Browse Items (44 total)
- Tags: Child Preschool
A Review Of Pediatric Palliative Care Service Utilization In Children With A Progressive Neuromuscular Disease Who Died On A Palliative Care Program
Tags: 2012, A Review Of Pediatric Palliative Care Service Utilization In Children With A Progressive Neuromuscular Disease Who Died On A Palliative Care Program, Adolescent, Child, Child Preschool, Female, Ho C, Humans, Infant, Journal of Child Neurology, Male, Neuromuscular Diseases/ Mortality/ Nursing, Palliative Care/ Methods/ Utilization, Pediatrics, Retrospective Studies, Straatman L, Terminal Care
A Survey Of Key Opinion Leaders On Ethical Resuscitation Practices In 31 European Countries.
Europe is a patchwork of 47 countries with legal, cultural, religious, and economic differences. A prior study suggested variation in ethical resuscitation/end-of-life practices across Europe. This study aimed to determine whether this…
Tags: 2016, Adult, Askitopoulou H, Bioethics, Bossaert L, Cardiac Arrest, Cardioulmonary Resuscitation/ethics, Child, Child Preschool, December 2016 List, Emergency Care, End-of-life Care, Ethics Medical, Europe, Female, Greif R, Haywood K, Heart Arrest/therapy, Humans, Leadership, Linear Models, Male, Mentzelopoulos SD, Perkins GD, Raffay V, Resuscitation, Surveys And Questionnaires, Terminal Care/ethics, Van de Voorde P, Xanthos T
An Order Protocol For Respiratory Distress/acute Pain Crisis In Pediatric Palliative Care Patients: Medical And Nursing Staff Perceptions
An order protocol for distress (OPD), including respiratory distress and acute pain crisis, has been established for pediatric palliative care patients at Sainte-Justine Hospital (SJH). After discussion with the patient/his or her family,…
Tags: 2016, Acute Pain/therapy, Adolescent, Adult, Advance Directives, Aged, Attitude Of Health Personnel, Bidet G, Canada, Child, Child Preschool, Daoust L, Ducruet T, Duval M, Female, Humans, Humbert N, Infant, Infant Newborn, Journal of Palliative Medicine, Male, March 2016 List, Medical Staff Hospital/psychology, Middle Aged, Nursing Staff Hospital/psychology, Palliative Care/standards, Pediatric Nursing/standards, Practice Guidelines As Topic, Respiratory Distress Syndrome Adult/therapy, Surveys And Questionnaires, Toledano B, Young Adult
Associations between Music Therapy, Pain and Heart Rate for Children Receiving Palliative Care
Tags: 2023, Bernard A, Bradford N, Child, Child Preschool, Confidence Intervals, Convenience Sample, Delaney AM, Descriptive Statistics, Female, Heart Rate, Herbert AR, Human, In Infancy and Childhood, Infant, Infant Newborn, July List 2023, Male, Multimethod Studies, Music Therapy, Music Therapy Perspectives, Only Child, Pain, Palliative Care, Pediatric Care, Pretest-Posttest Design, Prevention and Control, Psychosocial Factors, Purposive Sample, Quality Of Life, scales, Summated Rating Scaling, Thematic Analysis, Therapy
Characteristics of a pediatric hospice palliative care program over 15 years.
Tags: 2014, British Columbia/epidemiology, Chavoshi N, Child, Child Preschool, Cohort Studies, Demographics, Female, Harvey B, Hospice Care, Hospices/methods/trends, Humans, Life Threatening, Male, Miller T, Palliative Care, Palliative Care/methods/trends, Parker A, Patient Care Team/trends, Pediatrics, Pediatrics/methods/trends, Retrospective Studies, Siden H, Survival Rate/trends, Time Factors
Children with Down syndrome: Clinical course and mortality-associated factors in a French medical paediatric intensive care unit
Tags: 2016, Adolescent, Bustarret O, Child, Child Preschool, Critical Illness/ Mortality, Critically Ill Children, Down Syndrome, Down Syndrome/ Complications/ Mortality, Female, Hospital Mortality, Hospitalization, Hubert P, Humans, Infant, Intensive Care Units Pediatric, Joffre C, Journal of Paediatrics and Child Health, Lesage F, Male, Mortality, November 2017 List, Oualha M, Retrospective Studies
Children with life-shortening conditions are denied the support they need, says charity
Consistency in end of life care
Tags: 2016, Adolescent, Allen D, August 2017 List, Child, Child Preschool, Communication, Decision Making, Hospice And Palliative Care Nursing/ Standards, Humans, Infant, Nurse-patient Relations, Nursing Children and Young People, Patient Participation, Pediatric Nursing/ Standards, Practice Guidelines As Topic
Coronavirus Disease-19 Deaths among Children and Adolescents in an Area of Northeast, Brazil: Why So Many?
