In this preliminary study we examined both posttraumatic stress and general distress among parents of children diagnosed with a brain tumor. Participants included 28 parents of children diagnosed with a brain rumor who completed self-report measures…
A retrospective, qualitative, preliminary study examined if parental involvement in a life-support withdrawal (LSW) decision impacts the perceptions and adjustment of parents whose child died in a pediatric critical care unit. Participants were…
The purpose of this paper was to identify the needs of parents of children with medically complex needs from their own perception. In order to provide in-depth information, the focus group interview technique was used. Several strong recurrent themes…
This study investigated parents' and health care providers' perspectives of their communicative interactions when a seriously ill infant is treated in an intensive care nursery. Both parents and health care providers stressed the importance of…
Methodological problems make it difficult to determine whether or not the rate of separation or divorce among families caring for a child with a chronic life-threatening illness such as leukemia, spina bifida, or cystic fibrosis is higher than…
The stress and uncertainty surrounding pediatric cancer diagnosis and treatment can be experienced as traumatic by both patients and their parents (e.g., Landolt, Vollrath, Ribi, Gnehm, & Sennhauser, 2003). Although previous studies have demonstrated…
Child life specialists provide family-centered, developmentally supportive care for infants in the NICU. However, there is limited research concerning this role. Using an online survey, this study explores child life specialists’ responsibilities in…
Wish-granting organizations have provided wishes to families of children with serious illnesses for years, yet scant research has examined their benefits. This mixed-method investigation of 682 households explored the benefits of granted wishes to…
Over 200,000 patients are admitted into pediatric intensive care units (PICU) annually in North America, exposing families to extreme psychosocial stressors and adverse outcomes. While previous research has shown PICU patients and their parents…
ABSTRACT Parents of seriously ill children face complex experiences for which support is valuable. We evaluated the Keeping Hope Possible Toolkit with 16 parental caregivers to assess feasibility and acceptability using a quasi-experimental design.…
