1
40
19
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February 2024 List
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February List 2024
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<a href="http://doi.org/10.1002/14651858.CD014873.pub2" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1002/14651858.CD014873.pub2</a>
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Title
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A meta-ethnography of how children and young people with chronic non-cancer pain and their families experience and understand their condition, pain services, and treatments
Publisher
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Cochrane Database of Systematic Reviews
Date
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2023
Subject
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Humans; Child; child; Adolescent; Quality of Life; human; inflammatory bowel disease; quality of life; Family; chronic pain; social support; family; child parent relation; social work; prognosis; systematic review; sibling; Chronic Pain; Analgesics Opioid; ethnography; Anthropology Cultural; personal experience; cultural anthropology; outcome assessment; health care personnel; wellbeing; health service; disease severity; adolescent; social isolation; headache; analgesia; pediatric patient; abdominal pain; social care; peer group; patient-reported outcome; pain assessment; Review; racism; narcotic analgesic agent; pain severity; fibromyalgia; complex regional pain syndrome; endometriosis; family life; juvenile rheumatoid arthritis; migraine; musculoskeletal pain
Creator
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France E; Uny I; Turley R; Thomson K; Noyes J; Jordan A; Forbat L; Caes L; Silveira Bianchim M
Description
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Background: Chronic non-cancer pain in childhood is widespread, affecting 20% to 35% of children and young people worldwide. For a sizeable number of children, chronic non-cancer pain has considerable negative impacts on their lives and quality of life, and leads to increased use of healthcare services and medication. In many countries, there are few services for managing children’s chronic non-cancer pain, with many services being inadequate. Fourteen Cochrane Reviews assessing the effects of pharmacological, psychological, psychosocial, dietary or physical activity interventions for managing children’s chronic non-cancer pain identified a lack of high-quality evidence to inform pain management. To design and deliver services and interventions that meet the needs of patients and their families, we need to understand how children with chronic non-cancer pain and their families experience pain, their views of services and treatments for chronic pain, and which outcomes are important to them. Objectives: 1. To synthesise qualitative studies that examine the experiences and perceptions of children with chronic non-cancer pain and their families regarding chronic non-cancer pain, treatments and services to inform the design and delivery of health and social care services, interventions and future research. 2. To explore whether our review findings help to explain the results of Cochrane Reviews of intervention effects of treatments for children's chronic non-cancer pain. 3. To determine if programme theories and outcomes of interventions match children and their families’ views of desired treatments and outcomes. 4. To use our findings to inform the selection and design of patient-reported outcome measures for use in chronic non-cancer pain studies and interventions and care provision to children and their families. The review questions are:. 1. How do children with chronic non-cancer pain and their families conceptualise chronic pain?. 2. How do children with chronic non-cancer pain and their families live with chronic pain?. 3. What do children with chronic non-cancer pain and their families think of how health and social care services respond to and manage their child’s chronic pain?. 4. What do children with chronic non-cancer pain and their families conceptualise as ‘good’ chronic pain management and what do they want to achieve from chronic pain management interventions and services?. Search methods: Review strategy: we comprehensively searched 12 bibliographic databases including MEDLINE, CINAHL, PsycInfo and grey literature sources, and conducted supplementary searches in 2020. We updated the database searches in September 2022. Selection criteria: To identify published and unpublished qualitative research with children aged 3 months to 18 years with chronic non-cancer pain and their families focusing on their perceptions, experiences and views of chronic pain, services and treatments. The final inclusion criteria were agreed with a patient and public involvement group of children and young people with chronic non-cancer pain and their families. Data collection and analysis: We conducted a qualitative evidence synthesis using meta-ethnography, a seven-phase, systematic, interpretive, inductive methodology that takes into account the contexts and meanings of the original studies. We assessed the richness of eligible studies and purposively sampled rich studies ensuring they addressed the review questions. Cochrane Qualitative Methods Implementation Group guidance guided sampling. We assessed the methodological limitations of studies using the Critical Appraisal Skills Programme tool. We extracted data on study aims, focus, characteristics and conceptual findings from study reports using NVivo software. We compared these study data to determine how the studies related to one another and grouped studies by pain conditions for synthesis. We used meta-ethnography to synthesise each group of studies separately before synthesising them all together. Analysis and interpretation of studies involved children ith chronic non-cancer pain and their families and has resulted in theory to inform service design and delivery. Sampling, organising studies for synthesis, and analysis and interpretation involved our patient and public involvement group who contributed throughout the conduct of the review. We used the GRADE-CERQual (Confidence in the Evidence from Reviews of Qualitative research) approach to assess our confidence in each review finding. We used a matrix approach to integrate our findings with existing Cochrane Reviews on treatment effectiveness for children’s chronic non-cancer pain. Main results: We synthesised 43 studies sampled from 170 eligible studies reported in 182 publications. Included studies involved 633 participants. GRADE-CERQual assessments of findings were mostly high (n = 21, 58%) or moderate (n = 12, 33%) confidence with three (8%) low or very low confidence. Poorly managed, moderate or severe chronic non-cancer pain had profound adverse impacts on family dynamics and relationships; family members’ emotions, well-being, autonomy and sense of self-identity; parenting strategies; friendships and socialising; children’s education and future employment prospects; and parental employment. Most children and parents understood chronic non-cancer pain as having an underlying biological cause and wanted curative treatment. However, families had difficulties seeking and obtaining support from health services to manage their child’s pain and its impacts. Children and parents felt that healthcare professionals did not always listen to their experiences and expertise, or believe the child's pain. Some families repeatedly visited health services seeking a diagnosis and cure. Over time, some children and families gave up hope of effective treatment. Outcomes measured within trials and Cochrane Reviews of intervention effects did not include some outcomes of importance to children and families, including impacts of pain on the whole family and absence of pain. Cochrane Reviews have mainly neglected a holistic biopsychosocial approach, which specifies the interrelatedness of biological, psychological and social aspects of illness, when selecting outcome measures and considering how chronic pain management interventions work. Authors' conclusions: We had high or moderate confidence in the evidence contributing to most review findings. Further research, especially into families' experiences of treatments and services, could strengthen the evidence for low or very low confidence findings. Future research should also explore families' experiences in low- to middle-income contexts; of pain treatments including opioid use in children, which remains controversial; and of social care services. We need development and testing of family-centred interventions and services acceptable to families. Future trials of children's chronic non-cancer pain interventions should include family-centred outcomes. Copyright © 2023 The Cochrane Collaboration. Published by John Wiley & Sons, Ltd.
