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40
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Dublin Core
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March 2022 List
Text
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March 2022 List
URL Address
<a href="http://doi.org/10.3389/fped.2021.734181" target="_blank" rel="noreferrer noopener">http://doi.org/10.3389/fped.2021.734181</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Out-of-Hospital Emergencies in Children Under Palliative Home Care
Publisher
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Frontiers in Pediatrics
Date
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2021
Subject
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cardiopulmonary resuscitation; do-not-resuscitate order; emergency medical service; palliative home care; pediatric emergencies
Creator
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Hauch H; El Mohaui N; Wolff JEA; Vaillant V; Brill S; Schneck E; Stroter N; Sibelius U; Kriwy P; Berthold D
Description
An account of the resource
Introduction: Specialized palliative home care (SPHC) enables children and adolescents with life-limiting illnesses and complex needs to receive care at home. In addition to controlling symptoms and stabilizing the psychosocial situation, crisis anticipation is a component of SPHC. Since the establishment of the reporting SPHC team, parents have called for additional help from emergency medical services (EMS) in emergency situations with unexpected frequency. Children with life limiting diseases could undergo invasive procedures and unhelpful treatments with uncertain consequences. The questions arose as to which factors led to the involvement of the EMS in a palliative situation, what therapy was performed and what outcome could be reached. Method(s): Records of the pediatric SPHC patients and EMS call-outs in these children of the reporting SPHC-team in the central region of Hesse, Germany (population: 1.1 million) were retrospectively analyzed from 01.11.2014 to 01.05.2021. The causes of the call-outs, the existence of an emergency agreement, the National Advisory Committee for Aeronautics (NACA) score, EMS therapy and outcome were examined. Patient data included age, palliative-justifying diagnosis, duration and intensity of care, place of death and median overall survival (MOS) and palliative SHPC treatment. Result(s): In total, 172 patients were analyzed during the study period. There were 27 EMS calls for a total of 20 patients/families (= EMS group). Palliative illness or a complication was the most frequent cause of call-outs. The patients in the EMS group were significantly less likely to have a DNR order, required more home visits and telephone calls and were under SPHC care for longer. There was a significantly higher proportion of crisis interventions at home visits. The children in the EMS group died less often from the underlying disease. Of the remaining 152 patients (= non-EMS group), a significantly higher proportion had a European home country. Conclusion(s): Despite the introduction of the SPHC, parents still call the EMS. Good cooperation and joint training should be sought to prepare all those involved for future call-outs. Copyright © 2021 Hauch, El Mohaui, Wolff, Vaillant, Brill, Schneck, Stroter, Sibelius, Kriwy and Berthold.
Identifier
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<a href="http://doi.org/10.3389/fped.2021.734181" target="_blank" rel="noreferrer noopener">10.3389/fped.2021.734181</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Berthold D
Brill S
Cardiopulmonary Resuscitation
do-not-resuscitate order
El Mohaui N
emergency medical service
Frontiers in Pediatrics
Hauch H
Kriwy P
March 2022 List
palliative home care
pediatric emergencies
Schneck E
Sibelius U
Stroter N
Vaillant V
Wolff JEA
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
June 2021 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
June 2021 List
URL Address
<a href="http://doi.org/10.3389/fped.2021.654531" target="_blank" rel="noreferrer noopener">http://doi.org/10.3389/fped.2021.654531</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Gastrointestinal Symptoms in Children With Life-Limiting Conditions Receiving Palliative Home Care
Publisher
An entity responsible for making the resource available
Frontiers in Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
The topic of the resource
children; home-based palliative care; constipation; vomiting; symptom burden
Creator
An entity primarily responsible for making the resource
Hauch H; Kriwy P; Hahn A; Dettmeyer R; Zimmer KP; Neubauer B; Brill S; Vaillant V; de Laffolie J; Schaefer K; Tretiakowa I; Hach M; Sibelius U; Berthold D
Description
An account of the resource
Context: Children with life-limiting diseases suffer from gastrointestinal (GI) symptoms. Since the introduction of specialized palliative home care (SPHC) in Germany, it is possible to care for these children at home. In phase 1 of care the aim is to stabilize the patient. In phase 2, terminal support is provided. Objectives: Analysis were performed of the differences between these phases. The causes and modalities/outcome of treatment were evaluated. Methods: A retrospective study was performed from 2014 to 2020. All home visits were analyzed with regard to the abovementioned symptoms, their causes, treatment and results. Results: In total, 149 children were included (45.9% female, mean age 8.17 ± 7.67 years), and 126 patients were evaluated. GI symptoms were common in both phases. Vomiting was more common in phase 2 (59.3 vs. 27.1%; p < 0.001). After therapy, the proportion of asymptomatic children in phase 1 increased from 40.1 to 75.7%; (p < 0.001). Constipation was present in 52.3% (phase 1) and 54.1% (phase 2). After treatment, the proportion of asymptomatic patients increased from 47.3 to 75.7% in phase 1 (p < 0.001), and grade 3 constipation was reduced from 33.9 to 15% in phase 2 (p < 0.05). Conclusion: Painful GI symptoms occur in both palliative care phases but are more common in phase 2. The severity and frequency can usually be controlled at home. The study limitations were the retrospective design and small number of patients, but the study had a representative population, good data quality and a unique perspective on the reality of outpatient pediatric palliative care in Germany.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.3389/fped.2021.654531" target="_blank" rel="noreferrer noopener">10.3389/fped.2021.654531</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Berthold D
Brill S
Children
Constipation
de Laffolie J
Dettmeyer R
Frontiers in Pediatrics
Hach M
Hahn A
Hauch H
home-based palliative care
June 2021 List
Kriwy P
Neubauer B
Schaefer K
Sibelius U
symptom burden
Tretiakowa I
Vaillant V
Vomiting
Zimmer KP