1
40
35
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Dublin Core
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Title
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October 2023 List
Text
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October List 2023
URL Address
<a href="http://doi.org/10.1016/j.ssmqr.2023.100324" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1016/j.ssmqr.2023.100324</a>
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Title
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"The medicine is the easy part": Pediatric physicians' emotional labor in end-of-life care
Publisher
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SSM - Qualitative Research in Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
Terminal Care; child; terminal care; article; female; human; male; physician; clinical article; pediatrician; burnout; interview; wellbeing; university hospital; medical education; responsibility; work environment; drawing; seashore; emotional support; buffer
Creator
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Gengler AM
Description
An account of the resource
Physicians who care for children with life-threatening conditions are uniquely positioned to support families through the dying phase when treatment efforts have failed. Taking on this role for families requires a great deal of time and strategic emotional labor. Drawing on in-depth interviews with 12 physicians across two different children's hospitals on the east coast, I find that these physicians conceptualize this work as a fundamental responsibility to the children and families in their care despite believing that their formal medical training fails to prepare them for this component of their jobs. These physicians deliberately laid groundwork for the potential that children may die from their earliest interactions with patients and worked to shift families away from continued medical intervention when they believed such efforts to be futile. They described this work as deeply meaningful and rewarding, but potentially emotionally overwhelming. These physicians felt duty-bound to address what they perceived as a deficit in medical training by intentionally modeling emotionally intense exchanges with families for the next generation of practitioners. Though these dual commitments demanded extensive and potentially exhausting emotional labor, this particular group of physicians was able to use the structural features of their faculty positions in academic medical centers to buffer against potential burnout, maintain their emotional capacity at work and home, and protect their own well-being. My analysis shows that when physicians inhabit structurally favorable working conditions and conceptualize their jobs in ways that center emotional support for patients they may use these resources to work to mitigate disparities in care and take pride in their ability to provide sustained and substantive emotional support at the end of life.Copyright © 2023
Identifier
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<a href="http://doi.org/10.1016/j.ssmqr.2023.100324" target="_blank" rel="noreferrer noopener">10.1016/j.ssmqr.2023.100324</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Article
buffer
Burnout
Child
Clinical Article
Drawing
emotional support
Female
Gengler AM
Human
Interview
Male
Medical Education
October List 2042
Pediatrician
Physician
responsibility
seashore
SSM - Qualitative Research in Health
Terminal Care
University Hospital
Wellbeing
work environment
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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April 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April 2018 List
URL Address
<a href="http://doi.org/10.1017/s1478951517001237" target="_blank" rel="noreferrer noopener">http://doi.org/10.1017/s1478951517001237</a>
Dublin Core
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Title
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A cross-sectional pilot study of compassion fatigue (CF), burnout (BO), and compassion satisfaction (CS) in pediatric palliative care (PPC) providers in the United States
Publisher
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Palliative and Supportive Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
Fatigue; Palliative Care; Pilot Projects; United States; burnout; pediatric palliative care; Cesarean Section; Compassion fatigue; compassion satisfaction
Creator
An entity primarily responsible for making the resource
Kase SM; Waldman ED; Weintraub AS
Description
An account of the resource
OBJECTIVE: Compassion fatigue (CF) is secondary traumatic distress experienced by providers from contact with patients' suffering. Burnout (BO) is job-related distress resulting from uncontrollable workplace factors that manifest in career dissatisfaction. Compassion satisfaction (CS) is emotional fulfillment derived from caring for others. The literature on BO in healthcare providers is extensive, whereas CF and CS have not been comprehensively studied. Because of ongoing exposure to patient and family distress, pediatric palliative care (PPC) providers may be at particular risk for CF. We conducted a cross-sectional pilot study of CF, BO, and CS among PPC providers across the United States. METHOD: The Compassion Fatigue and Satisfaction Self-Test for Helpers and a questionnaire of professional and personal characteristics were distributed electronically and anonymously to PPC physicians and nurses. Logistic and linear regression models for CF, BO, and CS as a function of potential risk factors were constructed. RESULTS: The survey response rate was 39%, primarily consisting of female, Caucasian providers. The prevalence of CF, BO, and CS was 18%, 12%, and 25%, respectively. Distress about a "clinical situation," physical exhaustion, and personal loss were identified as significant determinants of CF. Distress about "coworkers," emotional depletion, social isolation, and "recent involvement in a clinical situation in which life-prolonging activities were not introduced" were significant determinants of BO. Physical exhaustion, personal history of trauma, "recent involvement in a clinical situation in which life-prolonging activities were not introduced," and not discussing distressing issues were significant predictors of lower CS scores. Significance of results CF and BO directly influence the well-being and professional performance of PPC providers. To provide effective compassionate care to patients, PPC providers must be attentive to predictors of these phenomena. Further work is needed to explore additional causes of CF, BO, and CS in PPC providers as well as potential interventions.
Identifier
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<a href="http://doi.org/10.1017/s1478951517001237" target="_blank" rel="noreferrer noopener">10.1017/s1478951517001237</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
April 2018 List
Burnout
Cesarean Section
Compassion Fatigue
compassion satisfaction
Fatigue
Kase SM
Palliative And Supportive Care
Palliative Care
Pediatric Palliative Care
Pilot Projects
United States
Waldman ED
Weintraub AS
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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August 2018 List
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2018 List
URL Address
<a href="http://doi.org/10.1177/1049909116660688" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/1049909116660688</a>
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Title
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A Multimodal Mindfulness Training to Address Mental Health Symptoms in Providers Who Care for and Interact With Children in Relation to End-of-Life Care
Publisher
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The American journal of hospice & palliative care
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
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Humans; Intensive Care Units; Intensive Care Units; Middle Aged; Female; Male; Adult; Aged; Pediatric; Neonatal; Terminal Care/px [Psychology]; Mental Health; Burnout; Health Personnel/px [Psychology]; Mindfulness/mt [Methods]; Clergy/px [Psychology]; Depression/px [Psychology]; Social Workers/px [Psychology]; Professional/px [Psychology]
Creator
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O'Mahony S; Gerhart J; Abrams I; Greene M; McFadden Rory; Tamizuddin S; Levy MM
Description
An account of the resource
AIM: Medical providers may face unique emotional challenges when confronted with the suffering of chronically ill, dying, and bereaved children. This study assessed the preliminary outcomes of participation in a group-based multimodal mindfulness training pilot designed to reduce symptoms of burnout and mental health symptoms in providers who interact with children in the context of end-of-life care., METHODS: A total of 13 medical providers who care for children facing life-threatening illness or bereaved children participated in a 9-session multimodal mindfulness session. Mental health symptoms and burnout were assessed prior to the program, at the program midpoint, and at the conclusion of the program., RESULTS: Participation in the pilot was associated with significant reductions in depressive and posttraumatic stress disorder (PTSD) symptoms among providers ( P < .05)., CONCLUSION: Mindfulness-based programs may help providers recognize and address symptoms of depression and PTSD. Additional research is needed to enhance access and uptake of programming among larger groups of participants.
Identifier
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<a href="http://doi.org/10.1177/1049909116660688" target="_blank" rel="noreferrer noopener">10.1177/1049909116660688</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Abrams I
Adult
Aged
August 2018 List
Burnout
Clergy/px [Psychology]
Depression/px [Psychology]
Female
Gerhart J
Greene M
Health Personnel/px [psychology]
Humans
Intensive Care Units
Levy MM
Male
McFadden Rory
Mental Health
Middle Aged
Mindfulness/mt [Methods]
Neonatal
O'Mahony S
Pediatric
Professional/px [Psychology]
Social Workers/px [psychology]
Tamizuddin S
Terminal Care/px [psychology]
The American Journal of Hospice & Palliative Care
-
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Title
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September 2018 List
Text
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Citation List Month
October 2018 List
URL Address
<a href="http://doi.org/10.1136/archdischild-2017-313539" target="_blank" rel="noreferrer noopener">http://doi.org/10.1136/archdischild-2017-313539</a>
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Title
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Always a burden? Healthcare providers' perspectives on moral distress
Publisher
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Archives of Disease in Childhood Fetal & Neonatal Edition
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
Humans; Intensive Care Units; Stress; Attitude of Health Personnel; Female; Male; Adult; Qualitative Research; Intensive Care; Terminal Care/es [Ethics]; Terminal Care/px [Psychology]; Morals; Job Satisfaction; Psychological; Neonatal; Burnout; Terminal Care; Health Personnel/px [Psychology]; Professional/px [Psychology]; Neonatal/sn [Statistics & Numerical Data]; Neonatal/es [Ethics]; Burnout; Intensive Care; Stress; Neonatal/px [Psychology]; Professional; Professional/et [Etiology]; Professional/pc [Prevention & Control]; Psychological/et [Etiology]; Psychological/pc [Prevention & Control]
Creator
An entity primarily responsible for making the resource
Prentice TM; Gillam L; Davis PG; Janvier A
Description
An account of the resource
BACKGROUND: Current conceptualisations of moral distress largely portray a negative phenomenon that leads to burnout, reduced job satisfaction and poor patient care. OBJECTIVE: To explore clinical experiences, perspectives and perceptions of moral distress in neonatology. DESIGN: An anonymous questionnaire was distributed to medical and nursing providers within two tertiary level neonatal intensive care units (NICUs)-one surgical and one perinatal-seeking their understanding of the term and their experience of it. Open-ended questions were analysed using qualitative methodology. RESULTS: A total of 345 healthcare providers from two NICUs participated (80% response rate): 286 nurses and 59 medical providers. Moral distress was correctly identified as constrained moral judgement resulting in distress by 93% of participants. However, in practice the term moral distress was also used as an umbrella term to articulate different forms of distress. Moral distress was experienced by 72% of providers at least once a month. Yet despite the negative sequelae of moral distress, few (8% medical, 21% nursing providers) thought that moral distress should be eliminated from the NICU. Open-ended responses revealed that while interventions were desired to decrease the negative impacts of moral distress, moral distress was also viewed as an essential component of the caring profession that prompts robust discussion and acts as an impetus for medical decision-making. CONCLUSIONS: Moral distress remains prevalent within NICUs. While the harmful aspects of moral distress need to be mitigated, moral distress may have a positive role in advocating for and promoting the interests of the neonatal population.
Identifier
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<a href="http://doi.org/10.1136/archdischild-2017-313539" target="_blank" rel="noreferrer noopener">10.1136/archdischild-2017-313539</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here.
