Browse Items (145 total)
- Tags: Clinical Article
The codesign of an interdisciplinary team-based intervention regarding initiating palliative care in pediatric oncology
Tags: 2018, Article, Bone Marrow Transplantation, Casas JA, Child, Childhood Cancer, Clinical Article, DiDomenico C, Feasibility Study, Female, Feudtner C, frustration, Hill DL, Human, Male, Oncology 2018 List, Palliative Therapy, solid malignant neoplasm, Supportive Care In Cancer, Szymczak JE, Uncertainty, Walter JK
Functional and gait assessment in children and adolescents affected by Friedreich's ataxia: A one-year longitudinal study
Tags: 2016, Adolescent, Article, assessment of humans, Bella G D, Bertini E, Castelli E, characteristics, Child, Clinical Article, Controlled Study, Female, Friedreich's ataxia, functional assessment, Gait, Gait Analysis and the Scale for the Assessment and Rating of Ataxia, Gazzellini S, Human, Lispi M L, longitudinal study, Male, Petrarca M, Pisano A, PLoS One, Preschool Child, Reliability, step length, stride length, tone and motor problems, Trajectory, Vasco G, Walking, walking velocity, Zazza M
A One Day Paediatric Palliative Care Study Day Improves Skills
Child Death And Deterioration Review Group
Tags: 2017, Adoption, Adverse Drug Reaction, Alderton M, Archives of Disease in Childhood, Case Study, Cause Of Death, Child, Child Death, Clinical Article, Controlled Study, Deterioration, Female, Health Care Quality, Human, Learning, Male, Nursing Staff, Palliative Therapy, Perception, Pryde K, September 2017 List, Side Effect, Student, Trust
Multidiciplinary approach of transition into home care for peadiatric and AYA end-of life cancer patients: A single center experience
Tags: 2018, Adolescent, Adult, Arakawa A, cancer center, Cancer Patient, Cancer Staging, Child, Clinical Article, conference abstract, Controlled Study, Female, Home Care, Human, Ishiki H, Ishimaru S, Kumamoto T, Male, Nakajima M, Ogawa C, Oncology 2019 List, Pediatric Blood and Cancer, Retrospective Study, Satomi E, Shimizu M, Shirakawa N, Social Worker, Sonoda T, time of death, Young Adult
Problematic Symptoms In Children Attending For Short Breaks At A Children's Hospice; Are We Missing An Opportunity For Symptom Assessment And Management?
Tags: 2017, Archives of Disease in Childhood, Balfe J M, Booth A, Child, Clinical Article, Clinical Nurse Specialist, Diagnosis, Family Study, Female, Health Care Delivery, Hospice, Human, Information Processing, Irritability, Male, Nursing, Pain Assessment, Pediatrician, Ritchie B, School Child, Seizure, September 2017 List, Sleep, Symptom Assessment
Development of symptom assessment service at a children's hospice
Tags: 2018, Archives of Disease in Childhood, Balfe JM, Booth A, Cassidy M, Central Nervous System, Child, Clinical Article, conference abstract, Disability, Female, Health Care Personnel, Hospice, Human, June 2018 List, Male, medical assessment, Medical Record Review, molecular recognition, Nursing, Patient Referral, Retrospective Study, Staff, Symptom Assessment, Telephone
Deep Brain Stimulation in Rare Inherited Dystonias
