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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.clon.2004.02.003" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.clon.2004.02.003</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
For purposes of research, palliative care patients should not be considered a vulnerable population
Publisher
An entity responsible for making the resource available
Clinical Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Humans; Guidelines as Topic; Patient Advocacy; Terminology as Topic; Ethics; Medical; Death and Euthanasia; Biomedical and Behavioral Research; Multi-site Ethics; Neoplasms/therapy; Biomedical Research/ethics; Palliative Care/ethics/trends; Prejudice; Vulnerable Populations
Creator
An entity primarily responsible for making the resource
Berry SR
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.clon.2004.02.003" target="_blank" rel="noreferrer">10.1016/j.clon.2004.02.003</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2004
2004
Backlog
Berry SR
Biomedical and Behavioral Research
Biomedical Research/ethics
Clinical Oncology
Death and Euthanasia
Ethics
Guidelines As Topic
Humans
Journal Article
Medical
Multi-site Ethics
Neoplasms/therapy
Palliative Care/ethics/trends
Patient Advocacy
Prejudice
Terminology as Topic
Vulnerable Populations
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1191/0269216303pm786oa" target="_blank" rel="noreferrer">http://doi.org/10.1191/0269216303pm786oa</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Palliative care research protocols: a special case for ethical review?
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Humans; Attitude of Health Personnel; Research; Palliative Care/ethics; Ethics Committees; Multi-site Ethics; Biomedical Research/ethics; Multicenter Studies as Topic
Creator
An entity primarily responsible for making the resource
Stevens T; Wilde D; Paz S; Ahmedzai SH; Rawson A; Wragg D
Description
An account of the resource
Between October 2001 and May 2002 the Chairperson and Vice-Chairperson of each Multicentre Research Ethics Committee (MREC) in England, Wales and Scotland took part in a semi-structured interview to ascertain the attitudes of MRECs to palliative care research. Interviews were transcribed and analysed using a grounded theory approach. Most respondents said each protocol was reviewed on its own merits, according to broad ethical principles, but were equivocal as to whether palliative care protocols posed particular or different challenges compared to those from other specialties. Respondents said they reviewed only a small number of palliative care protocols, and that they were less experienced with some of the study methods utilized, particularly qualitative designs. Four main themes emerged from the analysis. Respondents expressed concerns about the protocol itself--in regard to safeguarding the principles of autonomy and justice. There were concerns about how the research would be carried out, especially the protection of patients and the influence and input of the researcher in the process. The third theme concerned the impact of the research on the participant, particularly intrusion, potential distress and the existence of support mechanisms. Fourthly, respondents identified patient groups receiving palliative care (children, the elderly, bereaved families, patients in intensive therapy units, and those from ethnic groupings), who they considered might be particularly vulnerable.
2003
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1191/0269216303pm786oa" target="_blank" rel="noreferrer">10.1191/0269216303pm786oa</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
Ahmedzai SH
Attitude Of Health Personnel
Backlog
Biomedical Research/ethics
Ethics Committees
Humans
Journal Article
Multi-site Ethics
Multicenter Studies as Topic
Palliative Care/ethics
Palliative Medicine
Paz S
Rawson A
Research
Stevens T
Wilde D
Wragg D