Resilience and death: the nursing professional in the care of children and adolescents with life-limiting illnesses.
2014
Santos RAD; Moreira MCN
Ciência & Saúde Coletiva
2014
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1590/1413-812320141912.18862013" target="_blank" rel="noreferrer">10.1590/1413-812320141912.18862013</a>
Relationships between oncohematopediatrics, mothers and children in communicating bad news
We present a study about the relations between pediatric oncological haematologists, mothers, and children in sharing bad news (BN) in a public hospital in Rio de Janeiro. The text emphasizes the intertwining of technique and emotions for the treatment of children with diagnoses in which the fatal outcome is always a probability. We used a qualitative approach, privileging participant observation and open interviews with oncologists (at this service all professionals were female) and mothers. We sought to understand the importance of communication which includes expressions and control of emotions; bioethical issues that require sensitivity, serenity, and truth about approaching the end of life; and how the professionals balance proximity to children and families and objectivity in their activity. The main results showed: intense exchanges on BN among professionals; relapse of children who were evolving positively as the most difficult news; constant update of BN facing terminally ill children; quality of communication influencing the treatment; professionals permanently balancing between closeness and distance from patients and evidence of the their irreplaceable role to secure the family and the child.
Afonso SB; Minayo MC
Ciência & Saúde Coletiva
2017
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1590/1413-81232017221.14592016" target="_blank" rel="noreferrer">10.1590/1413-81232017221.14592016</a>
Resilience And Death: The Nursing Professional In The Care Of Children And Adolescents With Life-limiting Illnesses
Adaptation Psychological; Adolescent; Attitude Of Health Personnel; Attitude To Death; Child; Chronic Disease; Humans; Nurses; Pediatric Nursing; Resilience Psychological; Terminal Care
The purpose of this article is to analyze the resilience of the nursing staff in providing care for children and adolescents with chronic diseases, including coping with their deaths. The participants of this qualitative research were nursing professionals working in the pediatric ward of a hospital in the city of Rio de Janeiro, Brazil. The data collection was obtained by applying the resilience scale, by returning the scales in groups, and by semi-structured interviews. The relationship between professional resilience and coping with the process of children and adolescent's deaths stood out in the analysis based on data obtained from group and individual interviews. The care given to children and adolescents with life-limiting illnesses triggers resilience-related answers concerning alternatives that oscillate between individual reactions (religious and psychological support), and the search for an incipient collective support based on personal relationships. This study points out that this subject must be strategically handled to train this professional, who must be able to rely on support from the collective environment, presumed within the professional health care training and in the management of humanization at the hospital.
dos Santos Rosilene Aparecida; Moreira Martha Cristina Nunes
Ciencia & Saude Coletiva
2014
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).