Identifier
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<a href="http://doi.org/10.1002/14651858.CD014873.pub2" target="_blank" rel="noreferrer noopener">10.1002/14651858.CD014873.pub2</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
abdominal pain
Adolescent
Analgesia
Analgesics Opioid
Anthropology Cultural
Caes L
Child
Child Parent Relation
Chronic Pain
Cochrane Database of Systematic Reviews
Complex Regional Pain Syndrome
cultural anthropology
Disease Severity
endometriosis
ethnography
Family
Family Life
February List 2024
Fibromyalgia
Forbat L
France E
Headache
Health Care Personnel
Health Service
Human
Humans
inflammatory bowel disease
Jordan A
juvenile rheumatoid arthritis
migraine
musculoskeletal pain
narcotic analgesic agent
Noyes J
outcome assessment
Pain Assessment
Pain Severity
patient-reported outcome
pediatric patient
Peer Group
Personal Experience
Prognosis
Quality Of Life
racism
Review
Sibling
Silveira Bianchim M
Social Care
Social Isolation
Social Support
Social Work
Systematic Review
Thomson K
Turley R
Uny I
Wellbeing
-
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Title
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June 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
June 2022 List
URL Address
<a href="https://www.ejgm.co.uk/download/the-efficacy-of-educational-interventions-on-neonatal-intensive-care-unit-nurses-knowledge-and-12902.pdf">https://www.ejgm.co.uk/download/the-efficacy-of-educational-interventions-on-neonatal-intensive-care-unit-nurses-knowledge-and-12902.pdf</a>
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Title
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The efficacy of educational interventions on neonatal intensive care unit nurses knowledge and attitude toward neonatal palliative care
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Electronic Journal of General Medicine
Date
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2023
Subject
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fatigue; Palliative Care; Infant Newborn; adult; article; controlled study; female; hospital admission; human; male; death; family; pain; chronic pain; palliative therapy; neonatal intensive care unit; nursing; prognosis; grief; anxiety; morphine; human experiment; nurse; scoring system; aggression; questionnaire; demographics; sedation; nausea and vomiting; respiration depression; care behavior; Jordan; pretest posttest design; work experience; opiate; attitude; education program; knowledge; adjuvant therapy; analgesic activity; cocaine; drowsiness; drug dependence; educational status; electrolyte disturbance; emotional deprivation; intestine; marriage; neonatal intensive care unit attitude scale; pethidine
Creator
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Abuhammad S; Elayyan M; El-Bashir M
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
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<a href="https://www.ejgm.co.uk/download/the-efficacy-of-educational-interventions-on-neonatal-intensive-care-unit-nurses-knowledge-and-12902.pdf">10.29333/ejgm/12902</a>
2023
Abuhammad S
adjuvant therapy
Adult
Aggression
analgesic activity
anxiety
Article
Attitude
care behavior
Chronic Pain
cocaine
Controlled Study
Death
Demographics
drowsiness
drug dependence
Education Program
Educational Status
El-Bashir M
Elayyan M
electrolyte disturbance
Electronic Journal of General Medicine
emotional deprivation
Family
Fatigue
Female
Grief
Hospital Admission
Human
Human Experiment
Infant Newborn
Intestine
Jordan
June 2022 List
Knowledge
Male
Marriage
Morphine
Nausea And Vomiting
Neonatal Intensive Care Unit
neonatal intensive care unit attitude scale
Nurse
Nursing
Opiate
Pain
Palliative Care
Palliative Therapy
pethidine
pretest posttest design
Prognosis
Questionnaire
Respiration Depression
scoring system
Sedation
work experience
-
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June 2022 List
Text
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June 2022 List
URL Address
<a href="http://doi.org/10.12927/hcq.2022.26778" target="_blank" rel="noreferrer noopener">http://doi.org/10.12927/hcq.2022.26778</a>
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Title
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Ensuring Equity and Inclusion in Virtual Care Best Practices for Diverse Populations of Youth with Chronic Pain
Publisher
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Healthcare Quarterly (Toronto, Ontario)
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
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Adolescent; Canada; Chronic Pain; COVID-19; Humans; Pandemics
Creator
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Birnie KA; Killackey T; Backlin G; Gavin F; Harris C; Jordan I; Kim L;Marianayagam J; Swidrovich J; Lalonde C; Tunji-Ajayi L; Oberlander T; Kirby-Allen M; Lambert S; Siden H; Swidrovich J; Noel M; Lalloo C; Stinson J
Description
An account of the resource
Poor access to care is a top patient-oriented research priority for youth with chronic pain in Canada, and the COVID-19 pandemic has exacerbated these concerns. Our patient-oriented project team engaged with marginalized and racialized youth with chronic pain (Black youth with sickle cell disease, Indigenous youth and youth with complex medical needs) and their families to ensure that best practice recommendations for virtual care are inclusive and equitable. Input provided through virtual round-table discussions improved recommendations for leveraging, implementing and selecting best platforms for virtual care for youth with chronic pain and identified new gaps for future research, practice and policy change.
