Faith-sensitive end of life care for children, young people and their families
Young people; End of life care; Faith; Faith-sensitive end of life care; Personal belief; Young people and end of life care
This article is part of an at a glance series on palliation and end of life care in paediatrics and focuses on the provision of faith-sensitive end of life care. Particular religions are discussed, with some key points for care of patients from some of the most prevalent religions within the UK. This article is intended to give points for discussion and consideration, but health professionals are encouraged to speak to every patient and family on an individual level to ensure an understanding of their personal beliefs. Although there is a range of literature discussing faith during end-of-life care, there is litte that outlines the practical specifics and for this reason some of the supporting literature in this article is dated and, where possible, this has been supported with contemporary sources.
Camara C; Rosengarten L
British Journal of Nursing
2021
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.12968/bjon.2021.30.5.276" target="_blank" rel="noreferrer noopener">10.12968/bjon.2021.30.5.276</a>
End-of-life care in paediatrics
bereavement; child; Hospice and Palliative Nursing; Patient care -- In Infancy and Childhood; pediatric nursing -- Education; psychosocial support
The article provide information on end-of-life care in paediatrics, including the signs that death is imminent, how to manage the care of a dying child or young person and support their family, and how to care for the patient after death. Topics include caring for a child or young person at the end of their life is emotionally challenging and traumatic experiences in practice; and manage unpleasant symptoms, an advance care plan should be developed as soon as this is clinically indicated.
Rosengarten L; Carr E
British Journal of Nursing
2020
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.12968/bjon.2020.29.19.1114" target="_blank" rel="noreferrer noopener">10.12968/bjon.2020.29.19.1114</a>
Assessment of pain in children with brain injury: moving to best practice
Nurses are guided to use pain tools for assessing pain. Appropriate tools exist for all ages of children, as well as accounting for diverse communicative abilities and impairments such as brain injury. Use of pain tools, and good documentation of pain management, is part of providing best practice, high-quality care. Clinical audit, based on compliance with the Royal College of Nursing guideline for pain assessment, measured current and changing practice at a 70-bed national specialist centre for children with brain injury. Compliance was initially poor. Changes in practice were supported by evidence-based measures, including a written guideline, classroom teaching, visits to practice areas, sharing of audit results, reminders and a special interest group. Over 3 years, the audits showed an increase of child-specific pain tools available in children's care files from 9% to 83%; assessment of pain using a pain tool, when indicated, increased from 0 to 30%. Documentation of interventions to relieve pain increased from 51% to 80% and reassessment of pain following an intervention increased from 15% to 63%. This article will resonate with any organisation trying to embed systematic pain assessment into routine practice.
2014-09
Nissen S; Dunford C
British Journal Of Nursing
2014
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.12968/bjon.2014.23.17.930" target="_blank" rel="noreferrer">10.12968/bjon.2014.23.17.930</a>
Rights of the child: to die?
Child; Humans; Terminally Ill; Euthanasia; Child Advocacy; Europe; Patient Rights
The legal position of the child as a vulnerable individual requires us as a society to treat them with special consideration in regard to the sanctity of life. In UK law, euthanasia is currently illegal, although there are some moves afoot to have this changed for those who have reached majority (18 years of age in the UK).
2014-04
Gormley-Fleming Liz; Campbell A
British Journal Of Nursing
2014
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.12968/bjon.2014.23.6.302" target="_blank" rel="noreferrer">10.12968/bjon.2014.23.6.302</a>
Removal, retention and storage of organs and tissue in the UK
PedPal Lit; Autopsy/legislation & jurisprudence Child Female Fetal Tissue Transplantation/legislation & jurisprudence Great Britain Hospitals; Hospital/legislation & jurisprudence Professional Misconduct/legislation & jurisprudence Tissue Donors/legislation & jurisprudence Tissue and Organ Procurement/legislation & jurisprudence; Public Humans Infant Parental Consent/legislation & jurisprudence Pathology Department
2005
Dimond B
British Journal Of Nursing
2005
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.12968/bjon.2005.14.2.17440" target="_blank" rel="noreferrer">10.12968/bjon.2005.14.2.17440</a>
Issues of patient consent: a study of paediatric high-dependency care
Child; Humans; Intensive Care Units; Great Britain; Professional Patient Relationship; Ethics Committees; ICU Decision Making; Biomedical and Behavioral Research; Pediatric/legislation & jurisprudence; Access to Information/legislation & jurisprudence; Child Advocacy/legislation & jurisprudence; Computer Security/legislation & jurisprudence; Confidentiality/legislation & jurisprudence; Data Collection/legislation & jurisprudence; Health Services Research/legislation & jurisprudence; Informed Consent/legislation & jurisprudence; Nursing Research/legislation & jurisprudence; Patient Identification Systems/legislation & jurisprudence; Patient Rights/legislation & jurisprudence; Presumed Consent/legislation & jurisprudence; Research/legislation & jurisprudence
This article reports on the issues relating to obtaining informed, signed consent for a study of paediatric high-dependency care and provides practical guidance on confidentiality for health service researchers. Consent and confidentiality are not new concepts but recent changes to the legislation and guidance offered from nursing and medical regulatory bodies have caused concerns and confusion for researchers with respect to both issues. Balancing health service research and the development of services against the requirements of patients for confidentiality is essential yet challenging. This was a time consuming, costly exercise. Resource implications may ultimately mean that studies which are of benefit to patients in relation to the delivery of their care may not be undertaken. Health professionals need to be continually updated and made aware of the legislation and confidentiality requirements for health service research involving the collection of patient-identifiable details.
