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40
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2017 List
Notes
<p>Using Smart Source Parsing 1-8), Date of Publication: 29 Jun 2017</p>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Pediatric Cardiology Provider Attitudes About Palliative Care: A Multicenter Survey Study
Publisher
An entity responsible for making the resource available
Pediatric Cardiology.
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Cardiologist; Controlled Study; Heart Failure; Palliative Therapy; Pediatric Cardiology; Terminal Care; Cardiac Surgeon; Child; Clinical Study; Clinical Trial; Controlled Clinical Trial; Female; Human; Intensivist; Life Expectancy; Male; Medical School; Multicenter Study; Skill
Creator
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Balkin E M; Kirkpatrick J N; Kaufman BD; Swetz K M; Sleeper L A; Wolfe J; Blume E D
Description
An account of the resource
While availability of palliative care consultation for children with advanced heart disease increases, little is known about cardiologist attitudes towards palliative care. We sought to describe perspectives of cardiologists regarding palliative care and to characterize their perceived competence in palliative care concepts. A cross-sectional survey of pediatric cardiologists and cardiac surgeons from 19 pediatric medical centers was performed. Overall response rate was 31% (183/589). Respondents had a median of 18 years of experience since medical school (range 2-49) and most practiced at academic centers (91%). Sixty-percent of respondents felt that palliative care consultations occur "too late" and the majority (85%) agreed that palliative care consultations are helpful. Barriers to requesting palliative care consultation were most frequently described as "referring to palliative care services too early will undermine parents' hope" (45%) and "concern that parents will think I am giving up on their child" (56%). Only 33% of cardiologists reported feeling "very" or "moderately" competent in prognosticating life expectancy while over 60% felt competent caring for children with heart disease around end of life, and nearly 80% felt competent discussing goals of care and code status. Greater perceived competence was associated with subspecialty (heart failure/intensivist vs. other) (OR 3.6, 95% CI 1.6-8.1, p = 0.003) and didactic training (OR 6.27, 95% CI 1.8-21.8, p = 0.004). These results underscore the need for further training in palliative care skills for pediatric cardiologists. Enhancing palliative care skills among cardiologists and facilitating partnership with subspecialty palliative care teams may improve overall care of children with advanced heart disease.
Identifier
An unambiguous reference to the resource within a given context
10.1007/s00246-017-1663-0
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Balkin E M
Blume E D
Cardiac Surgeon
Cardiologist
Child
Clinical Study
Clinical Trial
Controlled Clinical Trial
Controlled Study
Female
Heart Failure
Human
Intensivist
Kaufman BD
Kirkpatrick J N
Life Expectancy
Male
Medical School
Multicenter Study
Palliative Therapy
Pediatric Cardiology
Pediatric cardiology.
September 2017 List
Skill
Sleeper L A
Swetz K M
Terminal Care
Wolfe J
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
November 2017 List
Notes
<p>1873-6513<br />Marcus, Katherine L<br />Balkin, Emily M<br />Al-Sayegh, Hasan<br />Guslits, Elyssa<br />Blume, Elizabeth D<br />Ma, Clement<br />Wolfe, Joanne<br />Journal Article<br />United States<br />J Pain Symptom Manage. 2017 Sep 5. pii: S0885-3924(17)30463-3. doi: 10.1016/j.jpainsymman.2017.08.033.</p>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Patterns and Outcomes of Care in Children with Advanced Heart Disease Receiving Palliative Care Consultation
Publisher
An entity responsible for making the resource available
Journal Of Pain And Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Advanced Heart Disease; Goals Of Care; Pediatric End-of-life Care; Pediatric Palliative Care
Creator
An entity primarily responsible for making the resource
Marcus KL; Balkin E M; Al-Sayegh H; Guslits E; Blume E D; Ma C; Wolfe J
Description
An account of the resource
CONTEXT: While access to subspecialty pediatric palliative care (PPC) is increasing, little is known about the role of PPC for children with advanced heart disease (AHD). OBJECTIVES: To examine features of subspecialty PPC involvement for children with AHD. METHODS: Retrospective single-institution medical record review of patients with a primary diagnosis of AHD for whom the PPC team was initially consulted between 2011 and 2016. RESULTS: Among 201 patients, 87% had congenital/structural heart disease, the remainder having acquired/non-structural heart disease. Median age at initial PPC consultation was 7.7 months (range 1 day-28.8 years). Of the 92 patients who were alive at data collection, 73% had received initial consultation over one year prior. Most common indications for consultation were goals of care (80%) and psychosocial support (54%). At initial consultation, most families (67%) expressed that their primary goal was for their child to live as long and as comfortably as possible. Among deceased patients (n=109), median time from initial consultation to death was 33 days (range 1 day-3.6 years), and children whose families expressed that their primary goal was for their child to live as comfortably as possible were less likely to die in the intensive care unit (p=0.03) and more likely to die in the setting of comfort care or withdrawal of life-sustaining interventions (p=0.008). CONCLUSION: PPC involvement for children with AHD focuses on goals of care and psychosocial support. Findings suggest that PPC involvement at end of life supports goal-concordant care. Further research is needed to clarify the impact of PPC on patient outcomes.
Identifier
An unambiguous reference to the resource within a given context
10.1016/j.jpainsymman.2017.08.033
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Advanced Heart Disease
Al-Sayegh H
Balkin E M
Blume E D
Goals Of Care
Guslits E
Journal of Pain and Symptom Management
Ma C
Marcus KL
November 2017 List
Pediatric End-of-life Care
Pediatric Palliative Care
Wolfe J