Tags: 2020, 2021 Special Edition 1 - Low Resource Settings, Adolescent, Adolescents, Age Distribution, Brazil/epidemiology, Child, Child Preschool, Children, Comorbidity, COVID-19, COVID-19/mortality, Cristina FLD, Cristina FVS, de Siqueira ALA, deaths, Eduardo CL, Female, Hospitalization/statistics & numerical data, Humans, Infant, Infant Newborn, Intensive Care Units, Lima SPR, Male, Mortality, Queiroz GR, Santana SV, Tropical Medicine & International Health
Differences in palliative opportunities across diagnosis groups in children with cancer.
Tags: 2023, 2023 SE3 - Oncology, Adolescent, Allen KE, Brock KE, Castellino SM, Child, Child Preschool, Clinical Trials Phase I as Topic, DeGroote NP, Ebelhar J, Humans, Infant, Infant Newborn, Labudde E, Leukemia, Lymphoma, Massie AM, Neoplasms/therapy, Only Child, Palliative Care, Pediatric Blood and Cancer, Quality Of Life, Recurrence, Retrospective Studies, Terminal Care/psychology, Wasilewski-Masker K
Disputes over Diagnosing Death: Is It Ethical to Test for Death by Neurologic Criteria over Parental Objection?
End-of-life Practices Among Tertiary Care Picus In The United States: A Multicenter Study
Tags: 2015, Adolescent, Berg RA, Carcillo J, Cause Of Death, Child, Child Preschool, Clark A, Dalton H, Dean JM, Doctor A, Female, Harrison R, Holubkov R, Hospital Mortality, Humans, Infant, Intensive Care Units Pediatric, Jenkins T L, July 2017 List, Keele L, Length Of Stay, Male, Meert KL, Morrison W, Newth CJL, Pediatric Critical Care Medicine, Pollack M, Practice Patterns Physicians', Prospective Studies, Shanley T, Terminal Care/methods, Terminal Care/statistics & Numerical Data, Tertiary Healthcare, Tissue And Organ Procurement/statistics & Numerical Data, United States, Wessel DL
Families' Priorities In Life-limiting Illness: Improving Quality With Online Empowerment
Improving quality of life (QOL) is the central focus of palliative care support for children with life-limiting illness (LLI), but achieving this can be challenging.
INTERVENTION:
MyQuality is an online tool that enables families to choose…
Tags: 2016, Adolescent, Archives of Disease in Childhood, Beringer A, Child, Child Preschool, Disabled Children/psychology, Family, Female, Fletcher M, Harris N, Hospice, Humans, Infant, Internet, July 2016 List, Longitudinal Studies, Male, Outcome, Palliative Care, Parents, Parents/psychology, Power (psychology), Quality Of Life, Quality Of Life/psychology, Social Support, Surveys And Questionnaires, United Kingdom, Young Adult
Forgoing life support: how the decision is made in European pediatric intensive care units
Tags: 2011, Child Preschool, December 2017 List, Decision Making, Devictor DJ, Europe, Female, France, Health Care Surveys, Humans, Intensive Care Medicine, Intensive Care Units Pediatric, Latour JM, Life Support Care, Male, Prospective Studies, Surveys And Questionnaires, Terminal Care/td [trends], Withholding Treatment/sn [statistics & Numerical Data]
Healthcare Utilization and Spending for Constipation in Children With Versus Without Complex Chronic Conditions
Tags: 2017, Adolescent, Ambulatory Care/ economics/utilization, Berry JG, Child, Child Preschool, Chronic Disease, Constipation/economics/ therapy, DeJong N, Delivery of Health Care/ economics, Emergency Service Hospital/utilization, Female, Hall M, Health Care Costs, Hospitalization/economics, Humans, Infant, January 2018 List, Journal Of Pediatric Gastroenterology And Nutrition, Male, Medicaid, Multiple Chronic Conditions, Patient Acceptance of Health Care, Prevalence, Retrospective Studies, Richardson T, Rodean J, Steiner MJ, Stephens JR, United States
How Parents And Physicians Experience End-of-life Decision-making For Children With Profound Intellectual And Multiple Disabilities.
