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Text
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Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.2147/COAYA.S29757" target="_blank" rel="noreferrer">http://doi.org/10.2147/COAYA.S29757</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Palliative care for adolescents and young adults with cancer
Publisher
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Clinical Oncology In Adolescents And Young Adults
Date
A point or period of time associated with an event in the lifecycle of the resource
2013
Subject
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quality of life; end of life; Disease Specific; Pediatric oncology; psychosocial needs; psychosocial oncology; psychosocial outcomes; Supportive care
Creator
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Rosenberg A; Wolfe J
Description
An account of the resource
Adolescents and young adults (AYAs) with cancer represent a unique and challenging group of patients with distinct developmental and psychosocial needs that may be unrecognized or unmet during their cancer experience. Palliative care refers to the total care of a patient, regardless of his or her disease status, and aims to improve quality of life by controlling symptoms and alleviating physical, social, psychological, and spiritual suffering. Integrating palliative care into standard oncology practice for AYAs is therefore valuable, if not imperative, in improving their overall cancer experience. In this review, we aimed to describe the scope, benefits, and challenges of palliative care for AYA oncology patients. We provide a broad impression of the existing literature describing or investigating palliative care in this population. Put together, the evidence suggests that palliative care is not only needed, but can also be critically beneficial to patients, families, and health care professionals alike. As we increase public and professional awareness of the needs and applications of palliative care for AYA patients with cancer, we will ultimately enable better psychosocial outcomes of the AYA patients and their larger communities.
2013
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.2147/COAYA.S29757" target="_blank" rel="noreferrer">10.2147/COAYA.S29757</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2013
Backlog
Clinical Oncology In Adolescents And Young Adults
Disease Specific
End Of Life
Journal Article
Pediatric Oncology
psychosocial needs
psychosocial oncology
psychosocial outcomes
Quality Of Life
Rosenberg A
Supportive Care
Wolfe J
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.2147/COAYAS29735" target="_blank" rel="noreferrer">http://doi.org/10.2147/COAYAS29735</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Assessment of psychosocial outcomes in adolescents and young adults with cancer: a systematic review of available instruments
Publisher
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Clinical Oncology In Adolescents And Young Adults
Date
A point or period of time associated with an event in the lifecycle of the resource
2013
Subject
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Disease Specific
Creator
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Wakefield CE; Patterson P; McDonald FEJ; Wilson HL; Davis E; Sansom-Daly UM
Description
An account of the resource
Purpose: Given the burgeoning body of research relating to the psychosocial needs of adolescents and young adults (AYAs) with cancer, this review aimed to evaluate the psychometric properties and appropriateness of the instruments available for use in this unique population. Specifically, we reviewed published instruments developed to assess psychological distress (depression, anxiety, stress, and fear of recurrence), psychological growth (resilience, posttraumatic growth, and benefit finding), unmet needs, coping, quality of life, identity, and mindfulness-based practices and skills in AYAs with cancer. Given the dearth of validated instruments targeting AYAs with cancer, this review also provides a summary of promising measures yet to be formally validated in this population. Methods: Five electronic databases were searched by a team of six researchers, and studies involving AYAs (who have or have had cancer) aged 15–30 years, and published between 1982 and 2012 were reviewed. Of 410 abstracts, 7 instruments were identified as validated in this population, with a further 19 identified as promising. Results: While there are numerous scales to assess psychosocial outcomes in cancer, few have been specifically validated for AYAs affected by cancer, particularly in the domains of psychological distress, psychological growth, coping, unmet needs, and identity. There are relatively more instruments validated, or promising, for assessment of quality of life than scales for other domains. Conclusion: In the AYA context, scale selection should be undertaken with thought directed towards the characteristics of this sample (eg, developmental maturity, literacy, and social context), the practicalities of the setting (eg, available funding and resources, time restrictions, and researcher expertise), and the science underlying the scale (eg, theoretical framework and psychometric properties). While multiple measures of psychosocial outcomes are frequently used in AYAs, further research is clearly needed to provide rigorous evidence of the reliability and validity of these tools in young people affected by cancer.
2013
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.2147/COAYAS29735" target="_blank" rel="noreferrer">10.2147/COAYAS29735</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2013
Backlog
Clinical Oncology In Adolescents And Young Adults
Davis E
Disease Specific
Journal Article
McDonald FEJ
Patterson P
Sansom-Daly UM
Wakefield CE
Wilson HL