2018
Adult
Archives of Disease in Childhood Fetal & Neonatal Edition
Attitude Of Health Personnel
Burnout
Davis PG
Female
Gillam L
Health Personnel/px [psychology]
Humans
Intensive Care
Intensive Care Units
Janvier A
Job Satisfaction
Male
Morals
Neonatal
Neonatal/es [Ethics]
Neonatal/px [Psychology]
Neonatal/sn [Statistics & Numerical Data]
October 2018 List
Prentice TM
Professional
Professional/et [Etiology]
Professional/pc [Prevention & Control]
Professional/px [Psychology]
Psychological
Psychological/et [etiology]
Psychological/pc [Prevention & Control]
Qualitative Research
September 2018 List
Stress
Terminal Care
Terminal Care/es [ethics]
Terminal Care/px [psychology]
-
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Title
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October 2019 List
Text
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Citation List Month
October 2019 List
URL Address
<a href="http://doi.org/10.1089/jpm.2019.0164" target="_blank" rel="noreferrer noopener">http://doi.org/10.1089/jpm.2019.0164</a>
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Title
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Attempting to Define Clinical Productivity Metrics among Pediatric Palliative Care Services at Academic Children's Hospitals
Publisher
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Journal of Palliative Medicine
Date
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2019
Subject
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United States; article; child; female; human; male; palliative therapy; pediatric palliative care; clinical article; human tissue; program development; billing and coding; burnout; clinical productivity; convenience sample; leadership; productivity; sustainability; workload
Creator
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Mahoney D P; Brook I; Fossa M; Kang T
Description
An account of the resource
Introduction: Pediatric palliative care (PPC) programs have grown in size and number at academic children's hospitals in the United States for the past 20 years. Little is known about the relationships between program workforce staffing, billing and coding practices, clinical service requirements for billing providers, and sustainability of program models for billing providers. Method(s): The authors contacted a convenience sample of 10 PPC program leaders at academic children's hospitals in the United States. Program leaders were asked to provide information about billing provider full-time equivalent (FTE) staffing, billing and coding practices, and productivity metrics for a three-month period, from January 1 to March 31, 2017. Result(s): Ten programs participated in the convenience sample survey, and seven provided information about billing and coding practices. For the seven programs that provided evaluation and management data, calculated estimate of mean work Relative Value Unit (wRVU) production per 1.0 FTE per year was 1626. Calculated estimate of consultations per 1.0 FTE per month was 15. Calculated estimate of total clinical encounters per 1.0 FTE per month was 70. Conclusion(s): The relationships between PPC billing provider productivity and clinical workload are complex and vary widely among a convenience sample of academic PPC programs. Given the high burnout rates in the field, efforts should be made to more clearly define these relationships to promote sustainability of both billing and nonbilling PPC providers.
Identifier
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<a href="http://doi.org/10.1089/jpm.2019.0164" target="_blank" rel="noreferrer noopener">10.1089/jpm.2019.0164</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Article
billing and coding
Brook I
Burnout
Child
Clinical Article
clinical productivity
Convenience Sample
Female
Fossa M
Human
Human Tissue
Journal of Palliative Medicine
Kang T
Leadership
Mahoney D P
Male
October 2019 List
Palliative Therapy
Pediatric Palliative Care
productivity
Program Development
sustainability
United States
workload
-
Dublin Core
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Title
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June 2018 List
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Text
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Citation List Month
June 2018 List
URL Address
<a href="http://doi.org/10.1016/j.aucc.2018.02.003" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.aucc.2018.02.003</a>
Dublin Core
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Title
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Burnout and posttraumatic stress in paediatric critical care personnel: Prediction from resilience and coping styles
Publisher
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Australian Critical Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
Burnout; Coping strategies; Paediatric intensive care; Posttraumatic stress; Professional stress; Resilience
Creator
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Rodriguez-Rey R; Palacios A; Alonso-Tapia J; Perez E; Alvarez E; Coca A; Mencia S; Marcos A; Mayordomo-Colunga J; Fernandez F; Gomez F; Cruz J; Ordonez O; Llorente A
Description
An account of the resource
INTRODUCTION: Our aims were (1) to explore the prevalence of burnout syndrome (BOS) and posttraumatic stress disorder (PTSD) in a sample of Spanish staff working in the paediatric intensive care unit (PICU) and compare these rates with a sample of general paediatric staff and (2) to explore how resilience, coping strategies, and professional and demographic variables influence BOS and PTSD. MATERIALS AND METHODS: This is a multicentre, cross-sectional study. Data were collected in the PICU and in other paediatric wards of nine hospitals. Participants consisted of 298 PICU staff members (57 physicians, 177 nurses, and 64 nursing assistants) and 189 professionals working in non-critical paediatric units (53 physicians, 104 nurses, and 32 nursing assistants). They completed the Brief Resilience Scale, the Coping Strategies Questionnaire for healthcare providers, the Maslach Burnout Inventory, and the Trauma Screening Questionnaire. RESULTS: Fifty-six percent of PICU working staff reported burnout in at least one dimension (36.20% scored over the cut-off for emotional exhaustion, 27.20% for depersonalisation, and 20.10% for low personal accomplishment), and 20.1% reported PTSD. There were no differences in burnout and PTSD scores between PICU and non-PICU staff members, either among physicians, nurses, or nursing assistants. Higher burnout and PTSD rates emerged after the death of a child and/or conflicts with patients/families or colleagues. Around 30% of the variance in BOS and PTSD is predicted by a frequent usage of the emotion-focused coping style and an infrequent usage of the problem-focused coping style. DISCUSSION AND CONCLUSIONS: Interventions to prevent and treat distress among paediatric staff members are needed and should be focused on: (i) promoting active emotional processing of traumatic events and encouraging positive thinking; (ii) developing a sense of detached concern; (iii) improving the ability to solve interpersonal conflicts, and (iv) providing adequate training in end-of-life care.
Identifier
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<a href="http://doi.org/10.1016/j.aucc.2018.02.003" target="_blank" rel="noreferrer noopener">10.1016/j.aucc.2018.02.003</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Alonso-Tapia J
Alvarez E
Australian Critical Care
Burnout
Coca A
Coping strategies
Cruz J
Fernandez F
Gomez F
June 2018 List
Llorente A
Marcos A
Mayordomo-Colunga J
Mencia S
Ordonez O
Paediatric Intensive Care
Palacios A
Perez E
Posttraumatic stress
Professional stress
Resilience
Rodriguez-Rey R
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.12968/ijpn.2014.20.5.233" target="_blank" rel="noreferrer">http://doi.org/10.12968/ijpn.2014.20.5.233</a>
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Title
A name given to the resource
Can art therapy reduce death anxiety and burnout in end-of-life care workers? a quasi-experimental study
Publisher
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International Journal Of Palliative Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
adolescent; Female; Humans; Male; Young Adult; Terminal Care; Adult; Questionnaires; Middle Aged; Health Personnel; Self Efficacy; Anxiety; Art Therapy; Burnout; Professional
Creator
An entity primarily responsible for making the resource
Potash J; Hy Ho A; Chan F; Lu Wang Xiao; Cheng C
Description
An account of the resource
BACKGROUND: The need for empathy and the difficulties of coping with mortality when caring for the dying and the bereaved can cause psychological, emotional, and spiritual strain. OBJECTIVE: The aim of this study was to examine the effectiveness of art-therapy-based supervision in reducing burnout and death anxiety among end-of-life care workers in Hong Kong. METHODS: Through a quasi-experimental design, 69 participants enrolled in a 6-week, 18-hour art-therapy-based supervision group, and another 63 enrolled in a 3-day, 18-hour standard skills-based supervision group (n=132). Pre- and post-intervention assessments were carried out with three outcome measures: the Maslach Burnout Inventory-General Survey, the Five Facet Mindfulness Questionnaire, and the Death Attitude Profile-Revised. The data was analysed using paired sample t-tests. RESULTS: Significant reductions in exhaustion and death anxiety and significant increases in emotional awareness were observed for participants in the art-therapy-based supervision group. CONCLUSION: This study provides preliminary evidence that art-therapy-based supervision for end-of-life care workers can reduce burnout by enhancing emotional awareness and regulation, fostering meaning-making, and promoting reflection on death.
2014-05
Identifier
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<a href="http://doi.org/10.12968/ijpn.2014.20.5.233" target="_blank" rel="noreferrer">10.12968/ijpn.2014.20.5.233</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Adolescent
Adult
anxiety
Art Therapy
Backlog
Burnout
Chan F
Cheng C
Female
Health Personnel
Humans
Hy Ho A
International Journal of Palliative Nursing
Journal Article
Lu Wang Xiao
Male
Middle Aged
Potash J
Professional
Questionnaires
Self Efficacy
Terminal Care
Young Adult
-
Dublin Core
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Title
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February 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February 2022 List
URL Address
<a href="http://doi.org/10.1016/j.pedn.2021.12.010" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.pedn.2021.12.010</a>
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Title
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Caring for sick kids: An integrative review of the evidence about the prevalence of compassion fatigue and effects on pediatric nurse retention
Publisher
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Journal of Pediatric Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
Burnout; Compassion fatigue; Integrative review; Pediatric nursing; Retention
Creator
An entity primarily responsible for making the resource
Forsyth LA; Lopez S; Lewis KA
Description
An account of the resource
Problem Compassion Fatigue (CF) in healthcare professionals has been explored in multiple studies, but few focused on hospital-based pediatric nurses. The purpose of this integrative review is to synthesize the evidence about CF prevalence in nurses caring for pediatric patients, and to describe its effects on retention and job satisfaction. Eligibility criteria Included studies were in English from any date describing research or quality improvement studies about CF in pediatric nurses. Sample An integrative review of nine electronic databases yielded 13 articles about 1921 nurses. Data were synthesized from four qualitative and nine quantitative studies separately before integrating results. A risk of bias analysis was included for evidence level and quality. Results Overall CF prevalence was low, but 14% of nurses were at high risk of burnout and 10% were at high risk for secondary traumatic stress. Studies examining the effects of CF on retention found no significant relationship. Most studies were about critical care or oncology nurses. Conclusions A subset of pediatric nurses is highly vulnerable to CF, but more high-quality evidence is needed to fully address this topic. Leaders should study CF prevalence, protective and exacerbating factors, relationships between CF and retention, and targeted strategies to resolve CF in high-risk nurses.
