1
40
7
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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2023 Special Edition 3 - Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
2023 SE3 - Oncology
URL Address
<a href="http://doi.org/10.5209/psic.78677" target="_blank" rel="noreferrer noopener"> http://doi.org/10.5209/psic.78677</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The care for oncologic patients undergoing pediatric palliative care and the griefs of a health team
Publisher
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Psicooncologia
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
Palliative Care; article; female; human; male; chronic disease; palliative therapy; psychology; anxiety; clinical article; follow up; cross-sectional study; health service; cancer diagnosis; questionnaire; coronavirus disease 2019; pandemic; semi structured interview
Creator
An entity primarily responsible for making the resource
de Sena JGM; Melo CF; de Vasconcelos AV; Teixeira LC; Ruiz EM; Alves RSF
Description
An account of the resource
Introduction: The health care offered to children and adolescents with cancer has been expanded, giving space to orthothanasia and palliative care, with a comprehensive look at the subject facing the threat to the continuity of life, as well as challenging professionals to access issues related to grief. Objective(s): In order to explore this reality, this study intended to analyze how professionals experience grieving processes in the exercise of palliative care in pediatric oncology. Method(s): A qualitative research was conducted with the participation of 23 health professionals working in palliative oncology and pediatric care, who responded to a semi-structured interview script, whose analyses were performed with the support of the IRaMuTeQ (Interface de R pour les Analyses Multidimensionnelles de Textes et de Questionnaires) software. Result(s): The results were organized in four classes: in class 1, the specificities of the treatment of children with cancer and other aspects related to chronic illness are portrayed; class 2 shows that health trainings do not prepare professionals to deal with death and with patients with no possibility of cure, and these professionals have (pre-) concepts about palliative care; class 3 highlights the principles of palliative care and other factors of the work in this therapy; and class 4 deals with the bonds formed by professionals and their grieving experiences. Conclusion(s): Cure must not be a requirement for the provision of care in relation to children with cancer that can benefit from the adoption of palliative care therapy and the validation of the sensitivity of professionals.Copyright © 2023, Universidad Compultense Madrid. All rights reserved.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.5209/psic.78677" target="_blank" rel="noreferrer noopener">10.5209/psic.78677</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
2023 SE3 - Oncology
Alves RSF
anxiety
Article
Cancer Diagnosis
Chronic Disease
Clinical Article
coronavirus disease 2019
Cross-sectional Study
de Sena JGM
de Vasconcelos AV
Female
Follow Up
Health Service
Human
Male
Melo CF
Palliative Care
Palliative Therapy
Pandemic
Psicooncologia
Psychology
Questionnaire
Ruiz EM
Semi Structured Interview
Teixeira LC
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2019 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2019 List
URL Address
<a href="http://doi.org/10.1002/cncr.32035" target="_blank" rel="noreferrer noopener">http://doi.org/10.1002/cncr.32035</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
High-intensity end-of-life care among children, adolescents, and young adults with cancer who die in the hospital: A population-based study from the French national hospital database
Publisher
An entity responsible for making the resource available
Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
adolescent; adolescents; adult; article; cancer; cancer chemotherapy; cancer diagnosis; cancer patient; child; children; cohort analysis; controlled study; emergency care; emergency ward; end of life; female; France; hematologic malignancy; hospitalization; human; intensive care unit; major clinical study; male; multicenter study; outcome assessment; palliative care; palliative therapy; retrospective study; terminal care; time of death; young adult; young adults
Creator
An entity primarily responsible for making the resource
Revon-Riviere G; Pauly V; Baumstarck K; Bernard C; Andre N; Gentet J C; Seyler C; Fond G; Orleans V; Michel G; Auquier P; Boyer L
Description
An account of the resource
