1
40
3
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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May 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2022 List
URL Address
<a href="http://doi.org/10.1177/02692163221082423" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/02692163221082423</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Development of a research-based classification of approaches to paediatric palliative medicine service provision within children's and young adults' hospices: A mixed methods study
Publisher
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Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
Children; Classification; Hospices; Pediatric palliative care; Young adults
Creator
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Frost J; Hunt J; Hewitt-Taylor J; Lapwood S
Description
An account of the resource
Background: Globally, pioneers in children's palliative care influenced this speciality's development through individual initiatives leading to diverse models of care. Children's and young adults' hospices have now been established around the world. However, service provision varies widely leading to inequities both within countries and internationally. Aim(s): To describe and classify existing approaches to paediatric palliative medicine in children's and young adults' hospices across the UK. Design(s): A mixed methods study conducted by telephone interview. Setting/participants: Thirty-one leaders of children's hospice care, representing 28 services, 66% of UK children's and young adults' hospice organisations. Result(s): A geographic-specialist classification was developed through integration of findings, enabling hospices to be classified as Regional specialist, Regional non-specialist, Local specialist and Local non-specialist. Both qualitative and quantitative data demonstrated diversity and inequity in paediatric palliative medicine provision. Of 159 doctors (63.5% of whom were general practitioners) working in participating hospices only 27.5% had specialist training in paediatric palliative medicine. The majority of participating hospices (67.9%) did not have involvement from a paediatric palliative medicine consultant. Conclusion(s): Internationally, the integration of specialist children's palliative care teams with existing services is a current challenge. Despite differing approaches to children's palliative care world-wide, models of care which facilitate integration of specialist children's palliative care could benefit a range of countries and contexts. The geographic-specialist classification could be used to inform recommendations for a networked approach to paediatric palliative medicine within children's and young adults' hospices to promote equity for children with life-limiting and life-threatening conditions. Copyright © The Author(s) 2022.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/02692163221082423" target="_blank" rel="noreferrer noopener">10.1177/02692163221082423</a>
2022
Children
Classification
Frost J
Hewitt-Taylor J
Hospices
Hunt J
Lapwood S
May 2022 List
Palliative Medicine
Pediatric Palliative Care
Young Adults
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1469-8749.1964.tb10791.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1469-8749.1964.tb10791.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Terminology and classification of cerebral palsy
Publisher
An entity responsible for making the resource available
Developmental Medicine & Child Neurology
Date
A point or period of time associated with an event in the lifecycle of the resource
1964
Subject
The topic of the resource
Child; Cerebral Palsy; Terminology; Classification
Creator
An entity primarily responsible for making the resource
Bax M
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1469-8749.1964.tb10791.x" target="_blank" rel="noreferrer">10.1111/j.1469-8749.1964.tb10791.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
1964
1964
Backlog
Bax M
Cerebral Palsy
Child
Classification
Developmental Medicine & Child Neurology
Journal Article
Terminology
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/019394599401600202" target="_blank" rel="noreferrer">http://doi.org/10.1177/019394599401600202</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Things that help and hinder adolescent sibling bereavement
Publisher
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Western Journal Of Nursing Research
Date
A point or period of time associated with an event in the lifecycle of the resource
1994
Subject
The topic of the resource
adolescent; Female; Humans; Male; bereavement; Death; Adolescent Psychology; Family; Interpersonal Relations; Questionnaires; social support; Sibling Relations; Nursing Methodology Research; Sampling Studies; Adaptation; Psychological; sibling bereavement; Classification
Creator
An entity primarily responsible for making the resource
Hogan NS; DeSantis L
Description
An account of the resource
A taxonomy of the things that help and hinder adolescents' sibling bereavement was developed from the responses of 140 bereaved adolescents to the questions What helped you cope with your sibling's death? and What made it harder to cope with your sibling's death? The dichotomous taxonomic framework revealed five categories. The categories of self, family, friends, social system, and time contained descriptions of things that helped coping. The categories of self, family, and social system also included descriptions of things that hindered coping with sibling grief. Support considered helpful was perceived as "people being there for me." Support that was considered as not helpful (insensitive) was perceived as "people not being there for me." Two themes emerged from the data. The theme of resourcefulness pervaded each of the helped categories and served to increase the adolescents' sense of resiliency. The theme of helplessness pervaded the three hindered categories and created a sense of vulnerability.
1994-04
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/019394599401600202" target="_blank" rel="noreferrer">10.1177/019394599401600202</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1994
Adaptation
Adolescent
Adolescent Psychology
Backlog
Bereavement
Classification
Death
DeSantis L
Family
Female
Hogan NS
Humans
Interpersonal Relations
Journal Article
Male
Nursing Methodology Research
Psychological
Questionnaires
Sampling Studies
sibling bereavement
Sibling Relations
Social Support
Western Journal of Nursing Research