Identifier
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<a href="http://doi.org/10.1016/j.pedn.2021.12.010" target="_blank" rel="noreferrer noopener">10.1016/j.pedn.2021.12.010</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
Burnout
Compassion Fatigue
February 2022 List
Forsyth LA
Integrative Review
Journal of Pediatric Nursing
Lewis KA
Lopez S
Pediatric Nursing
Retention
-
Dublin Core
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Title
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December 2020 List
Text
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Citation List Month
December 2020 List
URL Address
<a href="http://doi.org/10.1177/1359104520961431" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/1359104520961431</a>
Dublin Core
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Title
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Clinical Supervision for Support Workers in Paediatric Palliative Care: A Literature Review
Publisher
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Clinical Child Psychology and Psychiatry
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
burnout; Clinical supervision; complex health; health psychology; paediatric palliative care; staff wellbeing; support worker
Creator
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Beavis J; Davis L; McKenzie S
Description
An account of the resource
Providing home care to children with complex physical health needs is an emotionally challenging role. Extant literature and documents such as the Cavendish Review (2013) have reported that a large proportion of care for this population is carried out by non-registered staff (support workers). Provision of clinical supervision for nurses working in palliative care is increasing, however, supervision needs of support workers are commonly neglected. This paper sought to synthesise what is known about clinical supervision practices for support workers in paediatric palliative care (PPC). A literature review was conducted in accordance with integrative review guidelines. 315 papers were identified initially, 15 studies were included in this review. Four commonalities were identified: importance of team cohesion, varying degrees of formality, self-awareness and practicalities. Support workers received varying forms of supervision and some facilitators faced organisational difficulties involving staff in supervision. Support workers who received staff support generally appreciated it in recognition that their work is complex and emotionally difficult. This paper highlighted that further research should investigate the efficacy of clinical supervision as a method of reducing stress and burnout for support workers. Any implementation of supervision should involve a considered approach to training and supervision to ensure fidelity.
Identifier
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<a href="http://doi.org/10.1177/1359104520961431" target="_blank" rel="noreferrer noopener">10.1177/1359104520961431</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Beavis J
Burnout
Clinical Child Psychology And Psychiatry
Clinical supervision
complex health
Davis L
December 2020 List
Health Psychology
McKenzie S
paediatric palliative care
staff wellbeing
support worker
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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April 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April 2020 List
URL Address
<a href="https://pediatrics.aappublications.org/content/142/1_MeetingAbstract/672" target="_blank" rel="noreferrer noopener">https://pediatrics.aappublications.org/content/142/1_MeetingAbstract/672</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Compassion fatigue, burnout, and compassion satisfaction in pediatric palliative care (PC) providers in the U.S
Publisher
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Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
awareness; burnout; child; Compassion fatigue; conference abstract; coworker; distress syndrome; education; exhaustion; friend; health care personnel; human; injury; life sustaining treatment; linear regression analysis; palliative therapy; prevalence; questionnaire; risk factor; satisfaction with care; self care; social isolation; wellbeing
Creator
An entity primarily responsible for making the resource
Kase S M; Waldman E D; Weintraub A S
Description
An account of the resource
Purpose: Compassion fatigue (CF) is emotional distress experienced by providers from ongoing contact with patients' suffering. Burnout (BO) is personal distress due to uncontrollable workplace factors that manifest in career dissatisfaction. CF and BO can each lead to emotional exhaustion, depression, frustration, depersonalization, and sense of loss in one's achievements; in healthcare providers, this can adversely affect patient care. Compassion satisfaction (CS) is professional fulfillment derived from caring for others. Pediatric palliative care (PC) providers are continuously exposed to clinical experiences that are physically and emotionally demanding and draining. Therefore, we aimed to determine the prevalence of CF, BO, and CS and identify potential predictors of these phenomena in pediatric PC providers.
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
April 2020 List
Awareness
Burnout
Child
Compassion Fatigue
conference abstract
coworker
Distress Syndrome
Education
Exhaustion
friend
Health Care Personnel
Human
injury
Kase S M
Life Sustaining Treatment
linear regression analysis
Palliative Therapy
Pediatrics
Prevalence
Questionnaire
risk factor
satisfaction with care
Self Care
Social Isolation
Waldman E D
Weintraub A S
Wellbeing
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16493302" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16493302</a>
Dublin Core
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Title
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Emotion work in the palliative nursing care of children and young people
Publisher
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International Journal Of Palliative Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Humans; Adolescent Psychology; Adult; Self Concept; Attitude to Death; Health Services Needs and Demand; Child Psychology; Holistic Health; Job Satisfaction; Organizational Culture; quality of life; adolescent; Psychological; PedPal Lit; Family/psychology; empathy; social support; Adaptation; Attitude of Health Personnel; Emotions; Burnout; Nurse-Patient Relations; Nurse's Role/psychology; Palliative Care/organization & administration/psychology; Professional/prevention & control/psychology; Work/psychology
Creator
An entity primarily responsible for making the resource
Maunder EZ
Description
An account of the resource
The nurse's role in supporting and caring for children and young people with life-limiting illness/conditions and their families requires specialist expertise. This domain can be one of the most emotionally challenging areas of practice. The concept of time, and how long practitioners are involved with individual children and their families may sometimes be underestimated. Emotion work is defined as the work involved in managing feelings in both self and others (Hochschild, 1983). The sense of community within the clinical setting can facilitate the nurse to care and maintain professional boundaries.
2006
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adaptation
Adolescent
Adolescent Psychology
Adult
Attitude Of Health Personnel
Attitude To Death
Backlog
Burnout
Child
Child Psychology
Emotions
Empathy
Family/psychology
Health Services Needs And Demand
Holistic Health
Humans
International Journal of Palliative Nursing
Job Satisfaction
Journal Article
Maunder EZ
Nurse-patient Relations
Nurse's Role/psychology
Organizational Culture
Palliative Care/organization & administration/psychology
PedPal Lit
Professional/prevention & control/psychology
Psychological
Quality Of Life
Self Concept
Social Support
Work/psychology
-
Dublin Core
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Title
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2019 Oncology List
Text
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Citation List Month
Oncology 2019 List
URL Address
<a href="http://doi.org/10.2147/jhl.s176848" target="_blank" rel="noreferrer noopener">http://doi.org/10.2147/jhl.s176848</a>
Dublin Core
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Title
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Evaluation of a staff well-being program in a pediatric oncology, hematology, and palliative care services group
Publisher
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Journal of Healthcare Leadership
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
burnout; resilience; self-care; staff well-being; vicarious trauma
Creator
An entity primarily responsible for making the resource
Slater P J; Edwards R M; Badat A A
Description
An account of the resource
Purpose: Challenges experienced by staff in the Oncology Services Group at Queensland Children's Hospital led to issues with staff retention, well-being, and stress on team culture. Therefore, a customized program was developed through a needs analysis to improve the well-being and resilience of oncology staff, enabling them to cope with stressors and critical incidents inherent in their everyday work and to flourish. The program included education, on-site counselors, mindfulness sessions, debriefing, well-being resources, and improved engagement, support, and communication. Methods: Evaluation of the program in the first year examined program participation, staff feedback following education workshops and mindfulness sessions, staff retention rates, and the results of an annual organizational staff survey and a program outcome survey. Results: Approximately 76% of staff attended the Introduction to Well-being workshop, and 98% of responses to survey questions were positive. Staff also provided positive feedback on the other well-being workshops and sessions embedded within existing education programs. Employee Assistance Program counseling sessions had an 81% uptake, with a wide variety of presenting issues, 62% related to work. All participants in mindfulness sessions agreed that it was a valuable tool to improve clinical practice, 94% said it had an immediate positive impact on their well-being, and 70% agreed that they were applying mindfulness principles outside the sessions. Staff retention and turnover improved. Staff reported a positive effect on awareness of self-care, addressing risks to resilience, seeking support from trusted colleagues, coping with critical incidents, and the ability to interact positively with patients and families. Conclusion: The evaluation showed a positive impact on staff well-being. Although there was a wide variety of successful interventions reported in the literature, sustainability needs to be considered. Feedback on this program found that staff appreciated being listened to, valued, and supported through the strategies, and the ongoing program will continue to monitor staff needs and be responsive in building their resilience and well-being.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.2147/jhl.s176848" target="_blank" rel="noreferrer noopener">10.2147/jhl.s176848</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Badat A A
Burnout
Edwards R M
Journal of Healthcare Leadership
Oncology 2019 List
Resilience
self-care
Slater P J
staff well-being
vicarious trauma
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
November 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
November 2020 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2020.09.037" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2020.09.037</a>
Dublin Core
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Title
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Exploring the Impact of the Coronavirus Pandemic on Pediatric Palliative Care Clinician Personal and Professional Well-Being: a qualitative analysis of U.S. Survey Data
Publisher
An entity responsible for making the resource available
Journal of pain and symptom management
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
Burnout; Covid-19; Pediatric; Professional; Resilience; Well-being; Work-life balance
Creator
An entity primarily responsible for making the resource
Rosenberg A R; Weaver M S; Fry A; Wiener L
Description
An account of the resource
CONTEXT: The COVID-19 pandemic has had a dramatic impact on palliative care delivery and patient experiences. Less is known about the experiences and responses of palliative care clinicians. OBJECTIVE: We aimed to describe the pandemic's impact on pediatric palliative care clinicians' personal and professional wellbeing. METHODS: The Palliative Assessment of Needed DEvelopments &Modifications In the Era of Coronavirus (PANDEMIC) cross-sectional online survey was posted on 7 professional listservs between May and June, 2020. We conducted a conventional content analysis of written responses to three open-ended questions regarding the lasting impact of COVID-19. RESULTS: Of 207 multidisciplinary respondents from 80 U.S. cities, 148 (71%) provided written responses to open-ended questions and 62 responses (42%) were related to personal, professional, or existential well-being. These responses were sorted into 4 major categories: personal burdens, professional burdens, personal benefits, and professional benefits. Respondents described burdens more commonly than they did benefits (67% versus 33% of comments, respectively). Personal burdens related to increased fear and uncertainty, fear of bringing the virus home, and a sense of collective grief. Professional burdens included a sense of exhaustion, a challenge with work-life balance, personal experiences with colleagues infected with the virus, and considerations of leaving healthcare altogether. Personal benefits included lessons-learned, an evolving sense of what matters, and improved work-life balance. Professional benefits included opportunities for professional development and a sense of professional purpose. CONCLUSION: Pediatric palliative care clinicians perceive a breadth of impacts from the COVID-19 pandemic. Ongoing clinician assessment is important as the pandemic continues.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jpainsymman.2020.09.037" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2020.09.037</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Burnout
COVID-19
Fry A
Journal of Pain and Symptom Management
November 2020 List
Pediatric
Professional
Resilience
Rosenberg A R
Weaver M S
Well-being
Wiener L
Work-life balance
-
Dublin Core
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Title
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February 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February 2018 List
URL Address
<a href="http://doi.org/10.1186/s12904-017-0254-4" target="_blank" rel="noreferrer">http://doi.org/10.1186/s12904-017-0254-4</a>
Dublin Core
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Title
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Exploring the rewards and challenges of paediatric palliative care work - a qualitative study of a multi-disciplinary children's hospice care team
Publisher
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Bmc Palliat Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
burnout; Child; Children's Hospice; Clinical reflection; Clinical supervision; end of life; hospice care; Hospices; Only Child; Paediatric palliative care; Palliative Care; Qualitative Research; Reward; Staff support; Work-related stress