Tags: 2016, Adolescent, Adult, Aged, Aquino C C, Article, ataxia telangiectasia, ataxia telangiectasia/di [Diagnosis], ataxia telangiectasia/dt [Drug Therapy], atypical dopa responsive dystonia/di [Diagnosis], atypical dopa responsive dystonia/dt [Drug Therapy], Baclofen/dt [drug Therapy], Beaulieu-Boire I, benzodiazepine derivative/dt [Drug Therapy], Brain Depth Stimulation, Brain Stimulation, Burke Fahn Marsden Dystonia Rating Scale, cerebellar ataxia/di [Diagnosis], cerebellar ataxia/dt [Drug Therapy], Child, chorea/di [Diagnosis], chorea/dt [Drug Therapy], Clinical Article, clinical assessment, Clinical Effectiveness, clobazam/dt [Drug Therapy], clonazepam/dt [Drug Therapy], deep brain stimulation, diazepam/dt [Drug Therapy], disease duration, Disease Severity, Dystonia, dystonia/di [Diagnosis], dystonia/dt [Drug Therapy], Dystonic Disorder/su [surgery], dystonic disorder/th [Therapy], entacapone/cb [Drug Combination], entacapone/dt [Drug Therapy], escitalopram/dt [Drug Therapy], extrapyramidal syndrome/di [Diagnosis], extrapyramidal syndrome/dt [Drug Therapy], Fallis M, Fasano A, Follow Up, gabapentin/dt [Drug Therapy], haloperidol/dt [Drug Therapy], Hodaie M, Human, Inherited dystonia, Kalia S K, Lang A E, levodopa/dt [Drug Therapy], lorazepam/dt [Drug Therapy], Lozano A, MCM deficiency, methylmalonic aciduria/di [Diagnosis], methylmalonic aciduria/dt [Drug Therapy], Middle Aged, mirtazapine/dt [Drug Therapy], Moro E, motor dysfunction assessment, NCL, Nemaline myopathy, nemaline myopathy/di [Diagnosis], nemaline myopathy/dt [Drug Therapy], neuronal ceroid lipofuscinosis/di [Diagnosis], neuronal ceroid lipofuscinosis/dt [Drug Therapy], olanzapine/dt [Drug Therapy], outcome assessment, Phenotype, Poon Y Y, pramipexole/cb [Drug Combination], pramipexole/dt [Drug Therapy], Preoperative Care, Priority Journal, Rating Scale, risperidone/dt [Drug Therapy], School Child, selegiline/cb [Drug Combination], selegiline/dt [Drug Therapy], Surgery, surgical intervention, tetrabenazine/dt [Drug Therapy], therapy effect, time to treatment, tizanidine/dt [Drug Therapy], tone and motor problems, trazodone/dt [Drug Therapy], Treatment, trihexyphenidyl/cb [Drug Combination], trihexyphenidyl/dt [Drug Therapy], Trisomy/di [diagnosis], trisomy/dt [Drug Therapy], Wilson disease/di [Diagnosis], Wilson disease/dt [Drug Therapy], woodhouse sakati syndrome/di [Diagnosis], woodhouse sakati syndrome/dt [Drug Therapy], x trisomy/di [Diagnosis], x trisomy/dt [Drug Therapy]
The cyberspace use by adolescents, in palliative care: An ethnographic approach
Mitochondrial capacity, muscle endurance, and low energy in friedreich ataxia
Tags: 2017, Adolescent, Adult, alertness, Article, Bossie H M, cellular subcellular and molecular biological phenomena and functions, characteristics, Child, Clinical Article, Comparative Study, Controlled Study, Cross-sectional Study, Disease Severity, electrostimulation, endurance, energy, Fatigue, Female, Friedreich ataxia, Godin Leisure Time Physical Activity Score, Human, Male, McCully K K, mechanomyography, mitochondrial capacity, Muscle and Nerve, muscle endurance, muscle exercise, myography, near infrared spectroscopy, O'Connor P J, oxygen consumption, physical energy, Priority Journal, Schoick R A V, School Child, scoring system, skeletal muscle, Trajectory, Willingham T B
The Nesting Dolls Design: A Methodology for the Recruitment of Bereaved Parents for Partnership Activities Related to Palliative Care and Bereavement Support in Paediatric Psycho-Oncology
Tags: 2018, 52315-07-8 (cypermethrin), 65731-84-2 (cypermethrin), 66841-24-5 (cypermethrin), 67375-30-8 (cypermethrin), Bereavement Support, Bourque C J, Cardinal G, Child, Clinical Article, Clinician, conference abstract, Confidentiality, Content Analysis, Controlled Study, cypermethrin, Death, Dumont E, evaluation research, Female, filter, Follow Up, Human, information center, Intensive Care, Interview, Journal of Pain and Symptom Management, Male, Neonatology, nesting, Oncology 2019 List, Palliative Therapy, Pediatrics, Psycho-Oncology, Questionnaire, research ethics, Sultan S, writing
