Thomson D; Wright M
Description
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Engaging patients and family members as partners in research studies has become a widespread practice in healthcare. However, relatively little has been documented about what happens after the research study ends. For example, is patient and family engagement embedded in the wider infrastructure of organizations, and if so how? What are the long-term effects of engaging parents on research teams on the culture of how research is conducted? This study seeks to address these two gaps by examining how a culture of family engagement has been built over time at CanChild Centre for Childhood Disability Research at McMaster University in Ontario, Canada.
Identifier
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<a href="http://doi.org/10.1186/s40900-021-00319-5" target="_blank" rel="noreferrer noopener">10.1186/s40900-021-00319-5</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Buchanan F
Childhood disability
Collaborative auto-ethnography
Cross A
Crowson J
Family engagement in research
Galuppi B
Gorter JW
Grahovac D
Hlyva O
January 2022 List
Ketelaar M
Kraus de Camargo O
Krpan Mesic M
Martens R
McCauley D
Nguyen L
Organizational ethnography
Palisano RJ
Phoenix M
Pozniak K
Putterman C
Research Involvement and Engagement
Rosenbaum P
Sprung J
Strohm S
Teplicky R
Thomson D
Wright M