1 40 1 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource August 2020 List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month August 2020 List URL Address <a href="http://doi.org/10.1177/1049909120928280" target="_blank" rel="noreferrer noopener">http://doi.org/​10.1177/1049909120928280</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Pediatric Cardiac Critical Care Transport and Palliative Care: A Case Series Publisher An entity responsible for making the resource available The American journal of hospice & palliative care Date A point or period of time associated with an event in the lifecycle of the resource 2020 Subject The topic of the resource hospice; pediatrics; palliative medicine; congenital heart disease; heart surgery; heart failure Creator An entity primarily responsible for making the resource Garcia X; Frazier E; Kane J; Jones A; Brown C; Bryant T; Prodhan P Description An account of the resource OBJECTIVE: To present our center's experience with terminal extubation in 3 palliative critical care home transports from the Pediatric Cardiac Intensive Unit. DESIGN: All cases were identified from our Cardiovascular intensive care unit ( CVICU). Patients were terminally ill children with no other surgical or medical option who were transported home between 2014 and 2018, for terminal extubation and end-of-life care according to their families' wishes. INTERVENTIONS: The patients were 7, 9 months, and 19 years; and they had very complex and chronic conditions. The families were approached by the CVICU staff during multidisciplinary meetings, where goals of care were established. Parental expectations were clarified, and palliative care team was involved, as well as home hospice was arranged pre transfer. The transfer process was discussed and all the needs were established. All patients had unstable medical conditions, with needs for transport for withdrawal of life support and death at home. Each case needed a highly trained team to support life while in transport. The need of these patients required coordination with home palliative care services, as well as community resources due to difficulty to get in their homes. CONCLUSION(S): Transportation of pediatric cardiac critical care patients for terminal extubation at home is a relatively infrequent practice. It is a feasible alternative for families seeking out of the hospital end-of-life care for their critically ill and technology dependent children. Our single-center experience supports the need for development of formal programs for end-of-life critical care transports. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1177/1049909120928280" target="_blank" rel="noreferrer noopener">10.1177/1049909120928280</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2020 August 2020 List Brown C Bryant T Congenital Heart Disease Frazier E Garcia X Heart Failure heart surgery Hospice Jones A Kane J Palliative Medicine Pediatrics Prodhan P The American Journal of Hospice & Palliative Care