Browse Items · Pediatric Palliative Care Library

Ameliorating Caregiver Burden in the Pediatric Palliative Population Utilizing a Psychophysiological Intervention

Background: Providing long-term care for a family member can be a source of severe stress for the untrained caregiver, and is known to cause depression, poor overall health, and lower quality of life for the caregiver. This burden may lead to poorer…

An International Study of Caregiver-Reported Burden and Quality of Life in Metachromatic Leukodystrophy

BACKGROUND: Metachromatic leukodystrophy (MLD) is an autosomal recessive lysosomal disorder caused by mutations in the arylsulfatase A gene. Until now, there has been little information on the burden of MLD on patients and their caregivers. This…

Assessing the impact of caring for a child with Dravet syndrome: Results of a caregiver survey

OBJECTIVE: The objective of this study was to describe and quantify the impact of caring for a child with Dravet syndrome (DS) on caregivers. METHODS: We surveyed DS caregivers at a single institution with a large population of patient with DS.…

Childhood cancer physical symptom burden and parent distress: The role of parent rumination

Objective: Symptom burden of children with cancer appears to contribute to parent distress, but the mechanisms of this relationship are relatively unexplored. The current cross-sectional study examined rumination (i.e., repeated focus on negative…

Paediatric palliative care improves patient outcomes and reduces healthcare costs: evaluation of a home-based program

BACKGROUND: Around the world, different models of paediatric palliative care have responded to the unique needs of children with life shortening conditions. However, research confirming their utility and impact is still lacking. This study compared…

Tags: 2018, BMC Palliative Care, Caregiver Burden, Chong PH, Costs, De Castro Molina JA, Effectiveness, Evaluation, Health-related quality of life, January 2018 List, Paediatrics, Palliative Care, Tan WS, Teo K

Pediatric oncology nursing research in low- and middle-income countries

Cancer and other non-communicable diseases are a growing public health issue now that infectious disease control (e.g., HIV/AIDS, malaria, and tuberculosis) has made great strides across low- and middle-income countries (L&MIC). The large majority…

Tags: 2020, Afungchwi G M, Alqudimat M R, alternative medicine, Burkitt lymphoma, cancer incidence, Cancer Survival, Caregiver, Caregiver Burden, caregiver burnout, Challinor J M, Cytotoxicity, Day S W, Developing World 2020 List, economic status, Fatigue, geographic distribution, gross national income, Health Care Personnel, high income country, Human, immune status, Impact of Events Scale, Infant Mortality, Kaposi sarcoma, lifestyle, low income country, malnutrition, Methodology, middle income country, nurse training, Nursing Care, Nursing Practice, nursing science, Nutrition, Pain, Palliative Therapy, Pediatric Oncology, pediatric oncology nursing, PostTraumatic Stress Disorder, Priority Journal, Quality Of Life, risk factor, Sepsis, Southeast Asian, Southern Europe, Stress, traditional medicine, treatment response

Psychosocial factors related with caregiver burden among families of children with chronic conditions

Background: The impact of looking after children who live with complex chronic conditions is a growing public health issue. However, it is unclear whether sociodemographic and psychosocial variables can be used to predict the burden on the caregiver…

Tags: 2019, affiliations., BioPsychoSocial Medicine, Bioseguridad] of the Hospital Infantil de Mexico Federico Gomez National, Caregiver Burden, Dominguez-Guedea M T, Ethics and Biosafety Commission [Comisiones de Investigacion Etica y, Family Caregivers, family functioning, family support, have given their approval for the article to be published.Springer Nature remains, informed consent form.The authors declare that they have no competing interests., Institute of Health. All participants signed an informed consent form.Consent to, May 2019 List, neutral with regard to jurisdictional claims in published maps and institutional, Pediatric chronic diseases, Psychosocial Factors, publish this study has been provided and all participants have signed an, Social support networks, Sociodemographic variables, The authors declare that we have no conflicts of interest. All of the authors, Toledano-Toledano F, Well-being

Browse Items (7 total)