End-of-life decisions (EoLD) often concern children with profound intellectual and multiple disabilities (PIMD). Yet, little is known about how parents and physicians discuss and make these decisions.
AIMS:
The objective of this research…
Tags: 2016, Adolescent, Adult, Attitude Of Health Personnel, Attitude To Health, Caregiver, Cerebral Palsy, Child, Child Preschool, de Vos MA, Decision Making, Disabled Children, Dissent And Disputes, End Of Life, Ewals FV, Female, Healthcare Professional, Humans, Infant, Infant Newborn, Intellectual Disability, Male, Middle Aged, Neurologists, Palliative Care, Parents, Pediatricians, Professional-family Relations, Qualitative Research, Research in Developmental Disabilities, Resuscitation Orders, Retrospective Studies, September 2016 List, Severity Of Illness Index, Shared Decision-making, Terminal Care, van Goudoever JB, Willems DL, Young Adult, Zaal-Schuller IH
Impact of research participation on parents of seriously ill children.
Tags: 2014, Adolescent, Adult, Andrews GS, Biomedical Research, Cadell S, Charting the territory, Child, Child Health Services, Child Preschool, Feichtinger L, Female, Humans, Infant, Infant Newborn, Journal of Palliative Medicine, Male, Middle Aged, Palliative Care, Parents/psychology, Severity Of Illness Index, Siden H, Smit QT, Steele R, Surveys And Questionnaires, Young Adult
Integrating a Palliative Approach into the Healthcare provided by the French-African Pediatric Oncology Group's Pilot Units. Insights from a 3-year Training Program
Tags: 2021, 2021 Special Edition 1 - Low Resource Settings, Adolescent, Africa, Archives de Pediatrie, Aubier F, Calmanti S, Child, Child Preschool, Doucot MS, Edan C, Education Medical Continuing/methods/organization & administration, France, French-speaking Africa, Gagnepain-Lacheteau A, Hessissen L, Humans, Infant, Infant Newborn, International Cooperation, Medical Oncology/education, Moreira C, Oncology, Pain Management, Palliative Care, Patient Care Team, Patte C, Pediatrics, Pediatrics/education, Poulain P, Thinlot C, Training, Viallard ML, Yao AJJ
Limiting And Withdrawing Life Support In The Picu: For Whom Are These Options Discussed?
Tags: 2016, Berg RA, Carcillo J, Child, Child Preschool, Critical Care/methods, Dalton H, Dean JM, Female, Funai T, Harrison R, Holubkov R, Humans, Infant, Intensive Care Units Pediatric, Keele L, Length Of Stay, Life Support Care/utilization, Logistic Models, Male, Meert KL, Morrison W, Newth CJ, November 2016 List, Pediatric Critical Care Medicine, Pollack M, Prospective Studies, Resuscitation Orders, Severity Of Illness Index, Shanley T, Terminal Care/methods, Wessel DL
Limiting And Withdrawing Life Support In The Picu: For Whom Are These Options Discussed?
