1
40
1
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
January 2021 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January 2021 List
URL Address
<a href="http://doi.org/10.1111/sjop.12690" target="_blank" rel="noreferrer noopener">http://doi.org/10.1111/sjop.12690</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Enhancing the care of children with chronic diseases through the narratives of patient, physician, nurse and carer
Publisher
An entity responsible for making the resource available
Scandinavian Journal of Psychology
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
children; chronic disease; qualitative research; bio-psycho-social model; Narrative medicine
Creator
An entity primarily responsible for making the resource
Continisio GI; Nunziata F; Coppola C; Bruzzese D; Spagnuolo MI; Guarino A
Description
An account of the resource
We tested the hypothesis that a narrative approach may enhance a bio-psycho-social model (BPS) in caring for chronically ill children. Forty-eight narratives were collected from 12 children with six different medical conditions, their mothers, physicians, and nurses. By a textual analysis, narratives were classified on their predominant focus as disease (biological focus), illness (psychologic focus), or sickness (social focus). Sixty-one percent of narrative' text were classified as illness, 28% as disease and 11% as sickness. All narratives had a degree of illness focus. Narratives by patients and physicians on the one hand, and nurses' and mothers' on the other were disease focused. Narratives were also evaluated with respect to the type of medical condition: Illness was largely prevalent in all but Crohn's disease and HIV infection, the latter having a predominance of sickness most probably related to stigma. Narrative exploration proved a valuable tool for understanding and addressing the needs of children with complex conditions. Narrative approaches allow identification of the major needs of different patients according to health conditions and story tellers. In the narratives, we found a greater illness and disease focus and surprisingly a low sickness focus, except with HIV stories. Narrative medicine provides a tool to strengthen the BPS model in health care.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/sjop.12690" target="_blank" rel="noreferrer noopener">10.1111/sjop.12690</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
bio-psycho-social model
Bruzzese D
Children
Chronic Disease
Continisio GI
Coppola C
Guarino A
January 2021 List
narrative medicine
Nunziata F
Qualitative Research
Scandinavian Journal Of Psychology
Spagnuolo MI