Creator
An entity primarily responsible for making the resource
Taylor J; Aldridge J
Description
An account of the resource
BACKGROUND: Children's hospices are a key provider of palliative care for children and young people with life-limiting and life-threatening conditions. However, despite recent policy attention to the provision of paediatric palliative care, little is known about the role of children's hospice staff and the factors that may impact on their wellbeing at work. This study explored the rewards and challenges of working in a children's hospice with an aim to identify staff support and development needs. METHODS: We conducted an exploratory, qualitative study involving thematic analysis of semi-structured interviews with 34 staff and three focus groups with 17 staff working in a multi-disciplinary care team in a UK children's hospice. RESULTS: Participants identified rewards and challenges related to the direct work of caring for children and their families; team dynamics and organisational structures; and individual resilience and job motivation. Participants described the work as emotionally intensive and multi-faceted; 'getting it right' for children was identified as a strong motivator and reward, but also a potential stressor as staff strived to maintain high standards of personalised and emotional care. Other factors were identified as both a reward and stressor, including team functioning, the allocation of work, meeting parent expectations, and the hospice environment. Many participants identified training needs for different aspects of the role to help them feel more confident and competent. Participants also expressed concerns about work-related stress, both for themselves and for colleagues, but felt unable to discuss this at work. Informal support from colleagues and group clinical reflection were identified as primary resources to reflect on and learn from work and for emotional support. However, opportunities for this were limited. CONCLUSIONS: Providing regular, structured, and dedicated clinical reflection provides a mechanism through which children's hospice staff can come together for support and learning, and demonstrates an organisational commitment to staff wellbeing and development. Being aware of children's hospice specific rewards and challenges can help to ensure that staff feel supported and competent in their role. Breaking down barriers to discussing work-related stress and enhancing awareness about early signs of burnout is also important.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1186/s12904-017-0254-4" target="_blank" rel="noreferrer">10.1186/s12904-017-0254-4</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Aldridge J
Bmc Palliat Care
Burnout
Child
Children's Hospice
Clinical reflection
Clinical supervision
End Of Life
February 2018 List
Hospice Care
Hospices
Only Child
paediatric palliative care
Palliative Care
Qualitative Research
Reward
Staff support
Taylor J
Work-related stress
-
Dublin Core
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Title
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April 2024 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April List 2024
URL Address
<a href="http://doi.org/10.1177/00912174241229926" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1177/00912174241229926</a>
Dublin Core
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Title
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Flourishing, religion, and burnout among caregivers working in pediatric palliative care
Publisher
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International Journal of Psychiatry in Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2024
Subject
The topic of the resource
child; Palliative Care; article; controlled study; female; human; male; palliative therapy; coping; dying; South Africa; qualitative analysis; caregiver; cross-sectional study; prevalence; adolescent; multidisciplinary team; convenience sample; job satisfaction; religion; work environment; life satisfaction; terminally ill patient; burnout; job stress
Creator
An entity primarily responsible for making the resource
Oberholzer AE; Doolittle BR
Description
An account of the resource
Introduction: Providers working with children who are dying are especially prone to burnout. Encouraging models of human flourishing may mitigate burnout and improve quality of care. However, models of job satisfaction and human flourishing have not been well-described. This project explores factors that promote human flourishing among caregivers working with children in pediatric palliative care in South Africa. Methods: A convenience sample of caregivers working in pediatric palliative care were invited to complete an anonymous, confidential survey comprised of validated instruments. The survey also included open-ended questions to explore opinions and attitudes about satisfaction, struggles, and coping. Results: Twenty-nine people from a variety of occupations and work environments completed the survey. The prevalence of burnout was 3/29 (10%). Life satisfaction was associated with private religious activities (P = .38, P < .05), and carrying religion into all aspects of life (P = .44, P < .05). Burnout was not associated with life satisfaction. Qualitative analysis of the open-ended questions revealed the following themes as factors contributing to their joy in work: being able to make a difference, finding meaning and purpose, having a relationship with the children and their families, and with the multi-disciplinary team. The greatest challenges in their work were identified as the lack of resources, challenges within their team, and emotional demands. Conclusions: Despite job stress and working with terminally ill children, several factors were associated with flourishing. These findings are particularly relevant to enhance caregiving in the resource-challenged setting of pediatric palliative care in South Africa.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/00912174241229926" target="_blank" rel="noreferrer noopener">10.1177/00912174241229926</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2024
Adolescent
April List 2024
Article
Burnout
Caregiver
Child
Controlled Study
Convenience Sample
Coping
Cross-sectional Study
Doolittle BR
Dying
Female
Human
International Journal of Psychiatry in Medicine
Job Satisfaction
job stress
life satisfaction
Male
Multidisciplinary team
Oberholzer AE
Palliative Care
Palliative Therapy
Prevalence
Qualitative Analysis
Religion
South Africa
terminally Ill Patient
work environment
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
January 2021 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January 2021 List
URL Address
<a href="http://doi.org/10.3389/fped.2020.572933" target="_blank" rel="noreferrer noopener">http://doi.org/10.3389/fped.2020.572933</a>
Dublin Core
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Title
A name given to the resource
Fostering Vicarious Resilience for Perinatal Palliative Care Professionals
Publisher
An entity responsible for making the resource available
Frontiers in Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
grief; ethical; burnout; perinatal; palliative; self-care; compassion; resiliency
Creator
An entity primarily responsible for making the resource
Grauerholz KR; Fredenburg M; Jones PT; Jenkins KN
Description
An account of the resource
Background: The demands on healthcare professionals caring for families grappling with a life-limiting condition in an unborn or newly born child can be overwhelming. Clinicians working in emergency/trauma, hospice, and pediatric settings are already at high risk for burnout and compassion fatigue, which can leave healthcare institutions increasingly vulnerable to poor retention, absenteeism, and waning quality of care. The provision of exemplary palliative care requires a cohesive interdisciplinary team of seasoned professionals resilient to daily challenges. In September 2019, the American College of Gynecology, in a committee opinion, published standard of care guidelines for perinatal palliative care. This has created an impetus for exceptional caregiving and a greater demand for both physician and interdisciplinary healthcare provider education, training, and ongoing support that promotes truly beneficent care for pregnant patients confronted with life-limiting fetal conditions. Methods: A scoping review of the research literature was conducted in order to distinguish the barriers and facilitators of professional resiliency in perinatal palliative care. PubMed, Medline, CINAHL, and EBSCO Psychology & Behavioral Sciences Collections were systematically reviewed. Because of the paucity of studies specific to perinatal palliative care, several interviews of nurses and physicians in that field were conducted and analyzed for content distinctly pertaining to personal practices or workplace factors that support or hinder professional resiliency. Results: The research indicated that medical professionals often cite a lack of knowledge, inexperience using effective communication skills related to perinatal palliative care and bereavement, challenges with interdisciplinary collaboration, misconceptions about the role and function of palliative care in the perinatal or neonatal settings, moral distress, and workload challenges as encumbrances to professional satisfaction. Strategic implementation of facility-wide bereavement care training, effective communication modalities, and evidenced-based practical applications are critical components for a thriving perinatal palliative care team. Authentic formal and informal debriefing, peer mentoring, adequate caseloads, robust provider self-care practices, exceptional relational efficacy, and cultural and spiritual humility can foster personal growth and even vicarious resilience for perinatal palliative care professionals. Conclusions: Support should be strategic and multifaceted. The onus to implement salient measures to cultivate resilience in the perinatal palliative caregiver should not be only upon the individuals themselves but also upon prevailing regulatory governing bodies and healthcare institutions.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.3389/fped.2020.572933" target="_blank" rel="noreferrer noopener">10.3389/fped.2020.572933</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Burnout
compassion
ethical
Fredenburg M
Frontiers in Pediatrics
Grauerholz KR
Grief
January 2021 List
Jenkins KN
Jones PT
Palliative
Perinatal
resiliency
self-care
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2016 List
Dublin Core
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Title
A name given to the resource
Identifying The Deliberate Prevention And Intervention
Strategies Of Pediatric Palliative Care Teams Supporting Providers During Times
Of Staff Distress.
Publisher
An entity responsible for making the resource available
Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Burnout; Framework; Moral Distress; Health Care Sciences & Services
Creator
An entity primarily responsible for making the resource
Jonas DF; Bogetz JF
Description
An account of the resource
BACKGROUND:
Pediatric palliative care focuses on caring for children who are seriously ill and their families. These children are often attended to by many other providers who face various challenges as they support these families. Issues involving staff distress are common. Although involving pediatric palliative care teams is recommended, little has been discussed in the literature about the roles and deliberate strategies that pediatric palliative care providers deploy when supporting staff.
OBJECTIVE:
This case description focuses on staff distress experienced by pediatric providers and aims to make specific recommendations regarding the ways in which pediatric palliative care teams can be helpful in supporting the needs of providers in these challenging care situations.
DESIGN:
Study and analysis of four pediatric palliative care cases from multidisciplinary perspectives.
CONCLUSIONS:
In challenging pediatric patient care situations, pediatric palliative care teams may be utilized to support providers when they experience staff distress. Techniques also used with patients, such as active listening and nonjudgmental validation, can be useful. Respecting each person's opinion, establishing goals of care and fostering open communication about the complexities of each child's case can be helpful to prevent burnout and job loss. By promoting understanding and open communication, providers can feel supported in caring for children with serious illnesses and their families.
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Bogetz JF
Burnout
Framework
Health Care Sciences & Services
Jonas DF
Journal of Palliative Medicine
May 2016 List
Moral Distress
-
Text
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<a href="http://doi.org/10.1097/NMC.0000000000000025" target="_blank" rel="noreferrer">http://doi.org/10.1097/NMC.0000000000000025</a>
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Title
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Impact of a pediatric quality of life program on providers' moral distress
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The American Journal Of Maternal Child Nursing
Date
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2014
Subject
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professional issues; Burnout; moral distress
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Brandon D; Ryan D; Sloane R; Docherty SL
Description
An account of the resource
PURPOSE: To evaluate the impact of the introduction of a new pediatric palliative care program on the pattern of moral distress in pediatric healthcare providers (HCPs). STUDY DESIGN AND METHODS: We used a before and after cross-sectional survey design to study the impact of the Pediatric Quality of Life (QoL) Program on the moral distress of pediatric HCPs at a single center. Moral distress is measured in both intensity and frequency. The sample came from lists of all pediatric providers (nurses, physicians, social workers, therapists, dieticians, chaplains, administrators) serving the inpatient and outpatient pediatric areas of a southeastern academic tertiary medical center. RESULTS: The intensity of moral distress from situations focused on "individual responsibility" and "not in the best interest of the patient" were similar before and after program implementation, but the intensity of distress related to "work quality of life" decreased after program implementation. Situations causing moral distress when the "care given was not in the patient's best interest" occurred less frequently after program implementation. Providers disagreed with statements that "work-related distress" impacted their personal or professional life. The number of providers who were considering leaving the institution within 6 months decreased following program implementation. CLINICAL IMPLICATIONS: After implementation of the Pediatric QoL Program, nurses and other providers encountered morally distressing situations less often. Providers also answered that they had greater comfort with and competence in providing care focused on patients' quality of life after completing the program. As palliative care programs include many activities that reduce moral distress, nurses should actively take advantage of participation in debriefing sessions and staff education to maximize their work quality of life.