2005
Rushforth K; McKinney PA
British Journal Of Nursing
2005
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.12968/bjon.2005.14.9.18079" target="_blank" rel="noreferrer">10.12968/bjon.2005.14.9.18079</a>
Establishing need for palliative care services for children/young people
Child; Female; Humans; infant; Male; Palliative Care; Adult; Infant Mortality; Incidence; adolescent; Preschool; infant; Newborn; cause of death; Epidemiologic Methods; mortality; Child Health Services/organization & administration; Wales/epidemiology
This article describes how epidemiology may be used effectively to provide hard statistical data upon which to justify and base the development of paediatric palliative nursing services within a defined locality. Through an analysis of mortality data this study identified the number of children and young people with life-limited (LL) conditions who met the criteria for paediatric palliative care (PPC) in South Glamorgan. Findings from this were then related to the provision of services, including nursing services, required to meet the PPC needs of children and those of their families within such a population. Outcomes identify the need for a multiprofessional/multiagency approach to care provision, including family nursing, respite and terminal care as well as postbereavement support. This study highlights how epidemiology may be used effectively to identify unmet needs and promote better systems of care delivery. Studies such as this strengthen the argument for nurses to cast aside what has been perceived as a hesitancy to use quantitative methods of research (Bonnell, 1999). Epidemiology, as a methodology, may now be deemed as yet another vital weapon in the nurse researchers' armoury aimed at providing evidence-based health care.
2003
Davies R
British Journal Of Nursing
2003
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.12968/bjon.2003.12.4.11162" target="_blank" rel="noreferrer">10.12968/bjon.2003.12.4.11162</a>
The challenge of transitional care for young people with life-limiting illness
Child; Humans; Palliative Care; Continuity of Patient Care; Nursing Assessment; adolescent; disabled children; Child Health Services/organization & administration; Catastrophic Illness/nursing
Transitional care for young people with life-limiting illness is a particularly complex issue. The process of moving from paediatric to adult services is often fraught and poorly planned. As a result, this can add to the distress experienced by the young people and their families. The ideal would be to have a dedicated service for young adults that bridges the gap in care. The continued slow growth of community children's nursing services, however, highlights the constraints in developing services for a relatively small percentage of the population. Healthcare professionals must recognize the specialist needs of this patient group, and develop strategies to ensure that young people receive the care to which they are entitled.
2004
Maunder EZ
British Journal Of Nursing
2004
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.12968/bjon.2004.13.10.13047" target="_blank" rel="noreferrer">10.12968/bjon.2004.13.10.13047</a>
Death of adolescents: parental grief and coping strategies
Child; Humans; Grief; Adult; Parent-Child Relations; Attitude to Death; adolescent; Adaptation; Psychological; Parents/psychology; Parent caregivers
The death of an adolescent is a particularly complex issue. The process of grieving and coping can be complicated by the tension that may have existed in the parent/child relationship because of the conflict in terms of personal ideology at this stage in the adolescent's development. As a result, parents of adolescent children who die have the potential to experience abnormal grief reactions. Parental coping strategies vary according to the mode of death and outlook adopted by the parents, although some studies suggest parents bereaved of adolescent children do not exhibit marked difference in grieving or coping in comparison to other groups of parents. Healthcare professionals must recognize the specific and special needs of this parent group, and provide appropriate support to minimize the risk of harmful sequelae that may occur as a result of inappropriate and insensitive care.
2001
Davies AM
British Journal Of Nursing
2001
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.12968/bjon.2001.10.20.9365" target="_blank" rel="noreferrer">10.12968/bjon.2001.10.20.9365</a>
The role of the courts in disagreements over the care of seriously ill babies
Experimental Therapy; Hospitalized Child; Legislation And Jurisprudence; Human; Infant; Long Term Care; Newborn; Terminal Care; Treatment Outcome; United Kingdom
Richard Griffith, Senior Lecturer in Health Law at Swansea University, reviews how the courts assist in settling disputes over the care of seriously ill babies and describes the test used to inform decisions about their treatment.
Griffith R
British Journal Of Nursing
2017
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a></a> <a href="http://doi.org/10.12968/bjon.2017.26.15.894" target="_blank" rel="noreferrer">10.12968/bjon.2017.26.15.894</a>