Identifier
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<a href="http://doi.org/10.12927/hcq.2022.26778" target="_blank" rel="noreferrer noopener">10.12927/hcq.2022.26778</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
Adolescent
April 2022 List
Backlin G
Birnie KA
Canada
Chronic Pain
COVID-19
Gavin F
Harris C
Healthcare Quarterly (Toronto, Ontario)
Humans
Jordan I
Killackey T
Kim L
Kirby-Allen M
Lalloo C
Lalonde C
Lambert S
Marianayagam J
Noel M
Oberlander T
Pandemics
Siden H
Stinson J
Swidrovich J
Tunji-Ajayi L
-
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January 2022 List
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January 2022 List
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<a href="http://doi.org/10.1186/s13052-021-01179-1" target="_blank" rel="noreferrer noopener">http://doi.org/10.1186/s13052-021-01179-1</a>
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The use of medical cannabis in pediatric palliative care: a case series
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Italian Journal of Pediatrics
Date
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2021
Subject
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Pediatric palliative care; chronic pain; Cannabidiol; cannabis; D9-tetrahydrocannabinol
Creator
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Divisic A; Avagnina I; De Tommasi V; Santini A; Brogelli L; Giacomelli L; Benini F
Description
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BACKGROUND: Medical cannabis may be a useful tool for managing treatment-resistant epilepsy and chronic pain, which affect many patients in pediatric palliative care (PPC); however, little evidence is available in this setting. CASE PRESENTATION: We aimed to describe a clinical experience in a setting where high-level evidence may not be obtained. We report our clinical experience in a pediatric palliative care department in Italy. Caregivers reported changes in intensity and frequency of pain and epilepsy events. Six patients received a titrated plant extract of cannabis sativa for 1 year. Only mild and transient adverse events occurred: drowsiness, euphoria, restlessness and tachycardia; the resolution was either spontaneous or obtained by modifying the administration schedule. Treatment was never discontinued. No overdoses occurred. All patients experienced seizures during the pre-treatment observation period, and obtained a reduction in seizure frequency, although with variable extent while receiving cannabis. In addition, a benefit on pain was observed, based on the caregiver's evaluation, and a reduction of analgesic use. CONCLUSION: Our experience suggests that a titrated plant extract preparation of medical cannabis may be useful to control treatment-resistant pain and epilepsy in PPC patients.
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<a href="http://doi.org/10.1186/s13052-021-01179-1" target="_blank" rel="noreferrer noopener">10.1186/s13052-021-01179-1</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Avagnina I
Benini F
Brogelli L
Cannabidiol
Cannabis
Chronic Pain
D9-tetrahydrocannabinol
De Tommasi V
Divisic A
Giacomelli L
Italian Journal of Pediatrics
January 2022 List
Pediatric Palliative Care
Santini A
-
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Title
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April 2021 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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April 2021 List
URL Address
<a href="http://doi.org/10.1093/jpepsy/jsz098" target="_blank" rel="noreferrer noopener">http://doi.org/10.1093/jpepsy/jsz098</a>
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Title
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Caregiver-Child Discrepancies in Reports of Child Emotional Symptoms in Pediatric Chronic Pain
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Journal of Pediatric Psychology
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
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children; Child; Female; Humans; Male; Emotions; Quality of Life; depression; Caregivers; Pain Measurement; Chronic Pain; Depression; anxiety; Anxiety/epidemiology; parents; chronic and recurrent pain; informant discrepancies
Creator
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Martin SR; Zeltzer LK; Seidman LC; Allyn KE; Payne LA
Description
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OBJECTIVE: Pediatric chronic pain evaluation includes self-reports and/or caregiver proxy-reports across biopsychosocial domains. Limited data exist on the effects of caregiver-child discrepancies in pediatric pain assessment. In children with chronic pain, we examined associations among discrepancies in caregiver-child reports of child anxiety and depressive symptoms and child functional impairment. METHODS: Participants were 202 children (Mage=14.49 ± 2.38 years; 68.8% female) with chronic pain and their caregivers (95.5% female). Children and caregivers completed the Revised Child Anxiety and Depression Scale (RCADS) and RCADS-Parent, respectively. Children also completed the Functional Disability Inventory. Mean difference tests examined caregiver-child discrepancies. Moderation analyses examined whether associations between child self-reported anxiety and depressive symptoms and functional impairment varied as a function of caregiver proxy-report. RESULTS: Children reported more anxiety and depressive symptoms compared with their caregivers' proxy-reports (Z = -4.83, p < .001). Both informants' reports of child anxiety and depressive symptoms were associated with child functional impairment (rs = .44, rs = .30, p < .001). Caregiver proxy-report moderated associations between child-reported anxiety and depressive symptoms and functional impairment (B = -0.007, p = .003). When caregiver proxy-report was low, child self-reported anxiety and depressive symptoms were positively related to functional impairment (B = 0.28, SE = 0.07, 95% CI [0.15, 0.41], p < .001). CONCLUSIONS: Discrepant caregiver-child perceptions of child anxiety and depressive symptoms may be associated with functioning in children with chronic pain, especially when caregivers report less child internalizing symptoms. These findings highlight the need for further examination of the effects of caregiver-child discrepancies on pediatric chronic pain outcomes and may indicate targets for intervention.
