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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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April 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April 2019 List
URL Address
<a href="http://doi.org/10.1177/0894318418807936" target="_blank" rel="noreferrer noopener">http://doi.o rg/10.1177/0894318418807936</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Nurses' Experiences in End-of-Life Care in the PICU: A Qualitative Systematic Review
Publisher
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Nursing science quarterly
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
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end-of-life care; experience; Picu; qualitative systematic review
Creator
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Mu PF; Tseng YM; Wang CC; Chen YJ;Huang SH; Hsu TF; Florczak KL
Description
An account of the resource
The experiences of end-of-life care by nurses in the pediatric intensive care unit are the subject of this systematic review. Six qualitative articles from three different countries were chosen for the review using methods from Joanna Briggs Institute. The themes discovered included the following: insufficient communication, emotional burden, moral distress from medical futility, strengthening resilience, and taking steps toward hospice. These themes are discussed in detail followed by recommendations for practice to assist nurses in their quest for a good death for their pediatric patients.
Identifier
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<a href="http://doi.org/10.1177/0894318418807936" target="_blank" rel="noreferrer noopener">10.1177/0894318418807936</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
April 2019 List
Chen YJ
End-of-life Care
Experience
Florczak KL
Hsu TF
Huang SH
Mu PF
Nursing science quarterly
Picu
qualitative systematic review
Tseng YM
Wang CC
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/ajmg.a.31173" target="_blank" rel="noreferrer">http://doi.org/10.1002/ajmg.a.31173</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Clinical characteristics and survival of trisomy 18 in a medical center in Taipei, 1988-2004.
Publisher
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American Journal Of Medical Genetics.Part A
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Female; Humans; infant; Male; Survival Rate; Pregnancy; Adult; Middle Aged; Prenatal Diagnosis; Survival Analysis; Longitudinal Studies; Time Factors; Hospitals; Birth Weight; Preschool; infant; Newborn; retrospective studies; Abnormalities; Brain Diseases/ultrasonography; Child Health Services/economics/organization & administration/statistics & numerical data; Chromosomes; Congenital/ultrasonography; gestational age; Heart Defects; Human; Karyotyping; Maternal Age; Multiple/genetics/mortality/pathology; Pair 18/genetics; Paternal Age; Taiwan; Trisomy/diagnosis/genetics; Ultrasonography/methods
Creator
An entity primarily responsible for making the resource
Lin HY; Lin SP; Chen YJ; Hung HY; Kao HA; Hsu CH; Chen MR; Chang JH; Ho CS; Huang FY; Shyur SD; Lin DS; Lee HC
Description
An account of the resource
Trisomy 18 is the second most common autosomal trisomy in newborns. The birth prevalence of this disorder is approximately 1 in 3,000 to 1 in 8,000, and the life span of the majority of patients is less than 1 year. As information regarding outcome in trisomy 18 is rather fragmentary in the literature, this study is aimed at investigating the survival and natural history of trisomy 18. We also evaluated the survival age and management of trisomy 18 in two different periods, before and after the implementation of National Health Insurance (NHI) program. Thirty-nine cases of trisomy 18 were collected in Mackay Memorial Hospital in a 17-year period, from 1988 to 2004. Delivery data, survival age, management before and after the implementation of NHI program, structural defects, image findings and cytogenetic results were analyzed by medical and nurse's records. The diagnosis of trisomy 18 was based on the prenatal amniocentesis or postnatal chromosome analysis. Three patients had trisomy 18 mosaicism. Since cardiovascular and central nervous systems are the most common organ systems involved in this disorder, 31 patients received brain ultrasonography and heart ultrasonography for evaluation of their multiple anomalies after admission. All patients except one died in their first year due to severe malformations of the cardiovascular or central nervous systems. The median survival age was 6 days. We found a longer survival with female patients than with male patients (P < 0.05). Implementation of NHI program in the more recent decade of this study period was associated with longer survival of trisomy 18 (P < 0.05). The three most common structural defects were clenched hands (95%), rocker bottom feet (90%), and low set or malformed ears (90%). Low birth weight was present in 90%. By cardiac ultrasonography, the top four heart defects were ventricular septal defect (94%), patent ductus arteriosus (77%) and atrial septal defect (68%). However, ten cases (32%) had complex congenital heart defects. By brain ultrasonography, the most common brain lesion was cerebellar hypoplasia (32%), followed by brain edema (29%), enlarged cisterna magna (26%) and choroid plexus cysts (19%). Although most patients with trisomy 18 die within the first few weeks after birth, it is important to recognize that a small but notable percentage of these patients will survive the first year. When prenatal or postnatal decisions need to be made, the possibility of long-term survival should be included in any discussion to enable families to make the most appropriate decision.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/ajmg.a.31173" target="_blank" rel="noreferrer">10.1002/ajmg.a.31173</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Abnormalities
Adult
American Journal Of Medical Genetics.Part A
Backlog
Birth Weight
Brain Diseases/ultrasonography
Chang JH
Chen MR
Chen YJ
Child
Child Health Services/economics/organization & administration/statistics & numerical data
Chromosomes
Congenital/ultrasonography
Female
Gestational Age
Heart Defects
Ho CS
Hospitals
Hsu CH
Huang FY
Human
Humans
Hung HY
Infant
Journal Article
Kao HA
Karyotyping
Lee HC
Lin DS
Lin HY
Lin SP
Longitudinal Studies
Male
Maternal Age
Middle Aged
Multiple/genetics/mortality/pathology
Newborn
Pair 18/genetics
Paternal Age
Pregnancy
Prenatal Diagnosis
Preschool
Retrospective Studies
Shyur SD
Survival Analysis
Survival Rate
Taiwan
Time Factors
Trisomy/diagnosis/genetics
Ultrasonography/methods