1
40
1
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1093/jncimonographs/lgh007" target="_blank" rel="noreferrer">http://doi.org/10.1093/jncimonographs/lgh007</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Palliative care in children with cancer: which child and when?
Publisher
An entity responsible for making the resource available
Journal Of The National Cancer Institute. Monographs
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Child; Humans; Palliative Care; quality of life; Preschool; Non-U.S. Gov't; P.H.S.; Research Support; U.S. Gov't; Psychological; Stress; caregivers; Neoplasms/complications/therapy; Biomedical Research/trends; Medical Oncology/education/standards; Pediatrics/education/standards
Creator
An entity primarily responsible for making the resource
Harris MB
Description
An account of the resource
At a time of increasing interest in palliative care in pediatrics, pediatric oncology programs may be failing to deliver adequate palliation to children with cancer. In a recent study, parents of children who died on a pediatric oncology service reported that despite treatment at the end of life, their children's suffering was not adequately relieved and that parents were more likely than caregivers to recognize their children's suffering. Why do pediatric oncologists fail? First, death in children from cancer is a rare event. Second, few prospective trials in the field of pediatric palliative care describe and quantify symptoms during cure-directed care or at the end of life. This leads to a lack of evidence-based practice and forces the clinician to use personal experience and trial-by-error medical care. Third, pediatric oncologists and those charged with developing pediatric palliative care programs must deal with the different physiologic and developmental stages encountered while caring for infants, children, and adolescents. Fourth, education is needed for pediatric oncology caregivers in many areas of palliative care. Finally, reimbursement issues surround the palliative care field and are a major hindrance in developing effective integrated palliative care teams. These factors have also made it difficult to perform palliative care research in children. When discussing palliative care in children with cancer, where few die but many suffer, a paradigm shift must occur that does not equate palliative care with end-of-life care. A model on how we might make the transition from symptom control that we should offer to every patient to end-of-life care is discussed.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1093/jncimonographs/lgh007" target="_blank" rel="noreferrer">10.1093/jncimonographs/lgh007</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Backlog
Biomedical Research/trends
Caregivers
Child
Harris MB
Humans
Journal Article
Journal Of The National Cancer Institute. Monographs
Medical Oncology/education/standards
Neoplasms/complications/therapy
Non-U.S. Gov't
P.H.S.
Palliative Care
Pediatrics/education/standards
Preschool
Psychological
Quality Of Life
Research Support
Stress
U.S. Gov't