Tags: 2016, Berg RA, Carcillo J, Child, Child Preschool, Critical Care/mt [methods], Dalton H, Dean JM, Eunice Kennedy Shriver National Institute of Child Health and Human Development Collaborative Pediatric Critical Care Research Network, Female, Funai T, Harrison R, Holubkov R, Humans, Infant, Intensive Care Units Pediatric, January 2017 List, Keele L, Length Of Stay, Life Support Care/ut [utilization], Logistic Models, Male, Meert KL, Morrison W, Newth CJ, Pediatric Critical Care Medicine, Pollack M, Prospective Studies, Resuscitation Orders, Severity Of Illness Index, Shanley T, Terminal Care/mt [methods], Wessel DL
Methadone Conversion In Infants
And Children: Retrospective Cohort Study Of 199 Pediatric Inpatients.
Methadone administration has increased in pediatric clinical settings. This review is an attempt to ascertain an equianalgesic dose ratio for methadone in the pediatric population using standard adult dose conversion…
Tags: 2016, Administration Oral, Adolescent, Age Factors, Analgesics Opioid, Analgesics Opioid/administration & Dosage, Analgesics Opioid/adverse Effects, Child, Child Preschool, Consciousness/drug Effects, Drug Administration Schedule, Drug Dosage Calculations, Drug Monitoring, Drug Overdose/etiology, Drug Substitution, Fife A, Flood A, Friedrichsdorf SJ, Hospitals Pediatric, Humans, Infant, Infant Newborn, Inpatients, Intubation Intratracheal, Journal of opioid management, May 2016 List, Methadone, Methadone/administration & Dosage, Methadone/adverse Effects, Minnesota, Pain/diagnosis, Pain/drug Therapy, Pharmacy Service Hospital, Postier A, Respiration Artificial, Retrospective Studies, Risk Factors, Substance Withdrawal Syndrome/etiology, Substances, Tertiary Care Centers, Time Factors, Treatment Outcome
Mortality trends for pediatric life-threatening conditions.
Tags: 2014, Adolescent, British Columbia, Cause Of Death, Chavoshi N, Child, Child Mortality/trends, Child Preschool, Female, Hospice, Hospice Care/statistics & Numerical Data, Humans, Illness, Infant, Infant Newborn, Life-threatening Conditions, Male, Miller T, Mortality, Palliative, Palliative Care/statistics & Numerical Data, Pediatric, Pediatrics, Siden H, The American Journal of Hospice & Palliative Care
Mortality, length of stay, bloodstream and respiratory viral infections in a pediatric intensive care unit
Tags: 2017, Asthma, Bacterial Coinfection, Chan PK, Cheung KL, Child, Child Health Services, Child Preschool, Critical Care, Female, Fung WM, Hon KL, Hong Kong/epidemiology, Hospitalization, Humans, Infant, Intensive Care Units Pediatric, Journal of Critical Care, Koh PL, Length Of Stay, Leukemia, Leung TF, Li CK, Li CY, Li S, Liu PK, Logistic Models, Luk MP, Lymphoma, Male, November 2017 List, Odds Ratio, Pediatric Intensive Care, Respiratory Tract Infections/complications/ Epidemiology/microbiology/mortality, Respiratory Virus, Retrospective Studies, Risk Factors, Sepsis/complications/ Epidemiology/microbiology/mortality, Survival Analysis, Tsang KY, Yeung HL
On The Child's Own Initiative: Parents Communicate With Their Dying Child About Death
Tags: 2015, Adolescent, Adult, Attitude To Death, Behavioral Research, Child, Child Behavior, Child Care/psychology, Child Preschool, Death studies, Female, Henter JI, Humans, Infant, Jalmsell L, Kontio T, Kreicbergs U, Male, March 2016 List, Neoplasms/psychology, Neoplasms/therapy, Palliative Care/psychology, Parent-child Relations, Parents/psychology, Qualitative Research, Stein M, Sweden, Terminally Ill/psychology
Palliative care for children and adolescents in Switzerland: a needs analysis across three diagnostic groups
Tags: 2011, Adolescent, Bergstraesser E, Child, Child Preschool, Communication, European Journal of Pediatrics, Health Services Needs And Demand, Hornung R, Hospice Care, Humans, Inglin S, Interviews As Topic, January 2018 List, Needs Assessment, Palliative Care, Parents/px [psychology], Professional-patient Relations, Qualitative Research, Switzerland
Parental Decision-making On
Utilisation Of Out-of- Home Respite In Children’s Palliative Care: Findings Of
Qualitative Case Study Research - A Proposed New Model.
