1
40
1
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
November 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
November 2020 List
URL Address
<a href="http://doi.org/10.1097/NJH.0000000000000685" target="_blank" rel="noreferrer noopener">http://doi.org/10.1097/NJH.0000000000000685</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Palliative Care Knowledge and Characteristics in Caregivers of Chronically Ill Children
Publisher
An entity responsible for making the resource available
Journal of hospice and palliative nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
children with special health care needs; complex chronic conditions; palliative care; pediatrics
Creator
An entity primarily responsible for making the resource
Johnston E E; Currie E R; Chen Y; Kent E E; Ornstein K A; Bhatia S; Dionne-Odom J N; Rosenberg A R
Description
An account of the resource
There is a growing population of children with complex chronic conditions (CCCs) whose caregivers would benefit from palliative care (PC). However, little is known about caregivers' PC awareness. We aimed to describe PC awareness among caregivers of children with CCCs and identify factors associated with lack of PC awareness. We used the National Cancer Institute's national Health Information National Trends Survey 2018 data to determine the percentage of caregivers of ill children who have PC awareness. After matching, caregiver PC awareness was compared with that of (1) the general survey population, (2) other caregivers, and (3) caregivers not caring for children. We used multivariable regression to determine factors associated with lack of PC awareness. Of 131 caregivers, 60% had "never heard of" PC. Caregivers of children were no more likely to have heard of PC than the general survey population (P = .76), noncaregivers (P = .97), or caregivers of nonchildren (P = .13). Caregivers younger than 40 years and without a college degree were less likely to have PC awareness than their peers. Most caregivers of ill children have no PC awareness, with no more PC awareness than the general population. Nurses caring for children with CCCs can help educate families and other health care team members about PC.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/NJH.0000000000000685" target="_blank" rel="noreferrer noopener">10.1097/NJH.0000000000000685</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Bhatia S
Chen Y
Children With Special Health Care Needs
Complex Chronic Conditions
Currie E R
Dionne-Odom J N
Johnston E E
Journal of Hospice and Palliative Nursing
Kent E E
November 2020 List
Ornstein K A
Palliative Care
Pediatrics
Rosenberg A R