2014-06
Identifier
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<a href="http://doi.org/10.1097/NMC.0000000000000025" target="_blank" rel="noreferrer">10.1097/NMC.0000000000000025</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2014
Backlog
Brandon D
Burnout
Docherty SL
Journal Article
Moral Distress
professional issues
Ryan D
Sloane R
The American Journal Of Maternal Child Nursing
-
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Title
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October 2020 List
Text
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Citation List Month
October 2020 List
URL Address
<a href="http://doi.org/10.1177/1049909120950301" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/1049909120950301</a>
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Title
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Impact of Caring for Terminally Ill Children on Physicians: A Systematic Scoping Review
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American Journal of Hospice and Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
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burnout; palliative care; pediatric; personhood; physicians; selfhood; terminal ill; the ring theory of personhood
Creator
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Ngiam L X L; Ong Y T; Ng J X; Kuek J T Y; Chia J L; Chan N P X; Ho C Y; Abdurrahman A; Kamal N H A; Cheong C W S; Ng C H; Tan X H; Tan L H E; Chin A M C; Mason S; Jumat M R; Chiam M; Krishna L K R
Description
An account of the resource
INTRODUCTION: Caring for terminally ill children influences nurses' and allied health provider's quality of life, ability to provide personalized, dignified and empathetic care and even their concepts of personhood. In the absence of data this review utilizes the Ring Theory of Personhood (RToP) to evaluate how a physician's concept of personhood is affected caring for terminally ill children in order to better support them holistically. METHODS: Using PRISMA Guidelines, 14 researchers carried out independent searches of PubMed, CINAHL, PsycINFO, Cochrane Library and gray literature databases for articles published between 2000 to 2019. Concurrent and independent employment of content and thematic analysis (Split Approach) was used to enhance the trustworthiness of the analysis. RESULTS: 13,424 titles and abstracts were retrieved, 188 full texts were evaluated, and 39 articles were included and analyzed. Identical categories and themes identified using the Split Approach suggest that caring for dying children in PPC impacts the physician's professional identity, clinical decision making, personal well-being and relationships. The data also suggests that the magnitude of these effects depends on the presence of protective and risk factors. CONCLUSION: Aside from providing a novel insight into the upon the physician, this review proffers a unique approach to accounting for the presence, magnitude and influence of incoming catalysts, resultant conflicts, and protective and risk factors upon the physician's personhood. Further studies into the changes in personhood are required. Design of a personalized assessment tool based on the RToP will help direct timely, appropriate and personalized support to these physicians.
Identifier
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<a href="http://doi.org/10.1177/1049909120950301" target="_blank" rel="noreferrer noopener">10.1177/1049909120950301</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Abdurrahman A
American Journal Of Hospice And Palliative Care
Burnout
Chan N P X
Cheong C W S
Chia J L
Chiam M
Chin A M C
Ho C Y
Jumat M R
Kamal N H A
Krishna L K R
Kuek J T Y
Mason S
Ng C H
Ng J X
Ngiam L X L
October 2020 List
Ong Y T
Palliative Care
Pediatric
Personhood
Physicians
selfhood
Tan L H E
Tan X H
terminal ill
the ring theory of personhood
-
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Title
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February 2022 List
Text
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Citation List Month
February 2022 List
URL Address
<a href="http://doi.org/10.1177/13591045211055565" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/13591045211055565</a>
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Title
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Implementation and evaluation of clinical supervision for support workers in a paediatric palliative care setting
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Clinical Child Psychology and Psychiatry
Date
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2021
Subject
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burnout; paediatric palliative care; health psychology; staff wellbeing; support worker; clinical supervision; Hca; peer supervision
Creator
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Beavis J; McKenzie S; Davis L; Ellison N
Description
An account of the resource
Support workers represent a large proportion of the NHS workforce and yet their supervisory needs are often overlooked. This study focused specifically on a cohort of support workers in a community paediatric palliative care setting. Peer supervision was implemented for this group, initially face to face and then virtually. The experiences of clinical supervision for this group were investigated through responses to an online survey (n = 25) and two focus groups (n = 7). Survey data were analysed concurrently with a thematic analysis. The following themes and sub-themes were developed from transcribed focus groups: (1) Barriers to engagement (2) Being Listened to (3) What Worked Well: Logistics. Overall, delivery of supervision was effective to a mixed degree - though support workers appreciated a space to be listened to, their distrust of colleagues and other barriers impeded the capacity of supervision to achieve more than support and catharsis for this group. Future projects should focus on introducing more preliminary interventions to promote reflection and peer support for these groups as well as continue to consider the supervisory needs of support workers.
Identifier
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<a href="http://doi.org/10.1177/13591045211055565" target="_blank" rel="noreferrer noopener">10.1177/13591045211055565</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Beavis J
Burnout
Clinical Child Psychology And Psychiatry
Clinical supervision
Davis L
Ellison N
February 2022 List
Hca
Health Psychology
McKenzie S
paediatric palliative care
peer supervision
staff wellbeing
support worker
-
Dublin Core
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Title
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March 2020 List
Text
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Citation List Month
March 2020 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2019.12.299" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2019.12.299</a>
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Title
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Key Findings of the Structures and Processes of Inpatient Pediatric Palliative Care Programs (S737)
Publisher
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Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
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burnout; child; clergy; conference abstract; controlled study; female; health care delivery; health care system; hospital patient; human; major clinical study; male; palliative therapy; physician; practice guideline; registered nurse; social worker
Creator
An entity primarily responsible for making the resource
Rogers M; Williams C; Klick J; Friebert S; Heitner R
Description
An account of the resource
Objectives: * Examine the key structures and processes of inpatient pediatric palliative care programs in the United States. * Assess the degree of variation in program delivery, staffing, and patient volumes. * Identify three threats and three opportunities to the standardization of pediatric palliative care practice. Original Research Background: Over the past ten years, health care systems have begun to recognize pediatric palliative care (PPC) programs as the standard of practice in providing high-quality care. Despite this culture shift, little is known about how PPC programs operate, the services they provide, or the staffing required to provide them sustainably. Research Objectives: To examine the key structures and processes of PPC programs.
Identifier
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<a href="http://doi.org/10.1016/j.jpainsymman.2019.12.299" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2019.12.299</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Burnout
Child
Clergy
conference abstract
Controlled Study
Female
Friebert S
Health Care Delivery
Health Care System
Heitner R
Hospital Patient
Human
Journal of Pain and Symptom Management
Klick J
Major Clinical Study
Male
March 2020 List
Palliative Therapy
Physician
Practice Guideline
registered nurse
Rogers M
Social Worker
Williams C
-
Dublin Core
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Title
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January 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January 2018 List
URL Address
<a href="http://doi.org/10.1097/PCC.0000000000001219" target="_blank" rel="noreferrer">http://doi.org/10.1097/PCC.0000000000001219</a>
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Title
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Moral distress in PICU and neonatal ICU practitioners: A cross-sectional evaluation
Publisher
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Pediatric Critical Care Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
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distress syndrome; health practitioner; morality; neonatal intensive care unit; pediatric intensive care unit; Adult; Article; burnout; correlation analysis; cross-sectional study; Demography; Female; Hospital care; Human; Intensive Care; linear regression analysis; major clinical study; Male; Maslach Burnout Inventory Depersonalization Subscale; Middle Aged; Mishel Parent Perception of Uncertainty Scale; nurse; outcome assessment; physician; priority journal; Prognosis; Questionnaire; Rating Scale; Revised Moral Distress Scale; Terminal Care; tertiary care center; Uncertainty; work; Young Adult
Creator
An entity primarily responsible for making the resource
Larson CP; Dryden-Palmer KD; Gibbons C; Parshuram CS
Description
An account of the resource
Objectives: To measure the level of moral distress in PICU and neonatal ICU health practitioners, and to describe the relationship of moral distress with demographic factors, burnout, and uncertainty. Design: Cross-sectional survey. Setting: A large pediatric tertiary care center. Subjects: Neonatal ICU and PICU health practitioners with at least 3 months of ICU experience. Interventions: A 41-item questionnaire examining moral distress, burnout, and uncertainty. Measurements and Main Results: The main outcome was moral distress measured with the Revised Moral Distress Scale. Secondary outcomes were frequency and intensity Revised Moral Distress Scale subscores, burnout measured with the Maslach Burnout Inventory depersonalization subscale, and uncertainty measured with questions adapted from Mishel's Parent Perception of Uncertainty Scale. Linear regression models were used to examine associations between participant characteristics and the measures of moral distress, burnout, and uncertainty. Two-hundred six analyzable surveys were returned. The median Revised Moral Distress Scale score was 96.5 (interquartile range, 69-133), and 58% of respondents reported significant work-related moral distress. Revised Moral Distress Scale items involving end-of-life care and communication scored highest. Moral distress was positively associated with burnout (r<sup>2</sup> = 0.27; p < 0.001) and uncertainty (r<sup>2</sup> = 0.04; p = 0.008) and inversely associated with perceived hospital supportiveness (r<sup>2</sup> = 0.18; p < 0.001). Nurses reported higher moral distress intensity than physicians (Revised Moral Distress Scale intensity subscores: 57.3 vs 44.7; p = 0.002). In nurses only, moral distress was positively associated with increasing years of ICU experience (p = 0.02) and uncertainty about whether their care was of benefit (r<sup>2</sup> = 0.11; p < 0.001) and inversely associated with uncertainty about a child's prognosis (r<sup>2</sup> = 0.03; p = 0.03). Conclusions: In this single-center, cross-sectional study, we found that moral distress is present in PICU and neonatal ICU health practitioners and is correlated with burnout, uncertainty, and feeling unsupported.
