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Dublin Core
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May 2019 List
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May 2019 List
URL Address
<a href="http://doi.org/10.1186/s13030-019-0147-2" target="_blank" rel="noreferrer noopener">http://doi.org/10.1186/s13030-019-0147-2</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Psychosocial factors related with caregiver burden among families of children with chronic conditions
Publisher
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BioPsychoSocial Medicine
Date
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2019
Subject
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Family support; Caregiver burden; affiliations.; Bioseguridad] of the Hospital Infantil de Mexico Federico Gomez National; Ethics and Biosafety Commission [Comisiones de Investigacion Etica y; Family caregivers; Family functioning; have given their approval for the article to be published.Springer Nature remains; informed consent form.The authors declare that they have no competing interests.; Institute of Health. All participants signed an informed consent form.Consent to; neutral with regard to jurisdictional claims in published maps and institutional; Pediatric chronic diseases; Psychosocial factors; publish this study has been provided and all participants have signed an; Social support networks; Sociodemographic variables; Well-being
Creator
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Toledano-Toledano F; Dominguez-Guedea M T
Identifier
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<a href="http://doi.org/10.1186/s13030-019-0147-2" target="_blank" rel="noreferrer noopener">10.1186/s13030-019-0147-2</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
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Background: The impact of looking after children who live with complex chronic conditions is a growing public health issue. However, it is unclear whether sociodemographic and psychosocial variables can be used to predict the burden on the caregiver and how the profiles of families of children with chronic diseases are defined and structured. The objective of this study was to identify multivariate sociodemographic and psychosocial variables as well as sociocultural and familial factors to analyze the caregiver burden of family caregivers of children with chronic diseases. Methods: A cross-sectional study was conducted involving 416 family caregivers of children with chronic diseases at the National Institute of Health in Mexico City. The participants responded to a questionnaire on sociodemographic variables and a battery of 7 instruments that examined caregiver burden, family support, parental stress, anxiety, support networks, family functioning, historic-psycho-socio-cultural premises and the World Health Organization Well-Being Index. Results: A multivariate analysis using hierarchical multiple regression models showed that the variables included in the psychosocial and sociodemographic profile as a whole explained 40% of the variance in caregiver burden, taking sociocultural historical premises, stressors and anxiety into account as positive individual predictors. Negative individual predictors for caregiver burden included upper secondary education, social support networks, family support, family functioning and well-being. The sociodemographic profiles of family caregivers were as follows: female (81.7%); mean age, 31.7 years (standard deviation [SD], 8 years); married (79.3%); nuclear family (60%); basic education (62.7%); unpaid work (66.3%); and a daily household income of approximately 4 USD (61.1%). Conclusions: The caregiver burden of family caregivers of children with chronic diseases is defined and structured based on personal, family, and sociocultural factors. These features provide evidence to conduct research and implement intervention strategies with regard to families facing adversity, risk and vulnerability during a child's disease.
2019
affiliations.
BioPsychoSocial Medicine
Bioseguridad] of the Hospital Infantil de Mexico Federico Gomez National
Caregiver Burden
Dominguez-Guedea M T
Ethics and Biosafety Commission [Comisiones de Investigacion Etica y
Family Caregivers
family functioning
family support
have given their approval for the article to be published.Springer Nature remains
informed consent form.The authors declare that they have no competing interests.
Institute of Health. All participants signed an informed consent form.Consent to
May 2019 List
neutral with regard to jurisdictional claims in published maps and institutional
Pediatric chronic diseases
Psychosocial Factors
publish this study has been provided and all participants have signed an
Social support networks
Sociodemographic variables
The authors declare that we have no conflicts of interest. All of the authors
Toledano-Toledano F
Well-being