Respite in children's palliative care aims to provide a break for family's from the routine of caring. Parental decision-making regarding the utilisation of out-of-home respite is dependent on many interlinking factors including the…
Tags: 2016, Adolescent, Adult, Child, Child Preschool, Child: Care, Health and Development, Children, Connaire K, Decision Making, Female, Humans, Ireland/epidemiology, Ling J, Longitudinal Studies, Male, May 2016 List, McCarron M, Palliative Care, Palliative Care/psychology, Parents, Parents/psychology, Payne S, Pediatrics, Qualitative Research, Quality Of Health Care, Respite, Respite Care, Social Support, Terminally Ill/psychology
Pediatric Enteral Feeding Intolerance: A New Prognosticator For Children With Life-limiting Illness?
Tags: 2009, Child, Child Preschool, Cox K, Derman S, Enteral Nutrition/ Adverse Effects, Female, Hartnett C, Humans, Infant, Journal Of Palliative Care, Male, Pediatric Enteral Feeding Intolerance: A New Prognosticator For Children With Life-limiting Illness?, Prognosis, Siden H, Soon GS, Straatman L, Terminal Care/ Methods, Tucker T
Pediatric Primary Care Involvement In End-of-life Care For Children
Tags: 2017, Adolescent, Age Factors, American Journal of Hospice and Palliative Medicine, California, Child, Child Preschool, Female, Home Care Services/sn [statistics & Numerical Data], Hospice Care/sn [statistics & Numerical Data], Humans, Infant, Lindley LC, Male, Nageswaran S, Primary Health Care/sn [statistics & Numerical Data], Retrospective Studies, September 2017 List, Terminal Care/sn [statistics & Numerical Data], Young Adult
Perceptions Of The Pediatric Hospice Experience Among English- And Spanish-speaking Families
Many children who die are eligible for hospice enrollment but little is known about parental perceptions of the hospice experience, the benefits, and disappointments. The objective of this study was to explore parental perspectives of the…
Tags: 2016, Adolescent, Adult, Attitude To Death/ethnology, Caregivers/psychology, Child, Child Preschool, Communication, Ethnic Groups/psychology, European Continental Ancestry, Family/psychology, Female, Funes M, Group/psychology, Hispanic Americans/psychology, Hospice Care/psychology, Humans, Infant, Journal of Palliative Medicine, Lee SC, Male, Marks E, Martinez-Puente LM, Middle Aged, Neoplasms/nursing, Neoplasms/psychology, October 2016 List, Thienprayoon R, Winick N, Young Adult
Protocol: Evaluating The Impact Of A Nation-wide Train-the-trainer Educational Initiative To Enhance The Quality Of Palliative Care For Children With Cancer
There are identified gaps in the care provided to children with cancer based on the self-identified lack of education for health care professionals in pediatric palliative care and in the perceptions of bereaved parents who describe…
Tags: 2016, Adolescent, BMC Palliative Care, Bouffet E, Canada, Cancer Quality Care, Child, Child Preschool, Curriculum/standards, Education Knowledge Translation, Friedrichsdorf SJ, Greenberg M, Health Personnel/education, Humans, Husain A, Liben S, Neoplasms/therapy, November 2016 List, Palliative Care, Palliative Care/methods, Palliative Care/standards, Pediatrics, Pediatrics/methods, Pole JD, Program Evaluation, Quality Of Life/psychology, Rapoport A, Siden H, Teaching/standards, Whitlock JA, Widger K, Wolfe J
Resource Utilization Among Individuals Dying Of Pediatric Life-threatening Diseases
Tags: 2013, Adolescent, British Columbia, Chavoshi N, Child, Child Preschool, Female, Health Resources/ Utilization, Health Services Needs And Demand, Humans, Infant, Infant Newborn, Journal of Palliative Medicine, Length Of Stay/statistics & Numerical Data, Male, Miller T, Patient Discharge/statistics & Numerical Data, Resource Utilization Among Individuals Dying Of Pediatric Life-threatening Diseases, Siden H, Terminal Care, Young Adult
Sibling Mortality Burden in Low-Income Countries: A Descriptive Analysis of Sibling Death in Africa, Asia, and Latin America and the Caribbean
Tags: 2020, 2021 Special Edition 1 - Low Resource Settings, Adolescent, Adult, Asia, Caribbean Region, Child, Child Preschool, Cost Of Illness, Developing Countries, Female, Global Health, Humans, Infant, Infant Newborn, Latin America, Male, Middle Aged, Mortality/trends, PLoS One, Poverty, Siblings, Smith-Greenaway E, Socioeconomic Factors, Weitzman A, West Indies, Young Adult
Sleep problems in children with Sanfilippo syndrome.