Identifier
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<a href="http://doi.org/10.1097/PCC.0000000000001219" target="_blank" rel="noreferrer">10.1097/PCC.0000000000001219</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Adult
Article
Burnout
Correlation Analysis
Cross-sectional Study
Demography
Distress Syndrome
Dryden-Palmer KD
Female
Gibbons C
health practitioner
Hospital care
Human
Intensive Care
January 2018 List
Larson CP
linear regression analysis
Major Clinical Study
Male
Maslach Burnout Inventory Depersonalization Subscale
Middle Aged
Mishel Parent Perception of Uncertainty Scale
Morality
Neonatal Intensive Care Unit
Nurse
outcome assessment
Parshuram CS
Pediatric Critical Care Medicine
Pediatric Intensive Care Unit
Physician
Priority Journal
Prognosis
Questionnaire
Rating Scale
Revised Moral Distress Scale
Terminal Care
tertiary care center
Uncertainty
Work
Young Adult
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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June 2018 List
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Text
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Citation List Month
June 2018 List
URL Address
<a href="http://doi.org/10.1136/archdischild-2018-rcpch.459" target="_blank" rel="noreferrer noopener">http://doi.org/10.1136/archdischild-2018-rcpch.459</a>
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Title
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Moral distress, trauma and burnout in staff in relation to changes in picu outcomes, challenging cases and media involvement in disagreements about end-of-life care
Publisher
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Archives of Disease in Childhood
Date
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2018
Subject
The topic of the resource
burnout; emotional stress; morality; posttraumatic stress disorder; staff; terminal care; adult; awareness; child; conference abstract; controlled study; court; death; depersonalization; disability; human; life sustaining treatment; nurse; questionnaire; wellbeing
Creator
An entity primarily responsible for making the resource
Colville G; Rutt M; Berger Z; Titman P; Brierley J
Description
An account of the resource
Background Technological advances have decreased PICU mortality but increased the number of children surviving with disability or technologically-dependent. Death in PICU most frequently follows withdrawal of life-sustaining therapy (LST), increasingly after prolonged admissions for invasive organ support. Disagreements with families about cessation of life-sustaining therapy (LST) can be protracted, distressing for everyone, harmful to the child and ultimately require court adjudication. Little is known about the impact of this, or of that of social/other media campaigns when families decides to involve the press, as is increasingly the case Method 50 staff (39 nurses; 9 doctors and 2 AHPs) were surveyed using the Moral Distress Scale-Revised (MD-R) ques-tionnaire; Trauma Screening Questionnaire (TSQ) and abbreviated Maslach Burnout Inventory (aMBI) together with several open-ended questions about their experiences and what they felt had been learned 3 months after the final court decision following one such high profile case. Results Mean moral distress score (MDS-R) was 96, consistent with recent Canadian multi-centre PICU study and higher than average Adult ICU scores (57-83 in the literature). Specifically, in relation to the recent high profile case 15% scored in the clinically significant range for post-traumatic stress symptoms (TSQ); a significant number reported a number of sub-clinical symptoms; 68% reported being 'upset by reminders of the event' and 53% reported 'heightened awareness of potential danger' to themselves and others at least twice in the previous week. Burnout symptoms (aMBI): 44% reported emotional exhaustion at a high level; 17% reported a high level of depersonalization. The 25% of staff considering leaving PICU reported higher burnout (emotional exhaustion) scores (p=0.001); higher post-traumatic stress scores (p=0.04) and were also less likely to feel supported in relation to moral distress (p=0.010). Conclusions These findings highlight the impact of changing PICU outcomes on staff, with increased survival of children with severe disability or technologically-dependent; and death following prolonged PICU admission sometimes after disagreements about cessation of LST, occasionally with public campaigns. They illustrate that the dimension of moral distress is one which needs to be acknowledged, along with burnout and post-traumatic stress² in a comprehensive assessment of staff well-being.
Identifier
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<a href="http://doi.org/10.1136/archdischild-2018-rcpch.459" target="_blank" rel="noreferrer noopener">10.1136/archdischild-2018-rcpch.459</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Adult
Archives of Disease in Childhood
Awareness
Berger Z
Brierley J
Burnout
Child
Colville G
conference abstract
Controlled Study
court
Death
depersonalization
Disability
Emotional Stress
Human
June 2018 List
Life Sustaining Treatment
Morality
Nurse
PostTraumatic Stress Disorder
Questionnaire
Rutt M
Staff
Terminal Care
Titman P
Wellbeing
-
Dublin Core
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Title
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2019 Oncology List
Text
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Citation List Month
Oncology 2019 List
URL Address
<a href="http://doi.org/10.2147/jhl.s172665" target="_blank" rel="noreferrer noopener">http://doi.org/10.2147/jhl.s172665</a>
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Title
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Needs analysis and development of a staff well-being program in a pediatric oncology, hematology, and palliative care services group
Publisher
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Journal of Healthcare Leadership
Date
A point or period of time associated with an event in the lifecycle of the resource
2018
Subject
The topic of the resource
burnout; resilience; self-care; staff well-being; vicarious trauma
Creator
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Slater P J; Edwards R M
Description
An account of the resource
Purpose: Around 170 multidisciplinary staff of the Oncology Services Group at Queensland Children's Hospital, Brisbane, care for children with oncology, hematology, and palliative care needs from throughout Queensland and northern New South Wales. A series of challenges impacted staff resilience and retention, and strategies were needed to improve staff well-being and enable them to flourish despite the inherent work stressors. Methods: A needs analysis was conducted using themes from Discovery Interviews with 51 staff, surveys related to "The Work Stressors Scale - Pediatric Oncology" and "The Work Rewards Scale - Pediatric Oncology" completed by 59 staff, and an organizational staff survey responded to by 51 staff. Results: The needs analysis informed the development of a customized Oncology Staff Well-being Program with a range of strategies aligned to a PERMA framework for flourishing (positive emotion, engagement, relationships, meaning, and accomplishment). Positive emotion areas included education on topics such as well-being, resilience, responding to escalating behaviors, grief and loss, and self-care. Staff attended the available mindfulness sessions, debriefing and counselors on site, developed self-care plans, and followed a well-being Facebook Group. Engagement was supported through exploring character strengths, improving communication, supporting innovation, and addressing frustrations and safety concerns. Relationships within the team were addressed through team building and social events. Meaning of the work was emphasized through sharing family updates and end of treatment celebrations. Accomplishments of staff were acknowledged in newsletters and meetings. Conclusion: The needs analysis drove a multifaceted approach to staff well-being with the development of strategies which aligned to a framework that would empower staff to flourish at work. Implementation and evaluation are ongoing and will be reported in a subsequent paper.
Identifier
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<a href="http://doi.org/10.2147/jhl.s172665" target="_blank" rel="noreferrer noopener">10.2147/jhl.s172665</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2018
Burnout
Edwards R M
Journal of Healthcare Leadership
Oncology 2019 List
Resilience
self-care
Slater P J
staff well-being
vicarious trauma
-
Dublin Core
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Title
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April 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April 2022 List
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2022.02.015" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.jpainsymman.2022.02.015</a>
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Title
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Pediatric Hospice and Palliative Care Services and Needs Across the Northwest United States
Publisher
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Journal of Pain and Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
burnout; coalition; complex care; hospice; palliative care; pediatric
Creator
An entity primarily responsible for making the resource
Bogetz JF; Anderson A; Holland M; Macauley R
Description
An account of the resource
CONTEXT: Given workforce and funding constraints, pediatric hospice and palliative care clinicians often find challenges providing services for seriously ill children and families, particularly in low resource and rural/remote areas. OBJECTIVES: To describe the services, training, and education needs of pediatric hospice and palliative care programs across the Northwest United States as part of the formation of a new regional coalition. METHODS: Electronic surveys were sent to pediatric hospice and palliative care clinicians through state organizations as part of an email invitation to join the Northwest Pediatric Palliative Care Coalition. Data were analyzed descriptively using univariate analysis. RESULTS: Sixty-six participants representing 37 unique programs responded from seven states, including Washington (41%, n=27), Oregon (38%, n=25), Idaho (11%, n=7), Alaska (5%, n=3), Montana (3%, n=2), Colorado (2%, n=1), and Nevada (2%, n=1). Programs provided pediatric hospice care (42%, n=33/78) and palliative care services (30%, n=26/86). Although 26% (n=15/58) had been providing pediatric hospice and palliative care for >20 years, 40% (n=21/53) reported only serving <5 pediatric patients per year. Specific services provided included pediatric bereavement support (16%, n=37/231), telehealth (14%, n=33/231), and respite (10%, n=23/231). Barriers occurring always, often, or sometimes included lack of trained staff (84%), financial support (59%), and access to home infusions (48%). From the coalition, participants prioritized education on parent/caregiver psychosocial support (40%, n=19), goals of care communication (44%, n=21), and symptom management (45%, n=21). CONCLUSIONS: Pediatric hospice and palliative care clinicians face numerous barriers and may benefit from a coalition that provides networking and tailored education. Key Message: This study provides the first multi-state analysis of pediatric hospice and palliative care services, training, staffing, and education needs among participants of the inaugural Northwest Pediatric Palliative Care Coalition.
Identifier
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<a href="http://doi.org/10.1016/j.jpainsymman.2022.02.015" target="_blank" rel="noreferrer noopener">10.1016/j.jpainsymman.2022.02.015</a>
2022
Anderson A
April 2022 List
Bogetz JF
Burnout
coalition
complex care
Holland M
Hospice
Journal of Pain and Symptom Management
Macauley R
Palliative Care
Pediatric
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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October 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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October 2019 List
URL Address
<a href="http://doi.org/10.1016/j.acap.2019.07.008" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.acap.2019.07.008</a>
Dublin Core
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Title
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Pediatric Resident Experience Caring for Children at the End of Life in a Children's Hospital
Publisher
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Academic pediatrics.
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
death; article; child; female; human; major clinical study; male; palliative therapy; retrospective study; controlled study; terminal care; resuscitation; education; medical record review; statistics; burnout; drug withdrawal; Burnout; End-of-Life Care; life sustaining treatment; Palliative Care; postgraduate student; resident; Resident Education
Creator
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Trowbridge A; Bamat T; Griffis H; McConathey E; Feudtner C; Walter J K
Description
An account of the resource
OBJECTIVES: Pediatric residents are expected to be competent in end of life (EOL) care. We aimed to quantify pediatric resident exposure to patient deaths, and the context of these exposures. METHOD(S): Retrospective chart review of all deceased patients at one children's hospital over three years collected patient demographics, time and location of death. Mode of death was determined after chart review. Each death was cross-referenced with pediatric resident call schedules to determine residents involved within 48 hours of death. Descriptive statistics are presented. RESULT(S): Of 579 patients who died during the study period, 46% had resident involvement. Most deaths occurred in the NICU (30% of all deaths) however, resident exposure to EOL care most commonly occurred in the PICU (52% of resident exposures) and were after withdrawals of life-sustaining therapy (41%), followed by non-escalation (31%) and failed resuscitation (15%). During their post-graduate year (PGY)-1, <1% of residents encountered a patient death. During PGY-2 and PGY-3, 96% and 78%, respectively, of residents encountered at least one death. During PGY-2, residents encountered a mean of 3.5 patient deaths (range 0-12); during PGY-3, residents encountered a mean of 1.4 deaths (range 0-5). Residents observed for their full 3-year residency encountered a mean of 5.6 deaths (range 2-10). CONCLUSION(S): Pediatric residents have limited but variable exposure to EOL care, with most exposures in the ICU after withdrawal of life-sustaining technology. Educators should consider how to optimize EOL education with limited clinical exposure, and design resident support and education with these variable exposures in mind. Copyright © 2019. Published by Elsevier Inc.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.acap.2019.07.008" target="_blank" rel="noreferrer noopener">10.1016/j.acap.2019.07.008</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Academic pediatrics.
