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Text
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URL Address
<a href="http://doi.org/10.1111/j.1469-8749.1991.tb05110.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1469-8749.1991.tb05110.x</a>
Dublin Core
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Title
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Cornerstone care for families of children with life-threatening illness.
Publisher
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Developmental Medicine And Child Neurology
Date
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1991
Subject
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Child; Humans; Grief; Professional-Family Relations; Longitudinal Studies; Sick Role; Continuity of Patient Care; Hospices; Adaptation; Psychological; patient care team; Family/psychology; social support; Terminal Care/psychology; Home Nursing/psychology; Brain Diseases/psychology/therapy; Neuromuscular Diseases/psychology/therapy; Public Assistance
Creator
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Woolley H; Stein A; Forrest GC; Baum JD
Description
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Forty-five families of children with life-threatening illnesses for up to 10 years were interviewed. The children required many medical disciplines, as well as social, educational and material provisions, and parents described the complex and often distressing job of obtaining that help. They were asked whether they regarded anyone as their co-ordinating cornerstone carer and which qualities of care they most valued. Over three-quarters identified one or more professionals as their cornerstone carer, the most common being paediatricians, domiciliary paediatric nurses and social workers. Nearly a quarter of the families reported not having a cornerstone carer. The ingredients of care especially valued by the parents are described. Families may be better helped and services more rationally used where a cornerstone carer gives support and helps to co-ordinate care in a way that leaves families still feeling in control of their own lives. The issue is raised as to whether patient need or cost/service limitation will be the primary determinant of the way this care is delivered in Britain.
1991
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1469-8749.1991.tb05110.x" target="_blank" rel="noreferrer">10.1111/j.1469-8749.1991.tb05110.x</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1991
Adaptation
Backlog
Baum JD
Brain Diseases/psychology/therapy
Child
Continuity Of Patient Care
Developmental Medicine and Child Neurology
Family/psychology
Forrest GC
Grief
Home Nursing/psychology
Hospices
Humans
Journal Article
Longitudinal Studies
Neuromuscular Diseases/psychology/therapy
Patient Care Team
Professional-family Relations
Psychological
Public Assistance
Sick Role
Social Support
Stein A
Terminal Care/psychology
Woolley H