1
40
2
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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December 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
December List 2022
URL Address
<a href="http://doi.org/10.1111/jpc.16202" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1111/jpc.16202</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Hope in the Uncertainties and Certainty for Parents of Children with Rare Neurological Disorders: Part 2 (Of 3): Certainty
Publisher
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Journal of Paediatrics and Child Health
Date
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2022
Subject
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Child; Disease Attributes; Family; Hope; Impact of Events Scale; Nervous System Diseases Therapy; Parents Psychosocial Factors; Scales; Uncertainty
Creator
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Nevin SM; Beavis E; Macintosh R; Palmer EE; Sachdev R; Le Marne FA; Bye AME; Nunn K
Description
An account of the resource
This is the second of a three-part series that explores different aspects of uncertainty, certainty and hope in the context of providing clinical care for children with rare and life-limiting neurological disorders. When caring for families impacted by an overwhelming complex disorder in a child, complicated by threatening uncertainties and potentially more threatening certainties, clinicians utilise skills drawn from differing fields to make the load of information, and the emotional impact more manageable. The first article in this series addressed how clinicians might manage the 'accumulation of uncertainties' and to provide compassionate care not only to their patients, and their families, but also to themselves. This second paper delves into the less helpful aspects of 'certainty', including the associated losses and griefs endured by parents responding to threatening fears associated with their child's condition. In the extreme, disconnection and psychological isolation borne by parents can lead to a sense of hopelessness and desperation. Facing unwelcome certainties - clinicians and parents together - forms the basis of future trust and hope. Clinicians who share the field of trust with families and show commitment to helping parents, even when cure remains elusive, build a sense of hope. This is the sort of hopefulness that clinicians need to have and to offer as they share the journey with families. In this series, we seek to harness a shared approach to face unwelcome certainties and to kindle a sense of hope that is both credible and meaningful to the parents, family and clinician.
Identifier
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<a href="http://doi.org/10.1111/jpc.16202" target="_blank" rel="noreferrer noopener">10.1111/jpc.16202</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
Beavis E
Bye AME
Child
December List 2022
Disease Attributes
Family
Hope
Impact of Events Scale
Journal Of Paediatrics & Child Health
Le Marne FA
Macintosh R
Nervous System Diseases Therapy
Nevin SM
Nunn K
Palmer EE
Parents Psychosocial Factors
Sachdev R
scales
Uncertainty
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/s0920-1211(02)00261-9" target="_blank" rel="noreferrer">http://doi.org/10.1016/s0920-1211(02)00261-9</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Intelligence in childhood epilepsy syndromes
Publisher
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Epilepsy Research
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Creator
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Nolan MA; Redoblado MA; Lah S; Lawson JA; Cunningham AM; Bleasel AF; Bye AME
Identifier
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<a href="http://doi.org/10.1016/s0920-1211(02)00261-9" target="_blank" rel="noreferrer">10.1016/s0920-1211(02)00261-9</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
Description
An account of the resource
2003
2003
Backlog
Bleasel AF
Bye AME
Cunningham AM
Epilepsy Research
Journal Article
Lah S
Lawson JA
Nolan MA
Redoblado MA