1
40
3
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/00007611-199802000-00009" target="_blank" rel="noreferrer">http://doi.org/10.1097/00007611-199802000-00009</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Survival rates among children with severe neurologic disabilities
Publisher
An entity responsible for making the resource available
Southern Medical Journal
Date
A point or period of time associated with an event in the lifecycle of the resource
1998
Subject
The topic of the resource
Child; Female; Humans; Male; Survival Rate; Adult; Enteral Nutrition; adolescent; Preschool; infant; Nervous System Diseases/mortality; disabled children; Skilled Nursing Facilities; Cerebral Palsy/mortality; Institutionalized; Mental Retardation
Creator
An entity primarily responsible for making the resource
Plioplys AV; Kasnicka I; Lewis S; Moller D
Description
An account of the resource
BACKGROUND: This study was done to determine survival rates in subpopulations of severely neurologically disabled children who reside in pediatric skilled nursing facilities and to compare these survival rates with those in previously published studies. METHODS: Data were collected at three pediatric skilled nursing facilities over the 1986 to 1996 decade. The total study population numbered 447. We studied in detail six groups of the most severely disabled children and correlated their survival rates with clinical parameters and the presence of other significant diseases. RESULTS: The survival rates in our six groups of severely disabled children were significantly better than those previously reported. In group 1, our 8-year survival rate was 66%, as compared with 5% in the previous study. In group 2, our 8-year survival rate was 89%, versus 22% in the previous study. We obtained better survival rates in all six groups studied, irrespective of the analysis including children less than 1 year old, between 1 year and 15 years old, or more than 15 years old. The most significant determinant for reduced survival was the presence of other significant diseases. Those with other significant diseases had a 10-year survival rate of 45%, whereas those who were relatively healthy had a survival rate of 90%. Patients who received gastrostomy tube feedings had a better 10-year survival rate than those fed by nasogastric tube (78% vs 41%). This difference was independent of the presence of other significant medical diseases. CONCLUSIONS: Our results show substantially better survival rates than those previously reported. These improved results are most likely related to much more intense medical management of severely disabled children in skilled nursing facilities than at home or in other residential settings. Our study also showed a significantly better survival rate for those fed by gastrostomy tube as compared with nasogastric tube.
1998
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/00007611-199802000-00009" target="_blank" rel="noreferrer">10.1097/00007611-199802000-00009</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1998
Adolescent
Adult
Backlog
Cerebral Palsy/mortality
Child
Disabled Children
Enteral Nutrition
Female
Humans
Infant
Institutionalized
Journal Article
Kasnicka I
Lewis S
Male
Mental Retardation
Moller D
Nervous System Diseases/mortality
Plioplys AV
Preschool
Skilled Nursing Facilities
Southern Medical Journal
Survival Rate
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=11087278" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=11087278</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Effect of severity of disability on survival in north east England cerebral palsy cohort
Publisher
An entity responsible for making the resource available
Archives Of Disease In Childhood
Date
A point or period of time associated with an event in the lifecycle of the resource
2000
Subject
The topic of the resource
Female; infant; Male; Survival Rate; Cohort Studies; Prognosis; Risk Factors; Birth Weight; Non-U.S. Gov't; Newborn; cause of death; Human; Life Expectancy; Sex Distribution; Life Style; Support; England/epidemiology; Disability Evaluation; Cerebral Palsy/mortality
Creator
An entity primarily responsible for making the resource
Hutton JL; Colver AF; Mackie PC
Description
An account of the resource
AIMS: To investigate the effect of motor and cognitive disabilities on the survival of people on the North of England Collaborative Cerebral Palsy Survey, and compare this with other published results. METHODS: The cerebral palsy cohort consists of 1960-1990 births in Northumberland, Newcastle, and North Tyneside health districts. Survival and cause of death were analysed in relation to data on birth, disabilities, and a unique measure of the impact of disability. RESULTS: Disability strongly influences survival. More than a third of those with a severe disability die before age 30. Fewer than a third of deaths are attributed to cerebral palsy on death certificates. Of those with severe cognitive disability, 63% live to age 35 (58% with severe ambulatory disability and 53% with severe manual disability), whereas at least 98% without severe disabilities live to age 35. The Lifestyle Assessment Score (LAS) allows a finer categorisation of impact of disability, and is strongly associated with survival: a ten point increase in LAS is associated with a doubling of the hazard rate. People who had LAS of at least 70, and had survived to age 5 have a 39% chance of dying before age 35. CONCLUSIONS: The majority of people with cerebral palsy attain adulthood. There appears to be more variation in survival rates associated with severe disability between regions of England, than between north east England, British Columbia, and California. Instantaneous risks of dying vary widely between England and California. This variation is not obviously attributable to differing rates of severe disability.
2000
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2000
Archives of Disease in Childhood
Backlog
Birth Weight
Cause Of Death
Cerebral Palsy/mortality
Cohort Studies
Colver AF
Disability Evaluation
England/epidemiology
Female
Human
Hutton JL
Infant
Journal Article
Life Expectancy
Life Style
Mackie PC
Male
Newborn
Non-U.S. Gov't
Prognosis
Risk Factors
Sex Distribution
Support
Survival Rate
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=9535300" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=9535300</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Life expectancy of children with cerebral palsy
Publisher
An entity responsible for making the resource available
Pediatric Neurology
Date
A point or period of time associated with an event in the lifecycle of the resource
1998
Subject
The topic of the resource
Child; Female; Male; Cohort Studies; Survival Analysis; Risk Factors; Confidence Intervals; Activities of Daily Living; Feeding Methods; Proportional Hazards Models; Preschool; infant; Eating; Human; Motor Skills; Likelihood Functions; Life Expectancy; Cerebral Palsy/mortality; California/epidemiology
Creator
An entity primarily responsible for making the resource
Strauss DJ; Shavelle RM; Anderson TW
Description
An account of the resource
Risk factors for mortality of young children with cerebral palsy were studied using a sample of 12,709 children aged 0.5-3.5 years with cerebral palsy who had received services from the State of California between 1980 and 1995. The most powerful prognostic factors for survival were simple functional items: mobility and feeding skills. Once these were known, factors such as severity of mental retardation and presence of quadriplegia contributed relatively little. Children with fair motor and eating skills had good survival prospects, with 90% or more reaching adulthood, but those without such skills had much poorer prospects. Among children who were unable to lift their heads, median survival time was 7 additional years for those who were tube fed (n = 557) and 14 years for those fed entirely by others (n = 997). Although a child's approximate survival chances can be assessed from such functional classifications, we indicate the manner in which additional information on the child's condition can be used to obtain more accurate survival data.
1998
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1998
Activities of Daily Living
Anderson TW
Backlog
California/epidemiology
Cerebral Palsy/mortality
Child
Cohort Studies
Confidence Intervals
Eating
Feeding Methods
Female
Human
Infant
Journal Article
Life Expectancy
Likelihood Functions
Male
Motor Skills
Pediatric Neurology
Preschool
Proportional Hazards Models
Risk Factors
Shavelle RM
Strauss DJ
Survival Analysis