1
40
3
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Dublin Core
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Title
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May 2021 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2021 List
URL Address
<a href="http://doi.org/10.1111/ped.14660" target="_blank" rel="noreferrer noopener">http://doi.org/10.1111/ped.14660</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Inborn Errors of Metabolism in Pediatric Palliative Care
Publisher
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Pediatrics International
Date
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2021
Subject
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childhood; life-limiting diseases; metabolic diseases; pediatric palliative care; symptom assessment
Creator
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Harputluoglu N; Kose M; Yilmaz U; Celik T
Description
An account of the resource
BACKGROUND: In parallel with the increase in the number of children with life-limiting or threatening diseases, the need and right of pediatric palliative care also increases. In this study, it was aimed to examine the metabolic diseases, evaluate the symptoms and review the needs in children who were admitted to the pediatric palliative care service. METHOD(S): Following the approval of the local ethics committee (18/7/2019-107), the computer records of patients hospitalized in the pediatric palliative care service between 01.12.2018-01.6.2019 were reviewed retrospectively. Dr Behcet Uz Children's Hospital is a tertiary hospital and pediatric palliative care has 1 year experience. RESULT(S): In the study period, there were 101 patients who were hospitalized in the pediatric palliative care service. Eighteen patients (19.7%) diagnosed with inborn errors of metabolism were included in the study. The average age was 3.2 +/- 2.1 (0-8) years. Although it could not be shown statistically, the duration of hospitalization of patients with congenital malformation was long. CONCLUSION(S): Pediatric palliative care provides the best care with the control of various symptoms in neurodegenerative congenital metabolic diseases that do not have treatment or treatment, but progressive symptoms cannot be prevented. Copyright This article is protected by copyright. All rights reserved.
Identifier
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<a href="http://doi.org/10.1111/ped.14660" target="_blank" rel="noreferrer noopener">10.1111/ped.14660</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Çelik T
childhood
Harputluoglu N
Kose M
Life-limiting Diseases
May 2021 List
Metabolic Diseases
Pediatric Palliative Care
Pediatrics International
Symptom Assessment
Yilmaz U
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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November 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
November 2022 List
URL Address
<a href="http://doi.org/10.1016/j.pedn.2022.08.015" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1016/j.pedn.2022.08.015</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The Experiences of Parents of Children in Pediatric Palliative Care: A Qualitative Study
Publisher
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Journal of Pediatric Nursing
Date
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2022
Subject
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Experience; Mothers; Pediatric palliative care; Qualitative study
Creator
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Karakul A; Kıratlı D; Akgül AE; Çelik T
Description
An account of the resource
PURPOSE: This study aims to better understand the experiences of mothers of children receiving pediatric palliative care. DESIGN AND METHODS: The qualitative phenomenological method was used to determine the mothers' experiences. The study sample included 15 mothers. Individual interviews, an introductory information form and a semi-structured interview form were used for data collection. The data were analyzed with Colaizzi's seven-step method. MAXQDA was used for coding and creating themes. RESULTS: Three main themes of the interviews emerged; family experiences, social life and care in the palliative care unit. The mothers said that family relationships were affected, that they experience fear of loss, that they experience depression, that all responsibility for treatment and care lies with the mothers, and that there is no social support. Mothers said that they are in the same place as mothers of children in similar situations and that they are happy and comfortable because they have single rooms. In addition, the mothers stated that they are very afraid of the COVID-19 virus infecting their children and therefore losing their children. CONCLUSIONS: The mothers experienced some problems such as fear of loss, depression, care burden, social support, exclusion, daily life, social relationships, feeling safe, and emotional effect. PRACTICE IMPLICATIONS: Pediatric nurses need to understand mothers' anxiety, grief, relationships with their children, and coping strategies to provide support.
Identifier
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<a href="http://doi.org/10.1016/j.pedn.2022.08.015" target="_blank" rel="noreferrer noopener">10.1016/j.pedn.2022.08.015</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
Akgül AE
Çelik T
Experience
Journal of Pediatric Nursing
Karakul A
Kıratlı D
Mothers
November 2022 List
Pediatric Palliative Care
Qualitative Study
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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February 2024 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February List 2024
URL Address
<a href="http://doi.org/10.4274/jpea.2023.198" target="_blank" rel="noreferrer noopener"> http://doi.org/10.4274/jpea.2023.198</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The Relationship Between Dyspnea Severity with Radiological and Laboratory Findings in Pneumonia in Children in Pediatric Palliative Care
Publisher
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Journal of Pediatric Academy
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
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child; article; female; human; major clinical study; male; cerebral palsy; epilepsy; palliative therapy; hospitalization; respiratory distress; medical device; assisted ventilation; genetic disorder; social worker; scoring system; cross-sectional study; caregiver; pediatrician; physiotherapist; nurse; X ray; bronchopneumonia; nutritional support; dyspnea; laboratory diagnosis; pneumonia/di [Diagnosis]; radiodiagnosis; atrophy; bacterial pneumonia; bone development; breathing muscle; interstitial pneumonia; modified Borg dyspnea scale; thorax radiography; virus pneumonia
Creator
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Harputluoglu N; Coskun M; Cubukcu D; Celik T
Description
An account of the resource
In care patients; pneumonia is common due to being bedridden, atrophy of respiratory muscles and use of medical devices. Dyspnea is the second most common symptom after pain in pediatric palliative care. In this study, it was aimed to examine the relationship between the severity of dyspnea and pneumonia. The study is a study that included patients admitted to pediatric palliative care, diagnosed with pneumonia, and applied Modified Borg Scale (MBS) between December 15, 2019 and December 15, 2020. The MBS has a scoring system ranging from 0 to 10 and assesses the severity of dyspnea. A total of 72 (34.4%) patients diagnosed with pneumonia and underwent MBS were included in the study. 51.4% (n=37) of the study group were male, and the median age was 6.00 years (ranges of quarters=9). It was observed that the severity of dyspnea did not affect determining the pneumonia type and possible pathogen (p=0.613, p=0.948, respectively) In line with the results of the study, it can be concluded that there is no relationship between the severity of dyspnea and pneumonia in patients in need of care.
Identifier
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<a href="http://doi.org/10.4274/jpea.2023.198" target="_blank" rel="noreferrer noopener">10.4274/jpea.2023.198</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Article
assisted ventilation
Atrophy
bacterial pneumonia
bone development
breathing muscle
bronchopneumonia
Caregiver
Çelik T
Cerebral Palsy
Child
Coskun M
Cross-sectional Study
Cubukcu D
Dyspnea
Epilepsy
February List 2024
Female
Genetic Disorder
Harputluoglu N
Hospitalization
Human
interstitial pneumonia
Journal of Pediatric Academy
laboratory diagnosis
Major Clinical Study
Male
medical device
modified Borg dyspnea scale
Nurse
Nutritional Support
Palliative Therapy
Pediatrician
physiotherapist
pneumonia/di [Diagnosis]
radiodiagnosis
respiratory distress
scoring system
Social Worker
thorax radiography
virus pneumonia
X ray