Identifier
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<a href="http://doi.org/10.1093/jpepsy/jsz098" target="_blank" rel="noreferrer noopener">10.1093/jpepsy/jsz098</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Allyn KE
anxiety
Anxiety/epidemiology
April 2021 List
Caregivers
Child
Children
chronic and recurrent pain
Chronic Pain
Depression
Emotions
Female
Humans
informant discrepancies
Journal of Pediatric Psychology
Male
Martin SR
Pain Measurement
Parents
Payne LA
Quality Of Life
Seidman LC
Zeltzer LK
-
Dublin Core
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Title
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January 2021 List
Text
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Citation List Month
January 2021 List
URL Address
<a href="http://doi.org/10.1016/j.amepre.2020.08.026" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.amepre.2020.08.026</a>
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Title
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Clinical Correlates of Opioid Prescription Among Pediatric Patients With Chronic Pain
Publisher
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American Journal of Preventive Medicine
Date
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2020
Subject
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Pain Management; chronic pain; pediatric patients; opioid prescription; clinical presentation
Creator
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Richardson PA; Birnie KA; Goya Arce AB; Bhandari RP
Description
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INTRODUCTION: Up to 17%-20% of pediatric patients with chronic pain are prescribed opioid pharmacotherapy and face an increased risk of opioid misuse in adulthood. Little is known about the way clinical presentation may influence which children with chronic pain are prescribed opioids. This study examines the associations between child's and caregiver's report of child's pain, physical function, and socioemotional indices with opioid prescriptions in pediatric patients initiating treatment for chronic pain. METHODS: Participants were 1,155 pediatric patients (71.26% female, n=823) aged 8-17 years and 1 of their caregivers (89% mothers) who presented for evaluation at a tertiary care pediatric pain clinic. Data were collected from 2015 to 2019 and analyzed in 2020. RESULTS: Binary logistic regression analyses investigated the relative contribution of child's demographic, pain, and Patient-Reported Outcome Measurement Information System measures to opioid prescription status; separate models were conducted for child's and caregiver's report. Across child and caregiver models, findings were that child's age (older), pain duration (longer; child's report only), and increased physical limitations (mobility challenges and pain interference; caregiver's report only) were the most salient clinical correlates of positive opioid status. Contrary to the existing literature on adults with chronic pain, socioemotional indices (anxiety, depression, peer functioning) were nonsignificant. CONCLUSIONS: A greater understanding of how clinical presentation may relate to prescribed opioid pharmacotherapy informs the field's conceptualization of the sequelae of opioid use and misuse in the context of pediatric chronic pain.
Identifier
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<a href="http://doi.org/10.1016/j.amepre.2020.08.026" target="_blank" rel="noreferrer noopener">10.1016/j.amepre.2020.08.026</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
American Journal of Preventive Medicine
Bhandari RP
Birnie KA
Chronic Pain
clinical presentation
Goya Arce AB
January 2021 List
opioid prescription
Pain Management
pediatric patients
Richardson PA
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Text
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Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.pain.2013.09.015" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.pain.2013.09.015</a>
Dublin Core
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Title
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Inpatient-based intensive interdisciplinary pain treatment for highly impaired children with severe chronic pain: randomized controlled trial of efficacy and economic effects
Publisher
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Pain
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
adolescent; Child; Female; Humans; Male; Pain Management; Pain Measurement; Follow-Up Studies; Treatment Outcome; Chronic Pain; Inpatients; Depression; Catastrophization; Anxiety; Disability Evaluation
Creator
An entity primarily responsible for making the resource
Hechler T; Ruhe A-K; Schmidt P; Hirsch J; Wager J; Dobe M; Krummenauer F; Zernikow B
Description
An account of the resource
Pediatric chronic pain, which can result in deleterious effects for the child, bears the risk of aggravation into adulthood. Intensive interdisciplinary pain treatment (IIPT) might be an effective treatment, given the advantage of consulting with multiple professionals on a daily basis. Evidence for the effectiveness of IIPT is scarce. We investigated the efficacy of an IIPT within a randomized controlled trial by comparing an intervention group (IG) (n=52) to a waiting-list control group (WCG) (n=52). We made assessments before treatment (PRE), immediately after treatment (POST), as well as at short-term (POST6MONTHS) and long-term (POST12MONTHS) follow-up. We determined a combined endpoint, improvement (pain intensity, disability, school absence), and investigated 3 additional outcome domains (anxiety, depression, catastrophizing). We also investigated changes in economic parameters (health care use, parental work absenteeism, subjective financial burden) and their relationship to the child's improvement. Results at POST showed that significantly more children in the IG than in the WCG were assigned to improvement (55% compared to 14%; Fisher P<.001; 95% confidence interval for incidence difference: 0.21% to 0.60%). Although immediate effects were achieved for disability, school absence, depression, and catastrophizing, pain intensity and anxiety did not change until short-term follow-up. More than 60% of the children in both groups were improved long-term. The parents reported significant reductions in all economic parameters. The results from the present study support the efficacy of the IIPT. Future research is warranted to investigate differences in treatment response and to understand the changes in economic parameters in nonimproved children.
2014-01
Identifier
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<a href="http://doi.org/10.1016/j.pain.2013.09.015" target="_blank" rel="noreferrer">10.1016/j.pain.2013.09.015</a>
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Type
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Journal Article
2014
Adolescent
anxiety
Backlog
Catastrophization
Child
Chronic Pain
Depression
Disability Evaluation
Dobe M
Female
Follow-up Studies
Hechler T
Hirsch J
Humans
Inpatients
Journal Article
Krummenauer F
Male
Pain
Pain Management
Pain Measurement
Ruhe A-K
Schmidt P
Treatment Outcome
Wager J
Zernikow B
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1136/archdischild-2013-304207" target="_blank" rel="noreferrer">http://doi.org/10.1136/archdischild-2013-304207</a>
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Title
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Presentation and management of chronic pain
Publisher
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Archives Of Disease In Childhood
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
Child; Humans; Chronic Pain; Disease Management
Creator
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Rajapakse D; Liossi C; Howard RF
Description
An account of the resource
Chronic pain is an important clinical problem affecting significant numbers of children and their families. The severity and impact of chronic pain on everyday function is shaped by the complex interaction of biological, psychological and social factors that determine the experience of pain for each individual, rather than a straightforward reflection of the severity of disease or extent of tissue damage. In this article we present the research findings that strongly support a biopsychosocial concept of chronic pain, describe the current best evidence for management strategies and suggest a common general pathway for all types of chronic pain. The principles of management of some of the most important or frequently encountered chronic pain problems in paediatric practice; neuropathic pain, complex regional pain syndrome (CRPS), musculoskeletal pain, abdominal pain and headache are also described.
