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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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September 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September List 2023
URL Address
<a href="http://doi.org/10.3389/fped.2023.1197360" target="_blank" rel="noreferrer noopener"> http://doi.org/10.3389/fped.2023.1197360</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Clinician perception of care at the end of life in a quaternary neonatal intensive care unit
Publisher
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Frontiers in Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
Infant, Newborn; palliative care; symptom management; Intensive Care Units, Neonatal; Intensive Care Units; Nicu; neonatal death; end of life care; quality of death
Creator
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Imai L; Gray MM; Kim BJH; Lyle ANJ; Bock A; Weiss EM
Description
An account of the resource
INTRODUCTION: Care for neonates at the end of life (EOL) is often challenging for families and medical teams alike, performed suboptimally, and requires an experienced and compassionate clinician. Much literature exists on adult and pediatric EOL care, but limited studies examine the neonatal process. METHODS: We aimed to describe clinicians' experiences around EOL care in a single quaternary neonatal intensive care unit as we implemented a standard guideline using the Pediatric Intensive Care Unit-Quality of Dying and Death 20 tool. RESULTS: Surveys were completed by 205 multidisciplinary clinicians over three time periods and included 18 infants at EOL. While most responses were high, a meaningful minority were below goal (<8 on 0-10 scale) for troubling symptom management, conflict between parents and staff, family access to resources, and parent preparation of symptoms. Comparison between Epochs revealed improvement in one symptom management and four communication categories. Satisfaction scores related to education around EOL were better in later Epochs. Neonatal Pain, Agitation, and Sedation Scale scores were low, with few outliers. DISCUSSION: These findings can guide those aiming to improve processes around neonatal EOL by identifying areas with the greatest challenges (e.g., conflict management) and areas that need further study (e.g., pain management around death).
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.3389/fped.2023.1197360" target="_blank" rel="noreferrer noopener">10.3389/fped.2023.1197360</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2023
Bock A
End Of Life Care
Frontiers in Pediatrics
Gray MM
Imai L
Infant, Newborn
Intensive Care Units
Intensive Care Units, Neonatal
Kim BJH
Lyle ANJ
Neonatal Death
Nicu
Palliative Care
Quality Of Death
September List 2041
Symptom Management
Weiss EM
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1186/1471-2288-8-50" target="_blank" rel="noreferrer">http://doi.org/10.1186/1471-2288-8-50</a>
<a href="http://www.biomedcentral.com/1471-2288/8/50" target="_blank" rel="noreferrer">http://www.biomedcentral.com/1471-2288/8/50</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Vignette studies of medical choice and judgement to study caregivers' medical decision behaviour: systematic review
Publisher
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Bmc Medical Research Methodology
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Humans; Choice Behavior; Research Design; Patient Satisfaction; Caregivers/psychology; decision making; Statistical; Students; Data Interpretation; Physicians/psychology; Nurses/psychology; Medical/psychology; Judgment
Creator
An entity primarily responsible for making the resource
Bachmann LM; Mühleisen A; Bock A; ter Riet G; Held U; Kessels AGH
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1186/1471-2288-8-50" target="_blank" rel="noreferrer">10.1186/1471-2288-8-50</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2008
2008
Bachmann LM
Backlog
Bmc Medical Research Methodology
Bock A
Caregivers/psychology
Choice Behavior
Data Interpretation
Decision Making
Held U
Humans
Journal Article
Judgment
Kessels AGH
Medical/psychology
Mühleisen A
Nurses/psychology
Patient Satisfaction
Physicians/psychology
Research Design
statistical
Students
ter Riet G