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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Special Edition #2 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Special Edition #2
URL Address
<a href="http://doi.org/10.1177/0269216319900301" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/0269216319900301</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Regret and unfinished business in parents bereaved by cancer: A mixed methods study
Publisher
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Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
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caregivers; decision-making; grief; neoplasm; pediatric; Regret
Creator
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Lichtenthal WG; Roberts KE; Catarozoli C; Schofield E; Holland JM; Fogarty JJ; Coats TC; Barakat LP; Baker JN; Brinkman TM; Neimeyer RA; Prigerson HG; Zaider T; Breitbart W; Wiener L
Description
An account of the resource
BACKGROUND: Prior research has demonstrated that the presence of regret and unfinished business is associated with poorer adjustment in bereavement. Though there is a growing literature on these constructs among caregivers of adult patients, the literature on regret and unfinished business in bereaved parents has been limited. AIM: The aim of this study was to examine regret and unfinished business in parents bereaved by cancer, as well as their associations with caregiving experiences and prolonged grief. DESIGN: This was a cross-sectional mixed methods study that utilized self-report questionnaires with open-ended items. SETTING/PARTICIPANTS: The multisite study took place at a tertiary cancer hospital and pediatric cancer clinical research institution. Participants were 118 parents (mothers = 82, fathers = 36) who lost a child aged 6 months to 25 years to cancer between 6 months and 6 years prior. RESULTS: Results showed that 73% of the parents endorsed regret and 33% endorsed unfinished business, both of which were more common among mothers than fathers (p 0.05). Parents were on average moderately distressed by their regrets and unfinished business, and both regret-related and unfinished business-related distress were associated with distress while caregiving and prolonged grief symptoms. CONCLUSION: Findings have implications for how providers work with families, including increasing treatment decision-making support, supporting parents in speaking to their child about illness, and, in bereavement, validating choices made. Grief interventions that use cognitive-behavioral and meaning-centered approaches may be particularly beneficial.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/0269216319900301" target="_blank" rel="noreferrer noopener">10.1177/0269216319900301</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
2022 Special Edition 2 - Parent Perspectives
Baker JN
Barakat LP
Breitbart W
Brinkman TM
Caregivers
Catarozoli C
Coats TC
Decision-making
Fogarty JJ
Grief
Holland JM
Lichtenthal WG
Neimeyer RA
Neoplasm
Palliative Medicine
Pediatric
Prigerson HG
regret
Roberts KE
Schofield E
Wiener L
Zaider T
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1200/JCO.2014.59.0406" target="_blank" rel="noreferrer">http://doi.org/10.1200/JCO.2014.59.0406</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Mental Health Services for Parents Who Lost a Child to Cancer: If We Build Them, Will They Come?
Publisher
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Journal Of Clinical Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2015
Subject
The topic of the resource
adolescent; Child; Cross-Sectional Studies; Female; Humans; infant; Male; United States; Young Adult; Neoplasms; Adult; Parents; Middle Aged; Health Services Accessibility; cause of death; Age Factors; Psychotherapy; Patient Acceptance of Health Care; Time Factors; Self Report; Self-Help Groups; Preschool; Adaptation; Psychological; Grief; Mental Health Services; Minority Groups; Psychotropic Drugs
Creator
An entity primarily responsible for making the resource
Lichtenthal WG; Corner GW; Sweeney CR; Wiener L; Roberts KE; Baser RE; Li Y; Breitbart W; Kissane DW; Prigerson HG
Description
An account of the resource
PURPOSE: To examine bereavement mental health service use, barriers to use, and factors associated with use in parents bereaved by cancer. PATIENTS AND METHODS: A multicenter, cross-sectional study of 120 parents bereaved by cancer between 6 months and 6 years after their loss was performed. Parents completed self-report assessments of mental health service use and barriers, prolonged grief, depression, anxiety, attachment styles, and sense of meaning by phone, in person, or on their own. RESULTS: Forty-one percent of bereaved parents were currently using mental health services (talk therapy, psychotropic medication, and/or a support group), most commonly within the first 2 years after their loss. Talk therapy was the most frequently used service, although 36% of parents who discontinued therapy did so because it was not helpful. Forty percent of parents who wanted bereavement support reported they were not receiving services. The most common barriers to service use were that it was too painful to speak about the loss (64%) and too difficult to find help (60%). Factors associated with current mental health service use included more recent loss, prior mental health service use, subclinical/increased depression, insecure attachment styles, and a decreased sense of meaning. Minority parents were more likely to have unmet needs than nonminority parents. CONCLUSION: Parents appear to need, want, and often access bereavement mental health services, which could be offered in oncology settings. However, barriers to service use must be addressed, particularly for those with more debilitating grief symptoms and for minorities. High treatment dropout rates suggest the importance of improving retention, training providers, and developing effective grief interventions.
2015-07
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1200/JCO.2014.59.0406" target="_blank" rel="noreferrer">10.1200/JCO.2014.59.0406</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2015
Adaptation
Adolescent
Adult
Age Factors
Backlog
Baser RE
Breitbart W
Cause Of Death
Child
Corner GW
Cross-sectional Studies
Female
Grief
Health Services Accessibility
Humans
Infant
Journal Article
Journal Of Clinical Oncology
Kissane DW
Li Y
Lichtenthal WG
Male
Mental Health Services
Middle Aged
Minority Groups
Neoplasms
Parents
Patient Acceptance of Health Care
Preschool
Prigerson HG
Psychological
Psychotherapy
Psychotropic Drugs
Roberts KE
Self Report
Self-Help Groups
Sweeney CR
Time Factors
United States
Wiener L
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/jpm.2007.9923" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2007.9923</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Burden and benefit of psychosocial research at the end of life
Publisher
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Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Creator
An entity primarily responsible for making the resource
Pessin H; Galietta M; Nelson CJ; Brescia R; Rosenfeld B; Breitbart W
Description
An account of the resource
BACKGROUND: The impact of psychosocial research participation has not been examined systematically in palliative care settings. Concerns are often raised regarding the potential for distress among terminally ill patients. This is particularly true when death and dying are the focus of research. Therefore, it is important to understand the specific ways psychosocial research could potentially harm or be helpful to participants. OBJECTIVE: To assess the burden and benefits of participation in psychosocial research addressing end-of-life issues among patients receiving inpatient palliative care. DESIGN: Sixty-eight terminally ill patients with cancer who had an average life expectancy of less than 2 months, were administered a brief self-report questionnaire to assess whether participation in psychosocial research was burdensome and/or beneficial. The specific factors that contributed to their perceptions were also identified. RESULTS: The majority of patients reported no burden associated with participation (75%) and found the experience as moderately to highly beneficial (68%). Factors most frequently identified as burdensome included the length of the interview (21%), structure of the questionnaires (18%), and difficulty discussing end-of life issues (12%). Although some patients reported some distress while discussing end-of-life issues (19%), few endorsed a high level of distress (6%). Factors most frequently identified as beneficial were the social interaction (75%), sense of contributing to society (57%), and the opportunity to discuss their illness (47%). CONCLUSIONS: Participants in psychosocial end-of-life research are unlikely to experience significant burden from participation and, in fact, may benefit.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/jpm.2007.9923" target="_blank" rel="noreferrer">10.1089/jpm.2007.9923</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Backlog
Breitbart W
Brescia R
Galietta M
Journal Article
Journal of Palliative Medicine
Nelson CJ
Pessin H
Rosenfeld B