2014-05
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/archdischild-2013-304207" target="_blank" rel="noreferrer">10.1136/archdischild-2013-304207</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Archives of Disease in Childhood
Backlog
Child
Chronic Pain
Disease Management
Howard RF
Humans
Journal Article
Liossi C
Rajapakse D
-
Dublin Core
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Title
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March 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March 2018 List
URL Address
<a href="http://doi.org/10.3390/children5010013" target="_blank" rel="noreferrer">http://doi.org/10.3390/children5010013</a>
Dublin Core
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Title
A name given to the resource
Total Pain' in Children with Severe Neurological Impairment
Publisher
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Children (basel)
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
cerebral palsy; Chronic Pain; cognitive impairment; neurological impairment; Paediatric palliative care; persistent pain; 'Total Pain'
Creator
An entity primarily responsible for making the resource
Warlow TA; Hain RDW
Description
An account of the resource
Many children with palliative care needs experience difficulty in managing pain. Perhaps none more so than those with severe neurological impairment. For many years; behaviours in these children were misunderstood. As a result; pain was poorly recognised and inadequately managed. Significant advances have been made in the assessment and management of pain in this challenging group of patients. We summarise these advances; drawing on our own experience working with infants; children and young adults with palliative care needs within a UK tertiary paediatric palliative care service. We expand on the recent understanding of 'Total Pain'; applying a holistic approach to pain assessment and management in children with severe neurological impairment.
2018-01
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.3390/children5010013" target="_blank" rel="noreferrer">10.3390/children5010013</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
'Total Pain'
2018
Cerebral Palsy
Children (Basel)
Chronic Pain
cognitive impairment
Hain RDW
March 2018 List
neurological impairment
paediatric palliative care
persistent pain
Warlow TA
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1080/0887044042000193451" target="_blank" rel="noreferrer">http://doi.org/10.1080/0887044042000193451</a>
Dublin Core
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Title
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Individual differences, mood, and coping with chronic pain in Rheumatoid Arthritis: a daily process analysis.
Publisher
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Psychology & Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Pain; Chronic Pain; Adaptation; Psychological; Arthritis; Rheumatoid; coping; Coping Behavior; Coping Skills; Mood; Rheumatoid Arthritis
Creator
An entity primarily responsible for making the resource
Newth S; DeLongis A
Description
An account of the resource
This study examines individual differences in coping and associated health outcomes as they unfold across time. Twice daily for one week, 71 individuals with Rheumatoid Arthritis reported their pain, coping efforts, and negative mood via structured daily records. The five factor model of personality (neuroticism, extraversion, openness to experience, agreeableness, conscientiousness) and disease status were also assessed. Multi-level statistical models examining within and between person variability indicated significant temporal associations from coping to pain and bi-directional associations between mood and pain within days. Furthermore, findings suggest that coping use and coping effectiveness were moderated by personality. Implications for models of coping with chronic pain, as well as clinical applications, are discussed.
2004
Identifier
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<a href="http://doi.org/10.1080/0887044042000193451" target="_blank" rel="noreferrer">10.1080/0887044042000193451</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Adaptation
Arthritis
Backlog
Chronic Pain
Coping
Coping Behavior
Coping Skills
DeLongis A
Journal Article
Mood
Newth S
Pain
Psychological
Psychology & Health
Rheumatoid
Rheumatoid Arthritis
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/1359105304045381" target="_blank" rel="noreferrer">http://doi.org/10.1177/1359105304045381</a>
<a href="http://hpq.sagepub.com.ezproxy.library.ubc.ca/content/9/5/677" target="_blank" rel="noreferrer">http://hpq.sagepub.com.ezproxy.library.ubc.ca/content/9/5/677</a>
Dublin Core
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Title
A name given to the resource
The Role of Social Support in Coping with Daily Pain among Patients with Rheumatoid Arthritis
Publisher
An entity responsible for making the resource available
Journal Of Health Psychology
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Female; Humans; Male; Adult; Questionnaires; Aged; Middle Aged; social support; Chronic Pain; 80 and over; Non-U.S. Gov't; Research Support; Adaptation; Psychological; Arthritis; social support; Social Support and Chronic Pain; coping; Pain/etiology/psychology/therapy; Rheumatoid/complications
Creator
An entity primarily responsible for making the resource
Holtzman S; Newth S; DeLongis A
Description
An account of the resource
Using a daily process methodology, the current study examined the role of social support in coping and pain severity among patients with rheumatoid arthritis (RA). Seventy-three adults with RA completed a structured record twice daily for one week on pain severity, pain coping, satisfaction with support and disappointment in support. Findings suggested that support influenced pain indirectly, by encouraging the use of specific coping strategies, as well as impacting coping effectiveness. Satisfaction with support was associated with adaptive and maladaptive coping, while disappointment was associated with maladaptive coping. Findings highlight the importance of close others in promoting adaptive coping strategies.
