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40
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/1074840704272956" target="_blank" rel="noreferrer">http://doi.org/10.1177/1074840704272956</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The search for social safety and comfort in families raising children with complex chronic conditions
Publisher
An entity responsible for making the resource available
Journal Of Family Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Child; Female; Humans; Male; United States; Adult; Interpersonal Relations; Social Adjustment; Family Nursing; Preschool; Adaptation; Psychological; Family/psychology; Parent caregivers; Chronic Disease/nursing/psychology; Developmental Disabilities/nursing/psychology; Leisure Activities
Creator
An entity primarily responsible for making the resource
Rehm RS; Bradley JF
Description
An account of the resource
Social consequences of raising children who were medically fragile and developmentally delayed (MF/DD) were explored in an ethnographic study of 20 families with school-age children. The overarching theme was the families' search for safety and comfort in social situations. Major categories comprising this theme included the need to anticipate and plan for the child's care; overcoming environmental, child-related, and attitudinal barriers; and finding social activities that were comfortable for all members of the family. When this search was successful, families could relax, and all members could participate in a variety of social encounters and activities; but when safety and comfort could not be achieved, families were likely to limit social activities or split the family so that the child who was MF/DD could be cared for while other family members participated in social events.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/1074840704272956" target="_blank" rel="noreferrer">10.1177/1074840704272956</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Adaptation
Adult
Backlog
Bradley JF
Child
Chronic Disease/nursing/psychology
Developmental Disabilities/nursing/psychology
Family Nursing
Family/psychology
Female
Humans
Interpersonal Relations
Journal Article
Journal Of Family Nursing
Leisure Activities
Male
Parent caregivers
Preschool
Psychological
Rehm RS
Social Adjustment
United States
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/1049732305276754" target="_blank" rel="noreferrer">http://doi.org/10.1177/1049732305276754</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Normalization in families raising a child who is medically fragile/technology dependent and developmentally delayed
Publisher
An entity responsible for making the resource available
Qualitative Health Research
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
U.S. Gov't; Adaptation; PedPal Lit; Extramural Research Support; N.I.H.; Non-U.S. Gov't Research Support; but it has not been examined in families whose children have both complex physical and developmental disabilities. Developmental delays compounded the effects of the children's physical chronic conditions; P.H.S. Schools; parents recognized normal and positive aspects of their lives while acknowledging the profound challenges that their families faced. Parents concluded that it was possible to have a good life that was not necessarily normal by usual standards .; Preschool Chronic Disease Comparative Study Cost of IllnessDevelopmental DisabilitiesDisabled Children Family/psychology Humans Qualitative Research Research Support; Psychological Caregivers/psychology ChildChild Rearing Child; severely affecting how families organized and managed their daily lives; with the result that families did not fit currently established attributes of normalization. Instead
Creator
An entity primarily responsible for making the resource
Rehm RS; Bradley JF
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/1049732305276754" target="_blank" rel="noreferrer">10.1177/1049732305276754</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2005
2005
Adaptation
Backlog
Bradley JF
but it has not been examined in families whose children have both complex physical and developmental disabilities. Developmental delays compounded the effects of the children's physical chronic conditions
Extramural Research Support
Journal Article
N.I.H.
Non-U.S. Gov't Research Support
P.H.S. Schools
parents recognized normal and positive aspects of their lives while acknowledging the profound challenges that their families faced. Parents concluded that it was possible to have a good life that was not necessarily normal by usual standards .
PedPal Lit
Preschool Chronic Disease Comparative Study Cost of IllnessDevelopmental DisabilitiesDisabled Children Family/psychology Humans Qualitative Research Research Support
Psychological Caregivers/psychology ChildChild Rearing Child
Qualitative Health Research
Rehm RS
severely affecting how families organized and managed their daily lives
U.S. Gov't
with the result that families did not fit currently established attributes of normalization. Instead
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.pedn.2006.02.003" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.pedn.2006.02.003</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Social interactions at school for children who are medically fragile and developmentally delayed
Publisher
An entity responsible for making the resource available
Journal Of Pediatric Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Creator
An entity primarily responsible for making the resource
Rehm RS; Bradley JF
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.pedn.2006.02.003" target="_blank" rel="noreferrer">10.1016/j.pedn.2006.02.003</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2006
2006
Backlog
Bradley JF
Journal Article
Journal of Pediatric Nursing
Rehm RS