A cross-sectional controlled developmental study of neuropsychological functions in patients with glutaric aciduria type i
Tags: 2015, Adolescent, Adult, Article, Barry Albright Dystonia Scale, Boy N, Burgard P, characteristics, Child, Clinical Article, Cognition, cognitive development, continuous performance test, Controlled Study, Cross Sectional Study, Dystonia, dystonia/di [Diagnosis], enzyme deficiency, Female, Garbade S F, Glahn E M, Glutaric acidemia type I, glutaric aciduria type I, Haege G, Heringer J, Hoffmann G F, Human, Information Processing, Kolker S, Male, Metabolic Disorder, motor dysfunction, motor performance, neurologic disease assessment, newborn screening, Orphanet Journal Of Rare Diseases, response time, tone and motor problems, Trajectory, visual memory, visuomotor coordination, working memory
What constitutes 'good quality care' from the perspectives of children and young people with life-limiting and life-threatening conditions?
Tags: 2023, Adolescent, Archives of Disease in Childhood, Braybrook D, Bristowe K, Child, Clinical Article, conference abstract, Conversation, Coombes L, developmental stage, Female, Fraser L, genetic transcription, Harding R, Haroardottir D, Hospital Patient, Human, Male, Malignant Neoplasm, Nervous System, October List 2029, Only Child, Outpatient, Preschool Child, Scott HM, Semi Structured Interview, Social Care
How do children’s nurses working in hospices manage emotional labour and professional integrity in long-term relationships with parents?
Tags: 2023, August List 2026, BMJ Supportive and Palliative Care, Brimble MJ, Child, Clinical Article, conference abstract, Coping Behavior, Emotion, Emotional Intelligence, Ethics, Female, Hospice, Hospices, Human, Human Experiment, Human Tissue, Male, mobile phone, Nurse, Nursing Practice, Parents, professionalism, Purposive Sample, social media, telephone interview, Thematic Analysis, theoretical study
My Life Is a Mess but I Cope': An Analysis of the Language Children with Life-limiting and Life Threatening Illnesses Use to Describe their Own Condition
Tags: 2023, ambivalence, Braybrook D, Bristowe K, Child, Clinical Article, conference abstract, Controlled Study, Coombes L, discourse analysis, Downing J, Ellis-Smith C, Emotion, Female, Fraser L, Harardottir D, Harding R, Health Status, Human, Human Experiment, Human Tissue, Interview, Language, literature, Male, Malignant Neoplasm, Murtagh FE, Only Child, Palliative Medicine, Preschool Child, Roach A, Scott HM, September List 2027, Thematic Analysis
Effect of selective dorsal rhizotomy on daily care and comfort in non-walking children and adolescents with severe spasticity
Tags: 2017, Adolescent, Attention, Becher J G, Bolster E A M, Buizer A I, Cerebral Palsy, Child, Clinical Article, Comfort, Congenital Malformation, Controlled Study, dorsal rhizotomy, Dystonia, European Journal of Paediatric Neurology, Follow Up, Human, leg muscle, lipidoses, Medical History, Pain, risk factor, Satisfaction, School Child, scoliosis, selective dorsal rhizotomy, Spasticity, Stadhouder A, Strijers R L, surgical intervention, tone and motor problems, van de Pol L A, van Ouwerkerk W J, van Schie P E M, Vermeulen R J
Designing pain research from the patient's perspective: What trial end points are important to patients with chronic pain?
