Symptoms suffered by life-limited children that cause anxiety to UK children's hospice staff
Child; Humans; Pain Measurement; Great Britain; Attitude to Health; Attitude of Health Personnel; Questionnaires; Pediatric Nursing; Child Psychology; Fear; Nursing Methodology Research; Nonverbal Communication; Crying; Child Behavior; Stress; Adaptation; Psychological; Charting the Territory; Causality; Vomiting/etiology/prevention & control; Hospice Care/psychology; Anxiety/etiology; Medical Staff/psychology; Nursing Staff/psychology; Occupational Diseases/etiology; Psychological/diagnosis/etiology/prevention & control; Seizures/etiology/prevention & control; Spasm/etiology/prevention & control
BACKGROUND: Very little is published about the symptom profile of children with life-limiting illnesses other than cancer. METHOD: A postal questionnaire was sent to children's hospice staff who were asked to identify symptoms experienced by life-limited children which caused them anxiety. RESULTS: Staff in 23 hospices were sent questionnaires. Twenty-eight questionnaires were returned from 10 doctors and 18 nurses. Just under half of the hospices contacted were represented. The staff were very experienced but had significant anxieties about treating some of their patients. AIMS: This study aimed to identify the symptoms which cause anxiety to staff working in children's hospices. More than 70% of all staff groups felt that identifying the symptom correctly caused more anxiety than treating identified symptoms. For doctors the top five symptom problems were, seizure control, spasms, pain assessment, unidentified distress and vomiting. For nurses the main concerns were the non-verbal child in distress, psychiatric or psychological problems, assessing pain, seizures, pain management, vomiting. CONCLUSIONS: Doctors and nurses perceive seizures, pain management, and vomiting as the most troublesome symptoms for children with life-limiting conditions. Further research is needed into symptom management in this area.
2006
McCluggage HL
International Journal Of Palliative Nursing
2006
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.12968/ijpn.2006.12.6.21450" target="_blank" rel="noreferrer">10.12968/ijpn.2006.12.6.21450</a>
Constipation in paediatric oncology
Child; Humans; Great Britain; Questionnaires; Health Services Needs and Demand; Nurse's Role; Evidence-Based Medicine; Nursing Evaluation Research; Internet; Dietary Fiber; PedPal Lit; Practice Guidelines; Cathartics/therapeutic use; Palliative Care/methods; Causality; Neoplasms/complications; Information Services; Child Nutrition/education; Constipation/diagnosis/etiology/prevention & control; Nursing Assessment/methods/standards; Oncologic Nursing/methods/standards; Pediatric Nursing/methods/standards
Constipation is a common problem encountered by many children during treatment for childhood cancer. It can be distressing and impact on the quality of life for the child. However, the advice and information they and their families receive can vary enormously. The clinical practice group (a subgroup of the paediatric oncology nurses forum (PONF)) decided to examine the management of constipation throughout the paediatric oncology units in the UK. This paper presents the findings and the subsequent action taken and highlights the need for further work.
2006
Selwood K
European Journal Of Oncology Nursing
2006
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
Cancer incidence in parents who lost a child: a nationwide study in Denmark
Child; Female; Humans; Male; Longitudinal Studies; Risk Factors; Incidence; Stress; bereavement; Denmark/epidemiology; Parents/psychology; Causality; Neoplasms/epidemiology/mortality/psychology; Psychological/complications
BACKGROUND: It has been debated whether psychological stress causes cancer, but the scientific evidence remains contradictory. The objective of this study was to investigate whether the death of a child is related to cancer risk in bereaved parents. METHODS: The authors undertook a follow-up study based on national registers. All 21,062 parents who lost a child from 1980 to 1996 were recruited for the exposed cohort together with 293,745 randomly selected, unexposed parents. Cox proportional hazards regression models were used to evaluate the relative risk of cancer incidence up to 18 years after the bereavement. The main outcomes of interest were all incident cancers, breast carcinoma, smoking-related malignancies (International Classification of Diseases [ICD] 7 codes 140, 141, 143-149, 150, 157, 160-162, 180, and 181), alcohol-related malignancies (ICD7 codes 141, 143-146, 148-150, 155, and 161), virus/immune-related malignancies (ICD7 codes 155, 171, 191, 200-202, and 204), lymphatic/hematopoietic malignancies (ICD7 codes 200-205), and hormone related malignancies (ICD7 codes 170, 172, 175, and 177). RESULTS: The authors observed a slightly increased overall cancer risk in bereaved mothers (relative risk [RR], 1.18; 95% confidence interval [95%CI], 1.01-1.37; P = 0.028) at 7-18 years of follow-up. There was an increased risk for smoking-related malignancies (RR, 1.65; 95%CI, 1.05-2.59; P = 0.010) among bereaved mothers during the 7-18 years of follow-up. The authors observed no significantly increased relative risk of breast carcinoma, alcohol-related malignancies, virus/immune-related malignancies, or hormone-related malignancies. CONCLUSIONS: The current data suggest that the death of a child was associated with a slightly increased overall cancer risk in mothers and that the increase may be related to stress-induced adverse life styles.
2002
Li J; Johansen C; Hansen D; Olsen J
Cancer
2002
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1002/cncr.10943" target="_blank" rel="noreferrer">10.1002/cncr.10943</a>
Child psychiatric epidemiology: current status and future prospects
Child; Cross-Sectional Studies; Humans; Incidence; Forecasting; adolescent; Causality; Canada/epidemiology; Child Behavior Disorders/epidemiology/prevention & control; Mental Disorders/epidemiology/prevention & control; Patient Care Team/trends; Psychiatric Status Rating Scales/statistics & numerical data
OBJECTIVE: The purpose of this paper is to present selected findings from child psychiatric epidemiology in areas of prevalence and correlates, and discuss issues in interpreting these data and their relevance. METHOD: Selected references were used. RESULTS: Prevalence rates of 1 or more child psychiatric disorders in nonclinical community samples of children and adolescents vary between 17.6% and 22%. Issues in interpreting these data include: the boundary between normal and abnormal, boundary between disorders, disagreement among informants, and problems with instrumentation. Knowledge about the correlates of child psychiatric disorders is quite extensive, but information on causal factors is relatively sparse. CONCLUSIONS: Findings in child psychiatric epidemiology are relevant to clinicians, and future emphasis in the field will be on prospective studies with multiple waves of data from different domains including the child, the family, the school, and the wider community.
1995
Offord DR
Canadian Journal Of Psychiatry
1995
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1177/070674379504000602" target="_blank" rel="noreferrer">10.1177/070674379504000602</a>