Article
Bamat T
Burnout
Child
Controlled Study
Death
Drug Withdrawal
Education
End-of-life Care
Female
Feudtner C
Griffis H
Human
Life Sustaining Treatment
Major Clinical Study
Male
McConathey E
Medical Record Review
October 2019 List
Palliative Care
Palliative Therapy
postgraduate student
Resident
resident education
Resuscitation
Retrospective Study
Statistics
Terminal Care
Trowbridge A
Walter J K
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
January 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January 2020 List
URL Address
<a href="http://doi.org/10.1177/0269216319888986" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/0269216319888986</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Psychological support in end-of-life decision-making in neonatal intensive care units: Full population survey among neonatologists and neonatal nurses
Publisher
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Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
article; Belgium; burnout; controlled study; counseling; decision making; human; Likert scale; neonatal intensive care unit; neonatal nurse; neonatologist; newborn; perinatal death; questionnaire; terminal care
Creator
An entity primarily responsible for making the resource
Dombrecht L; Cohen J; Cools F; Deliens L; Goossens L; Naulaers G; Beernaert K; Chambaere K; Laroche S; Theyskens C; Vandeputte C; Cornette L; Van de Broek H
Description
An account of the resource
Background: Moral distress and burnout related to end-of-life decisions in neonates is common in neonatologists and nurses working in neonatal intensive care units. Attention to their emotional burden and psychological support in research is lacking. Aim: To evaluate perceived psychological support in relation to end-of-life decisions of neonatologists and nurses working in Flemish neonatal intensive care units and to analyse whether or not this support is sufficient. Design/participants: A self-administered questionnaire was sent to all neonatologists and neonatal nurses of all eight Flemish neonatal intensive care units (Belgium) in May 2017. The response rate was 63% (52/83) for neonatologists and 46% (250/527) for nurses. Respondents indicated their level of agreement (5-point Likert-type scale) with seven statements regarding psychological support. Results: About 70% of neonatologists and nurses reported experiencing more stress than normal when confronted with an end-of-life decision; 86% of neonatologists feel supported by their colleagues when they make end-of-life decisions, 45% of nurses feel that the treating physician listens to their opinion when end-of-life decisions are made. About 60% of both neonatologists and nurses would like more psychological support offered by their department when confronted with end-of-life decisions, and 41% of neonatologists and 50% of nurses stated they did not have enough psychological support from their department when a patient died. Demographic groups did not differ in terms of perceived lack of sufficient support. Conclusion: Even though neonatal intensive care unit colleagues generally support each other in difficult end-of-life decisions, the psychological support provided by their department is currently not sufficient. Professional ad hoc counselling or standard debriefings could substantially improve this perceived lack of support.
Identifier
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<a href="http://doi.org/10.1177/0269216319888986" target="_blank" rel="noreferrer noopener">10.1177/0269216319888986</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Article
Beernaert K
Belgium
Burnout
Chambaere K
Cohen J
Controlled Study
Cools F
Cornette L
Counseling
Decision Making
Deliens L
Dombrecht L
Goossens L
Human
January 2020 List
Laroche S
Likert scale
Naulaers G
Neonatal Intensive Care Unit
Neonatal Nurse
Neonatologist
Newborn
Palliative Medicine
Perinatal Death
Questionnaire
Terminal Care
Theyskens C
Van de Broek H
Vandeputte C
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
March 2024 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March List 2024
URL Address
<a href="http://doi.org/10.1017/S1478951523001852" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1017/S1478951523001852</a>
Dublin Core
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Title
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Reiki intervention for supporting healthcare professional care behaviors in pediatric palliative care: A pilot study
Publisher
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Palliative and Supportive Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
burnout; care behavior; health care personnel; palliative therapy; psychologist; Reiki; alternative medicine; article; child; child psychology; clinical practice; clinical psychology; controlled study; diastolic blood pressure; emotional stress; heart rate; human; Italy; nurse; oxygen saturation; Palliative Care; Pilot Projects; pilot study; self care; special situation for pharmacovigilance; systolic blood pressure; work environment; workplace
Creator
An entity primarily responsible for making the resource
Zucchetti G; Ciappina S; Bottigelli C; Campione G; Parrinello A; Piu P; Lijoi S; Quarello P; Fagioli F
Description
An account of the resource
OBJECTIVES: Pediatric healthcare professionals (HCPs) working in a palliative setting may experience challenges during their clinical practice in addressing the complex end-of-life phase of children and their families. Nurses, especially, have a frontline role in providing assistance, thereby becoming at risk of physical and psychological burden. Pediatric psychologists have an ethical responsibility to help colleagues by proposing self-care interventions that will improve their well-being and, indirectly, the work climate. This study investigated the impact of a complementary therapy, delivered by a pediatric psychologist and a nurse, on physical and psychological variables among nurses at the Paediatric Hospice of the Regina Margherita Children's Hospital in Italy. <br/>METHOD(S): Thirty-five nurses participated in 5 weeks of Reiki sessions for an overall total of 175 sessions. The effect of the sessions was analyzed through a paired t-test analysis comparing the values of heart rate, oxygen saturation, and systolic and diastolic pressure collected before and after each session. The same test was conducted comparing the values of the 3 burnout subscales for each of the 35 nurses collected before the beginning of the first session with those collected at the end of the last session 2 months later. <br/>RESULT(S): Results underlined a positive short-term effect with a significant decrease in heart rate before and after each session (t = 11.5, p < .001) and in systolic pressure (t = 2, p < .05). In addition, a decrease in emotional exhaustion symptoms was found (t = 2.3, p < .05) at the end of the intervention. SIGNIFICANCE OF RESULTS: Reiki could be a valid strategy to complement traditional pediatric psychology clinical practice designed to protect HCPs from emotional and physical demands and to create a more supportive workplace for staff and patients alike.
Identifier
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<a href="http://doi.org/10.1017/S1478951523001852" target="_blank" rel="noreferrer noopener">10.1017/S1478951523001852</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
alternative medicine
Article
Bottigelli C
Burnout
Campione G
care behavior
Child
Child Psychology
Ciappina S
Clinical Practice
clinical psychology
Controlled Study
diastolic blood pressure
Emotional Stress
Fagioli F
Health Care Personnel
Heart Rate
Human
Italy
Lijoi S
March List 2024
Nurse
oxygen saturation
Palliative And Supportive Care
Palliative Care
Palliative Therapy
Parrinello A
Pilot Projects
Pilot Study
Piu P
Psychologist
Quarello P
Reiki
Self Care
special situation for pharmacovigilance
systolic blood pressure
work environment
Workplace
Zucchetti G
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
November 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
November 2022 List
URL Address
<a href="http://doi.org/10.1016/j.spp.2022.06.010" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1016/j.spp.2022.06.010</a>
Dublin Core
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Title
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Supporting the Suffering of Caregivers in Neonatal Palliative Care [French]
Publisher
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Soins, Pediatrie, Puericulture
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
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Burnout; caregiver; Child; Human; Newborn; Palliative Therapy
Creator
An entity primarily responsible for making the resource
Merger F; Hamon I
Identifier
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<a href="http://doi.org/10.1016/j.spp.2022.06.010" target="_blank" rel="noreferrer noopener">10.1016/j.spp.2022.06.010</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Description
An account of the resource
Supporting the suffering of caregivers in neonatal palliative care
Accompanying newborns in palliative care remains difficult for professionals. Representations, fears and real difficulties are all factors that put them to the test. Supervision in conjunction with a pediatric palliative care resource team could be an effective way to prevent burnout and improve the quality of care.
Résumé - L’accompagnement de nouveau-nés en soins palliatifs reste difficile pour les professionnels
Les représentations, les peurs et les difficultés réelles sont autant de facteurs les mettant à l’épreuve z Une supervision en lien avec une équipe ressource de soins palliatifs pédiatriques pourrait constituer un moyen efficace pour prévenir l’épuisement professionnel et améliorer la qualité du soin.
Child
Newborn
2022
Burnout
Caregiver
Hamon I
Human
Merger F
November 2022 List
Palliative Therapy
Soins. Pediatrie, Puericulture
-
Dublin Core
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Title
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August 2022 List
Text
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Citation List Month
August 2022 List
URL Address
<a href="http://doi.org/10.3390/children9050642" target="_blank" rel="noreferrer noopener">http://doi.org/10.3390/children9050642</a>
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The COVID-19 Pandemic: Early Ripple Effects in Pediatric Palliative Care
Publisher
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Children (Basel)
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
pediatric; burnout; resilience; pediatric palliative care; Covid-19; SARS-CoV-2; global
Creator
An entity primarily responsible for making the resource
Bustamante LM; Okhuysen-Cawley R; Downing J; Connor SR; Muckaden MA; Phillips M; Icaza A; Garzon N; Nakashima Y; Morgan K; Mauser D; Grunauer M
Description
An account of the resource
Palliative care, which aims to provide comprehensive, interdisciplinary, holistic care to children, adolescents and adults with life-threatening, and ultimately life-limiting conditions, is a discipline that has emerged as an integral component of healthcare systems throughout the world. Although the value of life-affirming palliative care (PC) has been shown across many domains, funding and acceptance of palliative care teams have been variable: some hospital systems have free-standing, dedicated interdisciplinary teams while, in many instances, palliative care services are provided "pro bono" by individuals with a special interest in the discipline, who provide PC in addition to other responsibilities. In this article, we hope to highlight some of the observations on the early effects of the COVID-19 pandemic on the provision of PC in children.