Tags: 2001, Adult, Aged, Article, Asch DA, Backlog, Casarett D, Chronic Pain/dt [Drug Therapy], Clinical Article, Clinical Study, Controlled Study, Demography, Disease Severity, Dose Response, Empiricism, Evaluation, Female, Health Center, Hirschman K, Human, Interview, Journal Article, Karlawish J, Male, Medical Decision Making, Medical Information, Medical Research, Methodology, Opiate/do [Drug Dose], Opiate/dt [drug Therapy], Outcomes Research, Pain Assessment, Pain Clinic, Pain Medicine, Perception, Qualitative Analysis, Rating Scale, Sankar P, Sleep, Urban Area
A possibility for strengthening family life and health: Family members' lived experience when a sick child recieves home care in sweden
Tags: 2018, Attention, Castor C, Child, Childhood Cancer, Clinical Article, conference abstract, December 2018 List, Expectation, Family Life, Father, Female, genetic transcription, Hansson H, Home Care, Human, Interview, Kristensson HI, Landgren K, lion, Male, Mother, Nonhuman, Pediatric Blood and Cancer, Personal Experience, responsibility, Sibling, Sweden, welfare, Wellbeing
Content Analysis of Multifaceted Needs for Improving the Quality of Pediatric Palliative Care Among Parents of Children With Life-threatening Conditions
Tags: 2022, Advance Care Planning, Article, Bereavement, Bereavement Support, care behavior, Child, Cho-Hee K, Clinical Article, Content Analysis, Controlled Study, December List 2022, diagnosis related group, Female, Hee-Young S, Human, Journal of Hospice and Palliative Nursing, Kyung-Ah K, Male, Min-Sun K, Myung-Nam L, Palliative Therapy, Qualitative Research, Semi Structured Interview, South Korea, Spiritual Care, Yi-Ji M
Gabapentin for the treatment of pain manifestations in children with severe neurological impairment: A single-centre retrospective review
Tags: 2019, alopecia/si [Side Effect], BMJ Paediatrics Open, Bourke B, Broderick A, Child, Clinical Article, Collins A, Devins M, Disease Severity, Drug Efficacy, Drug Substitution, Drug Withdrawal, gabapentin/ae [Adverse Drug Reaction], gabapentin/dt [Drug Therapy], gabapentin/pv [Special Situation for Pharmacovigilance], Gastroenterology, General Paediatrics, Human, Hussey S, hypertransaminasemia/si [Side Effect], Irritability, lethargy/si [Side Effect], Mannion R, muscle twitch, Neurodisability, Neurologic Disease, October 2019 List, Pain, Pain/dt [drug Therapy], Palliative Care, pregabalin/dt [Drug Therapy], pregabalin/pv [Special Situation for Pharmacovigilance], Priority Journal, Retrospective Study, Review, treatment duration, treatment response, vomiting/dt [Drug Therapy], vomiting/si [Side Effect]
Medical and end-of-life decision making in adolescents' pre-heart transplant: A descriptive pilot study
Tags: 2020, Adolescent, Adult, Advance Care Planning, Article, Attention, Blume E D, Child, Clinical Article, Cousino M K, Cross-sectional Study, Decision Making, Female, heart graft, Human, Lowery R, Male, May 2020 List, Miller V A, Palliative Medicine, Patient Participation, Pilot Study, Prognosis, Rottach N, School Child, Schumacher K R, Smith C, Uzark K, Young Adult
Palliative care in 9 children with neurodegeneration with brain iron accumulation
Tags: 2020, April 2020 List, Article, body mass, Bone Density, bone strength, botulinum toxin, Child, Clinical Article, contracture, Controlled Study, Dangel T, Densitometry, Dystonia, facilitation, Female, femur, Home Care, Hospice And Palliative Care Nursing, Human, hypersalivation, iron, Januszaniec A, ketogenic diet, Kmiec T, Male, Multidisciplinary team, neurodegeneration with brain iron accumulation, Neurological Sciences, Pain, Palliative Therapy, pathologic fracture, Prevention, Questionnaire, School Child, skeleton, Spasticity, Spine, Thorax, Wazny B
Parents' experiences of requests for organ and tissue donation: The value of asking