2004-09
Identifier
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<a href="http://doi.org/10.1177/1359105304045381" target="_blank" rel="noreferrer">10.1177/1359105304045381</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
80 And Over
Adaptation
Adult
Aged
Arthritis
Backlog
Chronic Pain
Coping
DeLongis A
Female
Holtzman S
Humans
Journal Article
Journal Of Health Psychology
Male
Middle Aged
Newth S
Non-U.S. Gov't
Pain/etiology/psychology/therapy
Psychological
Questionnaires
Research Support
Rheumatoid/complications
Social Support
Social Support and Chronic Pain
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/S0005-7967(03)00036-6" target="_blank" rel="noreferrer">http://doi.org/10.1016/S0005-7967(03)00036-6</a>
<a href="http://www.sciencedirect.com/science/article/pii/S0005796703000366" target="_blank" rel="noreferrer">http://www.sciencedirect.com/science/article/pii/S0005796703000366</a>
Dublin Core
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Title
A name given to the resource
Pain coping and social support as predictors of long-term functional disability and pain in early rheumatoid arthritis
Publisher
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Behaviour Research And Therapy
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
social support; Chronic Pain; Social Support and Chronic Pain; Rheumatoid Arthritis; Avoidance; Functional disability; Pain coping
Creator
An entity primarily responsible for making the resource
Evers AWM; Kraaimaat FW; Geenen R; Jacobs JWG; Bijlsma Johannes WJ
Description
An account of the resource
Pain-related avoidance factors and social resources, as assessed by pain coping and social support, are supposed to have lasting effects on functional disability and pain in chronic pain disorders. As a follow-up to a prospective study demonstrating short-term effects after one year (Behaviour Research and Therapy, 36, 179–193, 1998), the role of pain coping and social support at the time of diagnosis was investigated in relationship to the long-term course of functional disability and pain after three and five years in 78 patients with rheumatoid arthritis (RA), taking into account personality characteristics of neuroticism and extraversion, clinical status and use of medication. In line with findings at the one-year follow-up, results showed that more passive pain coping predicted functional disability at the three-year, but not the five-year follow-up. In addition, low levels of social support at the time of diagnosis consistently predicted both functional disability and pain at the three and five-year follow-ups. Results indicate that pain coping and social support, assessed very early in the disease process, can affect long-term functional disability and pain in RA, and suggest that early interventions focusing on pain-related avoidance factors and social resources for patients at risk may beneficially influence long-term outcomes in RA.
2003-11
Identifier
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<a href="http://doi.org/10.1016/S0005-7967(03)00036-6" target="_blank" rel="noreferrer">10.1016/S0005-7967(03)00036-6</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
Avoidance
Backlog
Behaviour Research And Therapy
Bijlsma Johannes WJ
Chronic Pain
Evers AWM
Functional disability
Geenen R
Jacobs JWG
Journal Article
Kraaimaat FW
Pain coping
Rheumatoid Arthritis
Social Support
Social Support and Chronic Pain
-
Dublin Core
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Title
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January 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January 2018 List
URL Address
<a href="http://doi.org/10.1002/ppul.23840" target="_blank" rel="noreferrer">http://doi.org/10.1002/ppul.23840</a>
Dublin Core
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Title
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Attitudes on pain and opioid prescription practices in cystic fibrosis centers
Publisher
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Pediatric Pulmonology
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
chronic pain; cystic fibrosis; opiate; prescription; 8002-76-4 (opiate); 8008-60-4 (opiate); 53663-61-9 (opiate); Adult; Analgesia; Anxiety; Child; cyst; drug combination; Female; Human; Life Expectancy; Male; Mood; nurse; opiate addiction; Palliative therapy; Prevalence; quality of life; Questionnaire; sinus headache; thorax wall
Creator
An entity primarily responsible for making the resource
Yang Y; Mukadam Z; Laxova A; Meyer KC; Hollatz T
Description
An account of the resource
Introduction: The high incidence and prevalence of chronic pain in patients with CF is well documented. In patient surveys, reports of intense pain range from 33% - 82% of respondents. Commonly reported sources of pain include headache, sinuses, chest pain, and arthralgias. Furthermore, pain interferes with general activities, mood and occupational performance in 41-57% of patients. These studies concluded that the prevalence of pain in CF patients may be underestimated and can greatly affect quality of life (Loganes C, et al. J Cyst Fibros. 2004;3:51-7; Lechtzin N, et al. Chest 2011;140:1598-603). While opioids can be effective for palliation of pain in an end-of-life setting, there are no data on the use of opioids for chronic pain management in the general CF population. Methods: A questionnaire concerning the prevalence and characteristics of pain in patients with CF was distributed to accredited pediatric and adult CF programs throughout the US. Additional questions addressing provider attitudes on pain management and opioid use were also included. Those respondents that do not utilize opioids at their center were able to skip 13 of the 30 questions. Results: Survey responses from 100 programs were analyzed. Responders who completed the survey included CF providers (67%), clinic coordinators (21%) and nurses (6%). Responses came from 51 adult core or affiliated centers (Adult Responders - AR), 36 from pediatric core or affiliated centers (Pediatric Responders - PR), and 13 were from combined programs. While most of the PR (71%) indicated that 0-10% of their patients experience chronic pain, 48% of AR reported that 11-25% of their patients have chronic pain. Furthermore, 43 of the AR said that >50% of those with chronic pain also have comorbid depression or anxiety. When asked to rank types of chronic pain, 56% of PR ranked sinus/headache symptoms as the most common, with GI pain as the second most common. AR ranked chest wall as the most frequent site (57%), with headache/sinus ranked next. Chest wall pain was the most common reason for prescribing opioids in adults with chronic pain. While most centers (83%) report that pain management in patients with CF is a very important or important issue, 48% of AR feel uncomfortable in prescribing opioids. A majority (66%) would prefer a pain specialist to be responsible for prescribing opioids, yet 49% of the CF providers are currently responsible for this task. Only 32% of AR use pain specialists. 88% of PR and 83% of AR would find guidelines on pain management helpful or very helpful. Conclusion: Chronic pain is common in adult CF patients, and management presents a formidable challenge to providers. Most providers would prefer not to prescribe opioids but are often doing so despite inadequate training and a lack of guidelines to follow. Providers have multiple concerns regarding potential drug side effects, most notably, the possibility of opioid addiction. As life expectancy increases for adult patients with CF, chronic pain will likely be more prevalent and problematic. The development of a guideline and/or collaboration with pain specialists will likely be beneficial to both patients and providers..