Background: Efforts to improve the quality of end-of-life (EOL) care depend on better knowledge of the care that children, adolescents, and young adults with cancer receive, including high-intensity EOL (HI-EOL) care. The objective was to assess the rates of HI-EOL care in this population and to determine patient- and hospital-related predictors of HI-EOL from the French national hospital database. Method(s): This was a population-based, retrospective study of a cohort of patients aged 0 to 25 years at the time of death who died at hospital as a result of cancer in France between 2014 and 2016. The primary outcome was HI-EOL care, defined as the occurrence of >=1 chemotherapy session <14 days from death, receiving care in an intensive care unit >=1 time, >1 emergency room admission, and >1 hospitalization in an acute care unit in the last 30 days of life. Result(s): The study included 1899 individuals from 345 hospitals; 61.4% experienced HI-EOL care. HI-EOL was increased with social disadvantage (adjusted odds ratio [AOR], 1.30; 95% confidence interval [CI], 1.03-1.65; P =.028), hematological malignancies (AOR, 2.09; 95% CI, 1.57-2.77; P <.001), complex chronic conditions (AOR, 1.60; 95% CI, 1.23-2.09; P =.001) and care delivered in a specialty center (AOR, 1.70; 95% CI, 1.22-2.36; P =.001). HI-EOL was reduced in cases of palliative care (AOR, 0.31; 95% CI, 0.24-0.41; P <.001). Conclusion(s): A majority of children, adolescents, and young adults experience HI-EOL care. Several features (eg, social disadvantage, cancer diagnosis, complex chronic conditions, and specialty center care) were associated with HI-EOL care. These findings should now be discussed with patients, families, and professionals to define the optimal EOL. Copyright © 2019 American Cancer Society
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/cncr.32035" target="_blank" rel="noreferrer noopener">10.1002/cncr.32035</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Adolescent
Adolescents
Adult
Andre N
Article
Auquier P
Baumstarck K
Bernard C
Boyer L
Cancer
Cancer Chemotherapy
Cancer Diagnosis
Cancer Patient
Child
Children
Cohort Analysis
Controlled Study
Emergency Care
Emergency Ward
End Of Life
Female
Fond G
France
Gentet J C
Hematologic Malignancy
Hospitalization
Human
Intensive Care Unit
Major Clinical Study
Male
Michel G
Multicenter Study
Oncology 2019 List
Orleans V
outcome assessment
Palliative Care
Palliative Therapy
Pauly V
Retrospective Study
Revon-Riviere G
Seyler C
Terminal Care
time of death
Young Adult
Young Adults
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
August 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2019 List
URL Address
<a href="http://doi.org/10.1136/archdischild-2019-rcpch.453" target="_blank" rel="noreferrer noopener">http://doi.org/10.1136/archdischild-2019-rcpch.453</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Where children die: A retrospective analysis of child death overview panel (CDOP) data
Publisher
An entity responsible for making the resource available
Archives of Disease in Childhood
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
child; child death; female; human; major clinical study; male; palliative therapy; retrospective study; controlled study; hospice; terminal care; conference abstract; ethnic group; ethnicity; newborn; anonymised data; Asian; British citizen; cancer diagnosis; cause of death; chromosome aberration; congenital malformation; data analysis software; gender; mortality rate; strategic planning
Creator
An entity primarily responsible for making the resource
Hartley D; Renton K; Clarkson L; McKeating C; Lyles L; Mayer A
Description
An account of the resource
Aims There is a statutory requirement to review all child deaths in England. The aim of this study is to collate and evaluate child death data from all Child Death Overview Panels (CDOPs) within a single UK region to inform strategic planning. Methods A retrospective analysis of 3 full years of anonymised data (2013/14 - 2015/16) representing all child deaths (expected and unexpected) collated from all 14 CDOPs in the region. Descriptive analysis was performed using SPSS assessing age (0-17 inclusive), gender, ethnicity, partial postcode, place of death and category of death as assigned following CDOP review. Ethical approval was not required. Missing data was excluded from analysis on a pairwise basis. Results Over the study period there were 1221 deaths, with an average mortality rate of 407 deaths per annum (total child population=1.1 million, 3.5 deaths/10000 children). The major causes of death were perinatal/neonatal events, and chromosomal, genetic and congenital anomalies; Combined these account for 60% (n=712/1183) of the dataset. 