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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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2020 Developing World List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Developing World 2020 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2020.04.028" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2020.04.028</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Mapping Pediatric Palliative Care Development in the WHO-European Region: Children Living in Low-to-Middle-Income Countries Are Less Likely to Access It
Publisher
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Journal of Pain & Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
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development; pediatric palliative care; indicators
Creator
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Arias-Casais N; Garralda E; Pons J J; Marston J; Chambers L; Downing J; Ling J; Rhee J Y; de Lima L; Centeno C
Description
An account of the resource
Context: Approximately 170,000 children in need of palliative care die every year in Europe without access to it. This field remains an evolving specialty with unexplored development.Objectives: To conduct the first regional assessment of pediatric palliative care (PPC) development and provision using data from the European Association for Palliative Care atlas of palliative care 2019.Methods: Two surveys were conducted. The first one included a single question regarding PPC service provision and was addressed by European Association for Palliative Care atlas informants. The second one included 10 specific indicators derived from an open-ended interview and rating process; a specific network of informants was enabled and used as respondents. Data were analyzed and presented in the map of the figure.Results: Data on PPC service provision were gathered from 51 of 54 (94%) European countries. Additional data were collected in 34 of 54 (62%) countries. A total of 680 PPC services were identified including 133 hospices, 385 home care services, and 162 hospital services. Nineteen countries had specific standards and norms for the provision of PPC. Twenty-two countries had a national association, and 14 countries offered education for either pediatric doctors or nurses. In seven countries, specific neonatal palliative care referral services were identified.Conclusion: PPC provision is flourishing across the region; however, development is less accentuated in low-to-middle-income countries. Efforts need to be devoted to the conceptualization and definition of the models of care used to respond to the unmet need of PPC in Europe. The question whether specialized services are required or not should be further explored. Strategies to regulate and cover patients in need should be adapted to each national health system.
Identifier
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<a href="http://doi.org/10.1016/j.jpainsymman.2020.04.028" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2020.04.028</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Arias-Casais N
Centeno C
Chambers L
de Lima L
Developing World 2020 List
development
Downing J
Garralda E
indicators
Journal Of Pain & Symptom Management
Ling J
Marston J
Pediatric Palliative Care
Pons J J
Rhee J Y
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
November 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
November 2020 List
URL Address
<a href="http://doi.org/10.1111/jan.14527" target="_blank" rel="noreferrer noopener">http://doi.org/10.1111/jan.14527</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Managing and sharing research data in children's palliative care: Risks, benefits and imponderables
Publisher
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Journal of advanced nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
pediatric palliative care; research; research data
Creator
An entity primarily responsible for making the resource
Harris N; Noyes J; Fraser L; Lapwood S; Harrop E; Blackburn M; Price J; Chambers L; Bluebond-Langer M
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/jan.14527" target="_blank" rel="noreferrer noopener">10.1111/jan.14527</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Blackburn M
Bluebond-Langer M
Chambers L
Fraser L
Harris N
Harrop E
Journal Of Advanced Nursing
Lapwood S
November 2020 List
Noyes J
Pediatric Palliative Care
Price J
Research
research data
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
September 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2022 List
URL Address
<a href="http://doi.org/10.1177/02692163221093145" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/02692163221093145</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Challenges and Incentives for Integrating Person-Centred Outcome Measures Into Routine Paediatric Palliative Care: Health, Social Care and Commissioner Perspectives
Publisher
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Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
Child; Palliative therapy; Conference abstract; Semi-structured interview; Outcome assessment; Care behavior; Genetic transcription; Social care
Creator
An entity primarily responsible for making the resource
Scott H; Coombes L; Braybrook D; Roach A; Harardottir D; Bristowe K; Ellis-Smith C; Chambers L; Bluebond-Langner M; Farsides B; Murtagh F; Harding R
Description
An account of the resource
Background/aims: To successfully integrate a newly developed measure into clinical practice, the challenges and incentives for implementation must be understood, and these are specific to each measure. Previous research has focused on disease-specific measures, or the use of outcome measures in adult palliative care. Evidence is needed to ensure successful integration of new person-centred outcome measures (PCOMs) in the paediatric palliative care context.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/02692163221093145" target="_blank" rel="noreferrer noopener">10.1177/02692163221093145</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
Bluebond-Langner M
Braybrook D
Bristowe K
care behavior
Chambers L
Child
conference abstract
Coombes L
Ellis-Smith C
Farsides B
genetic transcription
Harardottir D
Harding R
Murtagh F
outcome assessment
Palliative Medicine
Palliative Therapy
Roach A
Scott H
Semi-Structured Interview
September 2022 List
Social Care