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Dublin Core
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Title
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September 2018 List
Text
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October 2018 List
URL Address
<a href="http://doi.org/10.1177/1049909118763800" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/1049909118763800</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Evaluating Palliative Care Resources Available to the Public Using the Internet and Social Media
Publisher
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American Journal of Hospice & Palliative Medicine
Date
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2018
Subject
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Palliative Care; Quality of Life; Human; Emotions; Health Education; Medline; Thematic Analysis; Search Engines; Facebook; Cross Sectional Studies; Health Information Evaluation; Information Seeking Behavior; Internet Utilization; Social Media Utilization; Twitter; Videorecording; World Wide Web
Creator
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Claudio CH; Dizon ZB; October TW
Description
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Background: Accessible information about palliative care available to the public on the Internet is growing. We do not know whether this information is consistent with the current accepted definition of palliative care. Aim: To identify resources on the Internet and social media regarding palliative care and evaluate the information conveyed. Design: A cross-sectional study of “palliative care” search results. Setting: Top 10 Google websites, top 10 most viewed YouTube videos, and social media platforms, Facebook and Twitter, were searched. Results: The most popular Google websites were mostly from national organizations promoting palliative care, whose definitions of palliative care consistently mention “quality of life” and “relief from symptoms and stress.” None of the websites mentioned children, and 77% cited palliative care as treatment for cancer with less focus on other diseases. No personal stories were included in Google websites, while 60% of YouTube videos included personal stories. Five main themes were generated from 266 YouTube video comments analyzed. The most common theme was emotionality, of which 91% were positive statements. Facebook and Twitter were mostly used by health-care professionals and not the public. Conclusions: Palliative care resources are mostly positive and consistent with the current definition of palliative care. Major Internet search engines such as Google and YouTube provide valuable insight into information the public receives about palliative care. Future development of Internet resources on palliative care should consider including children and emphasizing palliative care for all life-limiting illnesses.
Identifier
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<a href="http://doi.org/10.1177/1049909118763800" target="_blank" rel="noreferrer noopener">10.1177/1049909118763800</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here.
2018
American Journal of Hospice & Palliative Medicine
Claudio CH
Cross Sectional Studies
Dizon ZB
Emotions
Facebook
Health Education
Health Information Evaluation
Human
Information Seeking Behavior
Internet Utilization
Medline
October TW
Palliative Care
Quality Of Life
Search Engines
September 2018 List
Social Media Utilization
Thematic Analysis
Twitter
videorecording
World Wide Web