Identifier
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<a href="http://doi.org/10.1002/ppul.23840" target="_blank" rel="noreferrer">10.1002/ppul.23840</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
53663-61-9 (opiate)
8002-76-4 (opiate)
8008-60-4 (opiate)
Adult
Analgesia
anxiety
Child
Chronic Pain
cyst
Cystic Fibrosis
drug combination
Female
Hollatz T
Human
January 2018 List
Laxova A
Life Expectancy
Male
Meyer KC
Mood
Mukadam Z
Nurse
Opiate
opiate addiction
Palliative Therapy
Pediatric Pulmonology
prescription
Prevalence
Quality Of Life
Questionnaire
sinus headache
thorax wall
Yang Y
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
July 2017 List
Notes
<p>1528-8447<br />Evans, Subhadra<br />Djilas, Vesna<br />Seidman, Laura C<br />Zeltzer, Lonnie K<br />Tsao, Jennie C I<br />R01 DE012754/DE/NIDCR NIH HHS/United States<br />Journal Article<br />United States<br />J Pain. 2017 May 4. pii: S1526-5900(17)30568-0. doi: 10.1016/j.jpain.2017.04.007.</p>
Dublin Core
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Title
A name given to the resource
Sleep Quality, Affect, Pain And Disability In Children With Chronic Pain: Is Affect A Mediator Or Moderator?
Publisher
An entity responsible for making the resource available
Journal Of Pain
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Affect; Chronic Pain; Child; Sleep
Creator
An entity primarily responsible for making the resource
Evans S; Djilas V; Seidman LC; Zeltzer LK; Tsao JCI
Description
An account of the resource
Sleep problems have been identified as a potential antecedent of chronic pain and pain-related disability in pediatric populations. In adult studies, affect has been implicated in these relationships. This study sought to better understand the relationships between sleep quality, negative and positive affect and pain and functioning in children with chronic pain. Participants included 213 children and adolescents (aged 7-17) presenting to a tertiary pain clinic with chronic pain. Children completed questionnaires measuring sleep quality, positive and negative affect, pain intensity, and functional disability. Results indicated that 74% of children reported disordered sleeping and that poor sleep quality was significantly associated with increased pain, disability, negative affect, and decreased positive affect. Our hypotheses were partially supported, with negative affect (but not positive affect) mediating the relationship between poor sleep and increased pain; and both positive and negative affect mediating the relationship between poor sleep and increased functional disability. There was no evidence for affect as a moderator. This study adds to the growing literature demonstrating the impact of poor sleep quality on children's pain and functioning, highlighting the need to develop further longitudinal research to confirm the causal roles of these variables.
Identifier
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10.1016/j.jpain.2017.04.007
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Affect
Child
Chronic Pain
Djilas V
Evans S
Journal Of Pain
July 2017 List
Seidman LC
Sleep
Tsao JCI
Zeltzer LK
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April 2017 List
Dublin Core
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Title
A name given to the resource
Development Of Research Priorities In Paediatric Pain And Palliative Care
Publisher
An entity responsible for making the resource available
British Journal Of Pain
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Chronic Pain; Palliative Therapy; Research Priority; Awareness; Child; Clinical Research; Clinical Study; Clinical Trial; Data Base; Exercise; Gabapentin; Human; Nonsteroid Antiinflammatory Agent; Opiate; Pharmacokinetics; Postoperative Pain; Safety; Symptom; Uncertainty; United Kingdom
Creator
An entity primarily responsible for making the resource
Liossi C; Anderson AK; Howard R
Identifier
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10.1177/2049463716668906
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Anderson AK
April 2017 List
Awareness
British Journal of Pain
Child
Chronic Pain
Clinical Research
Clinical Study
Clinical Trial
Data Base
Exercise
Gabapentin
Howard R
Human
Liossi C
Nonsteroid Antiinflammatory Agent
Opiate
Palliative Therapy
Pharmacokinetics
Postoperative Pain
Research Priority
Safety
Symptom
Uncertainty
United Kingdom
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2017 List
Notes
<p>1440-1754<br />Garg, Pankaj<br />Haynes, Natasha<br />De Lima, Jonathan<br />Collins, John J<br />Journal Article<br />Australia<br />J Paediatr Child Health. 2017 Aug 8. doi: 10.1111/jpc.13633.</p>
Dublin Core
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Title
A name given to the resource
Profile Of Children With Developmental Disabilities Attending A Complex Pain Clinic Of A Children's Hospital In Australia
Publisher
An entity responsible for making the resource available
Journal Of Paediatrics And Child Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Children; Chronic Pain; Developmental Disability; Disability
Creator
An entity primarily responsible for making the resource
Garg P; Haynes N; De Lima J; Collins J J
Description
An account of the resource
AIM: To document the profile and management of children with developmental disabilities (DD) attending an outpatient complex pain clinic at a Children's Hospital in Sydney, Australia. METHODS: Children with DD from 2011 to 2014 were identified from a clinic database, and pain relevant data was collected. RESULTS: A total of 107 (19.6%) of 544 children were identified with DD, and accounted for one-third of clinic attendances. The median age was 14 years (interquartile range: 11-16) and females were slightly over-represented (62, 57.9%). About one-third of children had cerebral palsy (CP) from a variety of prenatal, natal and post-neonatal causes. The lower limb was the most common site for pain in children with CP, while back pain was more frequent in children with other disabilities. Comorbid emotional disorders were significantly associated with the non-CP disabilities. Children who required more than four clinic attendances were more likely to have comorbid anxiety/depression and to be reviewed by multiple specialists. CONCLUSIONS: Long-term persistent pain in children with DD forms a significant cohort of children requiring tertiary level paediatric pain services. Multisystem comorbidities and emotional disorders predict greater service utilisation. Further research into the effectiveness of multidisciplinary pain teams and interventions in this cohort of children is required.
