1
40
3
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/0269216314521852" target="_blank" rel="noreferrer">http://doi.org/10.1177/0269216314521852</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Prognostic indicators for children and young people at the end of life: A Delphi study
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
The topic of the resource
Prognosis; Delphi Technique
Creator
An entity primarily responsible for making the resource
Shaw KL; Brook L; Cuddeford L; Fitzmaurice N; Thomas C; Thompson A; Wallis M
Description
An account of the resource
BACKGROUND: Recognizing transitions in end of life care for children is difficult and hinders communication and care planning. AIM: To identify the signs and symptoms that are most useful in signalling which children may have end of life care needs. METHODS: A Delphi study was undertaken with palliative care professionals who rated the extent to which 75 symptoms alerted them that a child/young person may have moved into his or her last (a) weeks/days, (b) 6-12 months of life using a 7-point response scale. Level of support for items was indicated by the median, and consensus was shown by the mean absolute deviation from the median. The impact of the Delphi on final agreement and consensus was also assessed. RESULTS: Second-round questionnaires were completed by 49 (89%) individuals. It was easier to identify prognostic items in the last weeks/days than earlier in the end of life trajectory. Items most indicative included failure of physiological systems, deteriorating level of consciousness, loss of autonomic control (e.g. breathing and peripheral circulation), together with a feeling of the professional that life is ending and an agreement that resuscitation would be futile. Items most indicative of last 6/12 months suggest a progressive decline in disease trajectory, increased chest infections or other complications from which the child has difficulty in making a full recovery and which may require high dependency or critical care. CONCLUSION: This study provides important insight into which signs and symptoms are considered most valuable in identifying children approaching the end of the life.
2014-02
Identifier
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<a href="http://doi.org/10.1177/0269216314521852" target="_blank" rel="noreferrer">10.1177/0269216314521852</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Backlog
Brook L
Cuddeford L
Delphi Technique
Fitzmaurice N
Journal Article
Palliative Medicine
Prognosis
Shaw KL
Thomas C
Thompson A
Wallis M
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1136/adc.2007.127332" target="_blank" rel="noreferrer">http://doi.org/10.1136/adc.2007.127332</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Predicting death in children
Publisher
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Archives Of Disease In Childhood
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Child; Female; Humans; Male; Terminally Ill; Attitude to Death; Preschool; Parents/psychology; Life Expectancy; Palliative Care/methods/standards; Professional-Family Relations/ethics
Creator
An entity primarily responsible for making the resource
Brook L; Hain R
Description
An account of the resource
Rarely do paediatric palliative medicine physicians have to break the news of a diagnosis of a life-limiting condition. It is much commoner for us to be faced with the question: "how long?". This cannot be answered with certainty, and yet a great deal may depend on it. While palliative care should ideally be available from diagnosis, the need for "active" practical palliative care intervention will fluctuate during the course of a child's illness, often over months or years, sometimes decades. Typically, there will be several periods during which death seems likely before the final terminal episode, particularly among children with non-malignant life-limiting condition. Optimal management of all episodes depends on anticipating the child's needs, which in turn depends on recognising that such an episode has begun. Providing adequate palliative care critically depends on making a diagnosis of dying. In this article, we will consider why it is important to make a diagnosis of dying, briefly review some of the helpful tools available, and examine some of the evidence from published literature in children and adults.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/adc.2007.127332" target="_blank" rel="noreferrer">10.1136/adc.2007.127332</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Archives of Disease in Childhood
Attitude To Death
Backlog
Brook L
Child
Female
Hain R
Humans
Journal Article
Life Expectancy
Male
Palliative Care/methods/standards
Parents/psychology
Preschool
Professional-Family Relations/ethics
Terminally Ill
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16518947" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16518947</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Developing the Liverpool Care Pathway for the dying child
Publisher
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Paediatric Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Humans; England; Health Services Needs and Demand; Pilot Projects; Nurse's Role; Evidence-Based Medicine; Nursing Assessment; Nursing Evaluation Research; Benchmarking; adolescent; Preschool; PedPal Lit; infant; Practice Guidelines; retrospective studies; Documentation/standards; Patient Care Team/organization & administration; Outcome and Process Assessment (Health Care)/organization & administration; Nursing Audit; Palliative Care/organization & administration; Pediatric Nursing/organization & administration; Critical Pathways/organization & administration; Nursing Records/standards; Total Quality Management/organization & administration
Creator
An entity primarily responsible for making the resource
Matthews K; Gambles M; Ellershaw JE; Brook L; Williams M; Hodgson A; Barber M
Description
An account of the resource
In most western societies the death of a child is a rare occurrence. When it does occur, it typically takes place after a period of intensive and often prolonged treatment. In light of the relative infrequency of these events in clinical practice, ensuring that all dying children and their families receive consistent and appropriate care remains a challenge. A retrospective audit of documentation of care for dying children in two paediatric units in the north-west of England illustrated that the care provided was not always documented consistently. This paper highlights work currently underway to develop an integrated care pathway for the care of the dying child based on the Liverpool Care Pathway (LCP). The aim of this work is to facilitate the delivery and recording of optimum care for all dying children and their families.
2006
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adolescent
Backlog
Barber M
Benchmarking
Brook L
Child
Critical Pathways/organization & administration
Documentation/standards
Ellershaw JE
England
Evidence-based Medicine
Gambles M
Health Services Needs And Demand
Hodgson A
Humans
Infant
Journal Article
Matthews K
Nurse's Role
Nursing Assessment
Nursing Audit
Nursing Evaluation Research
Nursing Records/standards
Outcome and Process Assessment (Health Care)/organization & administration
Paediatric Nursing
Palliative Care/organization & Administration
Patient Care Team/organization & administration
Pediatric Nursing/organization & administration
PedPal Lit
Pilot Projects
Practice Guidelines
Preschool
Retrospective Studies
Total Quality Management/organization & administration
Williams M