Tags: 2019, Archives of Disease in Childhood., Article, Awareness, Brierley J, Child, Clinical Article, Coping Behavior, coronary care unit, Darlington A S, Fear, Female, Hospice, Human, July 2019 List, Long-Sutehall T, Male, Multicenter Study, Neonatal Intensive Care Unit, Organ Donation, organ donor, Palliative Care, Palliative Therapy, Parents, Pediatric Intensive Care Unit, Qualitative Research, Randall D, Retrospective Study, Robinson V, Terminal Care, Wakefield C
Pediatric advance care discussions between health care professionals and parents of children with a life-limiting disease: A qualitative interview study
Tags: 2018, August 2018 List, Borasio GD, Child, Clinical Article, conference abstract, Conversation, Data Analysis, Daxer M, Emotion, Female, Führer M, Germany, Health Care Personnel, Hein K, Heitkamp N, Human, Jox R, Knochel K, Male, Medical Information, Monz A, Palliative Medicine, Palliative Therapy, Perception, Semi Structured Interview, writing
Brazilian Neonatal Nurses' Palliative Care Experiences
Tags: 2018, Article, Borges Silva AR, Brazil, Carmona EV, Cleveland LM, Clinical Article, Controlled Study, Convenience Sample, Darilek U, de Castro de Oliveira F, Developing World 2018 List, Education, Exploratory Research, Female, genetic transcription, Grief, Human, Human Experiment, Infant, Interview, Male, Neonatal Intensive Care Unit, Neonatal Nurse, Newborn, Palliative Therapy, Quality Of Life, quality of nursing care, registered nurse, teaching hospital, The Journal Of Perinatal & Neonatal Nursing, Thematic Analysis, vulnerable population
The care for oncologic patients undergoing pediatric palliative care and the griefs of a health team
Tags: 2023, 2023 SE3 - Oncology, Alves RSF, anxiety, Article, Cancer Diagnosis, Chronic Disease, Clinical Article, coronavirus disease 2019, Cross-sectional Study, de Sena JGM, de Vasconcelos AV, Female, Follow Up, Health Service, Human, Male, Melo CF, Palliative Care, Palliative Therapy, Pandemic, Psicooncologia, Psychology, Questionnaire, Ruiz EM, Semi Structured Interview, Teixeira LC
Pediatric Resident's Knowledge and Attitudes Towards Spiritual Assessment and Care: An Educational Intervention. (FR408C)
Tags: 2020, Attitude, Caucasian, Child, Clinical Article, Comfort, conference abstract, Controlled Study, Delaney C, Female, Human, Journal of Pain and Symptom Management, Likert scale, March 2020 List, Maurer S, Moehling K, Palliative Therapy, pediatric patient, Resident, Role Playing, Wilcoxon signed ranks test
Exploring knowledge and perceptions of palliative care to inform integration of palliative care education into cystic fibrosis care
Tags: 2019, Adolescence, Adolescent, Adult, Article, Attitude To Health, August 2019 List, Brown D E, Caregiver, Carney S D, Clinical Article, Communication, Cystic Fibrosis, Dellon E P, Female, Hailey C E, Health Care Personnel, Health Education, Helms S W, Human, lung fibrosis, Male, Palliative Care, Palliative Therapy, Parent, Patient Education, Pediatric Pulmonology, Perception, Prieur M G, Priority Journal, Qualitative Analysis, Schmidt H J, Semi Structured Interview, Shay R
End Of Life Care In Paediatric Neurodegenerative Disease: A Regional Experience
Tags: 2016, Case Study, Child, Clinical Article, Controlled Study, Degenerative Disease, Developmental Medicine and Child Neurology, Donald A, England, Family, Hospital, Human, Kauffmann L, May 2017 List, Myoclonus, Neurodegenerative Diseases, Neurology, Only Child, Palliative Care, Palliative Therapy, Personal Experience, Ram D, Rare Disease, Seizure, Social Welfare, Symptom, Terminal Care, Vassallo G
Spirituality among parents of children with cancer at AUBMC
Tags: 2016, cancer center, Cancer Nursing, Caregiver, Child, Childhood Cancer, Clinical Article, conference abstract, Developing World 2018 List, Doumit MA, Fear, Female, genetic transcription, Health Care Personnel, Human, Lebanon, Majdalani M, Male, Palliative Therapy, Powerlessness, Rahi A, Religion, Saab R, Semi Structured Interview, social needs, Spiritual Care
Family experiences and viewpoints of palliative and supportive care for children with cancer: Can we do better?