'Expected' deaths accounted for 64% (n=730/1149) of all child deaths. Place of death for expected deaths=Hospital deaths: 77% (n=564) Home: 9% (n=67), Hospice: 13% (n=91). When ethnicity data analysed for place of death (excluding neonatal and unexpected deaths), a greater proportion of white British children (n=201) died at home (16%, n=33) or within a hospice (23%, n=47) when compared to Asian children (Home: 12%, n=14; Hospice: 9%, n=10); Chi-squared 15.07, p=0.002. Conclusions Place of Death (PoD), a key quality indicator for end-of-life care, remains within hospital for the majority of children. Both ethnicity and disease type affect PoD, with ethnic minority groups less likely to die at home or hospice. Children with a cancer diagnosis were more likely to die at home, possibly attributable to known availability of a 24 hour/ 7 day outreach care for this group. Local paediatric palliative care services can use the above information to ensure future service developments provide equitable care provision and choices for families. Data limitations include acknowledged individual CDOP panel variations in data collation, including categorisation of cause of death and absence of recording of preferred PoD.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/archdischild-2019-rcpch.453" target="_blank" rel="noreferrer noopener">10.1136/archdischild-2019-rcpch.453</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
anonymised data
Archives of Disease in Childhood
Asian
August 2019 List
British citizen
Cancer Diagnosis
Cause Of Death
Child
Child Death
Chromosome Aberration
Clarkson L
conference abstract
Congenital Malformation
Controlled Study
Data Analysis Software
Ethnic Group
Ethnicity
Female
Gender
Hartley D
Hospice
Human
Lyles L
Major Clinical Study
Male
Mayer A
McKeating C
Mortality Rate
Newborn
Palliative Therapy
Renton K
Retrospective Study
strategic planning
Terminal Care
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2018 Oncology List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2018 List
URL Address
<a href="http://doi.org/https://www.morressier.com/article/17--quality-end-life-care-adolescent-young-adults-cancer-japan/5afadd8bf314ac000849b306" target="_blank" rel="noreferrer noopener">http://doi.o
rg/https://www.morressier.com/article/17--quality-end-life-care-adolescent-young-adults-cancer-japan/5afadd8bf314ac000849b306</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Quality of end of life care in adolescent and young adults with cancer in Japan
Publisher
An entity responsible for making the resource available
Supportive Care in Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
soft tissue; adolescent; major clinical study; retrospective study; cancer patient; cancer chemotherapy; cancer diagnosis; health care personnel; medical record; time of death; conference abstract; human; female; male; adult; terminal care; young adult; palliative therapy; Japan; brain; solid malignant neoplasm; bone; emergency care
Creator
An entity primarily responsible for making the resource
Tsumura A; Noguchi-Abe K; Ishida Y
Description
An account of the resource
Introduction About 4% of all cancers occur in adolescent and young adults (AYA) population in Japan. Quality and intensity of end-of-life (EOL) care in this population vary among different nationalities or cultures. Objectives We aimed to evaluate quality of EOL care in Japanese AYA patients. Methods We retrospectively reviewed electric medical record of AYA patients died from Jan 2013 to Dec 2017 in our hospital. Patients were eligible if they were aged 15-39 years at the time of death. Results A total of 114AYA patients were reviewed. These patients were consisted of 50 men (44%) and 64 women (56%). Median age (interquartile range) was 32 (28-34) years. Cancer types included bone/soft tissue (n=23, 20%), brain (n=10, 9%), hematological (n=5, 4%), and other solid tumor (n=76, 67%). Most patients were informed of their cancer diagnosis and disease condition when they started treatment. However, preference of EOL care was discussed in 37 (33%) of patients before the last 30 days of life. 23 patients (20%) received chemotherapy during the last 14 days of life. 6 (5%), 19 (17%), and 82 (72%) patients died at home, palliative care unit, and acute care unit, respectively. Median days spent at home in the last 30 days of life was 5 (0-17) days. Conclusions There was a little population who could discuss EOL care in advance based on AYA patients' wishes. Better understanding of EOL care is needed in both health care providers and care givers to improve quality of EOL care in AYA population.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/" target="_blank" rel="noreferrer noopener"></a>
2018
Adolescent
Adult
Bone
Brain
Cancer Chemotherapy
Cancer Diagnosis
Cancer Patient
conference abstract
Emergency Care
Female
Health Care Personnel
Human
Ishida Y
Japan
Major Clinical Study
Male
Medical Record
Noguchi-Abe K
Oncology 2018 List
Palliative Therapy
Retrospective Study
soft tissue
solid malignant neoplasm
Supportive Care In Cancer
Terminal Care
time of death
Tsumura A
Young Adult
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
2018 Developing World List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Developing World 2018 List
URL Address
<a href="http://doi.org/10.1002/pbc.27455" target="_blank" rel="noreferrer noopener">http://doi.o
rg/10.1002/pbc.27455</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
End of life care experience at the peadiatic oncology unit at the uganda cancer institute: What role can oncology nurses play?