Tags: 1996, Bax M, Child, Child Preschool, Colville G A, Developmental Medicine and Child Neurology, Female, Humans, Longitudinal Studies, Male, MPS III, Mucopolysaccharidosis III/classification, Mucopolysaccharidosis III/complications, psychological intervention, Questionnaires, Sleep Disorders/etiology, Sleep Disorders/therapy, sleep disturbance/disorders, Time Factors, Watters J P, Yule W
Staff Efficiency Trends Among Pediatric Hospices, 2002-2011.
Tags: 2016, Adolescent, California, Child, Child Preschool, Cozad MJ, Efficiency Organizational/statistics & Numerical Data, Female, Forecasting, Hospice Care/statistics & Numerical Data, Hospice Care/trends, Hospices/trends, Hospitals Pediatric, Hospitals Pediatric/statistics & Numerical Data, Humans, Infant, Infant Newborn, Lindley LC, Male, Mixer SJ, November 2016 List, Nursing Economic$, Personnel Staffing And Scheduling/statistics & Numerical Data, Personnel Staffing And Scheduling/trends, Workload/statistics & Numerical Data, Young Adult
The effect of multidrug-resistant organisms on social participation and quality of life in children with life-limiting conditions
Tags: 2021, Child, Child Preschool, Cross Infection/prevention & control, Cross-sectional Studies, Drug Resistance Multiple, Female, Hartenstein-Pinter A, Hasan C, Hospital Units, Humans, hygiene, Infant, Infection Control/organization & administration, Inservice Training, International Journal of Palliative Nursing, Interviews As Topic, Male, May 2021 List, Nursing Assessment, Paediatrics, Palliative Care, Parents, Patient Isolation, Patient Safety, Quality Of Life, Schmidt P, Social Participation, Stening K, Stereotyping, Surveys And Questionnaires, Terminally Ill, Wager J, Zernikow B
The Family's Experience Of The Child And/or Teenager In Palliative Care: Fluctuating Between Hope And Hopelessness In A World Changed By Losses
The Marital Implications of Bereavement: Child Death and Intimate Partner Violence in West and Central Africa
Tags: 2020, 2021 Special Edition 1 - Low Resource Settings, Adolescent, Adult, Africa Central, Africa Western, Bereavement, Child, Child Mortality, Child Preschool, Demography, Female, Humans, Infant, Infant Newborn, Intimate partner violence, Intimate Partner Violence/statistics & numerical data, Male, Marriage/statistics & numerical data, Middle Aged, Parents/psychology, Risk Factors, Smith-Greenaway E, Weitzman A, West and Central Africa, Young Adult
The Needs of Children Receiving End of Life Care and the Impact of a Paediatric Palliative Care Team: A Retrospective Cohort Study
Tags: 2023, Adolescent, April List 2023, Cancelinha C, Child, Child Preschool, Chronic Disease, Cohort Studies, Complex Chronic Conditions, Correia D, End Of Life, European Journal of Pediatrics, Female, Gomes B, Health Resources, Humans, Infant, Length Of Stay, Loureiro M, Male, Nogueira A, paediatric palliative care, Palliative Care, Palliative Care/methods, Retrospective Studies, Terminal Care, Terminal Care/methods, Tertiary Care Centers