Identifier
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10.1111/jpc.13633
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Children
Chronic Pain
Collins J J
De Lima J
Developmental Disability
Disability
Garg P
Haynes N
Journal of Paediatrics and Child Health
October 2017 List
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January 2017 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Specialized Rehabilitation Programs For Children And Adolescents With Severe Disabling Chronic Pain: Indications, Treatment And Outcomes
Publisher
An entity responsible for making the resource available
Children (basel)
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Chronic Pain; Effectiveness; Indication; Pediatric; Rehabilitation Programs; Specialized Pain Treatment
Creator
An entity primarily responsible for making the resource
Stahlschmidt L; Zernikow B; Wager J
Description
An account of the resource
Children and adolescents with highly disabling chronic pain of high intensity and frequency are admitted to specialized pain rehabilitation programs. Some barriers to obtaining this specialized care include a lack of availability of treatment centers, a perceived social stigma and individual barriers such as socioeconomic status. Specialized rehabilitation programs for severe disabling chronic pain worldwide have similarities regarding admission criteria, structure and therapeutic orientation. They differ, however, regarding their exclusion criteria and program descriptions. The short- and long-term effectiveness of some rehabilitation programs is well documented. All countries should promote the establishment of future pediatric pain centers to improve the health care of children and adolescents suffering from severe chronic pain. Standardized reporting guidelines should be developed to describe treatments and outcomes to enable comparability across treatment centers.
Identifier
An unambiguous reference to the resource within a given context
10.3390/children3040033
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Children (Basel)
Chronic Pain
Effectiveness
Indication
January 2017 List
Pediatric
Rehabilitation Programs
Specialized Pain Treatment
Stahlschmidt L
Wager J
Zernikow B
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
November 2016 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Specialized Rehabilitation Programs For Children And Adolescents With Severe Disabling Chronic Pain: Indications, Treatment And Outcomes
Publisher
An entity responsible for making the resource available
Children
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Chronic Pain; Effectiveness; Indication; Pediatrics; Rehabilitation Programs; Specialized Pain Treatment
Creator
An entity primarily responsible for making the resource
Lorin Stahlschmidt; Boris Zernikow; Julia Wager
Description
An account of the resource
Children and adolescents with highly disabling chronic pain of high intensity and frequency are admitted to specialized pain rehabilitation programs. Some barriers to obtaining this specialized care include a lack of availability of treatment centers, a perceived social stigma and individual barriers such as socioeconomic status. Specialized rehabilitation programs for severe disabling chronic pain worldwide have similarities regarding admission criteria, structure and therapeutic orientation. They differ, however, regarding their exclusion criteria and program descriptions. The short- and long-term effectiveness of some rehabilitation programs is well documented. All countries should promote the establishment of future pediatric pain centers to improve the health care of children and adolescents suffering from severe chronic pain. Standardized reporting guidelines should be developed to describe treatments and outcomes to enable comparability across treatment centers.
Keywords: chronic pain, indication, rehabilitation programs, specialized pain treatment, pediatric, effectiveness
Identifier
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doi: 10.3390/children3040033
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Boris Zernikow
Children
Chronic Pain
Effectiveness
Indication
Julia Wager
Lorin Stahlschmidt
November 2016 List
Pediatrics
Rehabilitation Programs
Specialized Pain Treatment
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Text
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Citation List Month
April 2016 List
Dublin Core
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Title
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Household Income Determines Access To Specialized Pediatric Chronic Pain Treatment In Germany.
Publisher
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Bmc Health Services Research
Date
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2016
Subject
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Socioeconomic Status (ses); Pediatrics; Chronic Pain; Health Care Delivery; Income; Inequality; Specialized Treatment
Creator
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Ruhe AK; Wager J; Hirschfeld G; Zernikow B
Description
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Background
Families with lower socioeconomic status (SES) often face problems with gaining access to health care services. Information is scarce on the relationship between SES and health care delivery for children suffering from chronic pain.
Methods
Families presenting to a specialized pain center (N = 1,001) provided information on ‘household income, ‘parental education’ and ‘occupation’ to aid the evaluation of their SES. To assess whether the SES of the clinical sample is representative of the general population, it was compared to data from a community sample (N = 14,558). For the clinical sample, travel distance to the clinic was described in relation to the 75 % catchment area. Multiple logistic regression was used to analyze the association between SES and the journey from outside the catchment area.
Results
The SES was significantly higher in the clinical sample than in the community sample. Within the clinical sample, the distance traveled to the pain center increased with increasing SES. The 75 % catchment area was 143 miles for families with the highest SES and 78 miles for the lowest SES. ‘Household income’ predicted travel distance (OR 1.32 (1.12–1.56)). Education and occupational status were not significant predictors of travel from outside the catchment area.
Conclusions
In Germany, specialized care for children with chronic pain is subject to disparities in access. Future activities should focus on identifying barriers to access and seeking to prevent inequalities in specialized pediatric health care delivery. Increasing the number of specialized treatment facilities could improve access to specialized pediatric pain treatment, regardless of socioeconomic determinants.
Identifier
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doi: 10.1186/s12913-016-1403-9
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
April 2016 List
BMC Health Services Research
Chronic Pain
Health Care Delivery
Hirschfeld G
Income
Inequality
Pediatrics
Ruhe AK
Socioeconomic Status (ses)
Specialized Treatment
Wager J
Zernikow B