Publisher
An entity responsible for making the resource available
Pediatric Blood and Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
quality of life; dying; adolescent; pediatrics; advanced cancer; cancer patient; cancer survival; cancer chemotherapy; cancer diagnosis; mortality rate; coordination; conference abstract; human; child; female; male; adult; diagnosis; terminal care; clinical article; palliative therapy; pediatric patient; multidisciplinary team; oncology nurse; clinician
Creator
An entity primarily responsible for making the resource
Mulyowa I
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1002/pbc.27455" target="_blank" rel="noreferrer noopener">10.1002/pbc.27455</a>
2018
Adolescent
Adult
Advanced Cancer
Cancer Chemotherapy
Cancer Diagnosis
Cancer Patient
Cancer Survival
Child
Clinical Article
Clinician
conference abstract
Coordination
Developing World 2018 List
Diagnosis
Dying
Female
Human
Male
Mortality Rate
Multidisciplinary team
Mulyowa I
oncology nurse
Palliative Therapy
Pediatric Blood and Cancer
pediatric patient
Pediatrics
Quality Of Life
Terminal Care
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
n/a
URL Address
<a href="http://doi.org/10.2174/1573396312666161230145417" target="_blank" rel="noreferrer">http://doi.org/10.2174/1573396312666161230145417</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Improving cancer care for children in the developing world: Challenges and strategies
Publisher
An entity responsible for making the resource available
Current Pediatric Reviews
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Child Care;childhood Cancer; Accreditation; Antineoplastic Agent; Awareness; Cancer Diagnosis; Cancer Recurrence; Cancer Registry; Cancer Research; Cancer Survival; Cancer Therapy; Clinical Effectiveness; Clinical Trial (topic); Cost Effectiveness Analysis; Country Economic Status; Cultural Factor; Delayed Diagnosis; Diagnostic Error; Family Therapy; Health Care Availability; Health Care Cost; Health Care Personnel; Human; Job Change; Medical Education; Medical Technology; Palliative Therapy; Patient Abandonment; Patient Referral; Poverty; Priority Journal; Program Sustainability; Review; Sepsis; Stratification; Toxicity
Creator
An entity primarily responsible for making the resource
Al Lamki Z
Description
An account of the resource
Cancer is a global health problem particularly in developing countries where the burden of cancer is ever increasing and claiming the lives of about 100,000 children under the age of 15 years every year. Majority of these occur in the Low and Middle Income Countries (LMICs) where 90% of world children live. Contributing factors to this trend is the reduction of communicable diseases and emergence of new infections, improvement of nutrition and socio-economic conditions, industrialization and urbanization. However, due to its complexity, childhood cancer is given the least priority by the governments' funding. The weak health systems, poor and late access to diagnosis and care, fewer numbers of trained health care professionals and lack of cancer drugs are amongst the many challenges faced. A major challenge for the future is extending the work to reach the many children who die without access to cancer treatment and palliation. Given the inequalities in the survival rates of children with cancer there is therefore an urgent need to close the gap between developed and developing countries. Strategies at individual, institutional, country, regional and global levels must be implemented to improve cancer survival and its effects on human suffering. These strategies are able to strengthen the health systems, improve care and research, increase awareness and coordinate training of professionals thus meeting the challenges. Financial support should be an integral part of the strategy as the cost of drugs is often a substantial barrier to treatment of cancer in poor countries. However, in resource-limited settings without specialized services, much can still be done to support and offer curative and palliative treatment. As have been shown for several cancers, life can be extended with low-tech treatment protocols, which are effective at the same time, decrease sepsis and toxicity. The concept of twinning with privileged nations is paramount to the success of any national cancer program. International partnership offers the opportunity to provide expertise, advice, support and transfer technology from established pediatric oncology unit. Their mission is to build capacity for cancer treatment and research with a vision of developing network of dedicated advocates. The LMIC teams must locally drive projects and volunteers and funding organizations can help to make progress possible. This will require a tremendous effort on the part of both high and low-middle-income countries, if we are all to work together to achieve this goal.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.2174/1573396312666161230145417" target="_blank" rel="noreferrer">10.2174/1573396312666161230145417</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Accreditation
Al Lamki Z
Antineoplastic Agent
Awareness
Cancer Diagnosis
Cancer Recurrence
Cancer Registry
Cancer Research
Cancer Survival
Cancer Therapy
Child Care
Childhood Cancer
Clinical Effectiveness
Clinical Trial (topic)
Cost Effectiveness Analysis
Country Economic Status
Cultural Factor
Current Pediatric Reviews
Delayed Diagnosis
Diagnostic Error
Family Therapy
Health Care Availability
Health Care Cost
Health Care Personnel
Human
Job Change
Medical Education
Medical Technology
Palliative Therapy
Patient Abandonment
Patient Referral
Poverty
Priority Journal
Program Sustainability
Review
Sepsis
Stratification
Toxicity
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Oncology
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Oncology 2017 List
URL Address
<a href="http://doi.org/10.1200/JCO.2017.73.1356" target="_blank" rel="noreferrer">http://doi.org/10.1200/JCO.2017.73.1356</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Pediatric palliative oncology: Bridging silos of care through an embedded model
Publisher
An entity responsible for making the resource available
Journal Of Clinical Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Cancer Palliative Therapy; Childhood Cancer; Cancer Diagnosis; Child; Child Health Care; Health Care Access; Health Care Delivery; Health Care Quality; Home Care; Human; Note; Patient Care; Priority Journal
Creator
An entity primarily responsible for making the resource
Kaye EC; Snaman JM; Baker JN
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1200/JCO.2017.73.1356" target="_blank" rel="noreferrer">10.1200/JCO.2017.73.1356</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Baker JN
Cancer Diagnosis
Cancer Palliative Therapy
Child
Child Health Care
Childhood Cancer
Health Care Access
Health Care Delivery
Health Care Quality
Home Care
Human
Journal Of Clinical Oncology
Kaye EC
Note
Oncology 2017 List
Patient Care
Priority Journal
Snaman JM