1
40
3
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
June 2016 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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New Resources For Pediatric Palliative Care
Publisher
An entity responsible for making the resource available
Jama
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Associations; Palliative Care; Families & Family Life; Pediatrics; Children's Health
End Of Life; Pediatrics
Creator
An entity primarily responsible for making the resource
Julie A Jacob
Description
An account of the resource
The National Institute of Nursing Research (NINR) has developed pediatric palliative care informational materials for families of children with serious illnesses (http://1.usa.gov/1rHZs45). The fact sheet, family stories, and resource card highlighting support services are designed to assist families of seriously ill pediatric patients with palliative care planning and decision making. Suggestions and insights from families of children with serious illness were taken into consideration when the materials were developed. The materials complement information provided by the NINR’s existing Palliative Care: Conversations Matter campaign, which includes an overview of palliative care services, as well as related tips and resources for clinicians. “Palliative care is often associated with end of life, making it difficult for patients and their families—and even health care providers—to start conversations around the subject,” said NINR Director Patricia A. Grady, RN, PhD, in a statement. We hope these materials will improve patient and family understanding of pediatric palliative care and facilitate discussion with health care teams.”
The fact sheet, resource card, and family stories can be accessed in English and Spanish on the NINR’s Palliative Care: Conversations Matter campaign website
Identifier
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doi:10.1001/jama.2016.7255
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Associations
Children's Health
End Of Life
Families & Family Life
JAMA
Julie A Jacob
June 2016 List
Palliative Care
Pediatrics
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2016 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Nurses' Experiences Of Spiritual Communication With Seriously Iii Children.
Publisher
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Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Methods; Nurse's Role; Pediatric Nursing; Child; Adolescent; Health Promotion; Nursing & Ancillary Services; Electronic Books; Local; Children's Health; Health & Fitness
Palliative Care Nursing Issues; Pediatric Palliative Care; Spirituality
Creator
An entity primarily responsible for making the resource
Ferrell B; Wittenberg E; Battista V; Walker G
Description
An account of the resource
The goal of this study was to explore nurse experiences in communication with children about spiritual topics in order to develop training in this area.
BACKGROUND:
Although spiritual care is essential in pediatric palliative care, few providers receive training about communication with ill children about spirituality.
METHODS:
Researchers developed a brief survey to prompt nurses to reflect on pediatric palliative care experiences that included spiritual discussions. Nurses attending training courses voluntarily submitted stories. Qualitative data were thematically analyzed by members of the research team, consisting of two researchers with expertise in palliative care, spirituality, and communication and two expert pediatric palliative care clinicians.
RESULTS:
Nurses' spiritual conversations with children revealed that children question God and the reason for their illness, have a desire to talk about the afterlife as a way of understanding their limited lifespan, and to share descriptions of an afterlife, in these cases described as heaven. Nurses conveyed the importance of being present and engaging in spiritual communication with children.
DISCUSSION:
Communication training is needed and should prepare providers to respond to a child's spiritual questioning, assist parents when the child initiates discussion about the afterlife, and help parent and child understand the spiritual meaning of their illness. Chaplains serve as spiritual care experts and can help train nurses to screen for spiritual distress, have greater competence in spiritual communication, and to collaborate with chaplains in care. Quality palliative care is incomplete without attention to spiritual care.
Identifier
An unambiguous reference to the resource within a given context
DOI: 10.1089/jpm.2016.0138
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Adolescent
Battista V
Child
Children's Health
Electronic Books
Ferrell B
Health & Fitness
Health Promotion
Journal of Palliative Medicine
Local
Methods
Nurse's Role
Nursing & Ancillary Services
October 2016 List
Palliative Care Nursing Issues
Pediatric Nursing
Pediatric Palliative Care
Spirituality
Walker G
Wittenberg E
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
November 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
November 2020 List
URL Address
<a href="http://doi.org/10.1377/hlthaff.2020.01192" target="_blank" rel="noreferrer noopener">http://doi.org/10.1377/hlthaff.2020.01192</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Variation In State Medicaid Implementation Of The ACA: The Case Of Concurrent Care For Children
Publisher
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Health Affairs
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
act; affordable care; care coordination; children's health; healthcare providers; hospice; medicaid; nursing; payment; state medicaid
Creator
An entity primarily responsible for making the resource
Laird J; Cozad M J; Keim-Malpass J; Mack J W; Lindley L C
Description
An account of the resource
More than 55,000 children die each year in the United States, and hospice is used for very few of them at the end of their lives. Nearly one-third of pediatric deaths are a result of chronic, complex conditions, and the majority of these children are enrolled in Medicaid because of disability status or the severity of their disease. Changes in Medicaid/Children's Health Insurance Program regulations under Section 2302 of the Affordable Care Act require all state Medicaid plans to finance curative and hospice services for children. The section enables the option for pediatric patients to continue curative care while enrolled in hospice. We examined state-level implementation of concurrent care for Medicaid beneficiaries and found significant variability in guidelines across the US. The implementation of concurrent care has fostered innovation yet has added barriers to how pediatric concurrent care has been implemented.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1377/hlthaff.2020.01192" target="_blank" rel="noreferrer noopener">10.1377/hlthaff.2020.01192</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
ACT
affordable care
Care coordination
Children's Health
Cozad M J
Health Affairs
Healthcare Providers
Hospice
Keim-Malpass J
Laird J
Lindley L C
Mack J W
Medicaid
November 2020 List
Nursing
payment
state medicaid