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40
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1017/s1478951504040477" target="_blank" rel="noreferrer">http://doi.org/10.1017/s1478951504040477</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
At the crossroads: making the transition to hospice
Publisher
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Palliative & Supportive Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Female; Humans; Male; Adult; Parent-Child Relations; Interpersonal Relations; Questionnaires; Aged; Middle Aged; Family Relations; Non-U.S. Gov't; Research Support; U.S. Gov't; Caregivers/psychology; decision making; Connecticut; Palliative Care/psychology; Narration; Hospice Care/psychology; Neoplasms/nursing; Non-P.H.S.
Creator
An entity primarily responsible for making the resource
Schulman-Green D; McCorkle R; Curry L; Cherlin E; Johnson-Hurzeler R; Bradley E
Description
An account of the resource
OBJECTIVE: Previous studies reveal that many terminally ill patients never receive hospice care. Among those who do receive hospice, many enroll very close to the time of death. Nationally, between 1992 and 1998, the median length of stay at hospice declined 27%, from 26 to 19 days. In our prior study of 206 patients diagnosed with terminal cancer and using hospice, we found that one-third enrolled with hospice within 1 week prior to death. Late hospice enrollment can have deleterious effects on patients and their family members. The aim of the present study was to characterize common experiences of patients and primary family caregivers as they transition to hospice, focusing on caregiver perceptions of factors that might contribute to delays in hospice enrollment. METHODS: We conducted in-depth interviews with a purposive sample of 12 caregivers selected from a population of primary family caregivers of patients with terminal cancer who enrolled with hospice in Connecticut between September 2000 and September 2001. Respondents represented different ages, genders, and kinship relationships with patients. Respondents were asked about the patient's care trajectory, how they first learned about hospice, and their experiences as they transitioned to hospice. NUD*IST software was used for qualitative data coding and analysis. RESULTS: Constant comparative analysis identified three themes common to the experience of transitioning to hospice: (1) caregivers' acceptance of the impending death, (2) challenges in negotiating the health care system across the continuum of care, and (3) changing patient-family dynamics. SIGNIFICANCE OF RESULTS: Identification of these themes from the caregivers' perspective generates hypotheses about potential delays in hospice and may ultimately be useful in the design of interventions that are consistent with caregivers' needs.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1017/s1478951504040477" target="_blank" rel="noreferrer">10.1017/s1478951504040477</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Adult
Aged
Backlog
Bradley E
Caregivers/psychology
Cherlin E
Connecticut
Curry L
Decision Making
Family Relations
Female
Hospice Care/psychology
Humans
Interpersonal Relations
Johnson-Hurzeler R
Journal Article
Male
McCorkle R
Middle Aged
Narration
Neoplasms/nursing
Non-P.H.S.
Non-U.S. Gov't
Palliative & Supportive Care
Palliative Care/psychology
Parent-child Relations
Questionnaires
Research Support
Schulman-Green D
U.S. Gov't
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1300/j027v21n02_05" target="_blank" rel="noreferrer">http://doi.org/10.1300/j027v21n02_05</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The effect of inpatient hospice units on hospice use post-admission
Publisher
An entity responsible for making the resource available
Home Health Care Services Quarterly
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Cross-Sectional Studies; Female; Humans; Male; Aged; Health Services Research; Hospitals; 80 and over; Non-U.S. Gov't; Research Support; Connecticut; Terminally Ill/statistics & numerical data; Patient Admission/statistics & numerical data; Aftercare/organization & administration/utilization; Community/organization & administration; Hospice Care/organization & administration/utilization; Hospital Units/organization & administration/utilization; Palliative Care/organization & administration/utilization
Creator
An entity primarily responsible for making the resource
Erickson SE; Fried TR; Cherlin E; Johnson-Hurzeler R; Horwitz SM; Bradley EH
Description
An account of the resource
The objective of this study was to determine whether having a hospice unit within the hospital increases the proportion of terminally ill patients who use hospice services (including home, nursing home, or inpatient hospice) post-admission. Using medical record data abstracted for 232 randomly selected patients with terminal cancer admitted to six community hospitals in Connecticut, we found that patients admitted to a hospital with a hospice unit were more likely to use hospice services (i.e., home hospice, nursing home hospice, or inpatient hospice) post-admission than patients admitted to a hospital without a hospice unit (unadjusted OR 5.7, 95% CI 3.1, 10.6). This effect persisted after adjusting for patient age, gender, marital status, documented discussions of prognosis, prior hospice use, and type of cancer.
2002
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1300/j027v21n02_05" target="_blank" rel="noreferrer">10.1300/j027v21n02_05</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2002
80 And Over
Aftercare/organization & administration/utilization
Aged
Backlog
Bradley EH
Cherlin E
Community/organization & administration
Connecticut
Cross-sectional Studies
Erickson SE
Female
Fried TR
Health Services Research
Home Health Care Services Quarterly
Horwitz SM
Hospice Care/organization & administration/utilization
Hospital Units/organization & administration/utilization
Hospitals
Humans
Johnson-Hurzeler R
Journal Article
Male
Non-U.S. Gov't
Palliative Care/organization & administration/utilization
Patient Admission/statistics & numerical data
Research Support
Terminally Ill/statistics & numerical data