Tags: 2018, Awareness, Basic Needs, Child, Clinical Article, conference abstract, Du Plessis J, error, Exploratory Research, Female, financial management, Grounded Theory, Human, Interview, Male, Meiring M, Oncology, Oncology 2018 List, Palliative Therapy, Pediatric Blood and Cancer, psychosocial care, Qualitative Research, Sibling, South Africa, Staff, Stones D
The experiences, attitudes and practices of nurses working in a paediatric intensive care unit caring for babies and children at the end of life: A qualitative study
Tags: 2018, Archives of Disease in Childhood, Brierley J, Child, Clinical Article, conference abstract, Documentation, Du Pre P, Female, genetic transcription, Hospice, Human, Human Experiment, Infant, June 2018 List, Koffman J, Male, Nurse, Pediatric Intensive Care Unit, Personal Experience, Qualitative Research, Sampling, Scientist, Semi Structured Interview, Terminal Care, Uncertainty
An Audit Analysing The Standard Of Patient Care And Service Provision In Sppc At A Tertiary Hospital And Hospice
Tags: 2023, Archives of Disease in Childhood, Child, Clinical Article, conference abstract, Coulson-Smith P, Durrant E, Female, Hospice Care, Hospices, Human, Male, manager, October List 2030, Palliative Therapy, Patient Care, patient coding, Patient Referral, Place Of Death, Renton K, Sample Size, staff training, tertiary care center, Warlow T
Interdisciplinary Perspectives on the Value of Massage Therapy in a Pediatric Hospice
Tags: 2019, accident prevention, Article, August 2019 List, Bainbridge L, Child, Clinical Article, Clinician, Comfort, Controlled Study, Egeli D, Female, Hospice Care, Human, Human Dignity, Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association., leisure, Male, Massage, Miller T, Perception, Potts J, rest, Self Care, Semi Structured Interview, Staff, Thematic Analysis
Clinical and genetic characteristics of Tunisian children with infantile nephropathic cystinosis
Tags: 2023, 2023 SE5 - Low Resource Setting, Achour A, Article, Ben Youssef S, bicarbonate/dt [Drug Therapy], bicarbonate/pv [Special Situation for Pharmacovigilance], calcitriol/dt [Drug Therapy], calcitriol/pv [Special Situation for Pharmacovigilance], Child, citrate potassium/dt [Drug Therapy], citrate potassium/pv [Special Situation for Pharmacovigilance], Clinical Article, Clinical Feature, Controlled Study, CTNS gene, cystine/ec [Endogenous Compound], cystinosis/di [Diagnosis], cystinosis/dt [Drug Therapy], El Younsi M, exon, Fanconi renotubular syndrome, Female, founder mutation, Gargah T, gene, Gene Deletion, gene mutation, genetic analysis, genetic trait, Hammi Y, heterozygosity, homozygosity, Human, hypothyroidism/dt [Drug Therapy], Infant, infantile nephropathic cystinosis/di [Diagnosis], infantile nephropathic cystinosis/dt [Drug Therapy], Information Processing, Kharrat M, kidney disease/di [Diagnosis], kidney disease/dt [Drug Therapy], M'Rad R, Maazoul F, Male, mercaptamine/dt [Drug Therapy], mercaptamine/pv [Special Situation for Pharmacovigilance], molecular diagnosis, molecular fingerprinting, Only Child, Ouertani I, Palliative Therapy, Pediatric Nephrology, pediatric patient, Prenatal Diagnosis, Preschool Child, Retrospective Study, RNA splicing, Sanger sequencing, thyroid hormone/dt [Drug Therapy], thyroid hormone/pv [Special Situation for Pharmacovigilance], Trabelsi M, Tunisian
Sharing care at the End of life for adolescent patients with neuro-disability: A case series