Identifier
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<a href="http://doi.org/10.3390/children9050642" target="_blank" rel="noreferrer noopener">10.3390/children9050642</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
August 2022 List
Burnout
Bustamante LM
Children (Basel)
Connor SR
COVID-19
Downing J
Garzon N
global
Grunauer M
Icaza A
Mauser D
Morgan K
Muckaden MA
Nakashima Y
Okhuysen-Cawley R
Pediatric
Pediatric Palliative Care
Phillips M
Resilience
SARS-CoV-2
-
Dublin Core
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Title
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July 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
July List 2023
URL Address
<a href="http://doi.org/10.3390/children10040700" target="_blank" rel="noreferrer noopener"> http://doi.org/10.3390/children10040700</a>
Dublin Core
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Title
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The Emotional Experience of Caring for Children in Pediatric Palliative Care: A Qualitative Study among a Home-Based Interdisciplinary Care Team
Publisher
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Children
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
care behavior; emotion; palliative therapy; pediatrics; adult; article; burnout; case study; child; child death; collaborative care team; emotional stress; Emotions; female; health personnel attitude; home care; human; job satisfaction; male; Palliative Care; qualitative research; satisfaction; semi structured interview; thematic analysis
Creator
An entity primarily responsible for making the resource
Rico-Mena P; Gueita-Rodriguez J; Martino-Alba R; Castel-Sanchez M; Palacios-Cena D
Description
An account of the resource
The healthcare providers caring for children with life-threatening illnesses experience considerable compassion fatigue. The purpose of this study was to describe the feelings and emotions of professionals working in an interdisciplinary pediatric palliative home care team. A qualitative case study was conducted, comprising 18 participants. A purposeful sampling technique approach was used including the home-based interdisciplinary pediatric palliative team. Data were collected via semi-structured interviews and researchers' field notes. A thematic analysis was performed. Two themes emerged: (a) changing life for the better, which described how professionals value life more and helping children and families provides compassion satisfaction, which is comforting and explains their dedication to care; (b) adverse effects of work highlighted the emotional burden of caring for children with life-limiting or life-threatening illnesses, which can affect their job satisfaction and may lead to burnout, showing how experiencing in-hospital child deaths with suffering leads professionals to develop an interest in specializing in pediatric palliative care. Our study provides information on possible causes of emotional distress in professionals caring for children with life-threatening illnesses and highlights strategies that can help them to reduce their distress.Copyright © 2023 by the authors.
Identifier
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<a href="http://doi.org/10.3390/children10040700" target="_blank" rel="noreferrer noopener">10.3390/children10040700</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Adult
Article
Burnout
care behavior
Case Study
Castel-Sanchez M
Child
Child Death
Children
collaborative care team
Emotion
Emotional Stress
Emotions
Female
Gueita-Rodriguez J
Health Personnel Attitude
Home Care
Human
Job Satisfaction
July List 2023
Male
Martino-Alba R
Palacios-Cena D
Palliative Care
Palliative Therapy
Pediatrics
Qualitative Research
Rico-Mena P
Satisfaction
Semi Structured Interview
Thematic Analysis
-
Dublin Core
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Title
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August 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2022 List
URL Address
<a href="http://doi.org/10.1177/00099228221099135" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/00099228221099135</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The Impact of Caring for Children With Severe Neurological Impairment on Clinicians
Publisher
An entity responsible for making the resource available
Clinical Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
pediatric; palliative care; education; disability; burnout; workforce
Creator
An entity primarily responsible for making the resource
Bogetz JF; Trowbridge A; Jonas D; Root MC; Mullin J; Hauer J
Description
An account of the resource
Clinicians face many challenges in caring for children with severe neurological impairment (SNI). This study aimed to understand expert clinician perspectives on the personal impact of caring for children with SNI to highlight the challenges and potential solutions by underscoring the aspects of care that can be sustaining. Twenty-five clinicians participated including physicians (n = 8, 32%), social workers (n = 5, 20%), nurses/nurse practitioners (n = 5, 20%), case managers (n = 3, 12%), developmental therapists (n = 2, 8%), and other psychosocial clinicians (n = 2, 8%). Clinicians represented a variety of specialties including complex care/hospitalists (n = 10, 19%), palliative care (n = 7, 13%), and critical care (n = 6, 12%). Thematic content analysis revealed 3 major themes: (1) worries and challenges; (2) positive impact from being present; and (3) personal growth and meaning-making. Many clinicians described the ways listening, examining biases, learning about family perspectives, and normalizing the need for emotional processing helped them to understand their patients, families, and themselves more deeply.
Identifier
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<a href="http://doi.org/10.1177/00099228221099135" target="_blank" rel="noreferrer noopener">10.1177/00099228221099135</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
August 2022 List
Bogetz JF
Burnout
Clinical Pediatrics
Disability
Education
Hauer J
Jonas D
Mullin J
Palliative Care
Pediatric
Root MC
Trowbridge A
workforce
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/ANC.0000000000000100" target="_blank" rel="noreferrer">http://doi.org/10.1097/ANC.0000000000000100</a>
Dublin Core
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Title
A name given to the resource
The relationship between providing neonatal palliative care and nurses' moral distress: an integrative review
Publisher
An entity responsible for making the resource available
Advances In Neonatal Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
Nursing Staff; neonatal intensive care; Burnout; moral distress; review
Creator
An entity primarily responsible for making the resource
Cavinder C
Description
An account of the resource
Moral distress has been identified in multiple clinical settings especially in critical care areas. The neonatal intensive care unit (NICU) has frequent situations in which moral distress may occur including providing palliative care. The purpose of this integrative review was to determine the relationship between the provision of palliative care in a NICU and nurses' moral distress. The evidence reviewed supports that moral distress does occur with the provision of neonatal palliative care. An interdisciplinary care team, an established protocol, and educational interventions may decrease moral distress in nurses providing end-of-life care to infants in the NICU.
2014-10
Identifier
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<a href="http://doi.org/10.1097/ANC.0000000000000100" target="_blank" rel="noreferrer">10.1097/ANC.0000000000000100</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Advances in Neonatal Care
Backlog
Burnout
Cavinder C
Journal Article
Moral Distress
neonatal intensive care
Nursing Staff
Review
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
June 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
June 2022 List
URL Address
<a href="http://doi.org/10.1089/jpm.2022.0050" target="_blank" rel="noreferrer noopener">http://doi.org/10.1089/jpm.2022.0050</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Vulnerability of Inexperience: A Qualitative Exploration of Physician Grief and Coping after Impactful Pediatric Patient Deaths
Publisher
An entity responsible for making the resource available
Journal of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
Burnout; Communication; Critical Care; End-of-life care; Professional; Psychological; Qualitative research; Stress
Creator
An entity primarily responsible for making the resource
Wolfe AHJ; Hinds PS; Arnold RM; Soghier L; Tompkins R
Description
An account of the resource
Background: Caring for dying patients can result in burnout, stress, and emotional trauma for some physicians,1,2 particularly among trainees. Research is lacking that focuses on the emotional impact and coping techniques utilized by novice and experienced pediatricians after impactful pediatric patient deaths. Objective(s): To define the salient features of an impactful pediatric patient death and physicians' grief and coping responses. As a secondary aim, we explored the cognitive and emotional training physicians described as helpful or would be helpful when coping after impactful patient deaths. Design(s): We conducted a prospective qualitative study using semistructured interviews and applied descriptive thematic content analysis to the transcribed interviews. Setting/Subjects: We enrolled pediatric intensive care unit trainees and attendings in a single United States institution over a six-month period from January 2021 to June 2021. Result(s): Both trainee and attending physicians were most impacted by acute or unexpected patient deaths. Trainees were particularly impacted by their first or early career patient deaths. Both groups found talking about the death of a patient the most helpful coping mechanism. Attending physicians coped with positive reframing, whereas novices more frequently utilized avoidance, numbing, and rumination. The importance of experienced physician's role modeling vulnerability and supporting trainee growth rather than "getting it right" were highlighted as trainee coping gaps. Conclusion(s): Novice physicians are particularly vulnerable to acute stress after the death of a patient and require additional coping resources and supports. Future projects should explore the impact of teaching emotion-focused coping techniques on trainee resiliency and coping after early career patient deaths.
Identifier
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<a href="http://doi.org/10.1089/jpm.2022.0050" target="_blank" rel="noreferrer noopener">10.1089/jpm.2022.0050</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
April 2022 List
Arnold RM
Burnout
Communication
Critical Care
End-of-life Care
Hinds PS
Journal of Palliative Medicine
Professional
Psychological
Qualitative Research
Soghier L
Stress
Tompkins R
Wolfe AHJ
-
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May 2022 List
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Citation List Month
May 2022 List
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<a href="http://doi.org/10.1089/jpm.2022.0050" target="_blank" rel="noreferrer noopener">http://doi.org/10.1089/jpm.2022.0050</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Vulnerability of Inexperience: A Qualitative Exploration of Physician Grief and Coping after Impactful Pediatric Patient Deaths
Publisher
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Journal of Palliative Medicine
Date
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2022
Subject
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burnout; communication; critical care; end-of-life care; professional; psychological; qualitative research; stress
Creator
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Wolfe AHJ; Hinds PS; Arnold RM; Soghier L; Tompkins R
Description
An account of the resource
Background: Caring for dying patients can result in burnout, stress, and emotional trauma for some physicians,1,2 particularly among trainees. Research is lacking that focuses on the emotional impact and coping techniques utilized by novice and experienced pediatricians after impactful pediatric patient deaths. Objectives: To define the salient features of an impactful pediatric patient death and physicians' grief and coping responses. As a secondary aim, we explored the cognitive and emotional training physicians described as helpful or would be helpful when coping after impactful patient deaths. Design: We conducted a prospective qualitative study using semistructured interviews and applied descriptive thematic content analysis to the transcribed interviews. Setting/Subjects: We enrolled pediatric intensive care unit trainees and attendings in a single United States institution over a six-month period from January 2021 to June 2021. Results: Both trainee and attending physicians were most impacted by acute or unexpected patient deaths. Trainees were particularly impacted by their first or early career patient deaths. Both groups found talking about the death of a patient the most helpful coping mechanism. Attending physicians coped with positive reframing, whereas novices more frequently utilized avoidance, numbing, and rumination. The importance of experienced physician's role modeling vulnerability and supporting trainee growth rather than “getting it right” were highlighted as trainee coping gaps. Conclusions: Novice physicians are particularly vulnerable to acute stress after the death of a patient and require additional coping resources and supports. Future projects should explore the impact of teaching emotion-focused coping techniques on trainee resiliency and coping after early career patient deaths.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/jpm.2022.0050" target="_blank" rel="noreferrer noopener">10.1089/jpm.2022.0050</a>
2022
Arnold RM
Burnout
Communication
Critical Care
End-of-life Care
Hinds PS
Journal of Palliative Medicine
May 2022 List
Professional
Psychological
Qualitative Research
Soghier L
Stress
Tompkins R
Wolfe AHJ