Tags: 2023, Adolescent, Adult, ADULTHOOD, Aspey H, August List 2031, Bereavement Support, BMJ Supportive and Palliative Care, Bond E, Case Study, Child, Clinical Article, Community Health Nursing, conference abstract, Deterioration, Elverson J, family support, Female, groups by age, health hazard, Hoskins R, Hospital Admission, hospital discharge, Human, Learning, Mackerness C, Male, Neurodisability, Palliative Therapy, Patient Care, Shiell A, Terminal Care, Young Adult
Shared decision-making in pediatric palliative care in the Netherlands
Tags: 2024, Aae V, Advance Care Planning, Article, Child, Clinical Article, Current Problems in Pediatric and Adolescent Health Care, Cy J, Decision Making, Diagnosis, Em M, evidence based practice, Health Care Personnel, Human, Jl A, March List 2024, Mc K, Netherlands, Palliative Care, Palliative Therapy, shared decision making
Preliminary Study of Neurodevelopmental Outcomes and Parenting Stress in Pediatric Mitochondrial Disease
Tags: 2017, Aggression, anxiety disorder/dm [Disease Management], Article, attention disturbance/dm [Disease Management], behavioral problems, brain atrophy/dm [Disease Management], characteristics, Child, Child Behavior, childhood disease/dm [Disease Management], Clinical Article, Comorbidity, daily life activity, delinquency, depression/dm [Disease Management], Disease Severity, drug resistant epilepsy/dm [Disease Management], drug resistant epilepsy/dr [Drug Resistance], Emotion, Eom S, Female, Human, intellectual impairment/dm [Disease Management], Intelligence, Intelligence Quotient, lactic acidosis/dm [Disease Management], Lee Y M, Leigh disease/dm [Disease Management], Leigh syndrome, Male, MELAS syndrome, MELAS syndrome/dm [Disease Management], mitochondrial disorders, muscle disease/dm [Disease Management], nervous system development, neuroimaging, nuclear magnetic resonance imaging, Parental Stress, Pediatric Neurology, postnatal depression/dm [Disease Management], Preschool Child, Priority Journal, problem behavior/dm [Disease Management], Prognosis, psychomotor development, Quality Of Life, sleep disorder/dm [Disease Management], social problem, somatization/dm [Disease Management], thinking impairment/dm [Disease Management], Trajectory
Pediatric Palliative Telehealth Care from Hospital to Hospital: A Pilot Project (QI653)
Tags: 2020, Child, Clinical Article, Comfort, community hospital, conference abstract, Consensus, Education, Evan E, Feasibility Study, Female, Follow Up, Human, Human Experiment, Journal of Pain and Symptom Management, Likert scale, Male, March 2020 List, Mock K O, Palliative Therapy, Primary Health Care, program feasibility, Questionnaire, Sandesara A, Satisfaction, Telehealth, tertiary care center, Total Quality Management
Rapid whole-genome sequencing decreases infant morbidity and cost of hospitalization
Tags: 2018, acutely ill patient, Article, Bainbridge MN, Benson W, Cakici JA, Childhood Mortality, Chowdhury S, Clark MM, Clinical Article, Cohort Analysis, Controlled Study, Cost Control, diagnostic test accuracy study, Diagnostic Value, Dimmock D, Ding Y, Farnaes L, February 2019 List, Female, Friedman J, genetic screening, Gold JJ, Hildreth A, hospitalization cost, Human, Infant, infant disease/di [Diagnosis], infant disease/dm [Disease Management], Kaplan RH, Kingsmore SF, Kronick R, Male, mortality risk, Nahas S, NLJ Genomic Medicine, Palliative Therapy, Priority Journal, rapid whole genome sequencing, Retrospective Study, risk reduction, Sensitivity and Specificity, Sweeney NM, Veeraraghavan N, whole genome sequencing